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    • Publisher:
      Cambridge University Press
      Publication date:
      December 2009
      February 2005
      ISBN:
      9780511584183
      9780521833141
      9780521540667
      Dimensions:
      (228 x 152 mm)
      Weight & Pages:
      0.463kg, 216 Pages
      Dimensions:
      (228 x 152 mm)
      Weight & Pages:
      0.35kg, 216 Pages
    • Subjects:
      Sociology: General Interest, Political Sociology, Sociology of Science and Medicine, Sociology
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  • Selected: Digital
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    Subjects:
    Sociology: General Interest, Political Sociology, Sociology of Science and Medicine, Sociology

    Book description

    This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.

    Reviews

    "Narrating the New Predictive Genetics makes an original and important contribution to current scholarship on geneticisation by expanding the normative definition of bioethics beyond rules and principles to illuminate the relational ethics involved in HD decision-making. Refreshingly self-reflexive Konrad combines anthropological insight into kinship and morality with bioethics and shows how the social and natural sciences might well converge to help produce better policy rooted in how individuals and families really respond to genetic information, rather than assumptions about what their reactions will or ought to be.- Candian Journal of Sociology Online, Shelley Z. Reuter, Department of Sociology and Anthropology, Concordia University

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    Contents

    Bibliography
    Bibliography
    Abu-Lughod, Lila 1991. ‘Writing against culture’. In Richard G. Fox (ed.) Recapturing Anthropology: Working in the Present, Sante Fe, NM: School of American Research
    Adam, S., Wiggins, S., Whyte, P., Bloch, M., Shokeir, M., Soltan, H., Meschino, W., Summers, A., Suchowersky, O., and Welch, J. 1993. ‘Five year study of pre-natal testing for HD: demand, attitude and pyschological assessment’. Journal of Medical Genetics 30: 549–56
    Advisory Committee on Genetic Testing 1997. Genetic Testing for Late Onset Disorders. Consultation Paper, London: Department of Health
    Advisory Committee on Genetic Testing 1998. Report on Genetic Testing for Late Onset Disorders. London: Department of Health
    Andrews, Lori B. 1997. ‘Gen-etiquette: genetic information, family relationships, and adoption’. In Rothstein, M. (ed.) Genetic Secrets. Protecting Privacy and Confidentiality in the Genetic Era, pp. 255–80. New Haven, CT: Yale University Press
    Appadurai, Arjun 1992. ‘Putting hierarchy in its place’. In G. Marcus (ed.) Rereading Cultural Anthropology, London: Duke University Press
    Ardener, Edwin 1989. The Voice of Prophecy and Other Essays. Edited by Malcolm Chapman. Oxford: Basil Blackwell
    Armstrong, D. 1995. ‘The rise of surveillance medicine’. The Sociology of Health and Illness 17: 393–404
    Armstrong, D., Michie, S., and Marteau, T. 1998. ‘Revealed identity: a study of the process of genetic counselling’. Social Science and Medicine 47, 11: 1653–8
    Asch, Adrienne 1989. ‘Reproductive technology and disability’. In Sherrill Cohen and Nadine Taub (eds.) Reproductive Laws for the 1990s, pp. 69–125. Clifton, NJ: Humana
    Asch, Adrienne 1993. ‘The human genome and disability rights: thoughts for researchers and advocates’. Disability Studies Quarterly 13: 3–5
    Asch, Adrienne 1999. ‘Prenatal diagnosis and selective abortion: a challenge to practice and policy’. American Journal of Public Health 89, 11: 1649–57
    Atkinson, Jane Monnig 1989. The Art and Politics of Wana Shamanship, Berkeley, CA: University of California Press
    Bailey, F. G. 1991. The Prevalence of Deceit. Ithaca & London: Cornell University Press
