Ardelt, M. (2008). Wisdom, religiosity, purpose in life, and death attitudes of aging adults. In Existential and spiritual issues in death attitudes. Tomer, A. et al. (eds.), pp. 139–158. Mahwah, NJ: Lawrence Erlbaum Associates.
Australian Institute of Health and Welfare (2013). Australia's welfare 2013. Australia's welfare series no. 11. Cat. no. AUS 174. Canberra: AIHW.
Bachner, Y.G., O'Rourke, N. & Carmel, S. (2011). Fear of death, mortality communication, and psychological distress among secular and religiously observant family caregivers of terminal cancer patients. Death Studies, 35(2), 163–187.
Bahraini, N.H., Devore, M.D., Monteith, L.L., et al. (2013). The role of value importance and success in understanding suicidal ideation among veterans. Journal of Contextual Behavioral Science, 2, 1–2, 31–38.
Boelen, P.A. & Prigerson, H.G. (2007). The influence of symptoms of prolonged grief disorder, depression, and anxiety on quality of life among bereaved adults. European Archives of Psychiatry and Clinical Neuroscience, 257(8), 444–452.
Boelen, P.A., van den Bout, J. & van den Hout, M.A. (2010). A prospective examination of catastrophic misinterpretations and experiential avoidance in emotional distress following loss. Journal of Nervous and Mental Disease, 198(4), 252–257.
Bonanno, G.A., Wortman, C.B., Lehman, D.R., et al. (2002). Resilience to loss and chronic grief: A prospective study from preloss to 18-months postloss. Journal of Personality and Social Psychology, 83(5), 1150–1164.
Boston, P., Bruce, R. & Schreiber, R. (2011). Existential suffering in the palliative care setting: An integrated literature review. Journal of Pain and Symptom Management, 41(3), 604–618.
Branstetter-Rost, A., Cushing, C. & Douleh, T. (2009). Personal values and pain tolerance: Does a values intervention add to acceptance? Journal of Pain, 10(8), 887–892.
Bruce, C.A. (2002). The grief process for patient, family, and physician. The Journal of the American Osteopathic Association, 102(9Suppl. 3), S28–S32.
Candy, B., Jones, L., Drake, R., et al. (2011). Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database of Systematic Reviews, (6), CD007617. doi: 10.1002/14651858.CD007617.pub2.
Carers Australia (2010). The economic value of informal care in 2010. Report by Access Economics for Carers Australia.
Chan, D., Livingston, G., Jones, L., et al. (2013). Grief reactions in dementia carers: A systematic review. International Journal of Geriatric Psychiatry, 28(1), 1–17.
Chiambretto, P., Moroni, L., Guarnerio, C., et al. (2010). Prolonged grief and depression in caregivers of patients in vegetative state. Brain Injury, 24(4), 581–588.
Dobbs, D., Emmett, C.P., Hammarth, A., et al. (2012). Religiosity and death attitudes and engagement of advance care planning among chronically ill older adults. Research on Aging, 34(2), 113–130.
Ettema, E., Derksen, L. & Leeuwen, E. (2010). Existential loneliness and end-of-life care: A systematic review. Theoretical Medicine and Bioethics, 31(2), 141–169.
Feros, D.L., Lane, L., Ciarrochi, J., et al. (2011). Acceptance and commitment therapy (ACT) for improving the lives of cancer patients: A preliminary study. Psycho-Oncology, 22(2), 459–464.
Fleming, F. & Robinson, P. (2001). Grief and cognitive-behavioral therapy: The reconstruction of meaning. In Handbook of bereavement research: Consequences, coping and care. Stroebe, M. et al. (eds.), pp. 647–669. Washington, DC: American Psychological Association.
Fried, T.R., Bradley, E.H., O'Leary, J.R., et al. (2005). Unmet desire for caregiver–patient communication and increased caregiver burden. Journal of the American Geriatrics Society, 53(1), 59–65.
Gauthier, L.R. & Gagliese, L. (2012). Bereavement interventions, end-of-life cancer care, and spousal well-being: A systematic review. Clinical Psychology: Science and Practice, 19(1), 72–92.
Glajchen, M., Fitzmartin, R.D., Blum, D., et al. (1995). Psychosocial barriers to cancer pain relief. Cancer Practice, 3(2), 76–82.
Gregg, J., Callaghan, G., Hayes, S., et al. (2007). Improving diabetes self-management through acceptance, mindfulness, and values: A randomized controlled trial. Journal of Consulting and Clinical Psychology, 75(2), 336–343.
Guldin, M.-B., Vedsted, P., Zachariae, R., et al. (2012). Complicated grief and need for professional support in family caregivers of cancer patients in palliative care: A longitudinal cohort study. Supportive Care in Cancer, 20(8), 1679–1685.
