Skip to main content Accessibility help
×
Hostname: page-component-848d4c4894-4hhp2 Total loading time: 0 Render date: 2024-05-01T03:21:10.162Z Has data issue: false hasContentIssue false

5 - Nothing about Us without Us: A Disability Challenge to Bioethics

from Part I - Bioethics as Biopolitics

Published online by Cambridge University Press:  21 December 2017

Hagai Boas
Affiliation:
Tel Aviv University Center for Ethics
Yael Hashiloni-Dolev
Affiliation:
The Academic College of Tel Aviv Yaffo, School of Government and Society
Nadav Davidovitch
Affiliation:
Ben Gurion University Department of Health Systems Management
Dani Filc
Affiliation:
Ben Gurion University
Shai J. Lavi
Affiliation:
Tel Aviv University Faculty of Law
Get access

Summary

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Chapter
Information
Bioethics and Biopolitics in Israel
Socio-legal, Political, and Empirical Analysis
, pp. 97 - 116
Publisher: Cambridge University Press
Print publication year: 2018

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Admon-Rick, Gaby. Impaired Encoding: Calculating, Ordering, and the “Disability Percentages” Classification System. Science, Technology & Human Values (2013): 0162243913508326.Google Scholar
Americans with Disabilities Act, 1990, Pub. L. No. 101–336, 104 Stat. 327–33 (codified at 42 U.S.C. §§ 12101–13 (1990)).Google Scholar
Amundson, Ron. Against Normal Function. Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 31.1 (2000): 3353.Google Scholar
Amundson, Ron and Tresky, Shari. Bioethics and Disability Rights: Conflicting Values and Perspectives. Journal of Bioethical Inquiry 5.2–3 (2008): 111123.Google Scholar
Asch, Adrienne. Disability, Bioethics and Human Rights. Handbook of Disability Studies 307 (2001).Google Scholar
Blanck, Peter, Wilichowski, Ann, and Schmeling, James. Disability Civil Rights Law and Policy: Accessible Courtroom Technology. Wm. & Mary Bill Rts. J. 12 (2003): 825.Google Scholar
Brisenden, Simon. Independent Living and the Medical Model of Disability. Disability, Handicap & Society 1.2 (1986): 173178.Google Scholar
Charlton, James I. Nothing about Us without Us: Disability Oppression and Empowerment. University of California Press, 1998.Google Scholar
Davis, Lennard J. Enforcing Normalcy: Disability, Deafness, and the Body. Verso, 1995.Google Scholar
Davis, Lennard J. The End of Normal. University of Michigan Press, 2013.Google Scholar
Dhanda, Amita. Legal Capacity in the Disability Rights Convention: Stranglehold of the Past or Lodestar for the Future. Syracuse J. Int’l L. & Com. 34 (2006): 429.Google Scholar
Flynn, Eilionóir. Disabled Justice?: Access to Justice and the UN Convention on the Rights of Persons with Disabilities. Routledge, 2016.Google Scholar
Foucault, Michel. The Birth of the Clinique. An Archeology of Medical Perception. Pantheon, 1973.Google Scholar
Foucault, Michel. The History of Sexuality: An Introduction, Volume I. Trans. Hurley, Robert. Vintage, 1990.Google Scholar
Goodley, Dan. Disability Studies: An Interdisciplinary Introduction. Sage, 2010.Google Scholar
Hammer et al. v. Prof. Amit et al., C.A. 1326/07 (2012) (Hebrew).Google Scholar
Hashiloni-Dolev, Yael. A Life (Un)Worthy of Living: Reproductive Genetics in Israel and Germany. Vol. 34. Springer Science & Business Media, 2007.Google Scholar
Hensel, Wendy F. Disabling Impact of Wrongful Birth and Wrongful Life Actions. Harvard Civil Rights-Civil Liberties Law Review 40: 141195 (2005).Google Scholar
Heyer, Katharina. Rights Enabled: The Disability Revolution, from the US, to Germany and Japan, to the United Nations. University of Michigan Press, 2015.CrossRefGoogle Scholar
Holler, Roni. Disability and Employment Policy in the Israeli Welfare State: Between Exclusion and Inclusion. Disability & Society 29.9 (2014): 13691382.Google Scholar
Imrie, Rob. Rethinking the Relationships between Disability, Rehabilitation, and Society. Disability and Rehabilitation 19.7 (1997): 263271.Google Scholar
Kanter, Arlene S. Promise and Challenge of the United Nations Convention on the Rights of Persons with Disabilities. Syracuse J. Int’l L. & Com. 34 (2006): 287.Google Scholar
Kanter, Arlene S. There’s No Place Like Home: The Right to Live in the Community for People with Disabilities, under International Law and the Domestic Laws of the United States and Israel. Israel Law Review 45.02 (2012): 181233.Google Scholar
Karako-Eyal, Nili. A Critical Disability Theory Analysis of Wrongful Life/Birth Actions in Israel. International Journal of Private Law 6.3 (2013): 289302.CrossRefGoogle Scholar
Kuczewski, Mark G. Disability: An Agenda for Bioethics. American Journal of Bioethics 1.3 (2001): 3644.Google Scholar
