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The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review

  • Catherine Quinn (a1), Linda Clare (a1) and Robert T Woods (a1)

Abstract

Background: The majority of people in the early and middle stages of dementia are cared for at home by non-paid caregivers, the majority of whom will be family members. Two factors which could have an impact on the quality of care provided to the care-recipient are the caregiver's motivations for providing care and the meaning s/he finds in caregiving. The aim of this review is to explore the potential impact of both meaning and motivation on the wellbeing of caregivers of people with dementia. The review also explores individual differences in motivations to provide care.

Methods: This was a systematic review of peer-reviewed empirical studies exploring motivations and meanings in informal caregivers of people with dementia. Four studies were identified which examined the caregiver's motivations to provide care. Six studies were identified which examined the meaning that caregivers found in dementia caregiving.

Results: Caregivers' wellbeing could be influenced by the nature of their motivations to care. In addition, cultural norms and caregivers’ kin-relationship to the care-recipient impacted on motivations to provide care. Finding meaning had a positive impact on caregiver wellbeing.

Conclusions: The limited evidence currently available indicates that both the caregiver's motivations to provide care and the meaning s/he finds in caregiving can have implications for the caregiver's wellbeing. More research is needed to explore the role of motivations and meaning in dementia caregiving.

Copyright

Corresponding author

Correspondence should be addressed to: Professor Linda Clare, School of Psychology, Bangor University, Bangor, Gwynedd LL57 2AS, U.K. Phone: +44 (0)1248 388178. Email: l.clare@bangor.ac.uk.

References

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Note: References marked with an asterisk indicate studies included in the systematic review.