Hagedoorn, M., Sanderman, R., Bolks, H.N., et al. (2008). Distress in couples coping with cancer: A meta-analysis and critical review of role and gender effects. Psychological Bulletin, 134(1), 1–30.
Harding, R. & Higginson, I.J. (2003). What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliative Medicine, 17(1), 63–74.
Harding, R., List, S., Epiphaniou, E., et al. (2012). How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliative Medicine, 26(1), 7–22.
Harris, J., Bowen, D.J., Badr, H., et al. (2009). Family communication during the cancer experience. Journal of Health Communication, 14, 76–84.
Harris, R. (2006). Embracing your demons: An overview of acceptance and commitment therapy. Psychotherapy in Australia, 12(4), 2–8.
Harville, M., Stokes, S.J., Templer, D.I., et al. (2003). Relation of existential and religious variables to the Death Depression Scale–revised. Omega: The Journal of Death and Dying, 48(2), 165–184.
Hayes, S.C. (2004). Acceptance and commitment therapy, relational frame theory, and the third wave of behavioral and cognitive therapies. Behavior Therapy, 35(4), 639–665.
Hayes, S.C., Luoma, J.B., Bond, F.W., et al. (2006). Acceptance and commitment therapy: Model, processes and outcomes. Behaviour Research and Therapy, 44(1), 1–25.
Henriksson, A., Carlander, I. & Årestedt, K. (2013). Feelings of rewards among family caregivers during ongoing palliative care. Palliative & Supportive Care, 16, 1–9.
Higginson, I.J. & Costantini, M. (2002). Communication in end-of-life cancer care: A comparison of team assessments in three European countries. Journal of Clinical Oncology, 20(17), 3674–3682.
Higginson, I.J., Wade, A. & McCarthy, M. (1990). Palliative care: Views of patients and their families. BMJ, 301(6746), 277–281.
Hogan, N.S. & Schmidt, L.A. (2002). Testing the grief to personal growth model using structural equation modeling. Death Studies, 26(8), 615–634.
Hudson, P.L., Remedios, C., Zordan, R., et al. (2012). Guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients. Journal of Palliative Medicine, 15(6), 696–702.
Janoff-Bulman, R. (1992). Shattered assumptions: Towards a new psychology of trauma. New York: Free Press.
Kashdan, T.B. & Rottenberg, J. (2010). Psychological flexibility as a fundamental aspect of health. Clinical Psychology Review, 30(7), 865–878.
Kilpatrick, M.G., Kristjanson, L.J., Tataryn, D.J., et al. (1998). Information needs of husbands of women with breast cancer. Oncology Nursing Forum, 25(9), 1595–1601.
Knight, K.H., Elfenbein, M.H. & Capozzi, L. (2000). Relationship of recollections of first death experience to current death attitudes. Death Studies, 24(3), 201–221.
Kramer, B.J., Kavanaugh, M., Trentham-Dietz, A., et al. (2010 a). Complicated grief symptoms in caregivers of persons with lung cancer: the role of family conflict, intrapsychic strains, and hospice utilization. Omega: The Journal of Death and Dying, 62(3), 201–220.
Kramer, B.J., Kavanaugh, M., Trentham-Dietz, A., et al. (2010 b). Predictors of family conflict at the end of life: The experience of spouses and adult children of persons with lung cancer. The Gerontologist, 50(2), 215–225.
LeMay, K. & Wilson, K.G. (2008). Treatment of existential distress in life threatening illness: A review of manualized interventions. Clinical Psychology Review, 28(3), 472–493.
Li, R., Cooper, C., Bradley, J., et al. (2012). Coping strategies and psychological morbidity in family carers of people with dementia: A systematic review and meta-analysis. Journal of Affective Disorders, 139(1), 1–11.
Lichtenthal, W.G., Nilsson, M., Kissane, D.W., et al. (2011). Underutilization of mental health services among bereaved caregivers with prolonged grief disorder. Psychiatric Services, 62(10), 1225–1229.
Lynn, J. (2005). Living long in fragile health: The new demographics shape end of life care. Improving end of life care: Why has it been so difficult? Hastings Centre Report, Special Report 35, No. 6, S14–S18.
McGuire, D.B., Grant, M. & Park, J. (2012). Palliative care and end of life: The caregiver. Nursing Outlook, 60(6), 351–356.
Melin-Johansson, C., Henoch, I., Strang, S., et al. (2012). Living in the presence of death: An integrative literature review of relatives' important existential concerns when caring for a severely ill family member. The Open Nursing Journal, 6, 1–12.
Milberg, A. & Strang, P. (2011). Protection against perceptions of powerlessness and helplessness during palliative care: The family members' perspective. Palliative & Supportive Care, 9(3), 251–262.
