[1]Behar, L.. Interventions with parental cancer, dependent children, and adolescents. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 417–418.Google Scholar

[2]Arber, A.. How do nurses ‘think family’ and support parents diagnosed with cancer who have dependent children? Asia-Pacific Journal of Oncology Nursing, 2016, 3(3): 214–217.Google Scholar

[3]Walczak, A., McDonald, F., Patterson, P. et al. How does parental cancer affect adolescent and young adult offspring? A systematic review. International Journal of Nursing Studies, 2018, 77: 54–80. http://doi.org/10.1016/j.ijnurstu.2017.08.017Google Scholar

[4]Fearnley, R.. Supporting children when a parent has a life-threatening illness: The role of the community practitioner. Community Practitioner, 2012, 85(12): 22–25.Google Scholar

[5]Semple, C. and McCaughan, E.. Developing and testing a theory-driven e-learning intervention to equip healthcare professionals to communicate with parents impacted by parental cancer. European Journal of Cancer Care, 2019, 41: 126–134.Google Scholar

[6]Fearnely, R. and Boland, J.. Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness: A systematic review. Palliative Medicine, 2017, 31(3): 212–222. http://doi.org/10.1177/0269216316655736Google Scholar

[7]Morris, J., Turnbull, D., Martini, A. et al. Coping and its relationship to post-traumatic growth, emotion, and resilience among adolescents and young adults impacted by parental cancer. Journal of Psychosocial Oncology, 2019, 38(1): 73–88. http://doi.org/10.1080/07347332.2019.1637384Google Scholar

[8]Jansson, K. and Anderzen-Carlsson, A.. Adolescents’ perspectives of living with a parent’s cancer: A unique and personal experience. Cancer Nursing, 2017, 40(2): 94–101. http://doi.org/10.1097/NCC.0000000000000358Google Scholar

[9]Kristjanson, L., Chalmers, K. and Woodgate, R.. Information and support needs of adolescent children of women with breast cancer. Oncology Nursing Forum, 2004, 31(1): 111–119.Google Scholar

[10]Lally, R., Hydeman, J., Brooks, C. et al. Experiences and needs of African American children and adolescents in supportive care roles for a relative with breast cancer. Oncology Nursing Forum, 2020, 47(2): 165–176. http://doi.org/10.1188/20.ONF.165-176Google Scholar

[11]Karlsson, E., Andersson, K. and Ahlstrom, B.. Loneliness despite the presence of others – Adolescents’ experiences of having a parent who becomes ill with cancer. European Journal of Oncology Nursing, 2013, 17(6): 697–703. http://doi.org/10.1016/j.ejon.2013.09.005Google Scholar

[12]Hailey, C., Yopp, J., Deal, A. et al. Communication with children about a parent’s advanced cancer and measures of parental anxiety and depression: A cross-sectional mixed-methods study. Support Care Cancer, 2018, 26(1): 287–295.Google Scholar

[13]Rolland, J.. Cancer and the family: An integrative model. Cancer Supplement, 2005, 104(11): 2584–2595. http://doi.org/10.1002/cncr.21489Google Scholar

[14]Visser, A., Huizinga, G., Graaf, W. van der et al. The impact of parental cancer on children and the family: A review of the literature. Cancer Treatment Reviews, 2004, 30(8): 683–694. http://doi.org/10.1016/j.ctrv.2004.06.001Google Scholar

[15]Huizinga, G., Visser, A., Graaf, W. Van der et al. Family-oriented multilevel study on the psychological functioning of adolescent children having a mother with cancer. Psycho-Oncology, 2011, 20(7): 730–737. http://doi.org/10.1002/pon.1779Google Scholar

[16]Chin, J. and Lin, M.. Children’s experiences of living with maternal breast cancer: A qualitative study. Journal of Advanced Nursing, 2021, 77(8): 3446–3457. http://doi.org/10.1111/jan.14866Google Scholar

[17]O’Neill, C., O’Neill, C. and Semple, C.. Children of parents with cancer: An evaluation of psychosocial intervention. University College Dublin, 2018. http://doras.dcu.ie/22629/1/Final%20Report%20on%20Evaluation%20of%20CLIMB.pdfGoogle Scholar

[18]Kuhne, F., Haagen, M., Baldus, C. et al. Implementation of preventive mental health services for children of physically ill parents: Experiences in seven European countries and health care systems. General Hospital Psychiatry, 2013, 35(2): 147–153. http://doi.org/10.1016/j.genhosppsych.2012.10.005Google Scholar

[19]Leedham, B. and Meyerowitz, B.. Responses to parental cancer: A clinical perspective. Journal of Clinical Psychology in Medical Settings, 1999, 6(4): 441–461.Google Scholar

[20]Semple, C. and McCaughan, E.. Family life when a parent is diagnosed with cancer: Impact of a psychosocial intervention for young children. European Journal of Cancer Care, 2013, 22(2): 219–231.Google Scholar

[21]Altun, H., Kurtul, N., Arici, A. and Yazar, E.. Evaluation of emotional and behavioural problems in school-age children of patients with breast cancer. Turkish Journal of Oncology, 2019, 34(1): 12–20. http://doi.org/10.5505/tjo.2018.1824Google Scholar

[22]Lindqvist, B., Schmitt, F., Santalahti, P. et al. Factors associated with the mental health of adolescents when a parent has cancer. Scandinavian Journal of Psychology, 2007, 48(4): 345–351. http://doi.org/10.1111/j.1467-9450.2007.00573.xGoogle Scholar