    Balmer, Brian 1996. ‘The political cartography of the Human Genome Project’. Perspectives on Science, 4(3) 98–132
    Bankowski, Z. and A. M. Capron (eds.) 1990. Genetics, Ethics and Human Values: Human Genome Mapping, Genetic Screening, and Gene Therapy, Proceedings of the XXIVth CIOMS Conference, Tokyo and Inuyama City, Japan, 22–27 July
    Bartels, Diane M., Bonnie S. Leroy, and Arthur L. Caplan (eds.) 1993. Prescribing Our Future. Ethical Challenges in Genetic Counselling. New York: Aldine de Gruyter
    Barth, Fredrik 1975. Ritual and Knowledge Among the Baktaman of New Guinea. New Haven, CT: Yale University Press
    Beattie, John 1967. ‘Divination in Bunyoro, Uganda’. In John Middleton (ed.) Magic, Witchcraft and Curing. Garden City, NY: Natural History Press
    Beauchamp, Tom L. and James F. Childress 1979. Principles of Biomedical Ethics. Oxford University Press
    Becker, Gay 2000. The Elusive Embryo. How Women and Men Approach New Reproductive Technologies, Berkeley, CA: University of California Press
    Beidelman 1993 [1986]. Moral Imagination in Kaguru Modes of Thought, Bloomington, IN: Indiana University Press
    Benatar, S. 1998. ‘Imperialism, research ethics and global health’, Journal of Medical Ethics 24: 221–2
    Bloch, M. and Hayden, M. R. 1987. ‘Preclinical testing in Huntington's Disease’, American Journal of Medical Genetics 27: 733–4
    Bok, Sissela 1979. Lying: Moral Choice in Public and Private Life, New York: Random House
    Bok, Sissela 1982. Secrets. On the Ethics of Concealment and Revelation, New York: Random House
    Bouquet, Mary 1993. Reclaiming English Kinship: Portuguese Refractions of British Kinship Theory. Manchester University Press
    Bouquet, Mary 1996. ‘Family trees and their affinities: the visual imperative of the genealogical diagram’, Journal of the Royal Anthropological Institute (N.S.) 2(1): 43–66
    Braude, Peter R., , Vert G., Evers-Kiebooms, G., Pettigrew, R., and Geraedts, J. 1998. ‘Non-disclosure preimplantation genetic diagnosis for Huntington's Disease: practical and ethical dilemmas’, Prenatal Diagnosis 18: 1422–6
    Brinkman, R., Mezei, M., Theilman, J., Almquist, E., and Hayden, M. 1997. ‘The likelihood of being affected by Huntington's Disease by a particular age, for a specific repeat size’, American Journal of Human Genetics 60: 1202–10
    British Medical Association 1998. Human Genetics. Choice and Responsibility. Oxford University Press
    Brody, Howard 1987. Stories of Sickness. New Haven, CT: Yale University Press
    Brodwin, Paul 1996. Medicine and Morality in Haiti. Cambridge University Press
    Browner, Carole H. 1999. ‘On the medicalisation of medical anthropology’, Medical Anthropology Quarterly 13(2): 134–40
    Browner, Carole H. and Nancy H. Press 1995. ‘The normalisation of prenatal diagnostic screening’. In F. D. Ginsburg and R. Rapp (eds.) Conceiving the New World Order: The Global Politics of Reproduction, pp. 307–22. Berkeley, CA: University of California Press
    Brunger, F. and Lippman, A. 1995. ‘Resistance and adherence to the norms of genetic counselling’. Journal of Genetic Counselling 4(3): 151–67
    Bundey, S. 1997. ‘Few psychological consequences of presymptomatic testing for Huntington's Disease’, The Lancet 349: 4
    Canguilhelm, G. 1966. Le normal et la pathologique. Paris: Presses Universitaires de France
    Caplan, P. 2003. The Ethics of Anthropology. London: Routledge
    Carsten, J. and S. Hugh-Jones (eds.) 1995. About the House: Lévi-Strauss and Beyond. Cambridge University Press
    Chadwick, R. 1993. ‘What counts as success in genetic counselling?’ Journal of Medical Ethics 19: 43–6
    Chadwick, R. 1997. ‘The philosophy of the right to know and the right not to know’. In The Right to Know and the Right Not to Know. pp. 13–22. Aldershot: Ashgate Publishing Limited
