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A helping hand: providing information to patients and the public

  • Sabina Dosani (a1)
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Abstract
Copyright
This is an Open Access article, distributed under the terms of the Creative Commons Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
References
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Audit Commission (1993) What Seems to be the Matter: Communication Between Hospitals and Patients. London: HMSO.
Consumers' Association (2003) Patient Information: What's the Prognosis. London: Consumers' Association.
Coulter, A. (1997) Partnerships with patients: the pros and cons of shared clinical decision-making. Journal of Health Services Research Policy, 2, 112121.
Coulter, A., Entwistle, V. & Gilbert, D. (1999) Sharing decisions with patients: is the information good enough? BMJ, 318, 318322.
Kennedy, J. G. (2003) ‘Doc, tell me what I need to know’ – a doctor's perspective. BMJ, 327, 862863.
Rowling, J. K. (1999) Harry Potter and The Chamber of Secrets. London: Bloomsbury.
Strull, W. M., Lo, B. & Charles, G. (1984) Do patients want to participate in medical decision making? JAMA, 252, 29902994.
Timms, P., Briscoe, M., Hart, D., et al (2004) ‘Help is at Hand’ on the web –what do our readers think? Psychiatric Bulletin, 28, 2427.
Working Group on Post-School Basic Skills (Chairman, Sir Claus Moser) (1999) A Fresh Start: Improving Literacy and Numeracy. London: Department for Education and Employment.
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BJPsych Bulletin
  • ISSN: 0955-6036
  • EISSN: 1472-1473
  • URL: /core/journals/bjpsych-bulletin
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A helping hand: providing information to patients and the public

  • Sabina Dosani (a1)
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eLetters

Deaf Awareness

Sara L Adshead, doctor
25 April 2005

I read with interest both Dr Dosani's article, and Dave Jago's response regarding the issue of accessibility of the College's "Help is atHand" information leaflets for the blind/partially sighted individual.

I would highlight also the difficulties encountered by the pre-lingually deafened patient, who is dependent upon British Sign Language (BSL) for communication.This utilises a greatly simplified version of English, with a much smallervocabulary, and hence such patients encounter significant comprehension difficulties when reading medical information guides, even those which have been written specifically for the lay-person.

I note that some of the "Help is at Hand" leaflets are available in several different languages for the ethnic minority user, and as large print/voice browswers for the visually impaired indidvidual, and it is unfortunate therefore, that the same information has not been translated into BSL for the deaf community.Another suggestion might be (although perhaps more costly), the development of a video with BSL and subtitles.

This format has already been utilised in the recent "Mental Health Act 1983 Video for Deaf People" (British Society for Mental Health and Deafness, BSMHD), a precedent which, I feel, should be emulated in order to avoid further alienation of this section of the population.
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Conflict of interest: None Declared

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Response to Dr Dosani: 'Help is at Hand' leaflets

Dave Jago, Head of Publications
04 January 2005

Dr Dosani is not completely correct in saying that "the many blind orpartially sighted people in the UK are currently unable to access 'Help isat Hand'. All of the leaflets are available free on the College's website (www.rcpsych.ac.uk), and we have taken care that the web versions conform to the appropriate accessibility standards, so that they can all be read using voice browsers, the text can be resized to suit the reader, and so on. ... More

Conflict of interest: None Declared

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