Skip to main content Accessibility help
×
Home
Hostname: page-component-7ccbd9845f-w45k2 Total loading time: 0.606 Render date: 2023-01-28T11:43:16.782Z Has data issue: true Feature Flags: { "useRatesEcommerce": false } hasContentIssue true

From Beginning to End: Perspectives of the Dementia Journey in Northern Ontario*

Published online by Cambridge University Press:  29 January 2015

Deanna Di Gregorio
Affiliation:
Department of Business Administration, Lakehead University, Thunder Bay, Ontario
Shannon Ferguson
Affiliation:
Department of Health Sciences, Lakehead University, Thunder Bay, Ontario
Elaine Wiersma*
Affiliation:
Department of Health Sciences, Lakehead University, Thunder Bay, Ontario
*
La correspondance et les demandes de tirés-à-part doivent être adressées à : / Correspondence and requests for offprints should be sent to: Elaine Wiersma, Ph.D. Department of Health Sciences Lakehead University 955 Oliver Road Thunder Bay (ON) P7B 5E1 (ewiersma@lakeheadu.ca)

Abstract

Research on dementia care continues to develop, yet little attention has been given to the dementia experience in rural, northern communities. This study explored the dementia journey through the viewpoints of health service providers, caregivers, community members, and people living with dementia. The findings highlight the complexity of dementia awareness and understanding. Sound awareness and knowledge of dementia itself, the community services available, as well as of the perspectives of individuals living with dementia and care partners specifically in rural, northern Ontario are fundamental to quality care and support of individuals with dementia. Practical service implications and the need for greater developments with respect to the awareness and understanding of dementia in rural, northern communities are discussed.

Résumé

La recherche sur les soins de la démence continue à se développer, mais peu d'attention est accordée à l'expérience de la démence dans les lieux ruraux et nordiques. Cette étude explore la démence à travers les points de vue des services de santé, les soignants, les membres de la communauté, et les personnes atteintes de démence. Les résultats mettent en évidence la complexité de la prise de conscience et la compréhension de ce phénomène dans des lieux ruraux. La perspective des gens vivants avec une démence, la compréhension des services disponibles et une prise de conscience communautaire, sont essentiels à la prise en charge rural. La nécessité d'accroître les connaissances et l’emphase sur le développement des services de santé et bien-être en milieux ruraux sont discutée.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2015 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

*

This research was supported by a grant received from the Alzheimer Society of Canada Research Program.

