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Discursive Meaning of Hope for Older Persons with Advanced Cancer and their Caregivers*

Published online by Cambridge University Press:  24 August 2010

Wendy Duggleby*
Affiliation:
University of Alberta
Lorraine Holtslander
Affiliation:
University of Saskatchewan
Megan Steeves
Affiliation:
University of Saskatchewan
Shanda Duggleby-Wenzel
Affiliation:
Speech Language Pathologist, Edmonton
Shannon Cunningham
Affiliation:
University of Guelph
*
Correspondence and requests for offprints should be sent to / La correspondance et les demandes de tirés-à-part doivent être adressées à: Wendy Duggleby, Ph.D., Nursing Research Chair Aging and Quality of Life, Faculty of Nursing University of Alberta, 3rd Floor Clinical Sciences Building, Edmonton, AB T6G 2G3 (Wendy.duggleby@ualberta.ca)

Abstract

This study used van Dijk’s critical-discourse approach to explore the current societal discourse on hope and to explore the hope of older terminally ill cancer patients, their significant others and primary nurse. Forty-three newspaper articles dealing with hope and cancer were collected and analyzed to explore how hope is socially constructed by print media. Individual face-to-face, qualitative, open-ended interviews were conducted with three triads, each consisting of an older palliative cancer patient, a significant other, and a primary nurse. The predominant discourse of hope and cancer in the newspaper articles was considered ageist, conveying the message that only one legitimate hope existed for persons with cancer: hope for a cure. The study findings suggested that this message caused confusion and distress for the patients, significant others, and their primary nurses because their own discourses of hope were focused on comfort, peace, and maintaining relationships at the end of life.

Résumé

Cette étude a utilisé l’approche du discours critique de van Dijik afin d’explorer le discours sociétaux actuel sur l’espoir, et d’explorer l’espoir des patients agées avec cancer terminale, leurs soignants et leurs infirmières primaires. Quarante-trois articles de presse traitant de l’espoir et de cancer ont été recueillies et analysées pour explorer comment l’espoir est socialement construite par les médias de presse. Des entrevues individuelles de face à face, qualitatives et ouvertes ont été menées avec trois triades, constitués d’un patient de cancer palliatif âgé, un conjoint, et une infirmière primaire. Le discours prédominant de l’espoir et de cancer dans les articles de presse a été considérée comme discriminatoire à raison de l’âge; il a transmit le message que le seul espoir légitime qui existe pour les personnes atteintes d’un cancer est d’espérer un remède. Ce message a causé de la confusion et de la détresse pour les patients, leurs conjoints, et leur infirmières primaires, étant donné que leurs propre discours d’espoir ont été axés sur le confort, la paix et le maintien des relations à la fin de vie.

Type
Special SEDAP Section: Canada’s Vulnerable Older Populations / Section spéciale SEDAP: Les Populations âgées vulnérables du Canada: Articles
Copyright
Copyright © Canadian Association on Gerontology 2010

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Footnotes

*

This study was supported by a grant from the University of Saskatchewan President’s Social Sciences and Humanities Research Council grant SSHR We thank Laurie Roy and Sunrise Health Region patients, families, and staff for facilitating this study.

