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11 - Advance care planning and end-of-life decision-making

Published online by Cambridge University Press:  05 August 2012

D. Micah Hester
Affiliation:
Division of Medical Humanities, University of Arkansas
Toby Schonfeld
Affiliation:
Emory University, Atlanta
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Summary

Objectives

  1. Identify key moral concepts in the care of patients near the end of life.

  2. Describe the process of advance care planning and how it helps prevent moral conflicts over end-of-life care.

  3. Examine the main types of advance directives and portable medical orders for end-of-life care and understand how they help guide treatment decisions.

  4. Consider the relationship between general goals of care and speciic treatment choices near the end of life.

  5. Identify continuing challenges in making and implementing end-of-life treatment decisions.

Case

Joan Thompson, a nurse in the cardiology unit, requests an ethics consultation regarding the care of her patient Mrs. Mary Wilson. Seventy-eight-year-old Mrs. Wilson was diagnosed with congestive heart failure 4 years ago; her condition has worsened gradually since then. She was admitted to the hospital 2 days ago with symptoms of shortness of breath, recurrent chest pain, fatigue, and confusion. This is her third hospitalization in the past 6 months. Mrs.Wilson’s difficulty in breathing has persisted despite drug therapy, and Dr. Kelly, Mrs.Wilson’s cardiologist, is preparing to intubate her and provide mechanical ventilation. Mrs. Wilson has confided to Ms. Thompson, however, that she does not want to be on a ventilator again, and wants only treatments to relieve her pain and allow her to rest. Ms. Thompson has observed that Dr. Kelly is unwilling to discuss palliative care with his patients and to write do-not-attempt-resuscitation (DNAR) orders, and she is concerned that Mrs. Wilson’s wishes are not being respected.

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Chapter
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Publisher: Cambridge University Press
Print publication year: 2012

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References

1990
Gostin, LO 2005 Ethics, the Constitution, and the dying process: the case of Theresa Marie SchiavoJ Am Med Assoc 293 2403CrossRefGoogle ScholarPubMed
Hammes, BJRooney, BLGundrun, JD 2010 A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystemJ Am Geriatr Soc 58 1249CrossRefGoogle Scholar
Hunt, LM 2005 Beyond cultural competence: applying humility to clinical settingsThe Social Medicine Reader133Henderson, GEDurham, NCDuke University PressGoogle Scholar
King, NMP 1996 Making Sense of Advance DirectivesWashington, DCGeorgetown University PressGoogle Scholar
Moskop, JC 2004 Improving care at the end of life: how advance care planning can helpPalliative Supportive Care 2 191CrossRefGoogle ScholarPubMed
National Hospice and Palliative Care Organization. http://www.caringinfo.org
Physician Orders for Life-Sustaining Treatment Paradigm 2011 http://www.ohsu.edu/polst/programs/state±programs.htm
1976

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