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Trouble neurocognitif majeur et méthodes optimisant l’apprentissage
Published online by Cambridge University Press: 16 August 2022
Résumé
Les difficultés cognitives consécutives aux troubles neurocognitifs majeurs (TNCM) engendrent des enjeux dans la réalisation d’activités de la vie quotidienne. Ce projet visait à identifier auprès des proches aidants et des intervenants des situations nécessitant des méthodes optimisant l’apprentissage pour faciliter l’engagement de personnes vivant avec un TNCM dans leurs activités de la vie quotidienne. Des entrevues individuelles semi-dirigées, d’une durée de 60 à 90 minutes, ont été menées auprès de proches aidants et d’intervenants. Les résultats montrent que les activités quotidiennes et domestiques sont notamment affectées par les difficultés à repérer ou à utiliser les objets, à garder en tête la tâche en cours, à mettre en séquences des étapes, à ne pas se laisser distraire par autre chose et à constater ses difficultés pour s’y adapter. Les proches aidants souhaitent du soutien dans l’application des méthodes optimisant l’apprentissage pour contribuer au maintien de l’autonomie des personnes vivant avec un TNCM.
Abstract
Cognitive difficulties resulting from major neurocognitive disorders generate challenges in the performance of activities of daily living. This project aimed to identify, with family caregivers and health professionals, situations requiring methods to optimize learning so as to facilitate the involvement of people living with a major neurocognitive disorder in their activities of daily living. Semi-structured one-on-one interviews, lasting 60 to 90 minutes, were conducted with family caregivers and healthcare professionals. The results show that daily and domestic activities are particularly affected by difficulties in locating or using objects, keeping in mind the task in progress, sequencing steps, not being distracted by something else, noticing their difficulties and adapting to them. Family caregivers would like to have access to support in order to apply learning strategies to help people living with a major neurocognitive disorder to maintain their independence.
Keywords
- Type
- Article
- Information
- Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 42 , Issue 2 , June 2023 , pp. 189 - 198
- Copyright
- © Canadian Association on Gerontology 2022
Footnotes
Les auteurs tiennent à remercier chaleureusement les proches aidants et les intervenants ayant participé aux entrevues. Le Ministère de l’éducation et de l’enseignement supérieur finance le projet de développement d’outils d’analyse et d’appropriation des stratégies cognitives pour les proches aidants et les intervenants.
References
Allen, C., & Blue, T. (1998). Cognitive disabilities model: How to make clinical judgments. In Katz, N. (dir.), Cognition and occupation in rehabilitation: Cognitive models for intervention in occupational therapy (pp. 225–279). Bethesda, MD: American Occupational Therapy Association.Google Scholar
Amieva, H., Rullier, L., Bouisson, J., Dartigues, J.-F., Dubois, O., & Salamon, R. (2012). Attentes et besoins des aidants de personnes souffrant de maladie d’Alzheimer. Revue d’Épidémiologie et de Santé Publique, 60(3), 231–238. https://doi.org/10.1016/j.respe.2011.12.136.CrossRefGoogle Scholar
Amieva, H., Robert, P. H., Grandoulier, A.-S., Meillon, C., De Rotrou, J., Andrieu, S., et al. (2016). Group and individual cognitive therapies in Alzheimer’s disease: The ETNA3 randomized trial. International Psychogeriatrics, 28(5), 707–717. https://doi.org/10.1017/S1041610215001830.CrossRefGoogle ScholarPubMed
