Annas, G. J., Glantz, L. H. and Roche, P. A., 1995, ‘Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations’, Journal of Law and Medical Ethics 23, 360–6.CrossRefGoogle ScholarPubMed

Annas, G. and Grodin, M., 1992, The Nazi Doctors and the Nuremberg Code, Oxford: Oxford University Press.Google Scholar

Anscombe, Elizabeth, 1957, Intention, Oxford: Blackwell.Google Scholar

Austin, J. L., 1962, How to Do Things With Words, Oxford: Clarendon Press.Google Scholar

Austin, J. L., 1962, Collected Philosophical Papers, Oxford: Clarendon Press.Google Scholar

Baier, Annette, 1986, ‘Trust and Anti-Trust’, Ethics, 96, 231–60.CrossRefGoogle Scholar

Baier, Annette, 1991, ‘Trust’, Tanner Lectures on Human Values, vol. 13, Salt Lake City: University of Utah Press.Google Scholar

Beauchamp, Tom L., and Childress, James F., 1994, Principles of Biomedical Ethics, 4th edn, New York: Oxford University Press.Google Scholar

Bennett, Colin J., 1992, Regulating Privacy: Data Protection and Public Policy in Europe and the United States, Ithaca, NY: Cornell University Press.Google Scholar

Berg, Paul, and Singer, Maxine, 1992, Dealing with Genes: The Language of Heredity, Mill Valley, CA: University Science Books.Google Scholar

Beyleveld, Deryck, and Brownsword, Roger, 2001, Human Dignity in Bioethics and Biolaw, Oxford: Oxford University Press.Google Scholar

Blakemore, Colin, 2005, ‘Cultivating a thousand flowers’, Journal of the Foundation for Science and Technology, 18, 10–11.Google Scholar

Brody, B., 1998, The Ethics of Biomedical Research: an International Perspective, New York: Oxford University Press.Google Scholar

Brownsword, Roger, 2004, ‘The Cult of Consent: Fixation and Fallacy’, King's College Law Journal, 15, 223–51.CrossRefGoogle Scholar

Buchanan, Allen, 1978, ‘Medical Paternalism’, Philosophy and Public Affairs, 7, 70–390.Google ScholarPubMed

Burleigh, Michael, 1994, Death and Deliverance: ‘Euthanasia’ in Germany, c.1900–1945, Cambridge: Cambridge University Press.Google Scholar

Burleigh, Michael, 1997, Ethics and Extermination: Reflections on Nazi Genocide, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Burton, Hilary, 2003, Addressing Genetics Delivering Health: A Strategy for Advancing the Dissemination and Application of Genetics Knowledge Throughout our Health Professionals, Cambridge: Public Health Genetics Unit.Google Scholar

Callahan, Daniel, 1996, ‘Can the Moral Commons Survive Autonomy?’, Hastings Center Report, 26, 41–2.CrossRefGoogle Scholar

Carey, James, 1990, Communication as Culture, New York: Routledge.Google Scholar

Carlson, Robert V., Boyd, Kenneth M., and Webb, David J., 2004, ‘The Revision of the Declaration of Helsinki: Past, Present and Future’, British Journal of Clinical Pharmacology, 57, 695–713.CrossRefGoogle ScholarPubMed

Christman, John, 1988, ‘Constructing the Inner Citadel: Recent Work on the Concept of Autonomy’, Ethics, 99, 109–24.CrossRefGoogle Scholar

Christman, John, ed., 1989, The Inner Citadel: Essays on Individual Autonomy, New York: Oxford University Press.Google Scholar

Coady, C. A. J., 1992, Testimony: A Philosophical Study, Oxford: Clarendon Press.Google Scholar

Cox, K., 2002, ‘Informed Consent and Decision-making: Patients’ Experiences of the Process of Recruitment to Phases I and II Anti-cancer Drug Trial', Patient Education and Counselling, 46 (1), 31–8.CrossRefGoogle Scholar

Crick, Francis, 1958, ‘On Protein Synthesis’, Symposium of the Society of Experimental Biology, 12, 138–63.Google ScholarPubMed

Crick, Francis, 1970, ‘Central Dogma of Molecular Biology’, Nature, 227, 561–3.CrossRefGoogle ScholarPubMed

