Skip to main content
×
Home
    • Aa
    • Aa
  • Get access
    Check if you have access via personal or institutional login
  • Cited by 29
  • Cited by
    This article has been cited by the following publications. This list is generated based on data provided by CrossRef.

    Desai, Abhilash K. Schwartz, Lori and Grossberg, George T. 2012. Behavioral Disturbance in Dementia. Current Psychiatry Reports, Vol. 14, Issue. 4, p. 298.


    Innes, Anthea Kelly, Fiona and Dincarslan, Ozlem 2011. Care home design for people with dementia: What do people with dementia and their family carers value?. Aging & Mental Health, Vol. 15, Issue. 5, p. 548.


    McCabe, Marita You, Emily and Tatangelo, Gemma 2016. Hearing Their Voice: A Systematic Review of Dementia Family Caregivers’ Needs. The Gerontologist, Vol. 56, Issue. 5, p. e70.


    Kelly, Fiona Innes, Anthea and Dincarslan, Ozlem 2011. Improving care home design for people with dementia. Journal of Care Services Management, Vol. 5, Issue. 3, p. 147.


    Desai, Abhilash K. and Galliano Desai, Faith 2014. Management of Behavioral and Psychological Symptoms of Dementia. Current Geriatrics Reports, Vol. 3, Issue. 4, p. 259.


    Bakker, Christian de Vugt, Marjolein E. van Vliet, Deliane Verhey, Frans Pijnenburg, Yolande A. Vernooij-Dassen, Myrra J.F.J. and Koopmans, Raymond T.C.M. 2014. Unmet Needs and Health-Related Quality of Life in Young-Onset Dementia. The American Journal of Geriatric Psychiatry, Vol. 22, Issue. 11, p. 1121.


    Wieczorowska-Tobis, Katarzyna Talarska, Dorota Kropińska, Sylwia Jaracz, Krystyna Tobis, Sławomir Suwalska, Aleksandra Kachaniuk, Hanna Mazurek, Justyna Dymek-Skoczyńska, Agnieszka and Rymaszewska, Joanna 2016. The Camberwell Assessment of Need for the Elderly questionnaire as a tool for the assessment of needs in elderly individuals living in long-term care institutions. Archives of Gerontology and Geriatrics, Vol. 62, p. 163.


    Muurinen, S. Savikko, N. Soini, H. Suominen, M. and Pitkälä, K. 2015. Nutrition and psychological well-being among long-term care residents with dementia. The journal of nutrition, health & aging, Vol. 19, Issue. 2, p. 178.


    Schölzel-Dorenbos, Carla J.M. Meeuwsen, Els J. and Olde Rikkert, Marcel G.M. 2010. Integrating unmet needs into dementia health-related quality of life research and care: Introduction of the Hierarchy Model of Needs in Dementia. Aging & Mental Health, Vol. 14, Issue. 1, p. 113.


    Mazurek, Justyna Szcześniak, Dorota Talarska, Dorota Wieczorowska-Tobis, Katarzyna Kropińska, Sylwia Kachaniuk, Hanna and Rymaszewska, Joanna 2015. Needs assessment of elderly people living in Polish nursing homes. Geriatric Mental Health Care, Vol. 2, Issue. 3-4, p. 9.


    Moyle, Wendy Gracia, Natalie Murfield, Jenny E Griffiths, Susan G and Venturato, Lorraine 2012. Assessing quality of life of older people with dementia in long-term care: a comparison of two self-report measures. Journal of Clinical Nursing, Vol. 21, Issue. 11-12, p. 1632.


    Moyle, Wendy Venturto, Lorraine Griffiths, Susan Grimbeek, Peter McAllister, Margaret Oxlade, Debbie and Murfield, Jenny 2011. Factors influencing quality of life for people with dementia: A qualitative perspective. Aging & Mental Health, Vol. 15, Issue. 8, p. 970.


    Moyle, Wendy Murfield, Jenny E. Griffiths, Susan G. and Venturato, Lorraine 2012. Assessing quality of life of older people with dementia: a comparison of quantitative self-report and proxy accounts. Journal of Advanced Nursing, Vol. 68, Issue. 10, p. 2237.


    Orrell, Martin Yates, Lauren A Burns, Alistair Russell, Ian Woods, Robert T Hoare, Zoe Moniz-Cook, Esme Henderson, Catherine Knapp, Martin Spector, Aimee and Orgeta, Vasiliki 2012. Individual Cognitive Stimulation Therapy for dementia (iCST): study protocol for a randomized controlled trial. Trials, Vol. 13, Issue. 1,


    van der Ploeg, Eva S Bax, Dieuwertje Boorsma, Marijke Nijpels, Giel and van Hout, Hein PJ 2013. A cross-sectional study to compare care needs of individuals with and without dementia in residential homes in the Netherlands. BMC Geriatrics, Vol. 13, Issue. 1,


    Ferreira, Ana Rita Dias, Cláudia Camila and Fernandes, Lia 2016. Needs in Nursing Homes and Their Relation with Cognitive and Functional Decline, Behavioral and Psychological Symptoms. Frontiers in Aging Neuroscience, Vol. 8,


    Smit, Dieneke de Lange, Jacomine Willemse, Bernadette and Pot, Anne Margriet 2012. The relationship between small-scale care and activity involvement of residents with dementia. International Psychogeriatrics, Vol. 24, Issue. 05, p. 722.