Blieszner, R., & Roberto, K. A. (2010). Care partner responses to the onset of mild cognitive impairment. Gerontologist, 50, 11–22. https://doi.org/10.1093/geront/gnp068.CrossRefGoogle Scholar
Bourgeois, L. (2016). La recherche-action et la recherche-développement au service de la littératie (dir. Carignan, I., Beaudry, M.-C., & Larose, F.). Sherbrooke : Éditions de l’Université de Sherbrooke. https://doi.org/10.17118/11143/8815.Google Scholar
Choi, J., & Twamley, E. W. (2013). Cognitive rehabilitation therapies for Alzheimer’s disease: A review of methods to improve treatment engagement and self-efficacy. Neuropsychology Review, 23(1), 48–62. https://doi.org/10.1007/s11065-013-9227-4.CrossRefGoogle ScholarPubMed
Clare, L., Wilson, B. A., Carter, G., Hodges, J. R., & Adams, M. (2001). Long-term maintenance of treatment gains following a cognitive rehabilitation intervention in early dementia of Alzheimer type: A single case study. Neuropsychological Rehabilitation, 11(3–4), 477–494. https://doi.org/10.1080/09602010042000213.CrossRefGoogle Scholar
Clare, L., Linden, D. E. J., Woods, R. T., Whitaker, R., Evans, S. J., Parkinson, C. H., et al. (2010). Goal-oriented cognitive rehabilitation for people with early-stage Alzheimer disease: A single-blind randomized controlled trial of clinical efficacy. The American Journal of Geriatric Psychiatry, 18(10), 928–939.CrossRefGoogle ScholarPubMed
Cohen-Mansfield, J., Dakheel-Ali, M., Marx, M. S., Thein, K., & Regier, N. G. (2015). Which unmet needs contribute to behavior problems in persons with advanced dementia? Psychiatry Research, 228(1), 59–64. https://doi.org/10.1016/j.psychres.2015.03.043.CrossRefGoogle ScholarPubMed
Corbière, M., & Larivière, N. (2014). Méthodes qualitatives, quantitatives et mixtes: Dans la recherche en sciences humaines, sociales et de la santé. Québec : Presses de l’Université du Québec.Google Scholar
Crowe, J., & Gabriel, L. (2013). Errorless learning and spaced retrieval training for clients with Alzheimer’s dementia. Physical & Occupational Therapy in Geriatrics, 31(3), 254–267. https://doi.org/10.3109/02703181.2013.796037.CrossRefGoogle Scholar
De Werd, M. M. E., Boelen, D., Olde Rikkert, M. G. M., & Kessels, R. P. C. (2013). Errorless learning of everyday tasks in people with dementia. Clinical Interventions in Aging, 8, 1177–1190. https://doi.org/10.2147/CIA.546809.Google ScholarPubMed
Dean, K., & Wilcock, G. (2012). Living with mild cognitive impairment: The patient’s and carer’s experience. International Psychogeriatrics, 24(6), 871–881. https://doi.org/10.1017/S104161021100264X.CrossRefGoogle ScholarPubMed
Delaby, S., Rousseau, T., & Gatignol, P. (2011). Intérêt d’une thérapie écosystémique chez des patients âgés ayant une maladie d’Alzheimer sévère. NPG Neurologie – Psychiatrie – Gériatrie, 11(63), 124–132. https://doi.org/10.1016/j.npg.2011.02.001.CrossRefGoogle Scholar
El-Amrani, L. (2020). Réadaptation cognitive dans la maladie d’Alzheimer: Effets sur les activités instrumentales de la vie quotidienne, la qualité de vie, l’estime de soi et la satisfaction de soi [thèse de doctorat, Université Laval]. https://doi.org/10.1007/s11065-008-9052-3.CrossRefGoogle Scholar
Eustache, F., & Desgranges, B. (2008). MNESIS: Towards the integration of current multisystem models of memory. Neuropsychology, 18(1), 53–69.Google ScholarPubMed
