Skip to main content Accessibility help

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
×
Hostname: page-component-848d4c4894-p2v8j Total loading time: 0 Render date: 2024-05-06T12:20:46.934Z Has data issue: false hasContentIssue false

7 - “We Have Been Robbed of the Life We Planned”: Relational Turbulence and Experiences of Alzheimer’s Disease

from Part III - Uncertainty in Health and Relationships

Published online by Cambridge University Press:  09 November 2018

By
Danielle Catona
Edited by
Jennifer A. Theiss  and
Kathryn Greene
Jennifer A. Theiss
Affiliation:
Rutgers University, New Jersey
Kathryn Greene
Affiliation:
Rutgers University, New Jersey
Get access
Type
Chapter
Information
Contemporary Studies on Relationships, Health, and Wellness , pp. 139 - 159
Publisher: Cambridge University Press
Print publication year: 2018

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Alzheimer’s Association. (2013). Alzheimer’s association report: 2013 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia, 9, 5–61. doi: 10.1016/j.jalz.2013.02.003Google Scholar
Alzheimer’s Association. (2014). Alzheimer’s and dementia caregiver center: Stages/behaviors. Retrieved from: www.alz.org/care/alzheimers-dementia-stages-behaviors.aspGoogle Scholar
Alzheimer’s Association and National Alliance for Caregiving. (2004). Families care: Alzheimer’s caregiving in the United States. Chicago, IL: Author.Google Scholar
Austrom, M. G., & Lu, Y. (2009). Long term caregiving: Helping families of persons with mild cognitive impairment cope. Current Alzheimer Research, 6, 392–398. doi: 10.2174/156720509788929291Google Scholar
Baxter, L. A., Braithwaite, D. O., Golish, T. D., & Olsen, L. N. (2002). Contradictions of interaction for wives of elderly husbands with adult dementia. Journal of Applied Communication Research, 30, 1–26. doi: 10.1080/00909880216576Google Scholar
Beach, S. R., Schulz, R., Yee, J. L., & Jackson, S. (2000). Negative and positive health effects of caring for a disabled spouse: Longitudinal findings from the Caregiver Health Effects Study. Psychology and Aging, 15, 259–271. doi: 10.1037//0882–7974.15.2.259CrossRefGoogle ScholarPubMed
Caron, C. D., Griffith, J., & Arcand, M. (2005). End-of-life decision making in dementia: The perspective of family caregivers. Dementia, 4, 113–136. doi: 10.1177/1471301205049193Google Scholar
Carstensen, L. L., Gottman, J. M., & Levenson, R. W. (1995). Emotional behavior in long-term marriage. Psychology and Aging, 10, 140–149. doi: 10.1037/0882–7974.10.1.140Google Scholar
Czaja, S. J., & Rubert, M. P. (2002). Telecommunications as an aid to family caregivers of persons with dementia. Psychosomatic Medicine, 64, 469–476. doi: 10.1097/00006842-200205000–00011CrossRefGoogle ScholarPubMed
Derksen, E., Vernooij-Dassen, M., Gillissen, F., Olde Rikkert, M., & Scheltens, P. (2006). Impact of diagnostic disclosure in dementia on patients and carers: Qualitative case series analysis. Aging and Mental Health, 10, 525–531. doi: 10.1080/13607860600638024Google Scholar
Dickson, F. C., & Walker, K. L. (2001). The expression of emotion in later-life married men. Qualitative Research Reports in Communication, 2, 66–71.Google Scholar
Evans, D., & Lee, E. (2014). Impact of dementia on marriage: A qualitative systematic review. Dementia, 13, 330–349. doi: 10.1177/1471301212473882Google Scholar
Federal Interagency Forum on Aging-Related Statistics. (2008). Older Americans 2008: Key indicators of well-being. Washington, DC: Author.Google Scholar
Garity, J. (2006). Caring for a family member with Alzheimer’s disease: Coping with caregiver burden post-nursing home placement. Journal of Gerontological Nursing, 32, 39–48. PMID:16773862Google Scholar
Gaugler, J. E., Kane, R. L., & Kane, R. A. (2002). Family care for older adults with disabilities: Toward more targeted and interpretable research. International Journal of Aging and Human Development, 54, 205–231. doi: 10.2190/FACK-QE61-Y2J8-5L68Google Scholar
Georges, J., Jansen, S., Jackson, J., Meyrieux, A., Sadowska, A., & Selmes, M. (2008). Alzheimer’s disease in real life—the dementia carer’s story. International Journal of Geriatric Psychiatry, 23, 546–551. doi: 10.1002/gps.1984Google Scholar
Goodman, C. C. (1999). Intimacy and autonomy in long term marriage. Journal of Gerontological Social Work, 32, 83–97. doi: 10.1300/J083v32n01_06Google Scholar