Mockford, C., Jenkinson, C. & Fitzpatrick, R. (2006). A review: Carers, MND and service provision. Amyotrophic Lateral Sclerosis, 7(3), 132–141.
Morina, N. (2011). Rumination and avoidance as predictors of prolonged grief, depression, and posttraumatic stress in female widowed survivors of war. Journal of Nervous and Mental Disease, 199(12), 921–927.
Mystakidou, K., Tsilika, E., Parpa, E., et al. (2006). Psychological distress of patients with advanced cancer: Influence and contribution of pain severity and pain interference. Cancer Nursing, 29(5), 400–405.
National Council for Palliative Care (2013). Who cares? Support for carers of people approaching the end of life. London: NCPC.
Neimeyer, R.A. (2006). From death anxiety to meaning making at the end of life: Recommendations for psychological assessment. Clinical Psychology–Science and Practice, 12(3), 354–357.
Neimeyer, R.A. & Dingemans, P. (1980). Death orientation in the suicide intervention worker. Omega: The Journal of Death and Dying, 11(1), 15–23.
Neimeyer, R.A., Moser, R.P. & Wittkowski, J. (2003). Assessing attitudes toward dying and death: Psychometric considerations. Omega: The Journal of Death and Dying, 47(1), 45–76.
Neimeyer, R.A., Wittkowski, J. & Moser, R.P. (2004). Psychological research on death attitudes: An overview and evaluation. Death Studies, 28(4), 309–340.
Niemiec, C.P., Brown, K.W., Kashdan, T.B., et al. (2010). Being present in the face of existential threat: The role of trait mindfulness in reducing defensive responses to mortality salience. Journal of Personality and Social Psychology, 99(2), 344–365.
Office for National Statistics (2013). National bereavement survey (VOICES) 2012. Newport, South Wales: Office for National Statistics.
Payne, S. & Grande, G. (2013). Towards better support for family carers: A richer understanding. Palliative Medicine, 27(7), 579–580.
Planalp, S. & Trost, M.R. (2008). Communication issues at the end of life: Reports from hospice volunteers. Health Communication, 23(3), 222–233.
Porter, L.S., Keefe, F.J., Hurwitz, H., et al. (2005). Disclosure between patients with gastrointestinal cancer and their spouses. Psycho-Oncology, 14(12), 1030–1042.
Prigerson, H.G. & Maciejewski, P.K. (2008). Grief and acceptance as opposite sides of the same coin: Setting a research agenda to study peaceful acceptance of loss. British Journal of Psychiatry, 193(6), 435–437.
Prigerson, H.G., Maciejewski, P.K., Reynolds, C.F., et al. (1995). Inventory of complicated grief: A scale to measure maladaptive symptoms of loss. Psychiatry Research, 59(1–2), 65–79.
Prigerson, H.G., Vanderwerker, L. & Maciejewski, P. (2008). A case for inclusion of prolonged grief disorder in DSM-V. In Handbook of bereavement research and practice: Advances in theory and intervention. Stroebe, M.S. et al. (eds.), pp. 165–186. Washington, DC: American Psychological Association.
Prigerson, H.G., Horowitz, M.J., Jacobs, S.C., et al. (2009). Prolonged grief disorder: Psychometric validation of criteria proposed for DSM–V and ICD–11. PLoS Medicine, 6(8).
Productivity Commission (2011). Disability care and support. Canberra: Productivity Commission.
Rando, T. (2000). Clinical dimensions of anticipatory mourning: Theory and practice in working with the dying, their loved ones, and their caregivers. Champaign, IL: Research Press.
Redfoot, D., Feinberg, L. & Houser, A. (2013). The aging of the baby boom and the growing care gap: A look at future declines in the availability of family caregivers. Insight on the Issues ‘85. Washington DC: AARP Public Policy Institute
Rodriguez Villar, S., Sanchez Casado, M., Prigerson, H.G., et al. (2012). Prolonged grief disorder in the next of kin of adult patients who die during or after admission to intensive care. Chest, 141(6), 1635–1636.
Romanoff, B. (2012). Acceptance and commitment therapy (ACT). In Techniques of grief therapy. Neimeyer, R.A. (ed.), pp. 133–135. New York: Routledge.
Routledge, C. & Juhl, J. (2010). When death thoughts lead to death fears: Mortality salience increases death anxiety for individuals who lack meaning in life. Cognition & Emotion, 24(5), 848–854.
Ruiz, F. (2010). A review of acceptance and commitment therapy (ACT) empirical evidence: Correlational, experimental psychopathology, component and outcome studies. International Journal of Psychology and Psychological Therapy, 10, 125–162.
