Skip to main content
×
Home

Using the opinions of coronary heart disease patients in designing a health education booklet for use in general practice consultations

  • Claire S. Leathem (a1), Margaret E. Cupples (a1), Mary C. Byrne (a2), Molly Byrne (a3), Mairead Corrigan (a4), Susan M. Smith (a5) and Andrew W. Murphy (a2)...
Abstract
Aim

This study aimed to explore how the views of patients with coronary heart disease (CHD) could inform the design of an information booklet aimed at providing patients and practitioners with a resource to help influence positive health behavioural outcomes.

Background

Coronary heart disease has major consequences in terms of patient suffering and economic costs, with morbidity and mortality figures in the United Kingdom and the Republic of Ireland among the highest in Europe. Lifestyle behaviours such as smoking, eating an unhealthy diet and a lack of exercise are strongly associated with an increased CHD risk, and practitioners report that health education materials are used in practice to help advise and educate patients about the consequences of their lifestyle.

Methods

Opinions of patients with CHD were explored concerning their information needs, particularly lifestyle advice, using a qualitative approach in four general practices. This information was used to design a booklet for a pilot study aimed at promoting healthy lifestyle behaviours and medication adherence among people with CHD. Focus group discussions explored patients’ opinions about the booklet’s ‘fitness for purpose’; semi-structured interviews with practitioners examined their views on the booklet’s usefulness.

Findings

In initial focus groups, patients identified gaps in their information provision regarding coping with stress, available local community support and medication purpose. Previously published literature was modified to address these gaps. Patients in the pilot study were satisfied with the re-designed booklet. Practitioners reported that its use in consultations enabled change implementation and facilitated patients’ understanding of connections between lifestyle and health outcomes.

Acknowledging the opinions of CHD patients in producing health information booklets emphasized a patient-centred approach and therefore supported practitioner–patient partnerships for choosing healthy lifestyle choices.