Dalla-Vorgia, P., Lascaratos, J., Skiadia, P., and Garanis-Papadotos, T., 2001, ‘Is Consent in Medicine a Concept Only of Modern Times?’, Journal of Medical Ethics, 27 (1), 59–61.CrossRefGoogle ScholarPubMed

Dawson, Angus, 2004, ‘What Should We Do About It? Implications of the Empirical Evidence in Relation to Comprehension and Acceptability of Randomisation?’, in Holm, S. and Jonas, M., eds., Engaging the World: The Use of Empirical Research in Bioethics and the Regulation of Biotechnology, Netherlands: IOS Press, pp. 41–52.Google Scholar

Day, Ronald E., 2000, ‘The “Conduit Metaphor” and The Nature and Politics of Information Studies’, Journal of the American Society for Information Science, 9, 805–11.3.0.CO;2-C>CrossRefGoogle Scholar

Descartes, Rene, 1988, Rules for the Direction of our Native Intelligence, in Selected Philosophical Writings, ed. and trans. Cottingham, J., Stoothoff, R., and Murdoch, D., Cambridge: Cambridge University Press.Google Scholar

Dretske, Fred, 1981, Knowledge and the Flow of Information, Cambridge, MA: MIT Press.Google Scholar

Dworkin, Gerald, 1972, ‘Paternalism’, The Monist, 56, 64–84.CrossRefGoogle Scholar

Eckstein, Sue, ed., 2003, Manual for Research Ethics Committees, 6th edn, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Elster, Jon, 1989, The Cement of Society: A Study of Social Order, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Faden, Ruth R., and Beauchamp, Tom L., 1986, A History and Theory of Informed Consent, New York: Oxford University Press.Google Scholar

Fiske, John, 1990, Introduction to Communication Studies, 2nd edn, London: Routledge.Google Scholar

Fletcher, George P., 1996, Basic Concepts of Legal Thought, Oxford: Oxford University Press.Google Scholar

Fukuyama, Francis, 1995, Trust: The Social Virtues and the Creation of Prosperity, New York: Free Press.Google Scholar

Geach, Peter, 1965, ‘Assertion’, Philosophical Review, 74, 4, 449–65.CrossRefGoogle Scholar

Godard, Raeburnet al., 2003, ‘Genetic Information and Testing in Insurance and Employment: Technical, Social and Ethical Issues’, European Journal of Human Genetics 11, 123–142.CrossRefGoogle ScholarPubMed

Gostin, L. O., 1995, ‘Genetic privacy’, Journal of Law and Medical Ethics, 23, 320–30.CrossRefGoogle ScholarPubMed

Griffiths, Anthony J. F., et al., 2000, An Introduction to Genetic Analysis, New York: W. H. Freeman.Google Scholar

Griffiths, P. E., and Gray, R. D., 2004, ‘Developmental Systems and Evolutionary Explanation’, Journal of Philosophy, 91, 277–304.CrossRefGoogle Scholar

Hardwig, John, 1985, ‘Epistemic Dependence’, Journal of Philosophy, 82, 335–49.CrossRefGoogle Scholar

Hardwig, John, 1991, ‘The Role of Trust in Knowledge’, Journal of Philosophy, 88, 693–708.CrossRefGoogle Scholar

Hayes, Brian, 1998, ‘The Invention of the Genetic Code’, American Scientist, 86, 8–14.CrossRefGoogle Scholar

Hill, Thomas E., Jnr, 1992, ‘The Kantian Conception of Autonomy’, in Hill, Thomas E. Jnr, Dignity and Practical Reason, Ithaca, NY: Cornell University Press, pp. 76–96.Google Scholar

Holton, Richard, 1994, ‘Deciding to Trust, Coming to Believe’, Australasian Journal of Philosophy, 72, 63–76.CrossRefGoogle Scholar

Jones, James H., 1993, Bad Blood: The Tuskegee Experiment, New York: Free Press.Google Scholar

Jones, Karen, 1996, ‘Trust as an Affective Attitude’, Ethics, 107, 4–25.CrossRefGoogle Scholar

Kant, Immanuel, 1996, Critique of Practical Reason, in Kant, Immanuel, Practical Philosophy, tr. Gregor, Mary, Cambridge: Cambridge University Press.Google Scholar

Kass, Leonard R., 2002, Life, Liberty and the Defence of Dignity: The Challenge for Bioethics, New York: Encounter Books.Google Scholar

Kay, Lily E., 2000, Who Wrote the Book of Life: A History of the Genetic Code, Stanford, CA: Stanford University Press.Google Scholar