References

Alzheimer Society of Thunder Bay. (2013). Awareness: Let’s talk about dementia. Retrieved 6 June 2013 from http://www.alzheimerthunderbay.ca/?pgid=92.
Alzheimer Society of Canada. (2010). Rising tide: The impact of dementia on Canadian society . Retrieved 27 March 2013 from http://www.alzheimer.ca/∼/media/Files/national/Advocacy/ASC_Rising%20Tide-Executive%20Summary_Eng.ashx.
Andrews, M. E., Morgan, D. G., & Stewart, N. J. (2010). Dementia awareness in northern nursing practice. Canadian Journal of Nursing Research, 42(1), 5673.Google ScholarPubMed
Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. Thousand Oaks, CA: Sage.Google Scholar
Coward, R., Cutler, S., & Mullens, R. (1990). Residential differences in the composition of helping networks of impaired elders. Family Relations, 39, 4450.CrossRefGoogle Scholar
Coward, R., Netzer, J., & Peek, C. (1996). Obstacles to providing high-quality long-term care services for rural elders. In Rowles, D., Beaulieu, J., & Myers, W. (Eds.), Long-term care for the rural elderly: New direction in services, research, and policy (pp. 1034). New York, NY: Springer.Google Scholar
Cummins, S., Curtis, S., Diez-Roux, A., & Macintyre, S. (2007). Understanding and representing ‘place’ in health research: A relational approach. Social Science & Medicine, 65(9), 18251838.CrossRefGoogle ScholarPubMed
Dandy, K., & Bollman, D. (2008). Seniors in rural Canada. Rural and Small Town Canada Analysis Bulletin, 7(8). Retrieved 13 March 2013 from http://www.statcan.gc.ca/pub/21-006-x/21-006-x2007008-eng.pdf.Google Scholar
Dobbs, B., & Strain, L. (2008). Staying connected: Issues of mobility of older rural adults. In Keating, N. (Ed.), Rural Ageing: A good place to grow old? (pp. 8795). Bristol, UK: Policy Press.CrossRefGoogle Scholar
Edelman, P., Kuhn, D., Fulton, B., & Kyrouac, G. (2006). Information and service needs of persons with Alzheimer’s Disease and their family caregivers living in rural communities. American Journal of Alzheimer’s Disease & Other Dementias, 21(4), 226233.CrossRefGoogle ScholarPubMed
Forbes, D., & Hawranik, P. (2012). Looming dementia care crisis: Are Canadian rural and remote settings ready? In Kulig, J., & Williams, A. (Eds.), Health in Rural Canada (pp. 447461). Vancouver, BC: UBC Press.Google Scholar
Forbes, D., Morgan, D., & Janzen, B. (2006). Rural and urban Canadians with dementia: Use of health care services. Canadian Journal of Aging, 25(23), 321330.CrossRefGoogle Scholar
Halseth, G., & Williams, A. (1999). Guthrie House: A rural community organizing for wellness. Health & Place, 5(1), 2744.CrossRefGoogle ScholarPubMed
Hanlon, N., & Halseth, G. (2005). The greying of resource communities in northern British Columbia: Implications for health care delivery in already-underserviced communities. The Canadian Geographer, 49(1), 124.CrossRefGoogle Scholar
Innes, A., Blackstock, K., Mason, A., Smith, A., & Cox, S. (2005). Dementia care provision in rural Scotland: Service users’ and carers’ experiences. Health and Social Care in the Community, 13(4), 354365.CrossRefGoogle ScholarPubMed
Innes, A., Morgan, D., & Kosteniuk, J. (2011). Dementia care in rural and remote settings: A systematic review of informal/family caregiving. Maturitas, 68(1), 3446.CrossRefGoogle ScholarPubMed
Jansen, L., Markle-Reid, M., Hawranik, P., Kingston, D., Peacock, S., Henderson, S., et al. (2009). Formal care providers’ perceptions of home- and community-based services: Informing dementia care quality. Home Health Care Services Quarterly, 28, 123.CrossRefGoogle ScholarPubMed
Joseph, A. E., & Cloutier-Fisher, D. (2005). Ageing in rural communities: Vulnerable people in vulnerable places. In Andrews, G. J. & Phillips, D. R. (Eds.), Ageing and place: Perspectives, policy, practice (pp. 133146). London, UK: Routledge.Google Scholar
Joseph, A., & Hallman, B. (1998). Over the hill and far away: Distance as a barrier to the provision of assistance to elderly relatives. Social Science & Medicine, 46(6), 631639.CrossRefGoogle ScholarPubMed
Keating, N. (2008). Rural Ageing: A good place to grow old? Bristol, UK: Policy Press.CrossRefGoogle Scholar
Koller, D., Eisele, M., Kaduszkiewicz, H., Schon, G., Steinman, S., Wiese, B., et al. (2010). Ambulatory health services utilization in patients with dementia – Is there a rural-urban difference? International Journal of Health Geographics, 9(59), 18.CrossRefGoogle Scholar
Krout, J. (1994). An overview of older rural populations and community-based services. In Krout, J. (Ed.), Providing community-based services to the rural elderly (pp. 318). Thousand Oaks, CA: Sage.Google Scholar