    Bürge, Elisabeth von Gunten, Armin and Berchtold, André 2013. Factors favoring a degradation or an improvement in activities of daily living (ADL) performance among nursing home (NH) residents: A survival analysis. Archives of Gerontology and Geriatrics, Vol. 56, Issue. 1, p. 250.


    Cahill, Suzanne and Diaz-Ponce, Ana M. 2011. ‘I hate having nobody here. I’d like to know where they all are’: Can qualitative research detect differences in quality of life among nursing home residents with different levels of cognitive impairment?. Aging & Mental Health, Vol. 15, Issue. 5, p. 562.


    Miranda-Castillo, Claudia Woods, Bob and Orrell, Martin 2013. The needs of people with dementia living at home from user, caregiver and professional perspectives: a cross-sectional survey. BMC Health Services Research, Vol. 13, Issue. 1,


    ×

The needs of people with dementia in care homes: the perspectives of users, staff and family caregivers

  • Martin Orrell (a1), Geraldine A. Hancock (a1), Kumari C. Galboda Liyanage (a2), Bob Woods (a3), David Challis (a4) and Juanita Hoe (a1)
  • DOI: http://dx.doi.org/10.1017/S1041610208007266
  • Published online: 01 October 2008
Abstract
ABSTRACT

Background: People with dementia in care homes are at risk of having their views ignored and decisions are often made on their behalf by care home staff and family carers. The aim of this study was to compare the ratings of needs of older people with dementia living in care homes, as assessed by the older person themselves, a family caregiver, and the staff of the care home.

Method: The Camberwell Assessment of Need for the Elderly (CANE) was completed for 238 residents with dementia by care staff. In addition, 149 users and 81 family caregivers also completed the assessment of the person's met and unmet needs.

Results: Many users were able to report their met and unmet needs despite having moderately severe dementia. The views of the person with dementia were commonly in agreement with the staff and family carers' views. However, user and carer pairs had the lowest average percentage agreement of 63% compared to that of 77% between user and staff pairs. In particular, users reported relatively higher unmet needs for psychological distress, company and information, and high unmet needs for daytime activities and eyesight/hearing problems.

Conclusions: Users' views on their needs should be sought even when the person has dementia and lives in a care home. Reliance solely on assessment by staff or carers may lead to under recognition of unmet needs.

Copyright
Corresponding author
Correspondence should be addressed to: Professor Martin Orrell, Department of Mental Health Sciences, University College London, Charles Bell House, 67–73 Riding House Street, London, W1W 7EJ, U.K. Phone: +44 (0)20 769 9452; Fax: +44 (0)20 769 9426. Email: m.orrell@ucl.ac.uk.
Linked references
Hide All

This list contains references from the content that can be linked to their source. For a full set of references and notes please see the PDF or HTML where available.

G. S. Alexopoulos , R. C. Abrams , R. C. Young and C. A. Shamoian (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23, 271284.

H. Bagley (2000). Recognition of depression in long term care facilities for older people. Journal of Clinical Nursing, 9, 445450.

C. Ballard (2001). Quality of care in people with dementia in private sector and NHS facilities for people with dementia: cross sectional survey. BMJ, 323, 426427.

M. F. Folstein , S. E. Folstein and P. R. McHugh (1975). “Mini-mental state”: a practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189198.

G. A. Hancock , T. Reynolds , B. Woods , G. Thornicroft and M. Orrell (2003). The needs of older people with mental health problems according to the user, the carer, and the staff. International Journal of Geriatric Psychiatry, 18, 803811.

G. Hancock , R. Woods , D. Challis and M. Orrell (2006). The needs of older people with dementia in residential care. International Journal of Geriatric Psychiatry, 21, 4349.

J. Hoe , G. Hancock , G. Livingston and M. Orrell (2006). Quality of Life of people with dementia in residential care homes. British Journal of Psychiatry, 188, 460464.

I-B. Holmquist , B. Svensson and P. Hoglund (2003). Psychotropic drugs in nursing and old-age homes: relationships between needs of care and mental health status. European Journal of Clinical Pharmacology, 59, 669676.

C. P. Hughes , L. Berg , W. L. Danziger , L. A. Coben and R. L. Martin (1982). A new scale for the staging of dementia. British Journal of Psychiatry, 140, 566572.

T. Reynolds (2000). Camberwell Assessment of Need for the Elderly (CANE): development, validity, and reliability. British Journal of Psychiatry, 176, 444452.

K. K. Shankar , M. Walker , D. Frost and M. W. Orrell (1999). The development of a valid and reliable scale for rating anxiety in dementia (RAID). Aging and Mental Health, 3, 3949.


Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

International Psychogeriatrics
  • ISSN: 1041-6102
  • EISSN: 1741-203X
  • URL: /core/journals/international-psychogeriatrics
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Keywords: