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Genetic Privacy
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  • Cited by 57
  • Cited by
    This book has been cited by the following publications. This list is generated based on data provided by CrossRef.

    Chan, Sarah 2018. In search of a post-genomic bioethics. History of the Human Sciences, Vol. 31, Issue. 1, p. 116.

    Taylor, M. J. Wallace, S. E. and Prictor, M. 2018. United Kingdom: transfers of genomic data to third countries. Human Genetics, Vol. 137, Issue. 8, p. 637.

    Hamburg, Ileana and Grosch, Kira Rosa 2018. Digital Communication Management.

    van Beers, Britta Sterckx, Sigrid and Dickenson, Donna 2018. Personalised Medicine, Individual Choice and the Common Good.

    Hallinan, Dara and de Hert, Paul 2017. Group Privacy. p. 175.

    Heeney, Catherine 2017. An “Ethical Moment” in Data Sharing. Science, Technology, & Human Values, Vol. 42, Issue. 1, p. 3.

    Stevens, Leslie Dobbs, Christine Jones, Kerina and Laurie, Graeme 2017. Data Protection and Privacy: (In)visibilities and Infrastructures. Vol. 36, Issue. , p. 205.

    Zawati, Ma’n H. and Knoppers, Bartha Maria 2017. Biobanking of Human Biospecimens. p. 99.

    Sándor, Judit 2017. Bioethics and Biopolitics. Vol. 8, Issue. , p. 77.

    Gilbar, Roy 2016. The Passive Patient and Disclosure of Genetic Information: Can English Tort Law Protect the Relatives’ Right to Know?. International Journal of Law, Policy and the Family, Vol. 30, Issue. 1, p. 79.

    Greenberg, Marisa and Smith, Rachel A. 2016. Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results. Health Communication, Vol. 31, Issue. 6, p. 668.

    Postan, Emily 2016. Defining Ourselves: Personal Bioinformation as a Tool of Narrative Self-Conception. Journal of Bioethical Inquiry, Vol. 13, Issue. 1, p. 133.

    Hallinan, Dara and Friedewald, Michael 2015. Open consent, biobanking and data protection law: can open consent be ‘informed’ under the forthcoming data protection regulation?. Life Sciences, Society and Policy, Vol. 11, Issue. 1,

    Whiteman, Ingrid Ann 2015. The decline of medical confidentiality medical information management: The illusion of patient choice. Clinical Ethics, Vol. 10, Issue. 3, p. 47.

    Laurie, Graeme 2014. Recognizing the Right Not to Know: Conceptual, Professional, and Legal Implications. The Journal of Law, Medicine & Ethics, Vol. 42, Issue. 1, p. 53.

    Skene, Loane 2014. eLS.

    Bonython, Wendy and Arnold, Bruce 2014. Disclosure ‘downunder’: misadventures in Australian genetic privacy law. Journal of Medical Ethics, Vol. 40, Issue. 3, p. 168.

    Akpinar, Aslihan and Ersoy, Nermin 2014. Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey. BMC Medical Ethics, Vol. 15, Issue. 1,

    Fuller, Steve and Lipińska, Veronika 2014. The Proactionary Imperative. p. 129.

    Black, Lee McClellan, Kelly A. Avard, Denise and Knoppers, Bartha Maria 2013. Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider. Journal of Community Genetics, Vol. 4, Issue. 2, p. 203.


Book description

The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments in human genetics. He challenges the role and the limits of established principles in medical law and ethics, including respect for patient autonomy and confidentiality. This book will interest lawyers, philosophers and doctors concerned both with genetic information and issues of privacy; it will also interest genetic counsellors, researchers, and policy makers worldwide for its practical stance on dilemmas in modern genetic medicine.


‘Graeme Laurie, of Edinburgh University, has put together this intriguing book to consider this concentrated area of privacy involving genetics. … This book is a fascinating contribution at a time when individuals are not only mindful of their privacy and security but are also fearful of those agencies who could exploit emerging knowledge to their disadvantage. All who have an interest in privacy, in both its general and specialised aspects, should read this book.’

Source: New Law Journal

'… useful and timely text.'

Source: Legal Studies

‘Laurie’s meticulous scholarship has produced a book which will be compulsory reading for policy-makers and scholars in the burgeoning field of genetic privacy.’

Source: Bio-Science Law Review

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