Kegley, J. A., 2002, ‘Genetics Decision-making: a Template for Problems With Informed Consent’, Medical Law 21(3), 459–71.Google ScholarPubMed

Kleinig, John, 1983, Paternalism, Manchester: Manchester University Press.Google Scholar

Lakoff, George, and Johnson, Mark, 1980, Metaphors We Live By, Chicago: University of Chicago Press.Google Scholar

Laurie, Graeme T., 2002, Genetic Privacy: A Challenge to Medico-Legal Norms, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Liddell, Kathleen, and Hall, Alison, 2005, ‘Beyond Bristol and Alder Hey: The Future Regulation of Human Tissue’, Medical Law Review 15, 170–223.CrossRefGoogle Scholar

Manson, Neil C., 2006, ‘What is Genetic Information and Why is it Significant? A Contextual, Contrastive Approach’, Journal of Applied Philosophy 23, 1–16.CrossRefGoogle ScholarPubMed

Maynard Smith, John, 2000, ‘The Concept of Information in Biology’, Philosophy of Science, 67, 177–94.CrossRefGoogle Scholar

Mill, John Stuart, 1962, On Liberty, London: Fontana.Google Scholar

Mill, John Stuart,1989, On Liberty, and Other Writings, ed. Collini, Stefan, Cambridge: Cambridge University Press.Google Scholar

Moran, Michael, 2003, The British Regulatory State: High Modernism and Hyper-innovation, Oxford: Oxford University Press.CrossRefGoogle Scholar

Moreno, Jonathan D., 2000, Undue Risk: Secret State Experiments on Humans, London: Routledge.Google Scholar

O'Neill, Onora, 2000, ‘Kant and the Social Contract Tradition’, in Duchesneau, François, Lafrance, Guy, and Piché, Claude, eds., Kant Actuel: Hommage à Pierre Laberge, Montreal: Bellarmin, pp. 185–200.Google Scholar

O'Neill, Onora, 2000, The Bounds of Justice, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

O'Neill, Onora, 2002, Autonomy and Trust in Bioethics, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

O'Neill, Onora, 2003, ‘Autonomy: The Emperor's New Clothes, The Inaugural Address’, Proceedings of the Aristotelian Society, supp. vol. 77, 1–21.CrossRefGoogle Scholar

O'Neill, Onora,2004, ‘Self-Legislation, Autonomy and the Form of Law’, in Recht, Geschichte, Religion: Die Bedeutung Kants für die Gegenwart, eds. Nagl-Docekal, Herta, and Langthaler, Rudolf, Sonderband der Deutschen Zeitschrift für Philosophie, Berlin: Akademie Verlag, pp. 13–26.Google Scholar

O'Neill, Onora, 2004, ‘Informed Consent and Public Health’, Philosophical Transactions: Biological Sciences, vol. 359, no. 1447, 1133–6.CrossRefGoogle ScholarPubMed

O'Neill, Onora, 2005, ‘The Dark Side of Human Rights’, International Affairs, 81, 427–39.CrossRefGoogle Scholar

O'Neill, Onora,2006, ‘Transparency and the Ethics of Communication’, in Transparency: The Key to Better Governance?, eds. Heald, David, and Hood, Christopher, Proceedings of the British Academy 135, Oxford: Oxford University Press, pp. 75–90.Google Scholar

Oyama, Susan, 2000, The Ontogeny of Information, 2nd edn, Durham, NC: Duke University Press.CrossRefGoogle Scholar

Parent, W. A., 1983, ‘Privacy, Morality and the Law’, Philosophy and Public Affairs, 12, 269–88.Google Scholar

Phillipson, Gavin, 2003, ‘Transforming Breach of Confidence? Towards a Common Law Right of Privacy under the Human Rights Act’, Modern Law Review 66, 726–58.CrossRefGoogle Scholar

Phillipson, Gavin and Fenwick, Helen, 2000, ‘Breach of confidence as a Privacy Remedy in the Human Rights Act Era’, Modern Law Review, 63, 660–93.CrossRefGoogle Scholar

Power, Michael, 1994, The Audit Explosion, London: Demos.Google Scholar

Power, Michael, 1997, The Audit Society: Rituals of Verification, Oxford: Oxford University Press.Google Scholar

