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14 - Implementing social services

Published online by Cambridge University Press:  04 August 2010

A. Marlene Lockey
Affiliation:
U.T. M.D. Anderson Cancer Center, Houston
Michael J. Fisch
Affiliation:
University of Texas, M. D. Anderson Cancer Center
Eduardo Bruera
Affiliation:
University of Texas, M. D. Anderson Cancer Center
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Summary

Introduction

Advanced cancer brings intense psychosocial distress to both patient and family. No area of a patient's and family's life is untouched by cancer, and unmet needs in any area of life become magnified as the disease progresses. Family members or designated caretakers are an essential part of the care team, and they affect the quality of care the patient receives. Consequently, attention to family issues arising from the patient's diagnosis is part of the patient's treatment. The family's distress is the patient's distress and meeting nonmedical needs and addressing family concerns will relieve tensions that affect the patient's physical symptoms. As family members or other nonmedical caretakers provide more technologically complex care for longer periods of critical illness, the medical team must be mindful of the burden carried by these partners in care.

This chapter provides indicators for medical providers' ongoing evaluation of the well-being of patient and family. These indicators are based on information provided by patients concerning their needs and on issues delineated by medical practice as important to patients and their families. By knowing objective indicators, medical providers can reassess psychosocial components of treatment plans and implement services to address nonmedical and subjective problems that may be exacerbating the patient's suffering.

Needs identified by patients

The concerns of patients with advanced-stage cancer are typically more psychosocial than medical. Even a medically oriented need like symptom management has emotional and social components that require intervention, not only for the patient but for the family and nonmedical caretakers.

Type
Chapter
Information
Publisher: Cambridge University Press
Print publication year: 2003