Lincoln, Y. S., & Guba, E. G. (2000). Paradigmatic controversies, contradictions, and emerging confluences. In Denzin, N. K. L., , Y.S. (Ed.), The handbook of qualitative research (pp. 163188). Thousand Oaks, CA: Sage.Google Scholar
Magilvy, J. (1996). The role of rural home- and community-based services. In Rowles, G., Beaulieu, J., & Myers, W. (Eds.), Long-term care for the rural elderly (pp. 6484). New York, NY: Springer.Google Scholar
McDonald, A., & Heath, B. (2008). Developing services for people with dementia. Quality of Ageing, 9(4), 918.CrossRefGoogle Scholar
Morgan, D., Semchuk, M., Stewart, N., & D’Arcy, C. (2002). Rural families caring for a relative with dementia: Barriers to use of formal services. Social Science & Medicine, 55, 11291142.CrossRefGoogle ScholarPubMed
Morgan, D., Innes, A., Kosteniuk, J. (2011). Dementia care in rural and remote settings: A systematic review of formal paid care. Maturitas, 68, 1733.CrossRefGoogle ScholarPubMed
Ontario Ministry of Health and Long Term Care (2011). Rural and northern health care report. Retrieved 27 April 2013, from http://www.health.gov.on.ca/en/public/programs/ruralnorthern/docs/exec_summary_rural_northern_EN.pdf.
Saldana, J. (2009). The coding manual for qualitative researchers. Thousand Oaks, CA: Sage.Google Scholar
Schwandt, T. (2001). Dictionary of qualitative inquiry (2nd ed.), Thousand Oaks, CA: Sage Publications.Google Scholar
Sims-Gould, J., & Martin-Matthews, A. (2008). Distance, privacy and independence: Rural home care. In Keating, N.. (Ed.), A Good Place to Grow Old? Critical Perspectives on Rural Aging (pp. 4351). Bristol, UK: Policy Press.CrossRefGoogle Scholar
Statistics Canada (2001) Rural and Small Town Canada Analysis Bulletin. Vol. 3, No. 3. (November)
Stoller, E., & Pugliesi, K. (1988). Informal networks of community based elderly: Changes in composition over time. Research on Aging, 10, 499516.CrossRefGoogle ScholarPubMed
Szymczynska, P., Innes, A., Mason, A., & Stark, C. (2011). A review of diagnostic process and postdiagnostic support for people with dementia in rural areas. Journal of Primary Care & Community Health, 2(4), 262276.CrossRefGoogle ScholarPubMed
Wenger, G., & Keating, N. (2008). The evolution of networks of rural older adults. In Keating, N. (Ed.), Rural Ageing A good place to grow old? (p. 34). Bristol, UK: Policy Press.Google Scholar
Wenger, G., Scott, A., & Seddon, D. (2002) The experience of caring for older people with dementia in a rural area: using services. Aging & Mental Health 6(1): 30–8.CrossRefGoogle Scholar
Wiersma, E. C. & Denton, A. (2013). From social network to safety net: Dementia friendly communities in rural northern Ontario. Dementia.doi:10.1177/1471301213516118. ePub ahead of print.Google ScholarPubMed
Williams, A. (1996). The development of Ontario’s home care program: A critical geographical analysis. Social Science and Medicine, 42, 937948.CrossRefGoogle ScholarPubMed
Williams, A., & Cutchin, M. (2002). The rural context of health care provision. Journal of Interprofessional Care, 16(2), 107–15.CrossRefGoogle ScholarPubMed
Wilcox, J., Jones, B., & Alldrick, D. (1995). Identifying the support needs of people with dementia and older people with mental illness on a joint community team: A preliminary report. Journal of Mental Health, 4, 157163.CrossRefGoogle Scholar
World Health Organization. (2012). Dementia: A public health priority. Retrieved 16 March 2013 from http://apps.who.int/iris/bitstream/10665/75263/1/9789241564458_eng.pdf.
7
Cited by

Save article to Kindle

To save this article to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

From Beginning to End: Perspectives of the Dementia Journey in Northern Ontario*
Available formats
×

Save article to Dropbox

To save this article to your Dropbox account, please select one or more formats and confirm that you agree to abide by our usage policies. If this is the first time you used this feature, you will be asked to authorise Cambridge Core to connect with your Dropbox account. Find out more about saving content to Dropbox.

From Beginning to End: Perspectives of the Dementia Journey in Northern Ontario*
Available formats
×

Save article to Google Drive

To save this article to your Google Drive account, please select one or more formats and confirm that you agree to abide by our usage policies. If this is the first time you used this feature, you will be asked to authorise Cambridge Core to connect with your Google Drive account. Find out more about saving content to Google Drive.

From Beginning to End: Perspectives of the Dementia Journey in Northern Ontario*
Available formats
×
×

Reply to: Submit a response

Please enter your response.

Your details

Please enter a valid email address.

Conflicting interests

Do you have any conflicting interests? *