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Consumer involvement in the health technology assessment program

  • Jane Royle (a1) (a2) and Sandy Oliver (a3) (a4)

Abstract

Objectives: This study aims to describe a cycle of development leading to sustainable methods for involving consumers in the management of a program commissioning health technology assessment.

Methods: Staff time was dedicated to developing procedures for recruiting and briefing consumers to participate in prioritizing, commissioning, and reporting research. Resources and support were developed in light of early feedback from consumers and those working with them. These were piloted and amended before being used routinely.

Results: Over 4 years, procedures and resources have been developed to support six consumers attending seven to eight prioritization meetings a year; thirty to forty-five consumers each year commenting on research need for particular topics; thirty consumers a year commenting on research proposals, and twenty a year commenting on research reports. The procedures include clear job descriptions, induction and development days, clear briefing materials, payment for substantial tasks, and regularly seeking feedback to improve procedures.

Conclusions: Explicit, inclusive, and reproducible methods for supporting consumer involvement that satisfy National Health Service policy recommendations for involving consumers in research require dedicated staff time to support a cycle of organizational development.

Copyright

References

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Department of Health. 2001 Research governance framework. London: Department of Health;
Hanley B, Bradburn J, Gorin S, et al. 2000 Involving consumers in research and development in the NHS: Briefing notes for researchers. Winchester: Help for Health Trust;
Oliver S. 1998 Needs and feasibility study for developing consumer involvement in the NHS R&D Health Technology Assessment Programme. Report to the National Coordinating Centre for Health Technology Assessment. Southhampton: NCCHTA;
Oliver S, Milne R, Bradburn J, et al. 2001 Investigating consumer perspectives on evaluating health technologies. Evaluation. 7: 468486.
Oliver S, Milne R, Bradburn J, et al. 2001 Involving consumers in a needs-led research programme: A pilot project. Health Expect. 4: 1828.
Oliver S. 2000 Guidelines for consumers interested in peer-reviewing research 1. Southhampton: HTA;
Oliver S. 2000 Guidelines for consumers peer-reviewing research 2. Southhampton: HTA;
Royle Jand Oliver S. 2002 Interviews with consumers to develop the prioritisation of health technology assessments. Paper presented at the 18th ISTAHC Conference, Berlin, Germany, June 9-12,
Royle J, Oliver S. 2000 How consumers peer review research proposals for the HTA programme and how commissioners respond. Paper presented at the 16th ISTAHC Conference, The Hague, Netherlands, June 18-21,
Royle J, Steel R, Hanley B, Bradburn J. 2001 Getting involved in research: A guide for consumers. Winchester: Consumers in NHS Research Support Unit;
Stein K, Milne R. 1998 The NHS R&D Health Technology Assessment Programme. Research and development for the NHS. In: Baker MR, Kirk S, eds. Oxford: Radcliffe Medical Press;
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International Journal of Technology Assessment in Health Care
  • ISSN: 0266-4623
  • EISSN: 1471-6348
  • URL: /core/journals/international-journal-of-technology-assessment-in-health-care
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