Power, Michael, 2004, The Risk Management of Everything: Rethinking the Politics of Uncertainty, London: Demos.Google Scholar

Putnam, Robert, 1995, ‘Bowling Alone: America's Declining Social Capital’, The Journal of Democracy, 6, 65–78.CrossRefGoogle Scholar

Putnam, Robert, 2000, Bowling Alone: The Collapse and Revival of American Community, New York: Simon & Schuster.CrossRefGoogle Scholar

Raymont, Vanessa, et al., 2004, ‘Prevalence of Mental Incapacity in Medical Inpatients and Associated Risk Factors: Cross Sectional Study’, The Lancet, 364, 1421–7.CrossRefGoogle ScholarPubMed

Reddy, Michael, 1979, ‘The Conduit Metaphor: A Case of Frame Conflict in our Language about Language’, in Ortony, A., ed., Metaphor and Thought, Cambridge: Cambridge University Press, pp. 284–324.Google Scholar

Rhodes, Rosamond, Batting, Margaret P., and Silvers, Anita, eds., 2002, Medicine and Social Justice: Essays on the Distribution of Health Care, New York: Oxford University Press.Google Scholar

Rothstein, Mark A., 2005, ‘Genetic Exceptionalism and Legislative Pragmatism’, Hastings Center Report, 35, 4, 2–8.CrossRefGoogle ScholarPubMed

Sankar, Pamela, 2003, ‘Genetic Determinism Provides the Foundation of Arguments Supporting Genetic Exceptionalism’, Annual Review of Medicine 54, 393–407.CrossRefGoogle Scholar

Sarkar, Sahotra, 1996, ‘Biological Information: A Sceptical Look at Some Central Dogmas of Molecular Biology’, in Sarkar, Sahotra, ed., The Philosophy and History of Molecular Biology: New Perspectives, Dordrecht: Kluwer, pp. 187–232.CrossRefGoogle Scholar

Schneider, Carl E., 1998, The Practice of Autonomy, New York: Oxford University Press.Google Scholar

Searle, John, 1969, Speech Acts: An Essay in Philosophy of Language, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Sugarman, Jeremy, et al., 1999, ‘Empirical Research on Informed Consent: An Annotated Bibliography’, Hastings Center Report, Special Supplement, January–February, 1–42.Google Scholar

Thompson, Mark, 1990, ‘Breach of Confidence and Privacy’, in Clarke, Linda, ed., Confidentiality and the Law, London: Lloyds of London, pp. 65–79.Google Scholar

Wacks, Raymond, 1993, Personal Information: Privacy and the Law, Oxford: Clarendon Press.Google Scholar

Warlow, Charles, 2005, ‘Over-regulation of Clinical Research: a Threat to Public Health’, Clinical medicine, 5, 1, 33–8.CrossRefGoogle ScholarPubMed

Warren, Samuel D., and Brandeis, Louis D., 1890, ‘The Right to Privacy’, Harvard Law Review, 4, 193–220.CrossRefGoogle Scholar

Weinreb, Lloyd L., 2000, ‘The Right to Privacy’, in Frankel Paul, Ellen, Miller, Fred D. Jnr., and Paul, Jeffrey, eds., The Right to Privacy, Cambridge: Cambridge University Press.Google Scholar

Welbourne, Michael, 2001, Knowledge, Chesham: Acumen.Google Scholar

Westin, Alan, 1967, Privacy and Freedom, New York: Atheneum.Google Scholar

Weston, J., Hannah, M., and Downes, J., 1997, ‘Evaluating the benefits of a patient information video during the informed consent process’, Patient Education and Counselling, 30 (3), 239–45.CrossRefGoogle ScholarPubMed

Wilkinson, T. M., 2001, ‘Research, Informed Consent, and the Limits of Disclosure’, Bioethics, 15, 4, 341–63.Google ScholarPubMed

Williams, Bernard, 1985, Ethics and the Limits of Philosophy, London: Fontana.Google Scholar

Willis, Rebecca, and Wilsdon, James, 2004, See-through Science: Why Public Engagement Needs to Move Upstream, London: Demos.Google Scholar

Wolpe, P., 1998, ‘The Triumph of Autonomy in American Bioethics’, in Devries, R., and Subedi, J., eds., Bioethics and Society: Constructing the Ethical Enterprise, Englewood Cliffs, NJ: Prentice Hall, pp. 38–59.Google Scholar

