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Chapter 28 - The Dynamic Role of Palliative Medicine throughout the Course of Neuromuscular Disease

from Section 3 - Neurodegenerative and Neuromuscular Diseases

Published online by Cambridge University Press:  08 June 2018

By
Joel Phillips
Edited by
Maisha T. Robinson
Maisha T. Robinson
Affiliation:
Mayo Clinic, Florida
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Information
Case Studies in Neuropalliative Care , pp. 99 - 101
Publisher: Cambridge University Press
Print publication year: 2018

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References

Suggested Reading

Weidner, NJ. Developing an interdisciplinary palliative care plan for the patient with muscular dystrophy. Pediatr Ann. 2005 Jul;34(7):546–52.CrossRefGoogle ScholarPubMed
Carter, GT, Joyce, NC, Abresch, AL, Smith, AE, et al. Using palliative care in progressive neuromuscular disease to maximize quality of life. Phys Med Rehabil Clin N Am. 2012 Nov;23(4):903–9. doi:10.1016/j.pmr.2012.08.002. Epub 2012 Oct 17.CrossRefGoogle ScholarPubMed
Creutzfeldt, CJ, Robinson, MT, Holloway, RG. Neurologists as primary palliative care providers: Communication and practice approaches. Neurol Clin Pract. 2016 Feb;6(1):40–8.CrossRefGoogle ScholarPubMed
Kluger, BM, Fox, S, Timmons, S, Katz, M, et al. Palliative care and Parkinson’s disease: Meeting summary and recommendations for clinical research. Parkinsonism Relat Disord. 2017 Jan 11.CrossRefGoogle Scholar
Landfeldt, E, Lindgren, P, Bell, CF, Guglieri, M, et al. Quantifying the burden of caregiving in Duchenne muscular dystrophy. J Neurol. 2016 May;263(5):906–15. doi:10.1007/s00415-016-8080-9. Epub 2016 Mar 10.CrossRefGoogle ScholarPubMed
Affordable Care Act, 2 U.S.C. § 2302 et seq. (2010).Google Scholar
US Department of Health and Human Services, Centers for Medicare and Medicaid Services. Medicare Hospice Benefits. CMS Product No. 02154. 2016 Feb.Google Scholar

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