Skip to main content Accessibility help
×
Hostname: page-component-848d4c4894-x5gtn Total loading time: 0 Render date: 2024-06-06T18:18:38.105Z Has data issue: false hasContentIssue false

7 - Borders and helpfulness

Published online by Cambridge University Press:  13 May 2022

Christine Ceci
Affiliation:
University of Alberta
Mary Ellen Purkis
Affiliation:
University of Victoria
Get access

Summary

This chapter explores borders, and the relations of helping that happen both inside and outside of these borders, and perhaps most important, about the ‘logic of the between’ (Cooper and Law, 2016, p 207) that works to constitute various and precarious thresholds between these locations. We start with an idea, in many respects rather obvious, that we cannot use a term like ‘help’ with preconceived notions about what help means – that it is not really known in advance what ‘help’ will look like for a particular family. As Büscher and his colleagues (2011) have shown, in the context of evidence that current formal care practices and policies often create rather than resolve problems for families, helpfulness must be rethought in terms of how particular ‘helping’ actions fit, or don't fit, with ongoing family arrangements (Büscher et al, 2011, p 713; see also Lloyd and Stirling, 2011; Stirling et al, 2014; O’Shea et al, 2017; Stephan et al, 2018). Care for family arrangements draws us immediately to consideration of what is ‘between’ these and ‘other’ practices, and that is always something to find out about. In this chapter we develop this idea by drawing on Cooper and Law's distinction between proximal and distal analyses to explore the question of helpfulness through looking at details – materials, knowledges, technologies, policies and people, and importantly, the relations made among all of these – to understand ‘help’ as an effect of complex processes that ‘take up, form and reform all these bits and pieces’ (Cooper and Law, 2016, p 214). To show this idea, we describe processes and events that, in three of the participant families, sometimes led to ‘help’ as an effect, and sometimes did not.

We tie our analysis in this chapter to the idea of profound changes happening over time for families, changes often ending with family members relinquishing responsibility for daily care for the person living with dementia to paid staff in a residential care facility, even while still working out new ways of maintaining a relevant relationship in the spaces available in that new home. This change in living arrangements is profound, it happens in time, it happens differently in different families, and it is a process that draws and informs the attention of many of the ‘helpful’ actions of formal care systems.

Type
Chapter
Information
Care at Home for People Living with Dementia
Delaying Institutionalization, Sustaining Families
, pp. 131 - 155
Publisher: Bristol University Press
Print publication year: 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×