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A Shaw . Dilemmas of “informed consent” in children. New England Journal of Medicine 1973;289(17):885–90
RA McCormick . To save or let die: The dilemma of modern medicine. JAMA 1974;229(2):172–6
RS Duff , AG Campbell . Moral and ethical dilemmas in the special-care nursery. New England Journal of Medicine 1973;289(17):890–4.
D Wilkinson . Is it in the best interests of an intellectually disabled infant to die? Journal of Medical Ethics 2006;32(8):454–9.
L McKechnie , C Vasudevan , M Levene . Neonatal outcome of congenital ventriculomegaly. Seminars in Fetal and Neonatal Medicine 2012;17(5):301–7.
E Garne , M Loane , MC Addor , PA Boyd , I Barisic , H Dolk . Congenital hydrocephalus—prevalence, prenatal diagnosis and outcome of pregnancy in four European regions. European Journal of Paediatric Neurology 2010;14(2):150–5.
S Jeng , N Gupta , M Wrensch , S Zhao , YW Wu . Prevalence of congenital hydrocephalus in California, 1991–2000. Pediatric Neurology 2011;45(2):67–71
T Hannon , PW Tennant , J Rankin , SC Robson . Epidemiology, natural history, progression, and postnatal outcome of severe fetal ventriculomegaly. Obstetrics and Gynecology 2012;120(6):1345–53.
G Cecchetto , L Milanese , R Giordano , A Viero , V Suma , R Manara . Looking at the missing brain: Hydranencephaly case series and literature review. Pediatric Neurology 2013;48(2):152–8.
P Devaseelan , C Cardwell , B Bell , S Ong . Prognosis of isolated mild to moderate fetal cerebral ventriculomegaly: A systematic review. Journal of Perinatal Medicine 2010;38(4):401–9.
AC Breeze , PM Alexander , EM Murdoch , HH Missfelder-Lobos , GA Hackett , CC Lees . Obstetric and neonatal outcomes in severe fetal ventriculomegaly. Prenatal Diagnosis 2007;27(2):124–9.
M Vinchon , H Rekate , AV Kulkarni . Pediatric hydrocephalus outcomes: A review. Fluids and Barriers of the CNS 2012;9(1):18.
J Prusseit , M Simon , C von der Brelie , A Heep , E Molitor , S Volz , et al. Epidemiology, prevention and management of ventriculoperitoneal shunt infections in children. Pediatric Neurosurgery 2009;45(5):325–36.
FA Chervenak , LB McCullough . Ethical dimensions of fetal neurology. Seminars in Fetal and Neonatal Medicine 2012;17(5):252–5
FA Chervenak , LB McCullough . Nonaggressive obstetric management: An option for some fetal anomalies during the third trimester. JAMA 1989;261(23):3439–40.
D Wilkinson . The self-fulfilling prophecy in intensive care. Theoretical Medicine and Bioethics 2009;30(6):401–10.
MM Kennelly , SM Cooley , PJ McParland . Natural history of apparently isolated severe fetal ventriculomegaly: Perinatal survival and neurodevelopmental outcome. Prenatal Diagnosis 2009;29(12):1135–40.
A Agresti , BA Coull . Approximate is better than “exact” for interval estimation of binomial proportions. American Statistician 1998;52(2):119–26.
D Wilkinson . A life worth giving: The threshold for permissible withdrawal of treatment from disabled newborn infants. American Journal of Bioethics 2010;11(2):20–32
D Wilkinson . Death or Disability? The Carmentis Machine and Treatment Decisions for Critically Ill Children. Oxford: Oxford University Press; 2013.
AV Kulkarni , DD Cochrane , PD McNeely , I Shams . Medical, social, and economic factors associated with health-related quality of life in Canadian children with hydrocephalus. Journal of Pediatrics 2008;153(5):689–95.
A Moghtaderi , V Rahimi-Movaghar , M Safdari . Spontaneous brain rupture: A complication of untreated hydrocephalus. Clinical Neurology and Neurosurgery 2005;108(1):48–51
SF Salvador , JC Henriques , M Munguambe , RM Vaz , HP Barros . Hydrocephalus in children less than 1 year of age in northern Mozambique. Surgical Neurology International 2014;5:175.
D Yashon , JA Jane , O Sugar . The course of severe untreated infantile hydrocephalus: Prognostic significance of the cerebral mantle. Journal of Neurosurgery 1965;23(5):509–16, at 510.
DA Shewmon , GL Holmes , PA Byrne . Consciousness in congenitally decorticate children: Developmental vegetative state as self-fulfilling prophecy. Developmental Medicine and Child Neurology 1999;41(6):364–74
B Merker . Consciousness without a cerebral cortex: A challenge for neuroscience and medicine. The Behavioural and Brain Sciences 2007;30(1):63–81
NK Yamada , IJ Kodner , DE Brown . When operating is considered futile: Difficult decisions in the neonatal intensive care unit. Surgery 2009;146(1):122–5.
DJC Wilkinson , J Savulescu . Knowing when to stop: Futility in the ICU. Current Opinion in Anesthesiology 2011;24(2):160–5.
D Wilkinson . Which newborn infants are too expensive to treat? Camosy and rationing in intensive care. Journal of Medical Ethics 2013;39(8):502–6.
AC Pham , C Fan , BK Owler . Treating pediatric hydrocephalus in Australia: A 3-year hospital-based cost analysis and comparison with other studies. Journal of Neurosurgery. Pediatrics 2013;11(4):398–401.
BC Warf , BC Alkire , S Bhai , C Hughes , SJ Schiff , JR Vincent , et al. Costs and benefits of neurosurgical intervention for infant hydrocephalus in sub-Saharan Africa. Journal of Neurosurgery Pediatrics 2011;8(5):509–21.
DK Owens . Interpretation of cost-effectiveness analyses. Journal of General Internal Medicine 1998;13(10):716–17.
PJ Neumann , MC Weinstein . Legislating against use of cost-effectiveness information. New England Journal of Medicine 2010;363(16):1495–7.