Akizuki, N., Yamawaki, S., Akechi, T., et al. (2005). Development of an Impact Thermometer for use in combination with the Distress Thermometer as a brief screening tool for adjustment disorders and/or major depression in cancer patients. Journal of Pain and Symptom Management, 29(1), 91–99. Available from http://www.jpsmjournal.com/article/S0885-3924(04)00450-6/pdf.
Antunes, B., Harding, R., Higginson, I.J., et al. (2014). Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers. Palliative Medicine, 28(2), 158–175. Epub ahead of print Jun 25, 2013. Available from https://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0059371/.
Benito, E., Oliver, A., Galiana, L., et al. (2014). Development and validation of a new tool for the assessment and spiritual care of palliative care patients. Journal of Pain and Symptom Management, 47(6), 1008–10018. Epub ahead of print Oct 5 m 2013. Available from http://www.jpsmjournal.com/article/S0885-3924(13)00404-1/pdf.
Bjordal, K., de Graeff, A., Fayers, P.M., et al. (2000). A 12-country field study of the EORTC QLQ–C30 (version 3.0) and the head and neck cancer specific module (EORTC QLQ–H&N35) in head and neck patients. European Journal of Cancer, 36(14), 1796–1807.
Butcher, J.N., Graham, J.R., Williams, C.L., et al. (1990). Development and use of the MMPI–2 content scales. Minneapolis: University of Minnesota Press.
Cicchetti, D.V. (1994). Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychological Assessment, 6(4), 284–290.
Cohen, J. (1988). Statistical power analysis for the behavioral sciences, 2nd ed. Mahwah, NJ: Lawrence Erlbaum.
Cohen, J. (1992). A power primer. Psychological Bulletin, 112(1), 155–159.
Dalal, D.K. & Carter, N.T. (2015). Negatively worded items negatively impact survey research. In More statistical and methodological myths and urban legends. Lance, C.E. & Vanderberg, R.J. (eds.), pp. 112–132. New York: Routledge.
Daveson, B.A., Simon, S.T., Benalia, H., et al. (2012). Are we heading in the same direction? European and African doctors' and nurses' views and experiences regarding outcome measurement in palliative care. Palliative Medicine, 26(3), 242–249. Epub ahead of print Jun 22, 2011.
Dohrenwend, B.P., Shrout, P.E., Egri, G., et al. (1980). Nonspecific psychological distress and other dimensions of psychopathology: Measures for use in the general population. Archives of General Psychiatry, 37(11), 1229–1236.
Hadnagy, Z., Csikós, A. & Nagy, L. (2012). Introduction of the demoralization scale in Hungary: A study on demoralization and depression among hospice patients [in Hungarian]. Orvosi Hetilap, 153(19), 737–743.
Harding, R., Simon, S.T., Benalia, H., et al. (2011). The PRISMA Symposium 1: Outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: Too many tools in practice. Journal of Pain and Symptom Management
, 42(4), 493–500. Available from http://www.jpsmjournal.com/article/S0885-3924(11)00378-2/pdf.
Hu, L. & Bentler, P.M. (1999). Cut-off criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6(1), 1–55.
Hung, H.C., Chen, H.W., Chang, Y.F., et al. (2010). Evaluation of the reliability and validity of the Mandarin version of Demoralization Scale for cancer patients. Journal of Internal Medicine of Taiwan, 21(6), 427–435.
Julião, M., Nunes, B., Sobral, M.A., et al. (2015). Is it useful to ask “Está deprimido?” (“Are you depressed?”) to terminally ill Portuguese patients? Results from outpatient research. Palliative & Supportive Care, 14(2), 138–141. Epub ahead of print May 20.
Julião, M., Nunes, B. & Barbosa, A. (2016). Prevalence and factors associated with demoralization syndrome in patients with advanced disease: Results from a cross-sectional Portuguese study. Palliative & Supportive Care, 14(5), 468–473. Epub ahead of print Jan 6.
Kissane, D.W., Wein, S., Love, A., et al. (2004). The Demoralization Scale: A report of its development and preliminary validation. Journal of Palliative Care, 20(4), 269–276.
Mehnert, A., Vehling, S., Hocker, A., et al. (2011). Demoralization and depression in patients with advanced cancer: Validation of the German version of the Demoralization Scale. Journal of Pain and Symptom Management, 42(5), 768–776. Epub ahead of print May 18. Available from http://www.jpsmjournal.com/article/S0885-3924(11)00156-4/pdf.
Morita, T., Tsunoda, J., Inoue, S., et al. (2001). Improved accuracy of physicians' survival prediction for terminally ill cancer patients using the Palliative Prognostic Index. Palliative Medicine, 15(5), 419–424.
Mullane, M., Dooley, B., Tiernan, E., et al. (2009). Validation of the demoralization scale in an Irish advanced cancer sample. Palliative & Supportive Care, 7(3), 323–330.
Pfeiffer, E. (1975). A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. Journal of the American Geriatrics Society, 23(10), 433–441.
Robinson, S., Kissane, D.W., Brooker, J., et al. (2016
a). Refinement and revalidation of the Demoralization Scale: The DS–II. External validity. Cancer, 122(14), 2260–2267. Epub ahead of print May 12.
Robinson, S., Kissane, D.W., Brooker, J., et al. (2016
b). Refinement and revalidation of the Demoralization Scale: The DS–II, Internal validity. Cancer, 122(14), 2251–2259. Epub ahead of print May 12.
Rose, M. & Bezjak, A. (2009). Logistics of collecting patient-reported outcomes (PROs) in clinical practice: An overview and practical examples. Quality of Life Research, 18(1), 125–136. Epub ahead of print Jan 20.
Rudilla, D., Galiana, L., Oliver, A., et al. (2015). Comparing counseling and dignity therapies in home care patients: A pilot study. Palliative & Supportive Care, 14(4), 321–329. Epub ahead of print Oct 14.
Rudilla, D., Oliver, A., Galiana, L., et al. (2016
a). A new measure of home care patients' dignity at the end of life: The Palliative Patients' Dignity Scale (PPDS). Palliative & Supportive Care, 14(2), 99–108. Epub ahead of print Jun 11, 2015.
Rudilla, D., Galiana, L., Oliver, A., et al. (2016
b). Demoralization Scale in Spanish-speaking palliative care patients. Journal of Pain and Symptom Management, 51(4), 769–775. Epub ahead of print Dec 22, 2015.
Sloan, J.A., Halyard, M.Y., Frost, M.H., et al. (2007). The Mayo Clinic manuscript series relative to the discussion, dissemination, and operationalization of the Food and Drug Administration guidance on patient-reported outcomes. Value in Health, 10(Suppl. 2), S59–S63. http://www.valueinhealthjournal.com/article/S1098-3015(10)60629-8/pdf.
Terwee, C.B., Bot, S.D.M., de Boer, M.R., et al. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34–42. Epub ahead of print Aug 24, 2006.
Zigmond, A.S. & Snaith, R.P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67(6), 361–370.
Zimmermann, C. & Rodin, G. (2004). The denial of death thesis: Sociological critique and implications for palliative care. Palliative Medicine, 18(2), 121–128.