Hostname: page-component-848d4c4894-wzw2p Total loading time: 0 Render date: 2024-05-06T02:09:26.042Z Has data issue: false hasContentIssue false
  • English
  • Français

Community day care with carer support versus usual nursing home-based day care: effects on needs, behavior, mood, and quality of life of people with dementia

Published online by Cambridge University Press:  07 December 2015

A. Marijke van Haeften-van Dijk ,
Franka J. M. Meiland ,
Bart J. J. Hattink ,
Ton J. E. M. Bakker  and
Rose-Marie Dröes
A. Marijke van Haeften-van Dijk
Affiliation:
Department of Psychiatry, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, the Netherlands
Franka J. M. Meiland
Affiliation:
Department of Psychiatry, Department of General Practice and Elderly care medicine, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, the Netherlands
Bart J. J. Hattink
Affiliation:
Department of Psychiatry, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, the Netherlands
Ton J. E. M. Bakker
Affiliation:
Expertise Centre of Healthcare Innovation, Institute of Healthcare, Rotterdam University of Applied Sciences and Expertise Centre of Frail Elderly, Stichting Wetenschap Balans, Rotterdam, the Netherlands
Rose-Marie Dröes*
Affiliation:
Department of Psychiatry, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, the Netherlands
*
Correspondence should be addressed to: Rose-Marie Dröes, P.O. Box 74077, 1070 BB Amsterdam, the Netherlands. Email: rm.droes@vumc.nl.
Get access Rights & Permissions [Opens in a new window]

Abstract

Background:

Several studies have shown that the combined community-based Meeting Centres Support Programme (MCSP) for people with mild to moderate dementia and their carers were more effective in reducing behavior and mood problems of people with dementia than traditional nursing home-based (NH) day care. We therefore investigated in this study whether community-based (CO) psychogeriatric day care for people with mild to severe dementia combined with carer support (in accordance with the MCSP), is more effective than regular NH day care.

Methods:

A pre-test–post-test control group design was used to compare the effect of CO and NH day care on care needs, behavior and mood problems, and quality of life of people with dementia. 138 dyads of people with mild to severe dementia and family carers participated in the study: 70 from (new and longer existing) CO day cares (experimental group), and 68 from NH day cares (control group). ANCOVAs were performed at post-tests, including baseline data as covariates.

Results:

After six months, no overall differences on outcome measures were found between CO and NH day cares. However, participants of recently started CO day cares showed fewer neuropsychiatric symptoms, whereas carers in the longer existing CO day cares reported fewer care needs compared to the control group (large effects). Persons with dementia cohabiting with their carer benefitted most from CO day care.

Conclusions:

This study shows that combined CO day care has promising added value compared to NH day care, especially for participants with dementia cohabiting with their carer.

