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Development and evaluation of a short version of the quality of life questionnaire for dementia

Published online by Cambridge University Press:  27 August 2014

Seishi Terada ,
Etsuko Oshima ,
Chikako Ikeda ,
Satoshi Hayashi ,
Osamu Yokota  and
Yosuke Uchitomi
Seishi Terada*
Affiliation:
Department of Neuropsychiatry, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan
Etsuko Oshima
Affiliation:
Department of Neuropsychiatry, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan
Chikako Ikeda
Affiliation:
Department of Neuropsychiatry, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan
Satoshi Hayashi
Affiliation:
Department of Neuropsychiatry, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan
Osamu Yokota
Affiliation:
Department of Neuropsychiatry, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan
Yosuke Uchitomi
Affiliation:
Department of Neuropsychiatry, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, Okayama, Japan
*
Correspondence should be addressed to: Dr. Seishi Terada, Department of Neuropsychiatry, Okayama University Graduate School of Medicine, Dentistry and Pharmaceutical Sciences, 2-5-1 Shikata-cho, Kita-ku, Okayama 700-8558, Japan. Phone: +81-86-235-7242; Fax: +81-86-235-7246. Email: terada@cc.okayama-u.ac.jp.
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Abstract

Background:

There are many quality of life (QOL) instruments for evaluating dementia patients. The QOL questionnaire for Dementia (QOL-D) is one of such instruments and a validated objective measure of QOL for patients with dementia. It comprises 31 items encompassing six domains. However, with 31 items, its length is a disadvantage. The purpose of this study was to develop a short version of QOL-D (short QOL-D).

Methods:

We used data from two studies. The participants were 264 inpatients with dementia in the first sample and 395 outpatients at a memory clinic in the second sample. We used maximum likelihood factor analysis with promax rotation to reduce the number of items.

Results:

We produced a nine-item version of QOL-D (short QOL-D) with positive (six items) and negative (three items) dimensions. The correlation coefficients of short and total versions of QOL-D were 0.892–0.918 for total scores, 0.903–0.936 for positive dimension scores, and 0.788–0.837 for negative dimension scores. Total short QOL-D scores showed a significant correlation to the Geriatric Depression Scale score and the apathy score of the Neuropsychiatric Inventory.

Conclusions:

The short QOL-D produced results comparable with that of the full version. Reducing the number of items may make administration of the instrument easier.

Keywords

dementiafactor analysishealth-related QOLquality of life (QOL)
Type
Research Article
Information
International Psychogeriatrics , Volume 27 , Issue 1 , January 2015 , pp. 103 - 110
Copyright
Copyright © International Psychogeriatric Association 2014 