[23]Welch, A., Wadsworth, M. and Compas, B.. Adjustment of children and adolescents to parental cancer. American Cancer Society, 1996, 77(7): 1409–1418.Google Scholar

[24]Watson, M., St James-Roberts, I., Ashely, S. et al. Factors associated with emotional and behavioural problems among school age children of breast cancer patients. British Journal of Cancer, 2006, 94(1): 43–50. http://doi.org/10.1038/sj.bjc.6602887Google Scholar

[25]McDonald, F., Patterson, P., White, K. et al. Correlates of unmet needs and psychological distress in adolescent and young adults who have a parent diagnosed with cancer. Psycho-Oncology, 2016, 25(4): 447–454. http://doi.org/10.1002/pon.3942Google Scholar

[26]Krattenmacher, T., Kuhne, F., Ernst, J. et al. Parental cancer: Factors associated with children’s psychosocial adjustment – A systematic review. Journal of Psychosomatic Research, 2012, 72(5): 344–356. http://doi.org/10.1016/j.jpsychores.2012.01.011CrossRefGoogle ScholarPubMed

[27]Graungaard, A. Hauskov, Bendixen, C., Haavet, O. et al. (2017) Somatic symptoms in children who have a parent with cancer: A systematic review. Clinical Care Health Development, 2017, 45(2): 147–158. http://doi.org/10.1111/cch.12647Google Scholar

[28]Osborn, T.. The psychosocial impact of parental cancer on children and adolescents: A systematic review. Psycho-Oncology, 2007, 16(2): 101–126. http://doi.org/10.1002/pon.1113Google Scholar

[29]Philips, F.. Adolescents living with a parent with advanced cancer: A review of the literature. Psycho-Oncology, 2014, 23(12): 1323–1339. http://doi.org/10.1002/pon.3570Google Scholar

[30]Purc-Stephenson, R. and Lyseng, A.. How are the kids holding up? A systematic review and meta-analysis on the psychosocial impact of maternal breast cancer on children. Cancer Treatment Reviews, 2016, 49: 45–56. http://doi.org/10.1016/j.ctrv.2016.07.005Google Scholar

[31]Grabiak, B., Bender, C. and Puskar, K.. The impact of parental cancer on the adolescent: An analysis of the literature. Psycho-Oncology, 2007, 16(2): 127–137. http://doi.org/10.1002/pon.1083Google Scholar

[32]Wellisch, D., Ormseth, S. and Arechiga, A.. Evolution and emotional symptoms over time among daughters of patients with breast cancer. Psychosomatics, 2015, 56(5): 504–512. http://doi.org/10.1016/j.psym.2014.07.001Google Scholar

[33]Davey, M., Gulish, L., Askew, J. et al. Adolescents coping with mom’s breast cancer: Developing family intervention programs. Journal of Marital and Family Therapy, 2005, 31(2): 247–258.Google Scholar

[34]Davey, M., Askew, J. and Godette, K.. Parent and adolescent responses to non-terminal parental cancer: A retrospective multiple-case pilot study. Families Systems & Health, 2003, 21(3): 245–258.Google Scholar

[35]Edwards, L., Watson, M., St. James-Roberts, I. et al. Adolescent’s stress responses and psychological functioning when parent has early breast cancer. Psycho-Oncology, 2008, 17(10): 1039–1047. http://doi.org/10.1002/pon.1323Google Scholar

[36]Pedersen, S. and Revenson, T.. Parental illness, family functioning and adolescent well-being: A family ecology framework to guide research. Journal of Family Psychology, 2005, 19(3): 404–409. http://doi.org/10.1037/0893-3200.19.3.404Google Scholar

[37]Patterson, P., McDonald, F., White, K. et al. Levels of unmet needs and distress amongst adolescents and young adults (AYAs) impacted by familial cancer. Psycho-Oncology, 2016, 26(9): 1285–1292. http://doi.org/10.1002/pon.4421Google Scholar

[38]O’Neill, C., O’Neill, C. and Semple, C.. Children navigating parental cancer: Outcomes for a psychosocial intervention. Comprehensive Child and Adolescent Nursing, 2020, 43(2): 111–127. http://doi.org/10.1080/24694193.2019.1582727Google Scholar

[39]Wong, M., Cavanaugh, C., MacLeamy, J. et al. Posttraumatic growth and adverse long-term effects of parental cancer in children. American Psychological Association, 2009, 27(1): 53–63. http://doi.org/10.1037/a0014771Google Scholar

[40]Flahault, C. and Sultan., S. On being a child of an ill parent: A Rorschach investigation of adaptation to parental cancer compared to other illnesses. Rorschachiana, 2010, 31(1): 43–69. http://doi.org/10.1027/1192-5604/a000004CrossRefGoogle Scholar

[41]Teixeira, R. and Pereira., M. Impact do Cancer Parental no Desenvolvimento Psicologico dos Filhos: Uma Revisao da Literatura. Psicologia: Reflexao e Critica, 2011, 24(3): 513–522.Google Scholar

[42]Levesque, J. and Maybery, D.. Parental cancer: Catalyst for positive growth and change. Qualitative Health Research, 2012, 22(3): 397–408. http://doi.org/10.1177/1049732311421617Google Scholar

[43]Gazendam-Donofrio, S., Hoeskstra, H., Graaf, W. van der et al. Adolescents’ emotional reactions to parental cancer: Effect on emotional and behavioural problems. Journal of Paediatric Psychology, 2011, 36(3): 346–359.Google Scholar