Copyright
Corresponding author
Correspondence to: Claire S. Leathem, Northern Ireland Clinical Research Network (Primary Care), Level 4 Dunluce Health Centre, 1 Dunluce Avenue, Belfast BT9 7HR, UK. Email: c.leathem@qub.ac.uk
References
Hide All
Beaver K.Luker K. 1997: Readability of patient information booklets for women with breast cancer. Patient Education and Counseling 31, 95102.
BHF (British Heart Foundation). 2006: Coronary heart disease statistics. Retrieved from http://www.heartstats.org/datapage.asp?id=5712
Bull F.C., Holt C.L., Kreuter M.W., Clark E.M.Scharff D.P. 2001: Understanding the effects of printed health education materials: which features lead to which outcomes? Journal of Health Communication 6, 265279.
Corrigan M., Cupples M.E., Smith S.M., Byrne M., Leathem C.S., Clerkin P.Murphy A.W. 2006: Developing a complex intervention for secondary prevention of coronary heart disease in two different healthcare systems: the contribution of qualitative methods. BMC Health Services Research 6, 90. Available at http://www.biomedcentral.com/1472-6963/6/90
Dixon-Woods M. 2001: Writing wrongs? An analysis of published discourses about the use of patient information leaflets. Social Science & Medicine 52, 14171432.
Feldman-Stewart D., Brennenstuhl S.Brundage M.D. 2007: A purpose-based evaluation of information for patients: an approach to measuring effectiveness. Patient Education and Counseling 65, 311319.
Frank E. 1995: Discussion alliance not compliance: a philosophy of outpatient care. Journal of Clinical Psychiatry 56, 1617.
Friedman D.B.Hoffman-Goetz L. 2006: A systematic review of readability and comprehension instruments used for print and web-based cancer information. Health Education & Behavior 33, 352373.
Friere P. 1990: Pedagogy of the oppressed. New York: Continuum Press.
Gal I.Prigat A. 2005: Why organizations continue to create patient information leaflets with readability and usability problems: an exploratory study. Health Education Research 4, 485493.
Haidet P., Kroll T.L.Sharf B.F. 2006: The complexity of patients participation: lessons learned from patients’ illness narratives. Patient Education and Counseling 62, 323329.
Harris M., Smith B.Veale A. 2005: Printed patient education interventions to facilitate shared management of chronic disease: a literature review. Internal Medicine Journal 12, 711716.
IALS (International Adult Literacy Survey). 1998: Retrieved 2 October 2006 from http://www.statcan.ca/english/Dli/Data/Ftp/ials/ials1994-96-98.htm
Kitzinger J. 1995: Qualitative research: introducing focus groups. British Medical Journal 311, 299302.
Kreuter M.W., Oswald D.L., Bull F.C.Clark E.M. 2000: Are tailored health education materials always more effective than non-tailored materials? Health Education Research 15, 305315.
Little P., Everitt H., Williamson I., Warner G., Moore M., Gould C., Ferrier K.Payne S. 2001: Observational study of effect of patient centredness and positive approach on outcomes of general practice consultations. British Medical Journal 323, 908911.
Little P., Dorward M., Warner G., Moore M., Stephens K., Senior J.Kendrick T. 2004: Randomised controlled trial of effect of leaflets to empower patients in consultations in primary care. British Medical Journal 328, 441.
McNamara D.S. 2001: Reading both high and low coherence texts: effects of text sequence and prior knowledge. Canadian Journal of Experimental Psychology 55, 5162.
Morgan D.L. 1997: Focus groups as qualitative research, second edition. London: Sage.
Morrall P. 1996: Clinical sociology and the empowerment of clients. Mental Health Nursing 16, 2427.
Murphy A.W., Cupples M.E., Smith S.M., Byrne M., Leathem C.S.Byrne M.C. 2005: The SPHERE study. Secondary prevention of heart disease in general practice: protocol of a randomised controlled trial of tailored practice and patient care plans with parallel qualitative, economic and policy analyses. Current Controlled Trials in Cardiovascular Medicine 6, 11. Available at http://cvm.controlled-trials.com/content/6/1/11
Paul C.L., Redman S.Sanson-Fisher R.W. 2003: Print material content and design: is it relevant to effectiveness? Health Education Research 18, 181190.
Paul C.R.Redman S. 1997: A review of the effectiveness of print material in changing health related knowledge, attitudes and behaviour. Health Promotion Journal of Australia 7, 9199.
Rees C.E., Ford J.E.Sheard C.E. 2003: Patient information leaflets for prostate cancer: which leaflets should healthcare professionals recommend? Patient Education and Counseling 49, 263272.
Rodgers B.L. 1989: Concepts, analysis and the development of nursing knowledge: the evolutionary cycle. Journal of Advanced Nursing 14, 330335.
Rogers R. 2004: Storied selves: a critical discourse analysis of adult learners’ literate lives. Reading Research Quarterly 39, 272305.
Rollnick S., Mason P.Butler C. 1999: Health behaviour change: a guide for practitioners. Edinburgh: Churchill Livingstone.
Smith H., Gooding S., Brown R.Frew A. 1998: Evaluation of readability and accuracy of information leaflets in general practice for patients with asthma. British Medical Journal 317, 264265.
Stubblefield C.Mutha S. 2002: Provider-patient roles in chronic disease management. Journal of Allied Health 31, 8792.
Wilson V.L. 2003: Survey of information and support needs of people with type I diabetes. Journal of Diabetes Nursing. Retrieved on 1 August 2006 from http://www.findarticles.com/articles/mi_m0MDR/is_7_7/ai_n6100328
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

Primary Health Care Research & Development
  • ISSN: 1463-4236
  • EISSN: 1477-1128
  • URL: /core/journals/primary-health-care-research-and-development
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Keywords:

Metrics

Full text views

Total number of HTML views: 3
Total number of PDF views: 3 *
Loading metrics...

Abstract views

Total abstract views: 77 *
Loading metrics...

* Views captured on Cambridge Core between September 2016 - 24th November 2017. This data will be updated every 24 hours.