Aggarwal, N., Vass, A. A., Minardi, H. A., Ward, R., Garfield, C. and Cybyk, B. (2003). People with dementia and their relatives: personal experiences of Alzheimer's and of the provision of care. Journal of Psychiatric and Mental Health Nursing, 10, 187–197.
Altman, D. G. (1991). Practical Statistics for Medical Research. London: Chapman & Hall/CRC.
Andersen, R. M. (1995). Revisiting the behavioral model and access to medical care: does it matter? Journal of Health and Social Behavior, 36, 1–10.
Andersen, R. M. and Davidson, P. (1996). Measuring access and trends. In Andersen, R. M. and Davidson, P. (eds.), Changing the US Healthcare System (pp. 13–40). San Francisco, CA: Jossey Bass.
Bjorkhem, K., Olsson, A., Hallberg, I. R. and Norberg, A. (1992). Caregivers’ experience of providing care for demented persons living at home. Scandinavian Journal of Primary Health Care, 10, 53–59.
Bowes, A. and Wilkinson, H. (2003). “We didn't know it would get that bad”: South Asian experiences of dementia and the service response. Health & Social Care in the Community, 11, 387–396.
Brodaty, H., Thomson, C., Thompson, C. and Fine, M. (2005). Why caregivers of people with dementia and memory loss don't use services. International Journal of Geriatric Psychiatry, 20, 537–546.
Buntinx, F., De Lepeleire, J. and Ylieff, M. (2006). Zorg voor dementerenden in België. Honderd vragen en antwoorden op basis van het Qualidem-onderzoek. Antwerpen–Apeldoorn: Garant.
Daker-White, G., Beattie, A. M., Gilliard, J. and Means, R. (2002). Minority ethnic groups in dementia care: a review of service needs, service provision and models of good practice. Aging and Mental Health, 6, 101–108.
de Boer, M. E., Hertogh, C. M., Dröes, R. M., Riphagen, I. I., Jonker, C. and Eefsting, J. A. (2007). Suffering from dementia – the patient's perspective: a review of the literature. International Psychogeriatrics, 19, 1021–1039.
de Klaver, P. M. and Scholten, C. (2002). De vraag naar thuiszorg: literatuurstudie naar voorbeelden van (meer) vraaggestuurde thuiszorg. Leiden: SWOKA/Research voor Beleid.
Dello Buono, M. et al. (1999). Community care for patients with Alzheimer's disease and non-demented elderly people: use and satisfaction with services and unmet needs in family caregivers. International Journal of Geriatric Psychiatry, 14, 915–924.
Dröes, R. M., Meiland, F., Schmitz, M. and Van Tilburg, W. (2004a). Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. International Journal of Geriatric Psychiatry, 19, 673–684.
Dröes, R. M. et al. (2006). Quality of life in dementia in perspective: An explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia, 5, 533–558.
Edelman, P., Kuhn, D., Fulton, B. R. and Kyrouac, G. A. (2006). Information and Service Needs of Persons With Alzheimer's Disease and Their Family Caregivers Living in Rural Communities. American Journal of Alzheimer's Disease and Other Dementias, 21, 226–233.
Folstein, M. F., Folstein, S. E. and McHugh, P. R. (1975). “Mini-mental state”: a practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.
Forbes, D. A., Debra, D. and Janzen, B. L. (2006). Rural and urban Canadians with dementia: use of health care services. Canadian Journal of Aging, 25, 321–330.
Gaugler, J. E., Kane, R. L., Kane, R. A. and Newcomer, R. (2005). Unmet care needs and key outcomes in dementia. Journal of the American Geriatrics Society, 53, 2098–2105.
Gilliard, J. and Hagen, I. (2004). Enabling Technologies for People with Dementia. Cross-National Analysis Report. Report no. D4.4.1 QLK6-CT-2000–00653. Sem, Norway: Norwegian Centre for Dementia Research and European Commission.
Gordon, D. S. et al. (1997). A population needs assessment profile for dementia. International Journal of Geriatric Psychiatry, 12, 642–647.
Hancock, G. A., Woods, B., Challis, D. and Orrell, M. (2006). The needs of older people with dementia in residential care. International Journal of Geriatric Psychiatry, 21, 43–49.
Huijsman, R. (1990). Model van voorzieningen voor ouderen. Zeist: R.U. Maastricht.
Janevic, M. R. and Connell, M. (2001). Racial, ethnic, and cultural differences in the dementia caregiving experience: recent findings. Gerontologist, 41, 334–347.
Jansen, A. P. et al. (2005). (Cost)-effectiveness of case-management by district nurses among primary informal caregivers of older adults with dementia symptoms and the older adults who receive informal care: design of a randomized controlled trial [ISCRTN83135728]. BMC Public Health, 5, 133.
Karel, M. J., Moye, J., Bank, A. and Azar, A. R. (2007). Three methods of assessing values for advance care planning: comparing persons with and without dementia. Journal of Aging and Health, 19, 123–151.
Koffman, J. and Taylor, S. (1997). The needs of caregivers. Elderly Care, 9, 16–19.
Lauriks, S. et al. (2007). Review of ICT-based services for identified unmet needs in people with dementia. Ageing Research Reviews, 6, 223–246.