[44]Kissil, K., Nino, A., Jacobs, S. et al. ‘It has been a good growing experience for me’: Growth experiences among African American youth coping with parental cancer. Families, Systems & Health, 2010, 28(3): 274–289. http://doi.org/10.1037/a0020001Google Scholar

[45]Rodriguez, L.. Understanding adolescent adjustment to maternal cancer: A study of personal experiences and psychological factors that promote adjustment. Unpublished PhD thesis, National University of Ireland Galway, 2016.Google Scholar

[46]Rodriguez, L. and Dolan, P.. ‘It’s your turn to step into their shoes’: The role of empathy in adolescents experiencing maternal cancer. Qualitative Research Journal, 2019, 19(3): 213–224. http://doi.org/10.1108/QRJ-D-18-00045Google Scholar

[47]Barnes, J., Kroll, L., Burke, O. et al. Qualitative interview study of communication between parents and children about maternal breast cancer. BMJ, 2000, 173(6): 385–389.Google Scholar

[48]Ernst, J., Beleriein, V., Romer, G. et al. Use and need for psychosocial support in cancer patients: A population-based sample of patients with minor children. Cancer, 2013, 119(12): 2333–2341. http://doi.org/10.1002/cncr.28021Google Scholar

[49]Huizinga, G., Visser, A., Zelders-Steyn, Y. et al. Psychological impact of having a parent with cancer. European Journal of Cancer, 2011, 47(3): S239–246. http://doi.org/10.1016/S0959-8049(11)70170-8Google Scholar

[50]Christ, G.. Parental Cancer: Developmentally informed practice guidelines for family consultation and communication. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 419–428.Google Scholar

[51]Vannatta, K., Grollman, J. Noll, R. et al. Impact of maternal cancer on the peer interactions of children at school. Psycho-Oncology, 2008, 17(3): 252–259. http://doi.org/10.1002/pon.1232Google Scholar

[52]Semple, C. and McCance, T.. Parent’s experience of cancer who have young children: A literature review. Cancer Nursing, 2010, 33(2): 110–118.Google Scholar

[53]Hedlund, S.. Introduction to working with families in oncology. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 379–384.Google Scholar

[54]Faccio, F., Ferrari, F. and Pravettoni, G.. When a parent has cancer: How does it impact on children’s psychosocial functioning? A systematic review. European Journal of Cancer Care, 2018, 27(6): 1–11. http://doi.org/10.1111/ecc.12895Google Scholar

[55]Jeppesen, E., Bjelland, I., Fossa, S. et al. Health-related quality of life in teenagers with a parent with cancer. European Journal of Oncology Nursing, 2016, 22: 46–53. http://doi.org/10.1016/j.ejon.2016.03.004Google Scholar

[56]Chan, A., Lomma, C., Chih, H. et al. Psychosocial consequences in offspring of women with breast cancer. Psycho-Oncology, 2019, 29 (3): 1–8. http://doi.org/10.1002/pon.5294Google Scholar

[57]Landi, G., Duzen, A., Patterson, P. et al. Illness unpredictability and psychosocial adjustment of adolescent and young adults impacted by parental cancer: The mediating role of unmet needs. Supportive Care in Cancer, 2021, 30(2): 3. http://doi.org/10.1007/s00520-021-06379-3Google Scholar

[58]Forrest, G., Plumb, C., Ziebland, S. S. et al. Breast cancer in the family-children’s perceptions of their mother’s cancer and its initial treatment: Qualitative study. BMJ, 2006, 332(7548): 998–1003. http://doi.org/10.1136/bmj.38793.567801.AEGoogle Scholar

[59]Maynard, A., Patterson, P., McDonald, F. et al. What is helpful to adolescents who have a parent diagnosed with cancer? Journal of Psychosocial Oncology, 2013, 31(6): 675–697. http://doi.org/10.1080/07347332.2013.835021Google Scholar

[60]Chalmers, K., Kristjanson, L., Woodgate, R. et al. Perceptions of the role of the school in providing information and support to adolescent children of women with breast cancer. Journal of Advanced Nursing, 2000, 31(6): 1430–1438.Google Scholar

[61]Azarbarzin, M., Malekian, A. and Taleghani, F.. Adolescents’ experiences when living with a parent with cancer: A qualitative study. Iranian Red Crescent Medical Journal, 2016, 18(1): e26410. http://doi.org/10.5812/ircmj.26410Google Scholar

[62]Hauken, M. Aasebo, Dyregrov, A. and Senneseth, M.. Characteristics of the social networks of families living with parental cancer and support provided. Journal of Clinical Nursing, 2019, 28 (15–16): 3021–3032. http://doi.org/10.1111/jocn.14859Google Scholar

[63]Viegas, M.. How to be happy. UK: Our Street Books, 2014.Google Scholar

[64]Franklin, P., Arber, A., Reed, L. et al. Health and social care professional’s experiences of supporting parents and their dependent children during, and following, the death of a parent: A qualitative review and thematic synthesis. Palliative Medicine, 2019, 33(1): 49–65. http://doi.org/10.1177/0269216318803494Google Scholar

[65]Puterman, J. and Cadell, S.. Timing is everything. Journal of Psychosocial Oncology, 2008, 26(2): 103–121. http://doi.org/10.1300/j077v26n02_07Google Scholar

[66]Garrad, E., Fennell, K. and Wilson, C.. ‘We’re completely back to normal, but I’d say it’s a new normal’: A qualitative exploration of adaptive functioning in rural families following a parental cancer diagnosis. Support Care Cancer, 2017, 25(11): 3561–3568. http://doi.org/10.1007/s00520-017-3785-6Google Scholar