Linton, Simi. Claiming Disability: Knowledge and Identity. New York University Press, 1998.Google Scholar
Matsuda, Mari J. Pragmatism Modified and the False Consciousness Problem. S. Cal. L. Rev. 63 (1989): 1763.Google Scholar
Mor, Sagit. Between Charity, Welfare, and Warfare: A Disability Legal Studies Analysis of Privilege and Neglect in Israeli Disability Policy. Yale JL & Human. 18 (2006): 63.Google Scholar
Mor, Sagit. “Tell My Sister to Come and Get Me Out of Here”: A Reading of Ableism and Orientalism in Israel’s Immigration Policy (The First Decade). Disability Studies Quarterly 27.4 (2007).Google Scholar
Mor, Sagit. The Dialectics of Wrongful Life and Wrongful Birth Claims in Israel: A Disability Critique. Studies in Law, Politics, and Society 63 (2014): 113146.Google Scholar
Mor, Sagit. The Right to Access and Access to Justice – A Disability Perspective. Hukim – Journal on Legislation 8, 1583 (2016) (Hebrew).Google Scholar
Norsigian, Judy. Our Bodies, Ourselves. Simon and Schuster, 2011.Google Scholar
Nussbaum, Martha C. Frontiers of Justice: Disability, Nationality, Species Membership. Harvard University Press, 2006.Google Scholar
Oliver, Michael. The Politics of Disablement: A Sociological Approach. London, 1990.Google Scholar
Parens, Erik and Asch, Adrienne. The Disability Rights Critique of Prenatal Genetic Testing (Special Supplement). Hastings Center Report 29.5 (1999): S1S22.Google Scholar
Perry, Ronen. It’s a Wonderful Life. Cornell L.Rev. 93 (2008): 329399.Google Scholar
Portugese, Jacqueline. Fertility Policy in Israel: The Politics of Religion, Gender, and Nation. Greenwood Publishing Group, 1998.Google Scholar
Remennick, Larissa. The Quest for the Perfect Baby: Why Do Israeli Women Seek Prenatal Genetic Testing? Sociology of Health & Illness 28.1 (2006): 2153.CrossRefGoogle ScholarPubMed
Report of the Public Committee on the Matter of “Wrongful Life-Giving” (2012, March). Jerusalem (Hebrew). http://index.justice.gov.il/Pubilcations/News/Documents/doc.doc.Google Scholar
Rinck, Christine and Calkins, Carl F.. Challenges across the Life Span for Persons with Disabilities. Bioethics Forum 12.3 (1996): 3746.Google Scholar
Rothman, David J. Strangers at the Bedside: A History of How Law and Bioethics Transformed Medical Decision Making. Basic Books, 1991.Google Scholar
Sabatello, Maya and Schulze, Marianne, eds. Human Rights and Disability Advocacy. University of Pennsylvania Press, 2013.Google Scholar
Salzman, Leslie. Guardianship for Persons with Mental Illness – A Legal and Appropriate Alternative? Saint Louis University Journal of Health Law & Policy 4 (2011).Google Scholar
Samuels, Ellen Jean. My Body, My Closet: Invisible Disability and the Limits of Coming-Out Discourse. GLQ: A Journal of Lesbian and Gay Studies 9.1 (2003): 233255.Google Scholar
Scotch, Richard K. From Good Will to Civil Rights. Temple University Press, 1986.Google Scholar
Scully, Jackie Leach. Disability Bioethics: Moral Bodies, Moral Difference. Rowman & Littlefield, 2008.Google Scholar
Shakespeare, Tom. Disability Rights and Wrongs. Routledge, 2006.Google Scholar
Shalev, Carmel. Health, Law, and Human Rights. Tel Aviv University Press, 2003 (Hebrew).Google Scholar
Shapiro, Joseph P. No Pity: People with Disabilities Forging a New Civil Rights Movement. Three Rivers Press, 1994.Google Scholar
Stevens, M. L. T. The History of Bioethics: Its Rise and Significance. Reference Module in Biomedical Sciences (2014) www.sciencedirect.com/science/article/pii/B9780128012383001756.Google Scholar
Swain, John and French, Sally. Towards an Affirmation Model of Disability. Disability & Society 15.4 (2000): 569582.Google Scholar
Tolub, Yotam. A Bizchut Report: Alternatives to Guardianship in Financial Affairs. 2015.Google Scholar
Tolub, Yotam and Kanter, Arlene. Whose Life Is It Anyway?: The Challenge to Autonomy on Legal Capacity of People with Disabilities. Tel Aviv U. J. L. & Soc. Change 6 (2014): 4565 (Hebrew).Google Scholar
Weiss, Meira. The Chosen Body: The Politics of the Body in Israeli Society. Stanford University Press. 2002.CrossRefGoogle Scholar
Wendell, Susan. The Rejected Body: Feminist Philosophical Reflections on Disability. Psychology Press, 1996.Google Scholar
World Health Organization. World Report on Disability. 2011.Google Scholar
Ziv, Neta. Disability Law in Israel and the United States – A Comparative Perspective. Israel Yearbook on Human Rights, (1999): 171202.Google Scholar
Zola, Ervin Kenneth. Medicine as an Institution of Social Control. Ekistics 41.245, HEALTH (April 1976): 210214.Google Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×