Lyons, K. S., Zarit, S. H., Sayer, A. G. and Whitlatch, C. J. (2002). Caregiving as a dyadic process: perspectives from caregiver and receiver. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 57, 195–204.
Meaney, A. M., Croke, M. and Kirby, M. (2005). Needs assessment in dementia. International Journal of Geriatric Psychiatry, 20, 322–329.
Meerveld, J., Schumacher, J., Krijger, E., Bal, R. and Nies, H. (2004). Landelijk Dementieprogramma. Nederlands Instituut voor Zorg en Welzijn / NIZW.
Meiland, F. J., Kat, M. G., Van Tilburg, W., Jonker, C. and Dröes, R. M. (2005). The emotional impact of psychiatric symptoms in dementia on partner caregivers: do caregiver, patient, and situation characteristics make a difference? Alzheimer Disease and Associated Disorders, 19, 195–201.
Meiland, F.J. et al. (2007). COGKNOW: Development and evaluation of an ICT-device for people with dementia. Studies in Health Technology and Informatics, 127, 166–177.
Muskens, J. B. (1993). Het beloop van dementie. Een exploratief longitudinaal onderzoek in de huisartspraktijk. Nijmegen: Katholieke Universiteit Nijmegen.
Nankervis, J., Schofield, H., Herrman, H. and Bloch, S. (1997). Home-based assessment for family carers: a preventative strategy to identify and meet service needs. International Journal of Geriatric Psychiatry, 12, 193–201.
Oriani, M. et al. (2003). An electronic memory aid to support prospective memory in patients in the early stages of Alzheimer's disease: a pilot study. Aging and Mental Health, 7, 22–27.
Orrell, M. and Hancock, G. (2004). CANE: Camberwell Assessment of Need for the Elderly. London: Gaskell.
Philp, I. et al. (1995). Community care for demented and non-demented elderly people: a comparison study of financial burden, service use, and unmet needs in family supporters. BMJ, 310, 1503–1506.
Pot, A. M., van Dyck, R. and Deeg, D. J. (1995). [Perceived stress caused by informal caregiving. Construction of a scale]. Tijdschrift voor Gerontologie en Geriatrie, 26, 214–219.
Reisberg, B. and Lauter, H. (1993). Plenary Session: Clinical dementias staging methodologies. International Psychogeriatric Association Newsletter, 10, 16–17.
Reisberg, B., Ferris, S., De Leon, M. J. and Crook, T. (1982). The Global Deterioration Scale for assessment of primary degenerative dementia. American Journal of Psychiatry, 139, 1136–1139.
Reynolds, T. et al. (2000). Camberwell Assessment of Need for the Elderly (CANE): development, validity and reliability. British Journal of Psychiatry, 176, 444–452.
Rodriguez, G., De Leo, C., Girtler, N., Vitali, P., Grossi, E. and Nobili, F. (2003). Psychological and social aspects in management of Alzheimer's patients: an inquiry among caregivers. Neurological Sciences, 24, 329–335.
Roth, M. et al. (1986). CAMDEX: a standardised instrument for the diagnosis of mental disorder in the elderly with special reference to the early detection of dementia. British Journal of Psychiatry, 149, 698–709.
Steeman, E., Godderis, J., Grypdonck, M., De Bal, N. and Dierckx de Casterlé, B. (2007). Living with dementia from the perspective of older people: is it a positive story? Aging and Mental Health, 11, 119–130.
Thorgrimsen, L. et al. (2003). Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Disease and Associated Disorders, 17, 201–208.
Toseland, R. W., McCallion, P., Gerber, T., Dawson, C., Gieryic, S. and Guilamo-Ramos, V. (1999). Use of health and human services by community-residing people with dementia. Social Work, 44, 535–548.
Toseland, R. W., McCallion, P., Gerber, T. and Banks, S. (2002). Predictors of health and human services use by persons with dementia and their family caregivers. Social Science and Medicine, 55, 1255–1266.
van der Roest, H. G., Meiland, F. J. M., Maroccini, R., Comijs, H. C., Jonker, C. and Dröes, R. M. (2007). Subjective needs of people with dementia: a review of the literature. International Psychogeriatrics, 19, 559–592.
van der Roest, H. G., Meiland, F. J. M., Van Hout, H. P. J., Jonker, C. and Dröes, R. M. (2008a). Validity and reliability of the Dutch version of the Camberwell Assessment of Need for the Elderly in community-dwelling people with dementia. International Psychogeriatrics, 20, 1273–1290.
van der Roest, H. G. et al. (2008b). Finding the service you need: human centered design of a Digital Interactive Social Chart in DEMentia care (DEM-DISC). Studies in Health Technology and Informatics, 137, 210–224.
van der Roest, H. G., Meiland, F. J. M., Jonker, C. and Dröes, R. M. (2009). User evaluation of the DEM-DISC. Unpublished manuscript available from the author.
Vernooij-Dassen, M. J. F. J. (1993). Dementie en thuiszorg: een onderzoek naar determinanten van het competentiegevoel van centrale mantelzorgers en het effect van professionele interventie. Amsterdam/Lisse: Swets & Zeitlinger B. V.