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Rethinking engagement

  • David Gilbert (a1) (a2)
Abstract

People affected by health conditions bring insights and wisdom to transform healthcare – ‘jewels from the caves of suffering'. Yet traditional patient and public engagement relies on (child–parent) feedback or (adolescent–parent) ‘representative' approaches that fail to value this expertise and buffers patients' influence. This editorial outlines the emergence of ‘patient leadership' and work in the Sussex Musculoskeletal Partnership, its patient director (the first such role in the National Health Service) and a group of patient/carer partners, who are becoming equal partners in decision-making helping to reframe problems, generate insight, shift dynamics and change practice within improvement and governance work.

Declaration of interest

David Gilbert is Director of InHealth Associates Ltd, a small consultancy organisation that supports patient and public engagement.

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Copyright
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Corresponding author
Correspondence to David Gilbert (davidgilbert43@yahoo.co.uk)
References
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1Professional Standards Authority for Health and Social Care (PSA). Rethinking regulation. PSA, 2015 (https://www.professionalstandards.org.uk/docs/default-source/publications/thought-paper/rethinking-regulation-2015.pdf).
2Gilbert, D. The Jewel Merchants – a parable for healthcare. Future Patient, 27 January 2017 (https://futurepatientblog.com/2017/01/27/the-jewel-merchants-a-parable-for-healthcare/).
3Gilbert, D. Seven Things That Patients Bring: The benefits of patients as partners for change. Future Patient, 22 March 2015 (https://futurepatientblog.com/2015/03/22/seven-things-that-patients-bring-the-benefits-of-patients-as-partners-for-change/).
4Gilbert, D. The Rep Trap. Future Patient, 5 December 2014 (https://futurepatientblog.com/2014/12/05/the-rep-trap/).
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BJPsych Bulletin
  • ISSN: 2056-4694
  • EISSN: 2056-4708
  • URL: /core/journals/bjpsych-bulletin
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Rethinking engagement

  • David Gilbert (a1) (a2)
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