[67]Rodriguez-Loyola, Y. and Costas-Muniz, R.. El diagnóstico de cáncer de mamas desde una perspectiva familiar: Retos para la psico-oncología en América Latina. Interamerican Journal of Psychology, 2013, 47(1): 121–130.Google Scholar

[68]Turner, J.. Children’s and family needs of young women with advanced breast cancer: A review. Palliative and Supportive Care, 2004, 2(1): 55–64. http://doi.org/10.1017/S1478951504040076Google Scholar

[69]Morris, J., Martini, A. and Preen, D.. The well-being of children impacted by a parent with cancer: An integrative review. Support Care Cancer, 2016, 24(7): 3235–3251. http://doi.org/10.1007/s00520-016-3214-2Google Scholar

[70]Bultmann, J., Beierlein, V., Romer, G. et al. Parental cancer: Health-related quality of life and current psychosocial support needs of cancer survivors and their children. International Journal of Cancer, 2014, 135(11): 2668–2677. http://doi.org/10.1002/ijc.28905Google Scholar

[71]Niemela, M., Paananen, R., Hakko, H. et al. Mental disorder diagnoses of offspring affected by parental cancer before early adulthood: The 1987 Finnish Birth Control study. Psycho-Oncology, 2016, 25(12): 1477–1484. http://doi.org/10.1002/pon.4088Google Scholar

[72]Gotze, H., Ernst, J., Brahler, E. et al. Predictors of quality of life of cancer patients, their children, and partners. Psycho-Oncology, 2015, 24(7): 787–795. http://doi.org/10.1002/pon.3725Google Scholar

[73]Krauel, K., Simon, A., Krause-Hebecker, N. et al. When a parent has cancer: Challenges to patients, their families and health providers. Expert Review of Pharmacoeconomics & Outcomes Research, 2012, 12(6): 795–808. http://doi.org/10.1586/erp.12.62Google Scholar

[74]Helseth, S. and Ulfsaet, N.. Parenting experiences during cancer. Journal of Advanced Nursing, 2005, 52(1): 38–46. http://doi.org/10.1111/j.1365-2648.2005.03562.xGoogle Scholar

[75] Marshall, C., Larkey, L., Curran, M. et al. Considerations of culture and social class for families facing cancer: The need for a new model for health promotion and psychosocial intervention. Family Systems Health, 2011, 29(2): 81–94. http://doi.org/10.1037/a0023975Google Scholar

[76]Schmitt, F., Santalahti, P., Saarelainen, S. et al. Cancer families with children: Factors associated with family functioning – A comparative study in Finland. Psycho-Oncology, 2008, 17(4): 363–372. http://doi.org/10.1002/pon.1241Google Scholar

[77]Stefanou, K., Zografos, E., Zografos, G., et al. Emotional and behavioural problems in children dealing with maternal breast cancer: A literature review. British Journal of Guidance & Counselling, 2020, 48(3), 394–406. http://doi.org/10.1080/03069885.2018.1487530Google Scholar

[78]Lewis, F.. The Impact of Breast Cancer on Adolescent Function. 2007. (15) (PDF) The Impact of Breast Cancer on Adolescent Function (researchgate.net)Google Scholar

[79]Buchbinder, M., Loghofer, J. and McCue, K.. Family routines and rituals when a parent has cancer. Families, Systems & Health, 2009, 27(3), 213–227. http://doi.org/10.1037/a0017005Google Scholar

[80]Walsh, F.. Family resilience: A framework for clinical practice. Family Process, 2003, 42(1): 1–18. http://doi.org/10.1111/j.1545-5300.2003.00001.xGoogle Scholar

[81]Alexander, E., O’Connor, M., Rees, C. and Halkett, G.. A systematic review of the current interventions available to support children living with parental cancer. Patient Education and Counselling, 2019, 102(10): 1812–1821. http://doi.org/10.1016/j.pec.2019.05.001Google Scholar

[82] Gazendam-Donofrio, S., Hoekstra, H., Graaf, W. van der et al. Parent-child communication patterns during the first year after a parent’s cancer diagnosis. Cancer, 2009, 115(18): 4227–4237. http://doi.org/10.002/cncr.24502Google Scholar

[83]Shands, M. and Lewis, M.. Parents with advanced cancer: Worries about their children’s unspoken concerns. American Journal of Hospice and Palliative Medicine, 2020, 38(8): 920–926. http://doi.org/10.1177/1049909120969120Google Scholar

[84]Sheperd, L.. Developmental strategies for counselling the child whose parent or sibling has cancer. Journal of Counselling and Development, 1997, 75(6): 417–427.Google Scholar

[85]Tavares, R., Brandao, T. and Matos, P.. Mothers with breast cancer: A mixed-method systematic review on the impact on parent-child relationship. Psycho-Oncology, 2016, 27(2): 367–375. http://doi.org/10.1002/pon.4451Google Scholar

[86]Behar, L. and Lewis, Marcus. Single parents coping with cancer and children. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 429–434.Google Scholar

[87]Morris, J., Ohan, J. and Martini, A.. An investigation of support services available by Internet searching to families impacted by a parent’s cancer. Psycho-Oncology, 2018, 27(1): 114–124. http://doi.org/10.1002/pon.4478Google Scholar

[88]Matuszczak-Swigon, J. and Bakiera, L.. Experiences of adults as parents with cancer: A systematic review and thematic synthesis of qualitative studies. Journal of Psychosocial Oncology, 2021, 39(6): 765–788. http://doi.org/10.1080/07347332.2020.1859662Google Scholar