Harmell, A. L., Chattillion, E. A., Roepke, S. K., & Mausbach, B. T. (2011). A review of the psychobiology of dementia caregiving: A focus on resilience factors. Current Psychiatry Reports, 13, 219–224. doi: 10.1007/s11920-011–0187-1Google Scholar
Harwood, J. (2007). Understanding communication and aging: Developing knowledge and awareness. Los Angeles, CA: SAGE.Google Scholar
Hebert, L. E., Weuve, J., Scherr, P. A., & Evans, D. A. (2013). Alzheimer’s disease in the United States (2010–2050) estimated using the 2010 Census. Neurology, 80, 1778–1783. doi: 10.1212/WNL.0b013e31828726f5Google Scholar
Hellstrom, I., Nolan, M., & Lundh, U. (2005). “We do things together”: A case study of couplehood in dementia. Dementia, 4, 7–22. doi: 10.1177/1471301205049188Google Scholar
Hellstrom, I., Nolan, M., & Lundh, U. (2007). Sustaining “couplehood”: Spouses’ strategies for living with dementia. Dementia, 6, 383–409. doi: 10.1177/1471301207081571Google Scholar
Kaplan, L. (2001). A couplehood typology for spouses of institutionalized persons with Alzheimer’s disease: Perceptions of “We”-“I”. Family Relations, 50, 87–98. doi: 10.1111/j.1741–3729.2001.00087.xGoogle Scholar
Kelly, A. E., Klusas, J. A., von Weiss, R. T., & Kenny, C. (2001). What is it about revealing secrets that is beneficial? Personality and Social Psychology Bulletin, 27, 651–665. doi: 10.1177/0146167201276002CrossRefGoogle Scholar
Knobloch, L. K., & Carpenter-Theune, K. E. (2004). Topic avoidance in developing romantic relationships: Associations with intimacy and relational uncertainty. Communication Research, 31, 173–205. doi: 10.1177/0093650203261516Google Scholar
Knobloch, L. K., & Solomon, D. H. (2002). Intimacy and the magnitude and experience of episodic relational uncertainty within romantic relationships. Personal Relationships, 9, 457–478. doi: 10.1111/1475–6811.09406Google Scholar
Knobloch, L. K., & Solomon, D. H. (2005). Relational uncertainty and relational information processing: Questions without answers? Communication Research, 32, 349–388. doi: 10.1177/0093650205275384CrossRefGoogle Scholar
Knobloch, L. K., & Theiss, J. A. (2010). An actor-partner interdependence model of relational turbulence: Cognitions and emotions. Journal of Social and Personal Relationships, 27, 595–619. doi: 10.1177/0265407510368967Google Scholar
Knobloch, L. K., & Theiss, J. A. (2011). Depressive symptoms and mechanisms of relational turbulence as predictors of relationship satisfaction among returning service members. Journal of Family Psychology, 25, 470–478. doi: 10.1037/a0024063Google Scholar
Ko, H., & Kuo, F. Y. (2009). Can blogging enhance subjective well-being through self-disclosure? CyberPsychology & Behavior, 12, 75–79. doi: 10.1089/cpb.2008.016Google Scholar
Leustek, J., & Theiss, J. A. (2018). Factors that shape cognitive and behavioral coping among individuals with type 2 diabetes: Features of illness versus features of romantic relationships. Health Communication, 33, 1549–1559. doi: 10.1080/10410236.2017.1384346Google Scholar
Liu, W., & Gallagher-Thompson, D. (2009). Impact of dementia caregiving: Risks, strains, and growth. In Qualls, S. H. & Zarit, S. H (Eds.), Aging families and caregiving (pp. 85–112). Hoboken, NJ: John Wiley & Sons.Google Scholar
Metlife Mature Marketing Institute. (2006). The MetLife study of Alzheimer’s disease: The caregiving experience. Westport, CT: Author.Google Scholar
Nagy, M. E., & Theiss, J. A. (2013). Applying the relational turbulence model to the empty-nest transition: Sources of relationship change, relational uncertainty, and interference from partners. Journal of Family Communication, 13, 280–300. doi: 10.1080/15267431.2013.823430Google Scholar
National Institute on Aging. (2012). Changes in intimacy and sexuality. Retrieved from: www.nia.nih.gov/alzheimers/intimacy-sexuality-and-alzheimers-disease-resourcelistGoogle Scholar
Pennebaker, J. W., Colder, M., & Sharp, L. K. (1990). Accelerating the coping process. Journal of Personality and Social Psychology, 58, 528–537. doi: 10.1037/0022–3514.58.3.528CrossRefGoogle ScholarPubMed
Pennebaker, J. W., Kiecolt-Glaser, J. K., & Glaser, R. (1988). Disclosure of traumas and immune function: Health implications for psychotherapy. Journal of Consulting and Clinical Psychology, 56, 239–245. doi: 10.1037/0022-006X.56.2.239CrossRefGoogle ScholarPubMed
