Skip to main content Accessibility help

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
×
Hostname: page-component-76fb5796d-dfsvx Total loading time: 0 Render date: 2024-04-29T22:31:43.041Z Has data issue: false hasContentIssue false

13 - The Consumer Recovery Movement in the United States

Historical Considerations, Key Concepts, and Next Steps for Action

from Part III - Community Psychology in Action

Published online by Cambridge University Press:  16 December 2021

By
Maria Guevara Carpio ,
Naomi Chee ,
Manjari Swarna  and
Caroline S. Clauss-Ehlers
Edited by
Caroline S. Clauss-Ehlers
Caroline S. Clauss-Ehlers
Affiliation:
Long Island University, New York
Get access

Summary

This chapter focuses on the consumer recovery movement. A brief history of key events that have supported the consumer recovery movement in the USA is provided. A definition of recovery is provided along with consideration of the Substance Abuse and Mental Health Services Administration’s (SAMHSA) guiding principles for recovery. Mental health-related stigma is discussed as a barrier to the consumer recovery movement and the access and utilization of mental health services in general. An interview with the Director of The Carter Center’s Mental Health Program is provided to demonstrate programmatic examples of the consumer recovery movement in action. The chapter concludes with a discussion of key current policies and future directions for research and practice.

Keywords

Consumer recovery movementstigmarecoveryclubhouse modelpolicyThe Carter Center Mental Health Program
Type
Chapter
Information
The Cambridge Handbook of Community Psychology
Interdisciplinary and Contextual Perspectives
 , pp. 266 - 288
Publisher: Cambridge University Press
Print publication year: 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Ahmed, A. O., Buckley, P. F., & Mabe, P. A. (2012). Recovery: International efforts at implementing and advancing the recovery model. International Psychiatry: Bulletin of the Board of International Affairs of the Royal College of Psychiatrists, 9(1), 4–6.Google Scholar
Americans with Disabilities Act. (1990). 42 U.S.C. §§ 12101–12141.Google Scholar
Bellack, A. S., & Drapalski, A. (2012). Issues and developments on the consumer recovery construct. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 11(3), 156–160. doi.org/10.1002/j.2051-5545.2012.tb00117.xGoogle Scholar
Beronio, K., Po, R., Skopec, L., & Glied, S. (2013). ASPE Research Brief: Affordable Care Act will expand mental health and substance use disorder benefits and parity protections for 62 million Americans. US Department of Health and Human Services.Google Scholar
Burnim, I. (2015). The promise of the Americans with Disabilities Act for people with mental illness. Journal of the American Medical Association, 313(22), 2223–224. doi.org/10.1001/jama.2015.4015Google ScholarPubMed
Campbell, J. (2005). The historical and philosophical development of peer-run support programs. In Clay, S., Schell, B., Corrigan, P. W., & Ralph, R. O. (Eds.), On our own together: Peer programs for people with mental illness (pp. 17–64). Nashville, TN: Vanderbilt Press.CrossRefGoogle Scholar
Campbell, J. (2008). Key ingredients of peer programs identified. Missouri Institute of Mental Health. www.researchgate.net/publication/242273575_KEY_INGREDIENTS_OF_PEER_PROGRAMS_IDENTIFIEDGoogle Scholar
The Carter Center. (n.d.). Mental health program. www.cartercenter.org/resources/pdfs/factsheets/mental-health-facts.pdfGoogle Scholar
Centers for Medicare and Medicaid Services. (n.d.). Young adults and the Affordable Care Act: Protecting young adults and eliminating burdens on families and businesses. www.cms.gov/CCIIO/Resources/Files/adult_child_fact_sheetGoogle Scholar
Chicago Tribune. (1993, September 27). Hillary Clinton one of three first ladies to testify. www.chicagotribune.com/news/ct-xpm-1993-09-27-9309280024-story.htmlGoogle Scholar
Clauss-Ehlers, C. S. (2008). Sociocultural factors, resilience, and coping: Support for a culturally sensitive measure of resilience. Journal of Applied Developmental Psychology, 29(3), 197–212. doi.org/10.1016/j.appdev.2008.02.004CrossRefGoogle Scholar
Clauss-Ehlers, C. S., Chiriboga, D., Hunter, S. J., Roysircar, G., & Tummala-Narra, P. (2019). APA Multicultural Guidelines executive summary: Ecological approach to context, identity, and intersectionality. American Psychologist, 74(2), 232–244. doi.org/10.1037/amp0000382Google Scholar