[89]Weaver, K., Rowland, J., Alfano, C. et al. Parental cancer and the family: A population-based estimate of the number of US Cancer survivors residing with the minor children. Cancer, 2010, 116(18): 4395–4401. http://doi.org/10.1002/cncr.25368Google Scholar

[90]O’Neill, C., McCaughan, E. Semple, C. et al. Fatherhood and cancer: A commentary on the literature. European Journal of Cancer Care, 2013, 22(2): 161–168. http://doi.org/10.1111/ecc.12021Google Scholar

[91]Rashi, C., Wittman, T., Tsimicalis, A. et al. Balancing illness and parental demands: Coping with cancer while raising minor children. Oncology Nursing Forum, 2015, 42(4): 337–344.Google Scholar

[92]Elmberger, E., Bolund, C. and Lutzen, K.. Experience of dealing with moral responsibility as a mother with cancer. Nursing Ethics, 2005, 12(3):253–262. http://doi.org/10.1191/0969733005ne787oaGoogle Scholar

[93]Christine, J., Beierlein, V., Romer, G. et al. Use and need for psychosocial support in cancer patients. Cancer, 2013, 119(2): 2333–2341. http://doi.org/10.1002/cncr.28021Google Scholar

[94]Dezinger, A., Bingisser, M., Ehrbar, V. et al. Web-based counselling for families with parental cancer: Baseline findings and lessons learned. Journal of Psychosocial Oncology, 2019, 37(5): 599–615. http://doi.org/10.1080/07347332.2019.1602576Google Scholar

[95]Colon, Y.. Sociocultural and economic diversity: Improving access and health outcomes. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 261–263.Google Scholar

[96]Colon, Y.. Working with sociocultural and economic diversity. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 263–268.Google Scholar

[97]Freeman, H.. Poverty, culture and social injustice: Determinants of cancer disparities. CA Cancer Journal for Clinicians, 2004, 54(2): 72–77.Google Scholar

[98]Morris, J., Zajac, I., Turnbull, D. et al. A longitudinal investigation of Western Australia families impacted by parental cancer with adolescent and young adult offspring. Australian and New Zealand Journal of Public Health, 2019, 43(3): 261–266. http://doi.org/10.1111/1753-6405.12885Google Scholar

[99]Davey, M., Tubbs, C., Kissil, K. and Nino, A.. ‘We are survivors too’: African-American youths’ experiences of coping with parental breast cancer. Psycho-Oncology, 2011, 20(1): 77–87. http://doi.org/10.1002/pon.1712Google Scholar

[100]Amodio, A. and Roy, U.. Support for immigrants, political refugees, and patients seeking asylum who have cancer. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 269–274.Google Scholar

[101]Phillips, F., Prezio, E., Panisch, L. & Jones, B.. Factors affecting outcomes following a psychosocial intervention for children when a parent has cancer. The Journal of Child Life: Psychosocial Theory and Practice, 2021, 2(2): 1–13.Google Scholar

[102]Martini, A., Morris, J., Jackson, H. et al. The impact of parental cancer on preadolescent children (0–11 years) in Western Australia: A longitudinal population study. Supportive Care in Cancer, 2019, 27(4): 1229–1236. http://doi.org/10.1007/s00520-018-4480-yGoogle Scholar

[103]Pui-Yu, P. and L. Chan, C.. Working with Chinese families impacted by cancer: An integrative body-mind-spirit approach. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 305–310.Google Scholar

[104]Ghofrani, M., Nikfarid, L., Nourian, M. et al. Levels of unmet needs among adolescents and young adults (AYAs) impacted by parental cancer. Supportive Care in Cancer, 2019, 27(1): 175–182. http://doi.org/10.1007/s00520-018-4310-2Google Scholar

[105]Reyes, C., Palacios, R., Sondgeroth, K. et al. Young child-rearing Latina cancer survivors living in the US-Mexico border region: A qualitative study. Journal of Cancer Therapy, 2021, 12(4): 174–185. http://doi.org/10.4236/jct.2021.124018Google Scholar

[106]Costas-Muniz, R.. Hispanic adolescents coping with parental cancer. Support Care Cancer, 2012, 20(2): 413–417. http://doi.org/10.1007/s00520-011-1283-9Google Scholar

[107]Marin-Chollom, A.. Latino/a adolescents and young adults coping with parental cancer within a cultural context. Unpublished PhD thesis, The City University of New York, 2017.Google Scholar

[108]Ainuddin, H., Loh, S., Low, W., et al. Quality of life of multi-ethnic adolescents living with a parent with cancer. Asian Pacific Journal of Cancer Prevention, 2012, 13(12): 6289–6294. http://doi.org/10.7314/APjcp.2012.13.12.6289Google Scholar

[109]Mat Saat, S., Hepworth, M. and Jackson, T.. ‘She looked like and Alien’: Experience and definitions children attach to a cancer diagnosis. Aslib Journal of Information Management, 2018, 70(1): 78–103. http://doi.org/10.1108/AJIM-06-2017-0142Google Scholar

[110]Bullock, K. and Allison, H.. Access to medical treatment for African Americans diagnosed with cancer: The current evidence base. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 293–297.Google Scholar

[111]Halso-och Sjukvårdslag (SFS 2017:13) Stockholm: Socialdepartementet. www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/halsooch-sjukvardslag_sfs-2017-30Google Scholar

[112]Knutsson, S., Enskar, K. and Golsater, M. Nurses’ experiences of what constitutes the encounter with children visiting a sick parent at an adult ICU. Intensive and Critical Care Nursing, 2017, 39: 9–17. http://doi.org/10.1016/j.iccn.2016.09.003Google Scholar