Pennebaker, J. W., & O’Heeron, R. C. (1984). Confiding in others and illness rate among spouses of suicide and accidental death victims. Journal of Abnormal Psychology, 93, 473–476. doi: 10.1037/0021-843X.93.4.473Google Scholar
Rollins, D., Waterman, D., & Esmay, D. (1985). Married widowhood. Activities, Adaptation, and Aging, 7, 67–71. doi: 10.1300/J016v07n02_08Google Scholar
Sanders, S., & Power, J. (2009). Roles, responsibilities and relationships among older husbands caring for wives with progressive dementia and other chronic conditions. Health and Social Work, 34, 41–51. doi: 10.1093/hsw/34.1.41Google Scholar
Schulz, R., & Martire, L. M. (2004). Family caregiving of persons with dementia: Prevalence health effects, and support strategies. American Journal of Geriatric Psychiatry, 12, 240–249. doi: 10.1176/appi.ajgp.12.3.240Google Scholar
Smith, A. (2014). Older adults and technology use. Retrieved from:www.pewinternet.org/2014/04/03/older-adults-and-technology-use/Google Scholar
Solomon, D. H., & Knobloch, L. K. (2001). Relationship uncertainty, partner interference, and intimacy in dating relationships. Journal of Social and Personal Relationships, 18, 804–820. doi: 10.1177/0265407501186004Google Scholar
Solomon, D. H., & Knobloch, L. K. (2004). A model of relational turbulence: The role of intimacy, relational uncertainty, and interference from partners in appraisals of irritations. Journal of Social and Personal Relationships, 21, 795–816. doi: 10.1177/0265407504047838Google Scholar
Solomon, D. H., Knobloch, L. K., Theiss, J. A., & McLaren, R. M. (2016). Relational turbulence theory: Explaining variation in subjective experiences and communication within romantic relationships. Human Communication Research, 42, 507–532. doi: 10.1111/hcre.12091Google Scholar
Steuber, K. R., & Solomon, D. H. (2008). Relational uncertainty, partner interference, and infertility: A qualitative study of discourse in online forums. Journal of Social and Personal Relationships, 25, 831–855. doi: 10.1177/0265407508096698Google Scholar
Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Thousand Oaks, CA: SAGE.Google Scholar
Theiss, J. A., Carpenter, A. M., & Leustek, J. (2016). Partner facilitation and partner interference in individuals’ weight loss goals. Qualitative Health Research, 26, 1318–1330. doi: 10.1177/1049732315583980Google Scholar
Theiss, J. A., Estlein, R., & Weber, K. M. (2013). A longitudinal assessment of relationship characteristics that predict new parents’ relationship satisfaction. Personal Relationships, 20, 216–235. doi: 10.1111/j.1475–6811.2012.01406.xGoogle Scholar
Theiss, J. A., Knobloch, L. K., Magsamen-Conrad, K., & Checton, M. (2009). Relationship characteristics associated with the experience of hurt in romantic relationships: A test of the relational turbulence model. Human Communication Research, 35, 588–615. doi: 10.1111/j.1468–2958.2009.01364.xGoogle Scholar
Theiss, J. A., & Solomon, D. H. (2006a). Coupling longitudinal data and hierarchical linear modeling to examine the antecedents and consequences of jealousy experiences in romantic relationships: A test of the relational turbulence model. Human Communication Research, 32, 469–503. doi: 10.1111/j.1468–2958.2006.00284.xGoogle Scholar
Theiss, J. A., & Solomon, D. H. (2006b). A relational turbulence model of communication about irritations in romantic relationships. Communication Research, 33, 391–418. doi: 10.1177/0093650206291482Google Scholar
Thurlow, C., Lengel, L., & Tomic, A. (2004). Computer mediated communication: Social interaction and the Internet. London: SAGE.Google Scholar
Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 129, 946–972. doi: 10.1037/0033-2909.129.6.946Google Scholar
Weber, K. M., & Solomon, D. H. (2008). Locating relationship and communication issues among stressors associated with breast cancer. Health Communication, 23, 548–559. doi: 10.1080/10410230802465233Google Scholar
Wuest, J., Ericson, P. K., & Stern, P. N. (1994). Becoming strangers: The changing family caregiving relationship in Alzheimer’s disease. Journal of Advanced Nursing, 20, 437–443. doi: 10.1111/j.1365–2648.1994.tb02378.xCrossRefGoogle ScholarPubMed

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×