Keywords

dementiaday carecommunity carecarer support
Type
Research Article
Information
International Psychogeriatrics , Volume 28 , Issue 4 , April 2016 , pp. 631 - 645
Copyright
Copyright © International Psychogeriatric Association 2015 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Cohen, J. (1988). Statistical Power Analysis for the Behavioral Sciences. New Jersey: Lawrence Erlbaum Associates.Google Scholar
Cummings, J. L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D. A. and Gornbein, J. (1994). The neuropsychiatric inventory: comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308–2314. Available from: PM:7991117.CrossRefGoogle ScholarPubMed
de Jong, J. D. and Boersma, F. (2009). Dutch psychogeriatric day-care centers: a qualitative study of the needs and wishes of carers. International Psychogeriatrics, 21, 268–277. DOI: 10.1017/S1041610208008247.CrossRefGoogle Scholar
de Jonghe, J. F., Kat, M. G., Kalisvaart, C. J. and Boelaarts, L. (2003). [Neuropsychiatric inventory questionnaire (NPI-Q): a validity study of the Dutch form]. Tijdschr Gerontol Geriatr, 34, 74–77. Available from: PM:12741091.Google ScholarPubMed
Donath, C., Winkler, A., Graessel, E. and Luttenberger, K. (2011). Day care for dementia patients from a family caregiver's point of view: a questionnaire study on expected quality and predictors of utilisation - Part II. BMC.Health Services Research, 11, DOI: 10.1186/1472-6963-11-76.CrossRefGoogle Scholar
Dröes, R. M., Breebaart, E., Ettema, T. P., van Tilburg, W. and Mellenbergh, G. J. (2000). Effect of integrated family support versus day care only on behavior and mood of patients with dementia. International Psychogeriatrics, 1, 99–115. DOI: 10.1087/S1041610200006232.CrossRefGoogle Scholar
Dröes, R. M., Breebaart, E., Meiland, F. J. M., van Tilburg, W. and Mellenbergh, G. J. (2004a). Effect of meeting centres support program on feelings of competence of family carers and delay of institutionalization of people with dementia. Aging Mental Health, 8, 201–211. DOI: 10.1080/13607860410001669732.CrossRefGoogle ScholarPubMed
Dröes, R. M., Meiland, F. J. M., Schmitz, M. and van Tilburg, W. (2004b). Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. International Journal of Geriatrics Psychiatry, 19, 673–684. DOI: 10.1002/gps.1142.CrossRefGoogle ScholarPubMed
Dröes, R. M., Meiland, F. J. M., Schmitz, M. J. and van Tilburg, W. (2006). Effect of the meeting centres support program on informal carers of people with dementia: results from a multi-centre study. Aging Mental Health, 10, 112–124. DOI: 10.1080/13607860500310682.CrossRefGoogle ScholarPubMed
Dröes, R. M., Van der Roest, H. G., van Mierlo, L. and Meiland, F.J. (2011). Memory problems in dementia: adaptation and coping strategies and psychosocial treatments. Expert Review of Neurotherapeutics, 11, 1769–1781. DOI: 10.1586/ern.11.167.CrossRefGoogle ScholarPubMed
Durand, M., James, A., Ravishankar, A., Bamrah, J. S. and Purandare, N. B. (2009). Domiciliary and day care services: why do people with dementia refuse? Aging Mental Health, 13, 414–419. DOI: 0.1080/13607860902879318.CrossRefGoogle ScholarPubMed
Dutch Alzheimer Association (2014), Guide for daytime activities for people with dementia (In Dutch: Handreiking (dag)activiteiten bij dementie). Amersfoort: the Netherlands.Google Scholar
Folstein, M. F., Folstein, S. E. and McHugh, P. R. (1975). “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198. Available from: PM:1202204.CrossRefGoogle ScholarPubMed
Gaugler, J. E., Jarrott, S. E., Zarit, S. H., Stephens, M. A. P., Townsend, A. and Greene, R. (2003). Respite for dementia caregivers: the effects of adult day care service use on caregiving hours and care demands. International Psychogeriatrics, 15, 37–58.CrossRefGoogle ScholarPubMed
Gaugler, J. E., Yu, F., Krichbaum, K. and Wyman, J. F. (2009). Predictors of nursing home admission for persons with dementia. Medical Care, 47, 191–198. DOI: 10.1097/MLR.0b013e31818457ce.CrossRefGoogle ScholarPubMed
Gitlin, L. N., Reever, K., Dennis, M. P., Mathieu, E. and Hauck, W. W. (2006). Enhancing quality of life of families who use adult day services: Short- and long-term effect of the adult day services plus program. The Gerontologist, 46, 630–639. DOI: 10.1093/geront/46.5.630.CrossRefGoogle Scholar