Fleming, R., Zeisel, J., & Bennett, K. (2020). World Alzheimer report 2020: Design dignity dementia: Dementia-related design and the built environment, Volume 1 (Alzheimer’s Disease International). https://www.alzint.org/u/WorldAlzheimerReport2020Vol1.pdf (accédé le 12 juillet 2022).Google Scholar
Gillen, G. (2021). Managing memory deficit to optimize function. Errorless learning. Science Direct. https://www.sciencedirect.com/topics/psychology/errorlesslearning (accédé le 12 juillet 2022).Google Scholar
Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough?: An experiment with data saturation and variability. Field Methods, 18(1), 59–82. https://doi.org/10.1177/1525822X05279903.CrossRefGoogle Scholar
Hildebrandt, H. (2019). Treatment of severely impaired, amnestic patients: Errorless learning and vanishing cues in memory-impaired patients. Dans Cognitive rehabilitation of memory (pp. 161–177). Cambridge, MA : Elsevier, Academic Press. https://doi.org/10.1016/B978-0-12-816981-0.00004-7.CrossRefGoogle Scholar
Institut national de santé publique du Québec. (2011). Trousse diagnostique de sécurité à l’intention des collectivités locales. Guide d’organisation d’entretiens semi-dirigés avec des informateurs clés. 2e édition. Québec : Ministère de la sécurité publique. www.inspq.qc.ca (accédé le 12 juillet 2022).Google Scholar
Johnson, K., & Martínez Guzmán, A. (2013). Rethinking concepts in participatory action research and their potential for social transformation: Post-structuralist informed methodological reflections from LGBT and trans-collective projects. Journal of Community & Applied Social Psychology, 23(5), 405–419.CrossRefGoogle Scholar
Lanzy, A., Burshnic, V., & Bourgeois, M. S. (2017). Person-centered memory and communication strategies for adults with dementia. Topics in Language Disorders, 37(4), 361–374.CrossRefGoogle Scholar
Morrisby, C., Joosten, A., & Ciccarelli, M. (2019). Needs of people with dementia and their spousal carers: A study of those living in the community. Australasian Journal on Ageing, 38(2), 43–49. https://doi.org/10.1111/ajag.12609.CrossRefGoogle ScholarPubMed
Neely, A. S., Vikstrom, S., & Josephsson, S. (2009). Collaborative memory intervention in dementia: Caregiver participation matters. Neuropsychological Rehabilitation, 19, 696–715. https://doi.org/10.1080/09602010902719105.CrossRefGoogle ScholarPubMed
Norman, D., & Shallice, T. (1986). Attention to action: Willed and automatic control of behaviour. Dans, R. J. Davidson, Schwartz, G. E., & Shapiro, D. (dir.), Consciousness and self regulation (pp. 1–18). New York, NY: Plenum Press.Google Scholar
Nott, M. T., Barden, H. L. H., Chapparo, C., & Ranka, J. L. (2020). Evidence based practice and knowledge translation: A survey of Australian occupational therapy practice with clients experiencing neurocognitive impairments. Australian Occupational Therapy Journal, 67(1), 74–82. https://doi.org/10.1111/1440-1630.12625.CrossRefGoogle ScholarPubMed
Okura, T., Plassman, B. L., Steffens, D. C., Llewellyn, D. J., Potter, G. G., & Langa, K. M. (2011). Neuropsychiatric symptoms and the risk of institutionalization and death: The aging, demographics, and memory study. Journal of the American Geriatrics Society, 59(3), 473–481. https://doi.org/10.1111/j.1532-5415.2011.03314.x.CrossRefGoogle ScholarPubMed
Paillé, P., & Mucchielli, A. (2012). L’analyse qualitative en sciences humaines et sociales. Paris: Armand Colin. https://doi.org/10.3917/arco.paill.2012.01.CrossRefGoogle Scholar
Posner, M. I. (1980). Orienting of attention. Quarterly Journal of Experimental Psychology, 32(1), 3–25.CrossRefGoogle ScholarPubMed