[113]Syse, A., Aas, G. and Loge, J.. Children and young adults with parents with cancer: A population-based study. Clinical Epidemiology, 2012, 4: 41–52. http://doi.org/10.2147/CLEP.S28984Google Scholar

[114]Al-Zaben, F., Al-Amoudi, S., El-deek, B. and Koenig, H.. Impact of maternal breast cancer on school-aged children in Saudi Arabia. BMC Research Notes, 2014, 7: 261–265. http://doi.org/10.1186/1756-0500-7-261Google Scholar

[115]Chang, W.. Will my disclosure harm the relationship? Factors that impact mother-daughter cancer communication in Taiwan. American Journal of Qualitative Research, 2021, 5(2): 171–189. http://doi.org/10.29333/ajqr/11241Google Scholar

[116]Korbi, S., Berrazega, Y., Nesrine, M. et al. Tunisian children and adolescents coping with parental cancer. Annals of Oncology, 2021, 32(S5). http://doi.org/10.1016/j.annonc.2021.08.817Google Scholar

[117]Inoue, I., Higashi, T., Iwato, M. et al. A national profile of the impact of parental cancer on their children in Japan. Cancer Epidemiology, 2015, 39(6): 838–841. http://doi.org/10.1016/j.canep.2015.10.005Google Scholar

[118]Niemela, M., Paananen, R., Hakko, H. et al. The prevalence of children affected by parental cancer and their use of specialized psychiatric services: The 1987 Finnish Birth Cohort study. International Journal of Cancer, 2012, 131(9): 2177–2125. http://doi.org/10.1002/ijc.27466Google Scholar

[119]Franklin, M., Patterson, P., Allison, K. et al. An invisible patient: Healthcare professional’s perspectives on caring for adolescents and young adults who have a sibling with cancer. European Journal of Cancer Care, 2018, 27(6): e12970. http://doi.org/10.1111/ecc.12970Google Scholar

[120]Weeks, N., McDonald, F., Patterson, P. et al. A summary of high-quality online information resources for parents with cancer who have adolescent and young adult children: A scoping review. Psycho-Oncology, 2019, 28(12): 2323–2335. http://doi.org/10.1002/pon.5274Google Scholar

[121]Jorgensen, S., Thygesen, L., Michelsen, S., Due, P. et al. Why do some adolescents manage despite parental illness? Identifying promoting factors. Journal of Adolescent Health, 2021, 69(2): 335–341. http://doi.org/10.1016/j.adohealth.2020.12.139CrossRefGoogle Scholar

[122]Cancer.Net. Talking with Children about Cancer. 2019. www.cancer.net/coping-with-cancer/talking-with-family-and-friends/talking-about-cancer/talking-with-children-about-cancerGoogle Scholar

[123]Irish Cancer Society. Talking to Children about Cancer. 2017. www.cancer.ie/cancer-information-and-support/cancer-support/coping-with-cancer/information-for-patients/talking-to-family-and-friendsGoogle Scholar

[124]MacMillan Cancer Suppor. Talking to children and teenagers when an adult has cancer. 2019. cdn.macmillan.org.uk/dfsmedia/1a6f23537f7f4519bb0cf14c45b2a629/803-source/talking-to-children-and-teenagers-when-an-adult-has-cancer-mac5766-e04-n?_ga=2.145805300.198515011.1631459114-1955156953.1631459114Google Scholar

[125]Kazlauskaite, V. and Fife, S.. Adolescent experience with parental cancer and involvement with medical professionals: A heuristic phenomenological inquiry. Journal of Adolescent Research, 2021, 36(4):1–28. http://doi.org/10.1177/0743558420985446Google Scholar

[126]World Health Organization. Cancer. 2021. www.who.int/news-room/fact-sheets/detail/cancerGoogle Scholar

[127]National Cancer Institute. Cancer Statistics. 2021. www.cancer.gov/about-cancer/understanding/statisticsGoogle Scholar

[128]Philips, F. and Prezio., E. Wonders & Worries: Evaluation of a chid centred psychosocial intervention for families who have a parent/primary caregiver with cancer. Psycho-Oncology, 2016, 26(7): 1006–1012. http://doi.org/10.1002/pon.4120Google Scholar

[129]Ohan, J., Jackson, H., Bay, S. et al. How psychosocial interventions meet the needs of children of parents with cancer: A review and critical evaluation. European Journal of Cancer Care, 2020, 29(5): 1–16. http://doi.org/10.1111/ecc.13237Google Scholar

[130]Thastum, M.. Munch-Hansen, A., Wiell, A. et al. Evaluation of a focused short-term preventive counselling project for families with a parent with cancer. Clin Child Psychol Psychiatry, 2006, 11(4): 529–542. http://doi.org/10.1177/1359104506067875Google Scholar

[131]Kobayashi, M., Heiney, S., Osawa, K. et al. Effect of a group intervention for children and their parents who have cancer. Palliative and Supportive Care, 2007, 15(5): 575–586.Google Scholar

[132]Northouse, L., Walker, J., Schafenacker, A. et al. A family-based program of care for women with recurrent breast cancer and their family members, Oncology Nursing Forum, 2002, 29(10): 1411–1419.Google Scholar

[133]Inhestern, L., Haller, A., Wlodarczyk, O. et al. Psychosocial interventions for families with parental cancer and barriers and facilitators to implementation and use – A Systematic Review. PLoS One, 2016, 11(6): e0156967. http://doi.org/10.1371/journal.pone.0156967Google Scholar