Clauss-Ehlers, C. S., Guevara Carpio, M., & Weist, M. D. (2020). Mental health literacy: A strategy for global adolescent mental health promotion. Adolescent Psychiatry, 10(2), 73–83. doi.org/10.2174/2210676610666200204104429Google Scholar
Davidson, L. (2015, March 20). History of the peer support movement. International Association of Peer Supporters (iNAPS). https://na4ps.files.wordpress.com/2015/03/history-of-peer-support-davidson-webinar-19.pdfGoogle Scholar
Davidson, L. (2016). The recovery movement: Implications for mental health care and enabling people to participate fully in life. Health Affairs, 35(6), 1091–1097. doi.org/10.1377/hlthaff.2016.0153Google Scholar
Douglas, M., Wrenn, G., Bent-Weber, S., et al. (2018). Evaluating state mental health and addiction parity laws: A technical report. The Kennedy Forum. https://wellbeingtrust.org/areas-of-focus/policy-and-advocacy/reports/evaluating-state-mental-health-and-addiction-parity-statutes/Google Scholar
Drapalski, A. L., Medoff, D., Unick, G. J., et al. (2012). Assessing recovery of people with serious mental illness: Development of a new scale. Psychiatry Services, 63(1), 48–53. doi.org/10.1176/appi.ps.201100109Google Scholar
Economic Policy Institute. (n.d.). How would repealing the Affordable Care Act affect health care and jobs in your state? www.epi.org/aca-obamacare-repeal-impact/Google Scholar
Equip for Equality. (n.d.). Personal decision-making: Self-advocacy for people with mental illness. www.equipforequality.org/wp-content/uploads/2015/12/35_Self_Advocate_Mental_Illness_03.pdfGoogle Scholar
Gehart, D. R. (2011). The mental health recovery movement and family therapy, Part I: Consumer-led reform of services to persons diagnosed with severe mental illness. Journal of Marital and Family Therapy, 38(3), 429–442. doi.org/10.1111/j.1752-0606.2011.00230.xGoogle Scholar
Golberstein, E., Busch, S. H., Zaha, R., et al. (2015). Effect of the Affordable Care Act’s young adult insurance expansions on hospital-based mental health care. American Journal of Psychiatry, 172(2), 182–189. doi.org/10.1176/appi.ajp.2014.14030375Google Scholar
Goldstrom, I., Campbell, J., Rogers, J., et al. (2006). Mental health consumer organizations: A national picture. In Manderscheid, R. W. and Berry, J. T. (Eds.), Center for Mental Health Services: Mental health, United States, 2004 (DHHS Pub No. [SMA]-06-4195, pp. 247–255). Rockville, MD: Substance Abuse and Mental Health Services Administration.Google Scholar
Grob, G. N. (2005). Public policy and mental illnesses: Jimmy Carter’s Presidential Commission on Mental Health. The Milbank Quarterly, 83(3), 425–456. doi.org/10.1111/j.1468-0009.2005.00408.xCrossRefGoogle ScholarPubMed
Gronfein, W. (1985). Incentives and intentions in mental health policy: A comparison of the Medicaid and community mental health programs. Journal of Health and Social Behavior, 26(3), 192–206. doi.org/10.2307/2136752Google Scholar
Happell, B., & Scholz, B. (2017). Doing what we can, but knowing our place: Being an ally to promote consumer leadership in mental health. International Journal of Mental Health Nursing, 27(1), 440–447. doi.org/ 10.1111/inm.12404Google Scholar
Henderson, C., Evans-Lacko, S., & Thornicroft, G. (2013). Mental illness stigma, help seeking, and public health programs. American Journal of Public Health, 103(5), 777–780. doi.org/10.2105/AJPH.2012.301056Google Scholar
Hunt, M. G., & Resnick, S. G. (2015). Two birds, one stone: Unintended consequences and a potential solution for problems with recovery in mental health. Psychiatric Services, 66(11), 1235–1237. doi.org/ 10.1176/appi.ps.201400518CrossRefGoogle Scholar
Hunter, M. (1979, February 8). Mrs. Carter, in Capitol debut, praised by Kennedy. The New York Times. www.nytimes.com/1979/02/08/archives/mrs-carter-in-capitol-debut-praised-by-kennedy-you-can-depend-on-it.htmlGoogle Scholar
Jeste, D. V., Eglit, G., Palmer, B. W., et al. (2018). Supported decision making in serious mental illness. Psychiatry, 81(1), 28–40. doi.org/10.1080/00332747.2017.1324697CrossRefGoogle ScholarPubMed
Kessler, R. C., Amminger, G. P., Aguilar-Gaxiola, S., et al. (2007). Age of onset of mental disorders: A review of recent literature. Current Opinion in Psychiatry, 20(4), 359–364. doi.org/10.1097/YCO.0b013e32816ebc8cGoogle Scholar
