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Accessing Health Care Utilization Databases for Health Research: A Canadian Longitudinal Study on Aging Feasibility Study*

Published online by Cambridge University Press:  01 September 2009

Parminder S. Raina ,
Susan A. Kirkland ,
Christina Wolfson ,
Karen Szala-Meneok ,
Lauren E. Griffith ,
Homa Keshavarz ,
Jennifer Uniat ,
Linda Furlini ,
Camille L. Angus  and
Geoff Strople
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Parminder S. Raina*
Affiliation:
McMaster Evidence-based Practice Center, McMaster University Department of Clinical Epidemiology & Biostatistics, Faculty of Health Sciences, McMaster Universiy
Susan A. Kirkland
Affiliation:
Department of Community Health & Epidemiology, Dalhousie University Department of Medicine, Dalhousie University
Christina Wolfson
Affiliation:
Division of Clinical Epidemiology, McGill University Health Centre Department of Epidemiology & Biostatistics and Occupational Health, and Department of Medicine, McGill University
Karen Szala-Meneok
Affiliation:
School of Rehabilitation Science, McMaster University
Lauren E. Griffith
Affiliation:
McMaster Evidence-based Practice Center, McMaster University Department of Clinical Epidemiology & Biostatistics, Faculty of Health Sciences, McMaster Universiy
Homa Keshavarz
Affiliation:
McMaster Evidence-based Practice Center, McMaster University Department of Clinical Epidemiology & Biostatistics, Faculty of Health Sciences, McMaster Universiy
Jennifer Uniat
Affiliation:
Division of Clinical Epidemiology, McGill University Health Centre
Linda Furlini
Affiliation:
Research Ethics Office, McGill University Health Centre, Royal Victoria Hospital
Camille L. Angus
Affiliation:
Department of Community Health & Epidemiology, Dalhousie University
Geoff Strople
Affiliation:
Department of Community Health & Epidemiology, Dalhousie University
Amélie Pelletier
Affiliation:
Division of Clinical Epidemiology, McGill University Health Centre
*
†Correspondence and requests for offprints should be sent to: / La correspondance et les demandes de tirés-à-part doivent être adressées à : Parminder S. Raina, PhD Professor/Director, McMaster University, Evidence-based Practice Center 1280 Main St. W. DTC Room 310 Hamilton, Ontario, L8S 4L8 praina@mcmaster.ca
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Résumé

Une des clés au succès de l’Étude longitudinale canadienne sur le vieillissement (ÉLCV) sera de tirer profit des sources de données secondaires, en particulier données relatives à l’utilisation des soins de santé (USS). Pour examiner les aspects pratiques, méthodologiques et éthiques d’accéder à des données sur l’USS, des entrevues qualitatives individuelles ont été réalisés auprès de 53 administrateurs de données et commissaires/ombudsman à la protection de la vie privée à travers le Canada. Les participants de l’étude ont indiqué que d’obtenir la permission d’accéder à des données sur l’USS est généralement possible; cependant, ils ont noté que ce processus sera complexe et long, exigeant des travaux préparatoires considérables et méticuleux afin de s’assurer que la documentation soit appropriée et que le tout soit conforme aux variations juridiques ainsi qu’aux lignes, législatives et politiques.

Keywords

ELCVpolitique legislativesources de donnees secondairesCLSAadministrative datadatabase linkagehealth care utilizationprivacy
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 28 , Issue 3: Special Issue on the Canadian Longitudinal Study on Aging (CLSA) , September 2009 , pp. 287 - 294
Copyright
Copyright © Canadian Association on Gerontology 2009

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Footnotes

*

Funding for the Canadian Longitudinal Study on Aging was provided by the Canadian Institutes of Health Research (CIHR), Le Fonds de la recherche en santé du Québec (FRSQ) – Réseau québécois de recherche sur le vieillissement.

Parminder Raina is the recipient of a Canadian Institutes of Health Research Investigator award, an Ontario Premier’s Research Excellence award, and holds a Labarge Chair in Research and Knowledge Application for Optimal Aging at McMaster University.

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