Annas, G. J., Glantz, L. H. and Roche, P. A., 1995, ‘Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations’, Journal of Law and Medical Ethics 23, 360–6.CrossRefGoogle ScholarPubMed

Annas, G. and Grodin, M., 1992, The Nazi Doctors and the Nuremberg Code, Oxford: Oxford University Press.Google Scholar

Anscombe, Elizabeth, 1957, Intention, Oxford: Blackwell.Google Scholar

Austin, J. L., 1962, How to Do Things With Words, Oxford: Clarendon Press.Google Scholar

Austin, J. L., 1962, Collected Philosophical Papers, Oxford: Clarendon Press.Google Scholar

Baier, Annette, 1986, ‘Trust and Anti-Trust’, Ethics, 96, 231–60.CrossRefGoogle Scholar

Baier, Annette, 1991, ‘Trust’, Tanner Lectures on Human Values, vol. 13, Salt Lake City: University of Utah Press.Google Scholar

Beauchamp, Tom L., and Childress, James F., 1994, Principles of Biomedical Ethics, 4th edn, New York: Oxford University Press.Google Scholar

Bennett, Colin J., 1992, Regulating Privacy: Data Protection and Public Policy in Europe and the United States, Ithaca, NY: Cornell University Press.Google Scholar

Berg, Paul, and Singer, Maxine, 1992, Dealing with Genes: The Language of Heredity, Mill Valley, CA: University Science Books.Google Scholar

Beyleveld, Deryck, and Brownsword, Roger, 2001, Human Dignity in Bioethics and Biolaw, Oxford: Oxford University Press.Google Scholar

Blakemore, Colin, 2005, ‘Cultivating a thousand flowers’, Journal of the Foundation for Science and Technology, 18, 10–11.Google Scholar

Brody, B., 1998, The Ethics of Biomedical Research: an International Perspective, New York: Oxford University Press.Google Scholar

Brownsword, Roger, 2004, ‘The Cult of Consent: Fixation and Fallacy’, King's College Law Journal, 15, 223–51.CrossRefGoogle Scholar

Buchanan, Allen, 1978, ‘Medical Paternalism’, Philosophy and Public Affairs, 7, 70–390.Google ScholarPubMed

Burleigh, Michael, 1994, Death and Deliverance: ‘Euthanasia’ in Germany, c.1900–1945, Cambridge: Cambridge University Press.Google Scholar

Burleigh, Michael, 1997, Ethics and Extermination: Reflections on Nazi Genocide, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Burton, Hilary, 2003, Addressing Genetics Delivering Health: A Strategy for Advancing the Dissemination and Application of Genetics Knowledge Throughout our Health Professionals, Cambridge: Public Health Genetics Unit.Google Scholar

Callahan, Daniel, 1996, ‘Can the Moral Commons Survive Autonomy?’, Hastings Center Report, 26, 41–2.CrossRefGoogle Scholar

Carey, James, 1990, Communication as Culture, New York: Routledge.Google Scholar

Carlson, Robert V., Boyd, Kenneth M., and Webb, David J., 2004, ‘The Revision of the Declaration of Helsinki: Past, Present and Future’, British Journal of Clinical Pharmacology, 57, 695–713.CrossRefGoogle ScholarPubMed

Christman, John, 1988, ‘Constructing the Inner Citadel: Recent Work on the Concept of Autonomy’, Ethics, 99, 109–24.CrossRefGoogle Scholar

Christman, John, ed., 1989, The Inner Citadel: Essays on Individual Autonomy, New York: Oxford University Press.Google Scholar

Coady, C. A. J., 1992, Testimony: A Philosophical Study, Oxford: Clarendon Press.Google Scholar

Cox, K., 2002, ‘Informed Consent and Decision-making: Patients’ Experiences of the Process of Recruitment to Phases I and II Anti-cancer Drug Trial', Patient Education and Counselling, 46 (1), 31–8.CrossRefGoogle Scholar

Crick, Francis, 1958, ‘On Protein Synthesis’, Symposium of the Society of Experimental Biology, 12, 138–63.Google ScholarPubMed

Crick, Francis, 1970, ‘Central Dogma of Molecular Biology’, Nature, 227, 561–3.CrossRefGoogle ScholarPubMed

Dalla-Vorgia, P., Lascaratos, J., Skiadia, P., and Garanis-Papadotos, T., 2001, ‘Is Consent in Medicine a Concept Only of Modern Times?’, Journal of Medical Ethics, 27 (1), 59–61.CrossRefGoogle ScholarPubMed