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References

Ata, T. et al. (2010). Wandering and fecal smearing in people with dementia. International Psychogeriatrics, 22, 493–500. doi:10.1017/S1041610210000086.Google Scholar
Banerjee, S. et al. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health-related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 24, 15–24. doi:10.1002/gps.2090.Google Scholar
Brod, M., Stewart, A. L., Sands, L. and Walton, P. (1999). Conceptualization and measurement of quality of life in dementia: the dementia quality of life instrument (DQoL). Gerontologist, 39, 25–35.Google Scholar
Burgener, S. C., Twigg, P. and Popovich, A. (2005). Measuring psychological well-being in cognitively impaired persons. Dementia, 4, 463–485. doi:10.1177/ 1471301205058303.Google Scholar
Ettema, T. P., Dröes, R. M., de Lange, J., Mellenbergh, G. J. and Ribbe, M. W. (2005). A review of quality of life instruments used in dementia. Quality of Life Research, 14, 675–686. doi:10.1007/s11136-004-1258-0.CrossRefGoogle ScholarPubMed
Folstein, M. F., Folstein, S. E. and McHugh, P. R. (1975). Mini-Mental State: a practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.Google Scholar
Funaki, Y., Kaneko, F. and Okamura, H. (2005). Study on factors associated with changes in quality of life of demented elderly persons in group homes. Scandinavian Journal of Occupational Therapy, 12, 4–9. doi:10.1080/ 11038120510031725.Google Scholar
Gertz, H. J. and Berwig, M. (2008). Critical observations on measuring quality of life of persons suffering from dementia. Nervenarzt, 79, 1023–1035. doi:10.1007/s00115-008-2530-2 (in German).Google Scholar
Hirono, N. et al. (1997). Japanese version of the Neuropsychiatric Inventory: a scoring system for neuropsychiatric disturbance in dementia patients. Brain and Nerve, 49, 266–271 (in Japanese with English abstract).Google Scholar
Hoe, J., Katona, C., Roch, B. and Livingston, G. (2005). Use of the QOL-AD for measuring quality of life in people with severe dementia – the LASER-AD study. Age and Ageing, 34, 130–135. doi:10.1093/ageing/afi030.CrossRefGoogle ScholarPubMed
Karttunen, K. et al. (2011). Neuropsychiatric symptoms and quality of life in patients with very mild and mild Alzheimer's disease. International Journal of Geriatric Psychiatry, 26, 473–482. doi:10.1002/gps.2550.CrossRefGoogle ScholarPubMed
Kazui, H., Harada, K., Eguchi, Y.S., Tokunaga, H., Endo, H. and Takeda, M. (2008). Association between quality of life of demented patients and professional knowledge of care workers. Journal of Geriatric Psychiatry and Neurology, 2, 72–78. doi:10.1177/8925320607311562.Google Scholar
Kugo, A. et al. (2007). Japanese version of the Frontal Assessment Battery for dementia. Psychiatry Research, 153, 69–75. doi:10.1016/j.psychres.2006.04.004.Google Scholar
Lawton, M. P. (1994). Quality of life in Alzheimer's disease. Alzheimer Disease and Associated Disorders, 8 (Supplement 3), 138–150.Google Scholar
Lawton, M. P., Van Haitsma, K. and Klapper, J. (1996). Observed affect in nursing home residents with Alzheimer's disease. Journal of Gerontology Series B: Psychological Sciences and Social Sciences, 51, 3–14.Google Scholar
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (1999). Quality of life in Alzheimer's disease: patient and caregiver reports. Journal of Mental Health and Aging, 5, 21–32.Google Scholar
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64, 510–519.Google Scholar
Logsdon, R. G., McCurry, S. M. and Teri, L. (2007). Evidence-based interventions to improve quality of life for individuals with dementia. Alzheimer's Care Today, 8, 309–318.Google Scholar
Muraoka, Y., Ikuchi, S. and Ihara, K. (1996). The physical, psychological and social background factors of elderly depression in the community. Japanese Journal of Geriatric Psychiatry, 7, 397–407 (in Japanese with English abstract).Google Scholar
Nishimura, T. et al. (1993). Scales for mental state and daily living activities for the elderly: clinical behavioral scales for assessing demented patients. International Psychogeriatrics, 5, 117–134.Google Scholar
Post, M. W., Boosman, H., van Zandvoort, M. M., Passier, P. E., Rinkel, G. J. and Visser-Meily, J. M. (2011). Development and validation of a short version of the stroke-specific Quality of Life scale. Journal of Neurology, Neurosurgery & Psychiatry, 82, 283–286. doi:10.1136/jnnp.2009.196394.Google Scholar
Rabins, P. V., Kasper, J. D., Kleinman, L., Black, B. S. and Patrick, D. L. (1999). Concepts and methods in the development of the ADRQL: an instrument for assessing health-related quality of life in persons with Alzheimer's disease. Journal of Mental Health and Aging, 5, 33–48.Google Scholar
Ready, R. E. and Ott, B. R. (2003). Quality of Life measures for dementia. Health and Quality of Life Outcomes, 1, 11. doi:10.1186/1477-7525-1-11.Google Scholar
Ready, R. E., Ott, B. R., Grace, J. and Fernandez, I. (2002). The Cornell–Brown Scale for Quality of Life in dementia. Alzheimer's Disease and Associated Disorders, 16, 109–115.Google Scholar
Riazi, A., Bradley, C., Barendse, S. and Ishii, H. (2006). Development of the Well-being Questionnaire short-form in Japanese: the W-BQ12. Health and Quality of Life Outcomes, 4, 40. doi:10.1186/1477-7525-4-40.Google Scholar
Schölzel-Dorenbos, C. J. et al. (2007). Evaluating the outcome of interventions on quality of life in dementia: selection of the appropriate scale. International Journal of Geriatric Psychiatry, 22, 511–519. doi:10.1002/gps.1719.CrossRefGoogle ScholarPubMed
Terada, S. et al. (2002). Development and evaluation of a health-related quality of life questionnaire for the elderly with dementia in Japan. International Journal of Geriatric Psychiatry, 17, 851–858. doi:10.1002/gps.711.Google Scholar
Terada, S. et al. (2013). Person-centered care and quality of life of patients with dementia in long-term care facilities. Psychiatry Research, 205, 103–108. doi:10.1016/ j.psychres.2012.08.028.Google Scholar
Trigg, R., Skevington, S. M. and Jones, R. W. (2007). How can we best assess the quality of life of people with dementia? The Bath Assessment of Subjective Quality of Life in Dementia (BASQID). Gerontologist, 47, 789–797. doi:10.1093/geront/47.6.789.Google Scholar
Weiner, M. F., Martin-Cook, K., Svetlik, D. A., Saine, K., Foster, B. and Fontaine, C. S. (2000). The Quality of Life in Late-Stage Dementia (QUALID) Scale. Journal of the American Medical Directors Association, 1, 114–116.Google Scholar
Yokota, O. et al. (2006). Effects of group-home care on behavioral symptoms, quality of life, and psychotropic drug use in patients with frontotemporal dementia. Journal of the American Medical Directors Association, 7, 335–337. doi:10.1016/j.jamda.2006.02.012.Google Scholar