[134]Eillis, S. J., Wakefiled, C. E., Antill, G. et al. Supporting children facing a parent’s cancer diagnosis: A systematic review of children’s psychosocial needs and existing interventions. European Journal of Cancer Care, 2017, 26(1), 1–22. http://doi.org/10.1111/ecc.12432Google Scholar

[135]Niemela, M., Hakko, H. and Rasanen, S.. A systematic narrative review of the studies on structured child-centred interventions for families with a parent with cancer. Psycho-Oncology, 2010, 19(5): 451–461. http://doi.org/10.1002/pon.1620Google Scholar

[136]Northouse, L.. Helping families of patients with cancer. Oncology Nursing Forum, 2005, 32(4): 743–750.Google Scholar

[137]Jackson, A., Holmes, C., Looby, J. et al. Therapeutic interventions with families of breast cancer survivors. Journal of Feminist Family Therapy, 2021, 33(1): 40–58. http://doi.org/10.1080/08952833.2021.1872268Google Scholar

[138]Dohmen, M., Petermann-Meyer, A., Blei, D., Bremen, R. et al. Comprehensive support for families with parental cancer (Family-SCOUT), evaluation of a complex intervention: Study protocol for a non-randomized controlled trial. Trials, 2021, 22: 1–10. http://doi.org/10.21203/rs.3.rs-401056/vGoogle Scholar

[139]Stafford, L., Sinclair, M., Turner, J. et al. Study protocol for Enhancing Parenting in Cancer (EPIC): Development and evaluation of a brief psycho-educational intervention to support parents with cancer who have young children. Pilot and Feasibility Studies, 2017, 3(72): 1–9. http://doi.org/10.186/s40814-017-0215-yGoogle Scholar

[140]Phillips, F. and Prezio, E.. Wonders & Worries: Evaluation of a child centered psychosocial intervention for families who have a parent/primary caregiver with cancer. Psycho-Oncology, 2017, 26(7): 1006–1012. http://doi.org/10.1002/pon.4120Google Scholar

[141]Bingisser, M., Eichelberger, D., Ehrbar, V. et al. Web-based counselling for families with parental cancer: A case report. Psycho-Oncology, 2018, 27(6): 1667–1669. http://doi.org/10.1002/pon.4679Google Scholar

[142]Oja, C., Edbom, T., Nager, A. et al. Informing children of their parent’s illness: A systematic review of intervention programs with child outcomes in all health care settings globally from inception to 2019. PLoS One, 2020, 15(5). http://doi.org/10.1371/journal.pone.0233696Google Scholar

[143]Nelson, K.. A parallel group program for parents and children: Using expressive techniques and activities to facilitate communication. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 435–441.Google Scholar

[144]Inada, M., Komatsuzaki, K., Kobayashi, M. et al. Psychosocial support programmes for children who have parents with cancer – Program significance and problems for dissemination in Japan. Journal of Pain and Symptom Management, 2016, 52(6): 92. http://doi.org/10.1016/j.jpainsymman.2016.10.191Google Scholar

[145]Inhestern, L., Geertz, W., Schulz-Kindermann, F. et al. Parental cancer: Characteristics of users of child-centred counselling versus individual Psycho-Oncological treatment. Psyhcooncology, 2018, 27(3): 955–961. http://doi.org/10.1002/pon.4618Google Scholar

[146]Moore, P., Rivera, S., Bravo-Soto, G. et al. Communication skills training for healthcare professionals working with people who have cancer, Cochrane Database of Systematic Reviews, 2018, 7(7). http://doi.org/10.1002/14651858.CD003751.pub4Google Scholar

[147]Cegala, D. J. and Lenzmeier Broz, S.. Physician communication skills training: A review of theoretical backgrounds, objectives and skills. Medical Education, 2002, 36(11): 1004–1016.Google Scholar

[148]Paul, C., Clinton-McHarg, T., Sanson-Fisher, R. et al. Are we there yet? The state of the evidence base for guidelines on breaking bad news to cancer patients. European Journal of Cancer, 2009, 45(17): 2960–2966.Google Scholar

[149]Grant, L., Sangha, A., Lister, S. and Wiseman, T.. Cancer and the family: Assessment, communication and brief interventions – The development of an educational programme for healthcare professionals when a parent has cancer. BMJ Supportive & Palliative Care, 2016, 6(4): 493–499. http://doi.org/10.1136/bmjspcare-2015-001006Google Scholar

[150]Fasciano, K., Berman, H., Moore, C. et al. When a parent has cancer: A community-based program for school personnel. Psycho-Oncology, 2007, 16(2): 158–167. http://doi.org/10.1002/pon.1148Google Scholar

[151]Hanna, J., McCaughan, E. and Semple, C.. Challenges and support needs of parents and children when a parent is at end of life: A systematic review. Palliative Medicine, 2019, 33(8): 1017–1044. http://doi.org/10.1177/0269216319857622Google Scholar

[152]MacPherson, C. and Emeleus, M.. Children’s needs when facing the death of a parent from cancer: Part one. International Journal of Palliative Nursing, 2007, 13(12): 590–597.Google Scholar

[153]Check, D., Park, E., Reeder-Hayes, K., et al. Concerns underlying treatment preferences of advanced cancer patients with children. Psycho-Oncology, 2017, 26(10): 1491–1497. http://doi.org/10.1002/pon.4164Google Scholar

[154]Bugge, K., Helseth, S. and Dabushire, P.. Parent’s experiences of a Family Support Program when a parent has incurable cancer. Journal of Clinical Nursing, 2009, 18(24): 3480–3488. http://doi.org/10.1111/j.1365-2702.2009.02871.xGoogle Scholar