Dawson, Angus, 2004, ‘What Should We Do About It? Implications of the Empirical Evidence in Relation to Comprehension and Acceptability of Randomisation?’, in Holm, S. and Jonas, M., eds., Engaging the World: The Use of Empirical Research in Bioethics and the Regulation of Biotechnology, Netherlands: IOS Press, pp. 41–52.Google Scholar

Day, Ronald E., 2000, ‘The “Conduit Metaphor” and The Nature and Politics of Information Studies’, Journal of the American Society for Information Science, 9, 805–11.3.0.CO;2-C>CrossRefGoogle Scholar

Descartes, Rene, 1988, Rules for the Direction of our Native Intelligence, in Selected Philosophical Writings, ed. and trans. Cottingham, J., Stoothoff, R., and Murdoch, D., Cambridge: Cambridge University Press.Google Scholar

Dretske, Fred, 1981, Knowledge and the Flow of Information, Cambridge, MA: MIT Press.Google Scholar

Dworkin, Gerald, 1972, ‘Paternalism’, The Monist, 56, 64–84.CrossRefGoogle Scholar

Eckstein, Sue, ed., 2003, Manual for Research Ethics Committees, 6th edn, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Elster, Jon, 1989, The Cement of Society: A Study of Social Order, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Faden, Ruth R., and Beauchamp, Tom L., 1986, A History and Theory of Informed Consent, New York: Oxford University Press.Google Scholar

Fiske, John, 1990, Introduction to Communication Studies, 2nd edn, London: Routledge.Google Scholar

Fletcher, George P., 1996, Basic Concepts of Legal Thought, Oxford: Oxford University Press.Google Scholar

Fukuyama, Francis, 1995, Trust: The Social Virtues and the Creation of Prosperity, New York: Free Press.Google Scholar

Geach, Peter, 1965, ‘Assertion’, Philosophical Review, 74, 4, 449–65.CrossRefGoogle Scholar

Godard, Raeburnet al., 2003, ‘Genetic Information and Testing in Insurance and Employment: Technical, Social and Ethical Issues’, European Journal of Human Genetics 11, 123–142.CrossRefGoogle ScholarPubMed

Gostin, L. O., 1995, ‘Genetic privacy’, Journal of Law and Medical Ethics, 23, 320–30.CrossRefGoogle ScholarPubMed

Griffiths, Anthony J. F., et al., 2000, An Introduction to Genetic Analysis, New York: W. H. Freeman.Google Scholar

Griffiths, P. E., and Gray, R. D., 2004, ‘Developmental Systems and Evolutionary Explanation’, Journal of Philosophy, 91, 277–304.CrossRefGoogle Scholar

Hardwig, John, 1985, ‘Epistemic Dependence’, Journal of Philosophy, 82, 335–49.CrossRefGoogle Scholar

Hardwig, John, 1991, ‘The Role of Trust in Knowledge’, Journal of Philosophy, 88, 693–708.CrossRefGoogle Scholar

Hayes, Brian, 1998, ‘The Invention of the Genetic Code’, American Scientist, 86, 8–14.CrossRefGoogle Scholar

Hill, Thomas E., Jnr, 1992, ‘The Kantian Conception of Autonomy’, in Hill, Thomas E. Jnr, Dignity and Practical Reason, Ithaca, NY: Cornell University Press, pp. 76–96.Google Scholar

Holton, Richard, 1994, ‘Deciding to Trust, Coming to Believe’, Australasian Journal of Philosophy, 72, 63–76.CrossRefGoogle Scholar

Jones, James H., 1993, Bad Blood: The Tuskegee Experiment, New York: Free Press.Google Scholar

Jones, Karen, 1996, ‘Trust as an Affective Attitude’, Ethics, 107, 4–25.CrossRefGoogle Scholar

Kant, Immanuel, 1996, Critique of Practical Reason, in Kant, Immanuel, Practical Philosophy, tr. Gregor, Mary, Cambridge: Cambridge University Press.Google Scholar

Kass, Leonard R., 2002, Life, Liberty and the Defence of Dignity: The Challenge for Bioethics, New York: Encounter Books.Google Scholar

Kay, Lily E., 2000, Who Wrote the Book of Life: A History of the Genetic Code, Stanford, CA: Stanford University Press.Google Scholar