Reinhard, S. C., & Brassard, A. (2020). Nurses leading the way to better support family caregivers. OJIN: The Online Journal of Issues in Nursing, 25(1), en ligne. https://doi.org/10.3912.OJIN.Vol25No01Man01.CrossRefGoogle Scholar
Rey, S. (2015). Gestion optimale des symptômes comportementaux et psychologiques de la démence chez les aînés vivant en centre d’hébergement et de soins de longue durée – Guide de pratique clinique pour les infirmières. Direction des services de soutien à l’autonomie des personnes âgées. https://medfam.umontreal.ca/wp-content/uploads/sites/16/2018/07/Guide-de-pratique-clinique-SCPD_Sciences-infirmieres_2015.pdf (accédé le 12 juillet 2022).Google Scholar
Rojas, G. J., Villar, V., Iturry, M., Harris, P., Serrano, C. M., Herrera, J. A., et al. (2013). Efficacy of a cognitive intervention program in patients with mild cognitive impairment. International Psychogeriatric Association, 25(5), 825–831.10.1017/S1041610213000045CrossRefGoogle ScholarPubMed
Rothi, L. J. G., Ochipa, C., & Heilman, K. M. (1997). A cognitive neuropsychological model of limb praxis and apraxia. Dans, L. J. G. Rothi & Heilman, K. M. (dir.), Apraxia: The neuropsychology of action (pp. 29–49). Erlbaum, UK: Psychology Press, Taylor & Francis.Google Scholar
Small, J. A., & Cochrane, D. (2020). Spaced retrieval and episodic memory training in Alzheimer’s disease. Clinical Interventions in Aging, 15, 519–536. https://doi.org/10.2147/CIA.S242113.CrossRefGoogle ScholarPubMed
Thivierge, S., Jean, L., & Simard, M. (2014). A randomized cross-over controled study on cognitive rehabilitation of instrumental activites of daily living in Alzheimer disease. The American Journal of Geriatric Psychiatry, 22(11), 1188–1199. https://doi.org/10.1016/j.jagp.2013.03.008.CrossRefGoogle Scholar
Viscogliosi, C., Desrosiers, J., & Belleville, S. (2019). Optimizing participation of older adults with cognitive deficits post-stroke: Types of help and caregiver burden. Canadian Journal on Aging, 38(2), 222–235.CrossRefGoogle ScholarPubMed
Voigt-Radloff, S., de Werd, M. M. E., Leonhart, R., Boelen, D. H. E., Olde Rikkert, M. G. M., Fliessbach, K., et al. (2017). Structured relearning of activities of daily living in dementia: The randomized controlled REDALI-DEM trial on errorless learning. Alzheimer’s Research & Therapy, 9(1), 22. https://doi.org/10.1186/s13195-017-0247-9.CrossRefGoogle ScholarPubMed
Wang, Y. Y., Yang, L., Zhang, J., Zeng, X. T., Wang, Y., & Jin, Y. H. (2022). The effect of cognitive intervention on cognitive function in older adults with Alzheimer’s disease: A systematic review and meta-analysis. Neuropsychology Review, 32, 247–273. https://doi.org/10.1007/s11065-021-09486-4.CrossRefGoogle ScholarPubMed
Weerakoon, D. S. D., Kahandawaarachchi, K. A. D. C. P., Dissanayake, J. D. S. Y., Thilakasiri, W. P. M., & Shanthakumara, W. D. M. B. (2018). Memory improvement tool for dementia Alzheimer’s patients. Procedia Computer Science, 141, 413–420. https://doi.org/10.1016/j.procs.2018.10.175.CrossRefGoogle Scholar
Yang, L., Ye, H., & Sun, Q. (2020). Family caregivers’ experiences of interaction with people with mild-to-moderate dementia in China: A qualitative study. International Journal of Nursing Practice, 27(4), e12892. https://doi.org/10.1111/ijn.12892.Google ScholarPubMed
Ylieff, M., Squelard, G., & Missotten, P. (2011). Maladie d’Alzheimer: Vulnérabilité et adaptation du patient et de ses aidants. NPG Neurologie – Psychiatrie – Gériatrie, 11(64), 166–172. https://doi.org/10.1016/j.npg.2011.03.006.CrossRefGoogle Scholar