[155]Kennedy, V. and Lloyd-Williams, M.. How children cope when a parent has advanced cancer. Psycho-Oncology, 2009, 18(8): 886–892. http://doi.org/10.1002/pon.1455Google Scholar

[156]Howell, K., Barrett-Becker, E., Burnside, A. et al. Children facing parental cancer versus parental death: The buffering effects of positive parenting and emotional expression. Journal of Child and Family Studies, 2016, 25(1): 152–164. http://doi.org/10.1007/s10826-015-0198-3Google Scholar

[157]Kaplow, J., Layne, C., Pynoos, R. et al. DSM-V Diagnostic criteria for bereavement-related disorders in children and adolescents: Developmental considerations. Psychiatry, 2012, 75(3): 243–265.Google Scholar

[158]Cockle-Hearne, J., Reed, E., Todd, J. and Ream, E.. The dying parent and dependent children: A nationwide survey of hospice and community palliative care support services. BMJ Supportive & Palliative Care, 2020. http://doi.org/10.1136/bmjspcare-2019-001947Google Scholar

[159]Varathakeyan, A., McDonald, F., Patterson, P. et al. Accessing support before or after a parent dies from cancer and young people’s current wellbeing. Support Care Cancer, 2018, 26(3): 797–805. http://doi.org/10.1007/s00520-017-3891-5Google Scholar

[160]MacPherson, C.. Difficulties for a practitioner preparing a family for the death of a parent: A narrative inquiry. Mortality, 2018, 23(3): 247–260. http://doi.org/10.1080/13576275.2017.1339677Google Scholar

[161]Park, E., Miller, K. and Knafl, K.. Understanding familial response to parental advanced cancer using the family management style framework. Journal of Psychosocial Oncology, 2019, 37(6), 758–776. http://doi.org/10.1080/07347332.2019.1614132Google Scholar

[162]MacPherson, C. and Emeleus, M.. Children’s needs when facing the death of a parent from cancer: Part two. International Journal of Palliative Nursing, 2007, 13(10): 478–485.Google Scholar

[163]Patterson, P. and Rangganadhan, A.. Losing a parent to cancer: A preliminary investigation into the needs of adolescents and young adults. Palliative and Supportive Care, 2010, 8(3): 255–265. http://doi.org/10.1017/S1478951510000052Google Scholar

[164]Kramer, B. and Boelk, A.. Managing family conflict: Providing responsive family care at the end of life. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 399–407.Google Scholar

[165]Mireault, G. and Compas, B.. A prospective study of coping and adjustment before and after a parent’s death from cancer. Journal of Psychosocial Oncology, 1996, 14(4): 1–18.Google Scholar

[166]Canteen Australia. Now what? Living with the death of your parent, brother or sister from cancer. (n.d.). www.canteen.org.au/wp-content/uploads/2015/07/Living-with-the-death-of-your-parent-or-sibling-from-cancer.pdfGoogle Scholar

[167]Canteen Australia. A guide to Canteen for school students impacted by cancer. (n.d.). www.canteen.org.au/wp-content/uploads/2020/02/Guide-to-Canteen-for-Schools-2020-version.pdfGoogle Scholar

[168]Kuhne, F., Krattenmacher, T., Bergelt, C. et al. Parental palliative cancer: Psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service. BMC Palliative Care, 2012, 11(21): 1–9. www.biomedcentral.com/1472-684X/11/21Google Scholar

[169]R. Moos, and Moos, B.. Family Environment Scale Test Manual. California: Mind Garden, Inc., 1974Google Scholar

[170]Golsater, M., Henricson, M., Enskar, K. et al. Are children as relatives our responsibility? How nurses perceive their role in caring for children as relatives of seriously ill patients. European Journal of Oncology Nursing, 2016, 25: 33–39. http://doi.org/10.1016/j.ejon.2016.09.005Google Scholar

[171]Sanchez-Reilly, S., Morrison, L., Carey, E. et al. Caring for oneself to care for others: Physicians and their self-care. The Journal of Supportive Oncology, 2013, 11(2): 75–81. http://doi.org/10.12788/j.suponc.0003Google Scholar

[172]Bowling, J. and Damaskos, P.. Building resilience: A multifaceted support program for professional and support staff in a cancer center. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 771–776.Google Scholar

[173]Rohan, E.. How oncology professionals manage the emotional intensity of their work. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 777–783.Google Scholar

[174]Zadeh, S., Phillips, J., Aizvera, J. et al. Maintaining competent teams in paediatric oncology. In: Christ, G., Messner, C. and Behar, L., eds. Handbook of oncology social work: Psychosocial care for people with cancer. Oxford University Press, 2015; 801–808.Google Scholar

[175]Rodriguez, L.. Propuesta de implementación de una intervención en autocuidado para cuidadoras primarias del “Grupo de madres” de la Asociación Costarricense de Hemofilia: Una intervención desde la Psicología de la Salud. Tesis para optar por el grado de Maestría. Universidad de Costa Rica, 2010.Google Scholar

[176]Larkin, B.. Self-care for healthcare workers during disasters. 2016. https://paramedics.org/storage/news/Self-Care%20for%20Healthcare%20workers%20referenced.pdfGoogle Scholar

[177]Viegas, M.. The Wishing Star. 52 Meditations for Children. UK: Our Street Books, 2005.Google Scholar

[178]Stamm. The PROQoL Manual. 2002. http://compassionfatigue.org/pages/ProQOLManualOct05.pdfGoogle Scholar