Kegley, J. A., 2002, ‘Genetics Decision-making: a Template for Problems With Informed Consent’, Medical Law 21(3), 459–71.Google ScholarPubMed

Kleinig, John, 1983, Paternalism, Manchester: Manchester University Press.Google Scholar

Lakoff, George, and Johnson, Mark, 1980, Metaphors We Live By, Chicago: University of Chicago Press.Google Scholar

Laurie, Graeme T., 2002, Genetic Privacy: A Challenge to Medico-Legal Norms, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Liddell, Kathleen, and Hall, Alison, 2005, ‘Beyond Bristol and Alder Hey: The Future Regulation of Human Tissue’, Medical Law Review 15, 170–223.CrossRefGoogle Scholar

Manson, Neil C., 2006, ‘What is Genetic Information and Why is it Significant? A Contextual, Contrastive Approach’, Journal of Applied Philosophy 23, 1–16.CrossRefGoogle ScholarPubMed

Maynard Smith, John, 2000, ‘The Concept of Information in Biology’, Philosophy of Science, 67, 177–94.CrossRefGoogle Scholar

Mill, John Stuart, 1962, On Liberty, London: Fontana.Google Scholar

Mill, John Stuart,1989, On Liberty, and Other Writings, ed. Collini, Stefan, Cambridge: Cambridge University Press.Google Scholar

Moran, Michael, 2003, The British Regulatory State: High Modernism and Hyper-innovation, Oxford: Oxford University Press.CrossRefGoogle Scholar

Moreno, Jonathan D., 2000, Undue Risk: Secret State Experiments on Humans, London: Routledge.Google Scholar

O'Neill, Onora, 2000, ‘Kant and the Social Contract Tradition’, in Duchesneau, François, Lafrance, Guy, and Piché, Claude, eds., Kant Actuel: Hommage à Pierre Laberge, Montreal: Bellarmin, pp. 185–200.Google Scholar

O'Neill, Onora, 2000, The Bounds of Justice, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

O'Neill, Onora, 2002, Autonomy and Trust in Bioethics, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

O'Neill, Onora, 2003, ‘Autonomy: The Emperor's New Clothes, The Inaugural Address’, Proceedings of the Aristotelian Society, supp. vol. 77, 1–21.CrossRefGoogle Scholar

O'Neill, Onora,2004, ‘Self-Legislation, Autonomy and the Form of Law’, in Recht, Geschichte, Religion: Die Bedeutung Kants für die Gegenwart, eds. Nagl-Docekal, Herta, and Langthaler, Rudolf, Sonderband der Deutschen Zeitschrift für Philosophie, Berlin: Akademie Verlag, pp. 13–26.Google Scholar

O'Neill, Onora, 2004, ‘Informed Consent and Public Health’, Philosophical Transactions: Biological Sciences, vol. 359, no. 1447, 1133–6.CrossRefGoogle ScholarPubMed

O'Neill, Onora, 2005, ‘The Dark Side of Human Rights’, International Affairs, 81, 427–39.CrossRefGoogle Scholar

O'Neill, Onora,2006, ‘Transparency and the Ethics of Communication’, in Transparency: The Key to Better Governance?, eds. Heald, David, and Hood, Christopher, Proceedings of the British Academy 135, Oxford: Oxford University Press, pp. 75–90.Google Scholar

Oyama, Susan, 2000, The Ontogeny of Information, 2nd edn, Durham, NC: Duke University Press.CrossRefGoogle Scholar

Parent, W. A., 1983, ‘Privacy, Morality and the Law’, Philosophy and Public Affairs, 12, 269–88.Google Scholar

Phillipson, Gavin, 2003, ‘Transforming Breach of Confidence? Towards a Common Law Right of Privacy under the Human Rights Act’, Modern Law Review 66, 726–58.CrossRefGoogle Scholar

Phillipson, Gavin and Fenwick, Helen, 2000, ‘Breach of confidence as a Privacy Remedy in the Human Rights Act Era’, Modern Law Review, 63, 660–93.CrossRefGoogle Scholar

Power, Michael, 1994, The Audit Explosion, London: Demos.Google Scholar

Power, Michael, 1997, The Audit Society: Rituals of Verification, Oxford: Oxford University Press.Google Scholar

Power, Michael, 2004, The Risk Management of Everything: Rethinking the Politics of Uncertainty, London: Demos.Google Scholar