Schoka Traylor, E., Hayslip, B. Jr., Kaminski, P.L., et al. (2003). Relationships between grief and family system characteristics: A cross-lagged longitudinal analysis. Death Studies, 27(7), 575–601.
Schulz, R., Boerner, K., Shear, K., et al. (2006). Predictors of complicated grief among dementia caregivers: A prospective study of bereavement. American Journal of Geriatric Psychiatry, 14(8), 650–658.
Shear, M.K. (2010). Exploring the role of experiential avoidance from the perspective of attachment theory and the dual process model. Omega: The Journal of Death and Dying, 61(4), 357–369.
Sherman, D.W., Norman, R. & McSherry, C.B. (2010). A comparison of death anxiety and quality of life of patients with advanced cancer or AIDS and their family caregivers. The Journal of the Association of Nurses in AIDS Care, 21(2), 99–112.
Spira, A.P., Beaudreau, S.A., Jimenez, D., et al. (2007). Experiential avoidance, acceptance, and depression in dementia family caregivers. Clinical Gerontologist: The Journal of Aging and Mental Health, 30(4), 55–64.
Stroebe, M.S. & Schut, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23(3), 197–224.
Stroebe, M.S., Folkman, S., Hansson, R.O., et al. (2006). The prediction of bereavement outcome: Development of an integrative risk factor framework. Social Science & Medicine, 63(9), 2440–2451.
Thompson, G.N., Chochinov, H.M., Wilson, K.G., et al. (2009). Prognostic acceptance and the well-being of patients receiving palliative care for cancer. Journal of Clinical Oncology, 27(34), 5757–5762.
Tomer, A. (2012). Meaning and death attitudes. In The human quest for meaning, 2nd ed.Wong, P.T.P. (ed.), pp. 209–231. New York: Routledge.
Tomer, A. & Eliason, G. (2005). Life regrets and death attitudes in college students. Omega: The Journal of Death and Dying, 51(3), 173–195.
van Hiel, A. & Vansteenkiste, M. (2009). Ambitions fulfilled? The effects of intrinsic and extrinsic goal attainment on older adults' ego-integrity and death attitudes. International Journal of Aging & Human Development, 68(1), 27–51.
Vehling, S., Lehmann, C., Oechsle, K., et al. (2011). Global meaning and meaning-related life attitudes: Exploring their role in predicting depression, anxiety, and demoralization in cancer patients. Supportive Care in Cancer, 19(4), 513–520.
Wallerstedt, B., Andershed, B. & Benzein, E. (2013). Family members' caregiving situations in palliative home care when sitting service is received: The understanding of multiple realities. Palliative & Supportive Care, 20, 1–13.
Wang, L.-C., Chen, W.-Y., Chang, S.-C., et al. (2011). Caregiving burden and associated factors among caregivers of terminally ill gastrointestinal cancer patients. Hu li za zhi. The Journal of Nursing, 58(6), 54–64.
Wicksell, R., Melin, L., Lekander, M., et al. (2009). Evaluating the effectiveness of exposure and acceptance strategies to improve functioning and quality of life in longstanding pediatric pain: A randomized controlled trial. Pain, 37, 1–14.
Williams, A.-L. & McCorkle, R. (2011). Cancer family caregivers during the palliative, hospice, and bereavement phases: A review of the descriptive psychosocial literature. Palliative & Supportive Care, 9(3), 315–325.
Wink, P. (2006). Who is afraid of death? Religiousness, spirituality, and death anxiety in late adulthood. Journal of Religion, Spirituality & Aging, 18(2–3), 93–110.
Wittouck, C., van Autreve, S., De Jaegere, E., et al. (2011). The prevention and treatment of complicated grief: A meta-analysis. Clinical Psychology Review, 31(1), 69–78.
Wong, P.T.P. (2008). Meaning management theory and death acceptance. In Existential and spiritual issues in death attitudes. Tomer, A. et al. (eds.), pp. 65–87. Mahwah, NJ: Erlbaum.
Wong, P.T.P., Reker, G.T. & Gesser, G. (1994). Death attitude profile-revised: A multidimensional measure of attitudes toward death. In Death anxiety handbook: Research, instrumentation, and application. Neimeyer, R.A. (ed.), pp. 121–145. Washington, DC: Taylor & Francis.
Wong, W. (2009). The growth of death awareness through death education among university students in Hong Kong. Omega: The Journal of Death and Dying, 59(2), 113–128.
Wu, A.M.S. (2008). Discussion of posthumous organ donation in Chinese families. Psychology, Health & Medicine, 13(1), 48–54.
Yalom, I. (2008). Staring at the sun: Overcoming the terror of death. San Francisco: Jossey-Bass.
Zhang, A.Y. & Siminoff, L.A. (2003). Silence and cancer: Why do families and patients fail to communicate? Health Communication, 15(4), 415–429.