Mabe, P., Ahmed, A., Duncan, G., Fenley, G., & Buckley, P. (2014). Project GREAT: Immersing physicians and doctorally-trained psychologists in recovery-oriented care. Professional Psychology: Research and Practice, 45(5), 347–356. doi.org/10.1037/a0037705Google Scholar
Mechanic, D., & Rochefort, D. A. (1992). A policy of inclusion for the mentally ill. Health Affairs, 11(1), 128–150. doi.org/10.1377/hlthaff.11.1.128CrossRefGoogle ScholarPubMed
Melek, S., Davenport, S., & Gray, T. J. (2019, November 19). Addiction and mental health vs. physical health: Widening disparities in network use and provider reimbursement: A deeper analytical dive and updated results through 2017 for 37 million employees and dependents. Milliman Research Report. http://assets.milliman.com/ektron/Addiction_and_mental_health_vs_physical_health_Wi dening_disparities_in_network_use_and_provider_reimbursement.pdfGoogle Scholar
National Institutes of Health. (n.d.). National Institute of Mental Health (NIMH). The NIH almanac.www.nih.gov/about-nih/what-we-do/nih-almanac/national-institute-mental-healthGoogle Scholar
Norman, C. (2006). The Fountain House Movement, an alternative rehabilitation model for people with mental health problems, members’ descriptions of what works. Scandinavian Journal of Caring Sciences, 20(2), 184–192. doi.org/10.1111/j.1471-6712.2006.00398.xGoogle Scholar
Olmstead, v. L. C. (1999). (98–536) 527 U.S. 581.Google Scholar
ourconsumerplace.com.au. (n.d.). Help sheet: Our consumerism. www.ourconsumerplace.com.au/consumer/helpsheet?id=3563Google Scholar
Parham, W. D., & Clauss-Ehlers, C. S. (2016). Following inspiration: A conversation with Former First Lady Rosalynn Carter. Journal of Multicultural Counseling and Development, 44(3), 156–175 (Archived at the Drs. Nicholas and Dorothy Cummings Center for the History of Psychology, The University of Akron). doi.org/10.1002/jmcd.12044Google Scholar
President’s Commission on Mental Health. (1978). Report to the President from the President’s Commission on Mental Health, 4 vols. Washington, DC: US Government Printing Office.Google Scholar
Riotta, C. (2017, July 29). GOP aims to kill Obamacare yet again after failing 70 times. Newsweek. www.newsweek.com/gop-health-care-bill-repeal-and-replace-70-failed-attempts-643832Google Scholar
Rogers, E. S., Teague, G., Lichtenstein, C., et al. (2007). The effects of participation in adjunctive consumer-operated programs on both personal and organizationally mediated empowerment: Results of a multi-site study. A Special Issue of the Journal of Rehabilitation Research and Development, 44(6), 785–800. doi.org/10.1682/JRRD.2006.10.0125Google Scholar
Seeman, N. (2015). Use data to challenge mental-health stigma. Nature, 528(7582), Article 309. doi.org/10.1038/528309aGoogle Scholar
Seeman, N., Tang, S., Brown, A. D., & Ing, A. (2016). World survey of mental illness stigma. Journal of Affective Disorders, 190, 115–121. doi.org/10.1016/j.jad.2015.10.011Google Scholar
Segal, S. P. (2011). Outcomes from consumer-operated and community mental health services: A randomized controlled trial. Yearbook of Psychiatry and Applied Mental Health, 62(8), 915–921. doi.org/10.1016/j.ypsy.2011.11.003Google Scholar
Silversides, A. (2009). Medical profession urged to end mental health discrimination. Canadian Medical Association Journal, 181(12), E317–E318. doi.org/10.1503/cmaj.081304Google Scholar
Substance Abuse and Mental Health Services Administration. (2012). SAMHSA’s working definition of recovery: 10 guiding principles of recovery [Brochure]. https://store.samhsa.gov/sites/default/files/d7/priv/pep12-recdef.pdfGoogle Scholar
Tanenbaum, S. J. (2011). Mental health consumer-operated services organizations in the US: Citizenship as a core function and strategy for growth. Health Care Analysis, 19(2), 192–205. doi:10.1007/s10728-010-0151-yGoogle Scholar
Thornicroft, G., Deb, T., & Henderson, C. (2016). Community mental health care worldwide: Current status and further developments. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 15(3), 276–286. doi.org/10.1002/wps.20349Google Scholar
US Department of Health and Human Services. (n.d.). Consumer-operated services. Substance Abuse and Mental Health Services Administration, Center for Mental Health Services. https://mnprc.org/wp-content/uploads/2019/01/COSP_PowerPoint8.25.pdfGoogle Scholar
Young Minds Advocacy (n.d.). The Community Mental Health Act of 1963. www.ymadvocacy.org/the-community-mental-health-act-of-1963/Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×