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64, 510–519. Available from: PM:12021425.CrossRefGoogle ScholarPubMed
Manthorpe, J. and Moriarty, J. (2014). Examining day centre provision for older people in the UK using the equality act 2010: findings of a scoping review. Health & Social Care in the Community, 22, 352–360. DOI: 10.1111/hsc.12065.CrossRefGoogle ScholarPubMed
Mossello, E. et al. (2008). Day care for older dementia patients: favorable effects on behavioral and psychological symptoms and caregiver stress. International Journal of Geriatrics Psychiatry, 23, 1066–1072. DOI: 10.1002/gps.2034.CrossRefGoogle ScholarPubMed
Orrell, M., Hancock, G., Hoe, J., Woods, B., Livingston, G. and Challis, D. (2007). A cluster randomised controlled trial to reduce the unmet needs of people with dementia living in residential care. International Journal of Geriatrics Psychiatry, 22, 1127–1134. DOI: 10.1002/gps.1801.CrossRefGoogle ScholarPubMed
Peeters, J., Werkman, W. and Francke, A. L. (2012). Dementia monitor informal care: problems, needs, care use and judgements of informal carers. In Dutch: Dementiemonitor mantelzorg: problemen, zorgbehoeften, zorggebruik en oordelen van mantelzorgers., NIVEL/Alzheimer: the Netherland, Utrecht.Google Scholar
Reynolds, T. et al. (2000). Camberwell assessment of need for the elderly (CANE). Development, validity and reliability. British Journal of Psychiatry, 176, 444–452. Available from: PM:10912220.CrossRefGoogle ScholarPubMed
Smits, C. H., de, L. J., Dröes, R. M., Meiland, F. J. M., Vernooij-Dassen, M. and Pot, A. M. (2007). Effects of combined intervention programmes for people with dementia living at home and their caregivers: a systematic review. International Journal of Geriatrics Psychiatry, 22, 1181–1193. DOI: 10.1002/gps.1805.CrossRefGoogle ScholarPubMed
Tretteteig, S., Vatne, S. and Mork-Rokstad, A. M. (2015). The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature. Aging Mental Health. DOI: 10.1080/13607863.2015.1023765.Google ScholarPubMed
Van der Roest, H. G. et al. (2009). What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services. International Psychogeriatrics, 21, 949–965. DOI: 10.1017/S1041610209990147.CrossRefGoogle Scholar
Van der Roest, H. G., Meiland, F. J., Jonker, C. and Dröes, R. M. (2010). User evaluation of the DEMentia-specific digital interactive social chart (DEM-DISC). A pilot study among informal carers on its impact, user friendliness, and usefulness. Aging Mental Health, 14, 461–470. DOI: 10.1080/13607860903311741.CrossRefGoogle ScholarPubMed
Van der Roest, H. G., Meiland, F. J., van Hout, H. P., Jonker, C. and Dröes, R. M. (2008). Validity and reliability of the Dutch version of the camberwell assessment of need for the elderly in community-dwelling people with dementia. International Psychogeriatrics, 20, 1273–1290. DOI: 10.1017/S1041610208007400.CrossRefGoogle ScholarPubMed
van Haeften-van Dijk, A. M., Meiland, F. J. M., Van Mierlo, L. D. and Dröes, R. M. (2015). Transforming nursing home based day care for people with dementia into socially integrated community day care: process analysis of the transition of six day care centres. International Journal of Nursing Studies, 52, 1310–1322. DOI: http://dx.doi.org/10.1016/j.ijnurstu.2015.04.009.CrossRefGoogle ScholarPubMed
Van Mierlo, L. D., Van der Roest, H. G., Meiland, F. J. and Dröes, R. M. (2010). Personalized dementia care: proven effectiveness of psychosocial interventions in subgroups. Ageing Research Reviews, 9, 163–183. DOI: 10.1016/j.arr.2009.09.002.CrossRefGoogle ScholarPubMed
Van't Leven, N., Prick, A. E., Groenewoud, J. G., Roelofs, P. D., de, L. J. and Pot, A. M. (2013). Dyadic interventions for community-dwelling people with dementia and their family caregivers: a systematic review. International Psychogeriatrics, 25, 1581–1603. DOI: 10.1017/S1041610213000860.CrossRefGoogle ScholarPubMed
Zank, S. and Schacke, C. (2002). Evaluation of geriatric day care units: effects on patients and caregivers. Journal of Gerontology, 57B, 348–357.CrossRefGoogle Scholar
Zarit, S. H., Kim, K., Femia, E. E., Almeida, D. M., Savla, J. and Molenaar, P. C. (2011). Effects of adult day care on daily stress of caregivers: a within-person approach. Journal of Gerontology B Psychology Sciences and Social Sciences, 66, 538–546. DOI: 10.1093/geronb/gbr030.CrossRefGoogle ScholarPubMed