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References

Baider L, Cooper C L, Kaplan De-Nour A. Cancer and the Family, 2nd edn. New York: John Wiley & Son Ltd, 2000
Cassileth, B R, Lusk, E J, Strouse, T B, Miller, D S, Brown, L C, Cross, P A. A psychological analysis of cancer patients and their next of kin. Cancer 1985;55:72–63.0.CO;2-S>CrossRefGoogle ScholarPubMed
Miller, R D, Walsh, T D. Psychosocial aspects of palliative care in advanced cancer. J Pain Symptom Manage 1991;6:24–9CrossRefGoogle ScholarPubMed
Senn H-J, Glaus A, Schmid L. (ed.) Supportive Care in Cancer Patients. Series: Recent Results in Cancer Research, 108. New York: Springer-Verlag, 1988
Berger A, Portenoy R K, Weissman D E. (ed.) Principles and Practice of Supportive Oncology. Philadelphia: Lippincott-Raven, 1982
Glajchen, M. Psychosocial consequences of inadequate health insurance for patients with cancer. Cancer Pract 1994;2:115–20Google ScholarPubMed
Higginson, I, Priest, P. (1996). Predictors of family anxiety in the weeks before bereavement. Soc Sci Med 1996;43:1621–5CrossRefGoogle ScholarPubMed
Holland J C. (ed.) Psycho-Oncology. New York: Oxford University Press, 1998
Kutner, J S, Steiner, J F, Corbett, J J, Jahniger, D W, Barron, P L. Information needs in terminal illness. Soc Sci Med 1999;48:1341–52CrossRefGoogle ScholarPubMed
Maguire, P, Walsh, S, Jeacock, J, Kingston, R. Physical and psychological needs of patients dying from colo-rectal cancer. Palliat Med 1999;13:45–50CrossRefGoogle ScholarPubMed
Nijboer, C, Triemstra, M, Tempelaar, R, Sanderman, R, Bos, G A M. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer 1999;86:577–883.0.CO;2-S>CrossRefGoogle ScholarPubMed
Payne, S, Smith, P, Dean, S. Identifying the concerns of informal carers in palliative care. Palliat Med 1999;13:37–44CrossRefGoogle ScholarPubMed
Sanson-Fischer, R, Girgis, A, Boyes, A, Bonevski, B, Burton, L, Cook, P, the Supportive Care Review Group. The unmet supportive care needs of patients with cancer. Cancer 2000;88:226–373.0.CO;2-P>CrossRefGoogle Scholar
Siegel, K, Raveis, V H, Houts, P, Mor, V. Caregiver burden and unmet patient needs. Cancer 1991;68:1131–403.0.CO;2-N>CrossRefGoogle ScholarPubMed
Cancer Care: http://www.cancercare.org
Cancer Information Network (CIN): http://www.cancernetwork.com/(professional site)
NCI Cancer Information http://www.cancer.gov
International Psychosocial Oncology Society (IPOS)/American Society of Psychosocial and Behavioral Oncology/AIDS (ASPBOA) http://www.ipos-aspboa.org
Baider L, Cooper C L, Kaplan De-Nour A. Cancer and the Family, 2nd edn. New York: John Wiley & Son Ltd, 2000
Cassileth, B R, Lusk, E J, Strouse, T B, Miller, D S, Brown, L C, Cross, P A. A psychological analysis of cancer patients and their next of kin. Cancer 1985;55:72–63.0.CO;2-S>CrossRefGoogle ScholarPubMed
Miller, R D, Walsh, T D. Psychosocial aspects of palliative care in advanced cancer. J Pain Symptom Manage 1991;6:24–9CrossRefGoogle ScholarPubMed
Senn H-J, Glaus A, Schmid L. (ed.) Supportive Care in Cancer Patients. Series: Recent Results in Cancer Research, 108. New York: Springer-Verlag, 1988
Berger A, Portenoy R K, Weissman D E. (ed.) Principles and Practice of Supportive Oncology. Philadelphia: Lippincott-Raven, 1982
Glajchen, M. Psychosocial consequences of inadequate health insurance for patients with cancer. Cancer Pract 1994;2:115–20Google ScholarPubMed
Higginson, I, Priest, P. (1996). Predictors of family anxiety in the weeks before bereavement. Soc Sci Med 1996;43:1621–5CrossRefGoogle ScholarPubMed
Holland J C. (ed.) Psycho-Oncology. New York: Oxford University Press, 1998
Kutner, J S, Steiner, J F, Corbett, J J, Jahniger, D W, Barron, P L. Information needs in terminal illness. Soc Sci Med 1999;48:1341–52CrossRefGoogle ScholarPubMed
Maguire, P, Walsh, S, Jeacock, J, Kingston, R. Physical and psychological needs of patients dying from colo-rectal cancer. Palliat Med 1999;13:45–50CrossRefGoogle ScholarPubMed
Nijboer, C, Triemstra, M, Tempelaar, R, Sanderman, R, Bos, G A M. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer 1999;86:577–883.0.CO;2-S>CrossRefGoogle ScholarPubMed
Payne, S, Smith, P, Dean, S. Identifying the concerns of informal carers in palliative care. Palliat Med 1999;13:37–44CrossRefGoogle ScholarPubMed
Sanson-Fischer, R, Girgis, A, Boyes, A, Bonevski, B, Burton, L, Cook, P, the Supportive Care Review Group. The unmet supportive care needs of patients with cancer. Cancer 2000;88:226–373.0.CO;2-P>CrossRefGoogle Scholar
Siegel, K, Raveis, V H, Houts, P, Mor, V. Caregiver burden and unmet patient needs. Cancer 1991;68:1131–403.0.CO;2-N>CrossRefGoogle ScholarPubMed
Cancer Care: http://www.cancercare.org
Cancer Information Network (CIN): http://www.cancernetwork.com/(professional site)
NCI Cancer Information http://www.cancer.gov
International Psychosocial Oncology Society (IPOS)/American Society of Psychosocial and Behavioral Oncology/AIDS (ASPBOA) http://www.ipos-aspboa.org

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