References

Baran, S., & Davis, D. (2006). Mass communication theory: Foundations, ferment and future (4th ed.). Belmont, CA: Thomson Wadsworth.Google Scholar
Baumann, S.L. (2004). Similarities and differences in experiences of hope. Nursing Science Quarterly, 17(4), 339344.Google Scholar
Bays, C. (2001). Older adults’ descriptions of hope after a stroke. Rehabilitation Nursing, 26(1), 1827.CrossRefGoogle ScholarPubMed
Benzein, E., Norberg, A., & Saveman, B. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15, 117226.CrossRefGoogle ScholarPubMed
Borneman, T., Stahl, C., Ferrell, B.R., & Smith, D. (2002). The concept of hope in family caregivers of cancer patients at home. Journal of Hospice and Palliative Nursing, 4(1), 2133.Google Scholar
Canadian Cancer Society. (2005). Canadian Cancer Statistics: Canadian Cancer Society. Toronto: Canadian Cancer SocietyGoogle Scholar
Canter, D. (2006). Cancer, quackery and the vernacular meanings of hope in 1950’s America. Journal of the History of Medicine and Allied Sciences, 61(3). 324368.CrossRefGoogle Scholar
Cutcliffe, J., & Herth, K. (2002). Concept of hope. The concept of hope in nursing 1: Its origins, background and nature. British Journal of Nursing, 11(12), 832840.CrossRefGoogle ScholarPubMed
Dahman, N.S., & Lozma, R. (Eds.). (2009) Media takes on aging. Sacramento CA: International Longevity Center USA and Aging Services of California.Google Scholar
Duggleby, W., Degner, L., Williams, A., Wright, K., Cooper, D., Popkin, D., et al. . (2007). Living with hope: An initial evaluation of a psychosocial hope intervention for older palliative home care patients. Journal of Pain and Symptom Management, 33(3), 247257.CrossRefGoogle ScholarPubMed
Duggleby, W., & Holtslander, L., Kylma, J., Duncan, V., Hammond, C., & Williams, A. (2010). Metasynthesis of the hope experience of family caregivers of persons with chronic illness. Qualitative Health Research. 20(2), 148158.CrossRefGoogle ScholarPubMed
Duggleby, W., & Raudonis, B. (2006). Dispelling myths about palliative care and older adults. Seminars in Oncology Nursing, 22(1), 5864.CrossRefGoogle ScholarPubMed
Duggleby, W., & Wright, K. (2004). Elderly palliative care cancer patients’ descriptions of hope-fostering strategies. International Journal of Palliative Nursing, 10(7), 352359.CrossRefGoogle ScholarPubMed
Duggleby, W., & Wright, K. (2005). Transforming hope: How elderly palliative patients’ live with hope. Canadian Journal of Nursing Research, 37(2), 7084.Google ScholarPubMed
Duggleby, W., & Wright, K. (2007). The hope of professional caregivers caring for persons at the end of life. Journal of Hospice and Palliative Nursing, 9(1), 4249.CrossRefGoogle Scholar
Eliott, J.A., & Olver, I. (2007). Hope and hoping in the talk of dying cancer patients. Social Science and Medicine, 64, 138149.CrossRefGoogle ScholarPubMed
Elliot, J.A., & Olver, I. (2002). The discursive properties of “hope”: A qualitative analysis of cancer patient’s speech. Qualitative Health Research, 12(2), 173193.Google Scholar
Fehring, R.J., Miller, J.F., & Shaw, C. (1997). Spiritual well-being, religiosity, hope, depression, and other mood states in elderly people coping with cancer. Oncology Nursing Forum, 24(4), 663671.Google ScholarPubMed
Good, M., Good, B.J., Schaffer, C., & Lind, S.E. (1990). American oncology and the discourse on hope. Culture, Medicine & Psychiatry, 14(1), 5979.CrossRefGoogle Scholar
Hall, B. (1990). The struggle of the diagnosed terminally ill persons to maintain hope. Nursing Science Quarterly, 4(3), 177184.Google Scholar
Herth, K. (1990). Fostering hope in terminally ill people. Journal of Advanced Nursing, 15, 12501259.Google Scholar
Herth, K. (1993). Hope in older adults in community and institutional settings. Issues in Mental Health Nursing, 14, 139156.Google Scholar
Lahey, M., & Bloom, L. (1998). Language disorders and language development. New York: Allen & Bacon.Google Scholar
Leader Post, Regina, Sasketchewan, May 25, 2006, p.g. B2.Google Scholar
Little, M., & Sayers, E.J. (2004). While there’s life. …hope and the experience of cancer. Social Science and Medicine, 59, 13291337.Google Scholar
Nelson, T. (2005). Ageism: Prejudice against our feared future self. Journal of Social Issues, 61(2), 207221.CrossRefGoogle Scholar
Rozanova, J., & Northcott, H.C. (2006). Seniors and portrayals of intra-generational and inter-generational inequality in the Globe and Mail. Canadian Journal on Aging, 25(4), 373386.CrossRefGoogle ScholarPubMed
Seale, C. (2003). Health and media: An overview. Sociology of Health and Illness, 25(6), 513531.CrossRefGoogle ScholarPubMed
Teo, P. (2000). Racism in the news: A critical discourse analysis of news reporting in two Australian newspapers. Discourse & Society, 11(1), 749.Google Scholar
Touhy, T.A. (2001). Nurturing hope and spirituality in the nursing home. Holistic Nursing Practice, 15(4), 4556.CrossRefGoogle ScholarPubMed
van Dijk, T.A. (1991). The interdisciplinary study of news as discourse. In Jensen, K. & Janowski, N. (Eds.), A handbook for qualitative methodologies for mass communication research (pp. 108120). London: Routledge.Google Scholar
Westburg, N. (2003). Hope, laughter and humor in residents and staff at an assisted living facility. Journal of Mental Health Counselling, 25(1), 1632.Google Scholar