Putnam, Robert, 1995, ‘Bowling Alone: America's Declining Social Capital’, The Journal of Democracy, 6, 65–78.CrossRefGoogle Scholar

Putnam, Robert, 2000, Bowling Alone: The Collapse and Revival of American Community, New York: Simon & Schuster.CrossRefGoogle Scholar

Raymont, Vanessa, et al., 2004, ‘Prevalence of Mental Incapacity in Medical Inpatients and Associated Risk Factors: Cross Sectional Study’, The Lancet, 364, 1421–7.CrossRefGoogle ScholarPubMed

Reddy, Michael, 1979, ‘The Conduit Metaphor: A Case of Frame Conflict in our Language about Language’, in Ortony, A., ed., Metaphor and Thought, Cambridge: Cambridge University Press, pp. 284–324.Google Scholar

Rhodes, Rosamond, Batting, Margaret P., and Silvers, Anita, eds., 2002, Medicine and Social Justice: Essays on the Distribution of Health Care, New York: Oxford University Press.Google Scholar

Rothstein, Mark A., 2005, ‘Genetic Exceptionalism and Legislative Pragmatism’, Hastings Center Report, 35, 4, 2–8.CrossRefGoogle ScholarPubMed

Sankar, Pamela, 2003, ‘Genetic Determinism Provides the Foundation of Arguments Supporting Genetic Exceptionalism’, Annual Review of Medicine 54, 393–407.CrossRefGoogle Scholar

Sarkar, Sahotra, 1996, ‘Biological Information: A Sceptical Look at Some Central Dogmas of Molecular Biology’, in Sarkar, Sahotra, ed., The Philosophy and History of Molecular Biology: New Perspectives, Dordrecht: Kluwer, pp. 187–232.CrossRefGoogle Scholar

Schneider, Carl E., 1998, The Practice of Autonomy, New York: Oxford University Press.Google Scholar

Searle, John, 1969, Speech Acts: An Essay in Philosophy of Language, Cambridge: Cambridge University Press.CrossRefGoogle Scholar

Sugarman, Jeremy, et al., 1999, ‘Empirical Research on Informed Consent: An Annotated Bibliography’, Hastings Center Report, Special Supplement, January–February, 1–42.Google Scholar

Thompson, Mark, 1990, ‘Breach of Confidence and Privacy’, in Clarke, Linda, ed., Confidentiality and the Law, London: Lloyds of London, pp. 65–79.Google Scholar

Wacks, Raymond, 1993, Personal Information: Privacy and the Law, Oxford: Clarendon Press.Google Scholar

Warlow, Charles, 2005, ‘Over-regulation of Clinical Research: a Threat to Public Health’, Clinical medicine, 5, 1, 33–8.CrossRefGoogle ScholarPubMed

Warren, Samuel D., and Brandeis, Louis D., 1890, ‘The Right to Privacy’, Harvard Law Review, 4, 193–220.CrossRefGoogle Scholar

Weinreb, Lloyd L., 2000, ‘The Right to Privacy’, in Frankel Paul, Ellen, Miller, Fred D. Jnr., and Paul, Jeffrey, eds., The Right to Privacy, Cambridge: Cambridge University Press.Google Scholar

Welbourne, Michael, 2001, Knowledge, Chesham: Acumen.Google Scholar

Westin, Alan, 1967, Privacy and Freedom, New York: Atheneum.Google Scholar

Weston, J., Hannah, M., and Downes, J., 1997, ‘Evaluating the benefits of a patient information video during the informed consent process’, Patient Education and Counselling, 30 (3), 239–45.CrossRefGoogle ScholarPubMed

Wilkinson, T. M., 2001, ‘Research, Informed Consent, and the Limits of Disclosure’, Bioethics, 15, 4, 341–63.Google ScholarPubMed

Williams, Bernard, 1985, Ethics and the Limits of Philosophy, London: Fontana.Google Scholar

Willis, Rebecca, and Wilsdon, James, 2004, See-through Science: Why Public Engagement Needs to Move Upstream, London: Demos.Google Scholar

Wolpe, P., 1998, ‘The Triumph of Autonomy in American Bioethics’, in Devries, R., and Subedi, J., eds., Bioethics and Society: Constructing the Ethical Enterprise, Englewood Cliffs, NJ: Prentice Hall, pp. 38–59.Google Scholar