Arber, S. and Gilbert, G. N. (1989). Transitions into caring: gender, life course and the care of the elderly. In Bytheway, B., Keil, T., Allatt, P. and Bryman, A. (eds.), Becoming and Being Old: Sociological Approaches to Later Life (pp. 7292). London: Sage.
Batson, C. D., Batson, J. G., Slingsby, J. K., Harrell, K. L., Peekna, H. M. and Todd, R. M. (1991). Empathic joy and the empathy-altruism hypothesis. Journal of Personality and Social Psychology, 61, 413426.
Baumeister, R. F. and Vohs, K. D. (2002). The pursuit of meaningfulness in life. In Snyder, C. R. and Lopez, S. J. (eds.), Handbook of Positive Psychology (pp. 608618). Oxford: Oxford University Press.
Blieszner, R., and Shifflet, P. A. (1989). Affection, communication, and commitment in adult-child caregiving for parents with Alzheimer's disease. In Mancini, J. A. (ed.), Aging Parents and Adult Children (pp. 231242). Lexington, MA: Lexington Books.
Cahill, S. M. (1999). Caring in families: what motivates wives, daughters, and daughters-in-law to provide dementia care? Journal of Family Studies, 5, 235247.
*Carruth, A. K. (1996). Motivating factors, exchange patterns, and reciprocity among caregivers of parents with and without dementia. Research in Nursing and Health, 19, 409419.
Cicirelli, V. G. (1989). Helping relationships in later life: a re-examination. In Mancini, J. A. (ed.), Aging Parents and Adult Children (pp. 167179). Levington, MA: Lexington Books.
Cox, C. and Gelfand, D. (1987). Familial assistance, exchange, satisfaction among Hispanic, Portuguese, and Vietnamese ethnic elderly. Journal of Cross Cultural Gerontology, 2, 241255.
*Cox, C. and Monk, A. (1993). Hispanic culture and family care of Alzheimer's patients. Health and Social Work, 18, 92100.
Doty, P. D. (1986). Family care of the elderly: the role of public policy. The Milbank Quarterly, 64, 3475.
Farran, C. J. and Keane-Hagerty, E. (1991). An interactive model for finding meaning through caregiving. In Chinn, P. L. (ed.), Anthology on Caring (pp. 225237). New York: National League for Nursing Press.
*Farran, C. J., Keane-Hagerty, E., Salloway, S., Kupferer, S. and Wilken, C. S. (1991). Finding meaning: an alternative paradigm for Alzheimer's disease family caregivers. The Gerontologist, 31, 483489.
*Farran, C. J., Miller, B. H., Kaufman, J. E. and Davis, L. (1997). Race, finding meaning, and caregiver distress. Journal of Aging and Health, 9, 316333.
Farran, C. J., Miller, B. H., Kaufman, J. E., Donner, E. and Fogg, L. (1999). Finding meaning through caregiving: development of an instrument for family caregivers of persons with Alzheimer's disease. Journal of Clinical Psychology, 55, 10071125.
Frankl, V. E. (1971). The Will to Meaning Foundations and Applications of Logotherapy. London: Souvenir.
Feeney, B. C. and Collins, N. L. (2003). Motivations for caregiving in adult intimate relationships: influences on caregiving behavior and relationship functioning. Personality and Social Psychology Bulletin, 29, 950968.
Folkman, S. and Moskowitz, J. T. (2000). Positive affect and the other side of coping. American Psychologist, 55, 647654.
*Gallagher, T. J., Wagenfeld, M. O., Baro, F. and Haepers, K. (1994). Sense of coherence, coping and caregiver role overload. Social Science and Medicine, 39, 16151622.
Gatz, M., Bengtson, V. L. and Blum, M. J. (1990). Caregiving families. In Birren, J. E.. and Schaie, K. W. (eds.), Handbook of the Psychology of Aging (3rd edn, pp. 404426). London: Academic Press.
Globerman, J. (1996). Daughters-and sons-in-law caring for relatives with Alzheimer's disease. Family Relations, 45, 3745.
*Gottlieb, B. H. and Gignac, M. A. M. (1996). Content and domain specificity of coping among family caregivers of persons with dementia. Journal of Aging Studies, 10, 137155.
Haley, W. E., Levine, , Brown, S. L. and Bartolucci, A. A. (1987). Stress, appraisal, coping and social support as predictors of adaptional outcome among dementia caregivers. Psychology and Aging, 2, 323330.
Harris, P. B. (1983). The misunderstood caregiver? A qualitative study of the male caregivers of Alzheimer's disease victims. The Gerontologist, 33, 551556.
Ho, B., Friedland, J., Rappolt, S. and Noh, S. (2003). Caregiving for relatives with Alzheimer's disease: feelings of Chinese-Canadian women. Journal of Aging Studies, 17, 301321.
Johnson, M. P., Caughlin, J. P., and Huston, T. L. (1999). The triparitite nature of marital commitment: personal, moral, and structural reasons to stay married. Journal of Marriage and the Family, 61, 160177.
*Kabitsi, N. and Powers, D. V. (2002). Spousal motivations of care for demented older adults: a cross-cultural comparison of Greek and American female caregivers. Journal of Aging Studies, 16, 383399.
Kasten, L. (1993). Justification for 12 item Meaning in Caregiving questionnaire. Unpublished manuscript, New England Research Institutes.
Klinger, E. (1977). Meaning and Void: Inner Experience and the Incentives in People's Lives. Minneapolis: University of Minnesota.
Knapp, M. and Prince, M. (2007). Dementia UK: Report to the Alzheimer's Society. London: Alzheimer's Society.
Kramer, B. J. (1997). Gain in the caregiving experience. Where are we? What next? The Gerontologist, 37, 218232.
Lee, E. E., Farran, C. J., Tripp-Reimer, T. and Sadler, G. R. (2003). Assessing the cultural appropriateness of the Finding Meaning through Caregiving Scale for Korean caregivers. Journal of Nursing Measurement, 11, 1928.
*Lee, Y-R. and Sung, K-T. (1997). Cultural differences in caregiving motivations for demented parents: Korean caregivers versus American caregivers. International Journal of Aging and Human Development, 44, 115127.
Levine, N. B. et al. (1984). Existential issues in the management of the demented elderly patient. American Journal of Psychotherapy, 38, 215223.
Lewis, J. and Meredith, B. (1988). Daughters Who Care: Daughters Caring for Mothers at Home. London: Routledge.
Lyonette, C. and Yardley, L. (2003). The influence on carer wellbeing of motivations to care for older people and the relationship with the care recipient. Ageing and Society, 23, 487506.
Montgomery, R. J. V. and Williams, K. N. (2001). Implications of differential impacts of care-giving for future research on Alzheimer care. Aging and Mental Health, 5, 2334.
Morgan, D. G. and Laing, G. P. (1991). The diagnosis of Alzheimer's disease: spouse's perspectives. Qualitative Health Research, 1, 370387.
National Audit Office (2007). Improving Services and Support for People with Dementia. London: National Audit office.
Noonan, A. E. and Tennstedt, S. L. (1997). Meaning in caregiving and its contribution to caregiver well-being. The Gerontologist, 37, 785794.
Noonan, A. E., Tennstedt, S. L. and Rebelsky, F. G. (1996). Making the best of it: themes of meaning among informal caregivers to the elderly. Journal of Aging Studies, 10, 313327.
Pearlin, L. I., Mullan, J. T., Semple, S. J. and Skaff, M. M. (1990). Caregiving and the stress process: an overview of concepts and their measures. The Gerontologist, 30, 583594.
Qureshi, H. and Walker, A. (1989). The Caring Relationship: Elderly People and Their Families. London: Macmillian.
Rubinstein, R. L. (1989). Themes in the meaning of caregiving. Journal of Aging Studies, 3, 119138.
*Saad, K., Hartman, J., Ballard, C., Kurian, M., Graham, C. and Wilcock, G. (1995). Coping by the carers of dementia sufferers. Age and Ageing, 24, 495498.
Schulz, R., Biegel, D., Morycz, R. and Visintainer, P. (1989). Psychological paradigms for understanding caregiving. In Light, E. and Lebowitz, B. D. (eds)., Alzheimer's Disease Treatment and Family Stress: Directions for Research (pp. 106121). Rockville, MD: U.S. Department of Health and Human Services, National Institute of Mental Health.
Seebach, W. C. and Sauer, W. (1977). Filial responsibility, expectations, and morale among aged persons. The Gerontologist, 17, 492499.
Walker, A. J., Pratt, C. C., Shin, H-Y. and Jones, L. L. (1990). Motives for parental caregiving and relationship quality. Family Relations, 39, 5156.
Wallhagen, M. I. and Yamamoto-Mitani, N. (2006). The meaning of family caregiving in Japan and the United States: a qualitative comparative study. Journal of Transcultural Nursing, 17, 6573.
Wells, Y. D. (1999). Intentions to care for a spouse: gender differences in anticipated willingness to care and expected burden. Journal of Family Studies, 5, 220234.
Wells, Y. D. and Kendig, H. L. (1996). Changes in carers’ capacity and motivation to provide care. Journal of Family Studies, 2, 1528.
*Winslow, B. W. (1997). Effects of formal supports on stress outcomes in family caregivers of Alzheimer's patients. Research in Nursing and Health, 20, 2737.
Zhan, H. J. and Montgomery, R. J. V. (2003). Gender and elder care in China: the influence of filial piety and structural constraints. Gender and Society, 17, 209229.
Zika, S. and Chamberlain, K. (1992). On the relation between meaning in life and psychological wellbeing. British Journal of Psychology, 83, 133145.

Keywords

The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review

  • Catherine Quinn (a1), Linda Clare (a1) and Robert T Woods (a1)

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