    Chadwick, R. et al. 1993. Ethical Implications of Human Genome Analysis for Clinical Practice in Medical Genetics, With Special Reference to Genetic Counselling. A Report to the Commission of the European Communities, Cardiff: Centre for Applied Ethics
    Chadwick, R., Levitt, M., and Shickle, D. (eds.) 1997. The Right to Know and the Right Not to Know, Aldershot: Ashgate Publishing Limited
    Chadwick, R. and Bock, G. 1990. (eds.) Human Genetic Information: Science, Law and Ethics, Chichester: John Wiley & Sons
    Christakis, Nicholas A. 1996. ‘The distinction between ethical pluralism and ethical relativism: implications for the conduct of transcultural clinical research’. In Harold Y. Vanderpool (ed.) The Ethics of Research Involving Human Subjects. Facing the 21st Century, Frederick, MN: University Publishing Group
    Christakis, Nicholas A. 1999. Death Foretold: Prophecy and Prognosis in Medical Care. University of Chicago Press
    Clarke, A. 1991. ‘Is non-directive counselling possible?’ The Lancet 338: 998–1001
    Clarke, A. 1997. ‘Outcomes and process in genetic counselling’. In P. Harper and A. Clarke (eds.) Genetics, Society and Clinical Practice. Oxford: Bios Scientific Publishers
    Clarke, A. and Parsons, E. (eds.) 1997. Culture, Kinship and Genes: Towards Cross-Cultural Genetics. Hampshire: Macmillan Press Ltd
    Clifford, J. 1997. ‘Spatial practices: fieldwork, travel, and the disciplining of anthropology’. In A. Gupta and J. Ferguson (eds.) Anthropological Locations: Boundaries and Grounds of a Field Science, pp. 185–222. Berkeley, CA: University of California Press
    Coghlan, A. 2000. ‘DNA Chips’. New Scientist, 11 March
    Comaroff, J. and Comaroff, J. 1993. ‘Introduction’. In J. and J. Comaroff (eds.) Modernity and its Malcontents. Ritual and Power in Postcolonial South Africa. University of Chicago Press
    Connor, S. 2000. ‘Deaf parents seek right to have deaf children’, The Independent, 21 September, p. 6
    Conrad, Peter and Gabe, J. (eds.) 1999. Sociological Perspectives on the New Genetics. Oxford: Blackwell Publishers
    Cox, S. M. and McKellin, W. 1999. ‘“There's this thing in our family”: predictive testing and the construction of risk for Huntington's Disease’. In P. Conrad and J. Gabe (eds.) Sociological Perspectives on the New Genetics, pp. 121–45. Oxford: Blackwell Publishers
    Craufurd, D., Dodge, A., Kerzin-Storrar, L., and Harris, R. 1989. ‘Uptake of presymptomatic predictive testing for Huntington's Disease’, Lancet II: 603–5
    Crossley, M. 1996. ‘Choice, conscience, and context’. Hastings Law Journal 47(4): 1223–39
    D'Andrade, R. 1995. ‘Moral models in anthropologyCurrent Anthropology 36(3): 399–408
    Das, V. 1994. ‘Moral orientations to suffering: legitimation, power and healing. Case study victims of the chemical poisoning at Bhopal’ In L. C. Chen, A. Kleinman and N. Ware (eds.) Health and Social Change. An International Perspective, Cambridge, MA.: Harvard University Press
    Davis, Dena S. 2001. Genetic Dilemmas. Reproductive Technology, Parental Choices and Children's Futures, London: Routledge
    Davison, C. 1997. ‘Everyday ideas of inheritance and health in Britain: implications for predictive genetic testing’. In A. Clarke and E. Parsons (eds.) Culture, Kinship and Genes, pp. 167–74. London: Macmillan Press
    Davison, C., Macintyre, S., and Smith, G. D. 1994. ‘The potential social impact of predictive genetic testing for susceptibility to common chromic diseases: a review and proposed research agenda’. Sociology of Health and Illness 16(3): 340–71
    DeHart, S. 1997. ‘Ritual in technoscientific medicine’. In C. Mitcham (ed.) Technology and Social Action, London: JAI, pp. 87–117
    Department of Health 2003. Our Inheritance, Our Future: Realising the Potential of Genetics in the NHS. London: DoH
    Desjerlais, R. 1992. Body and Emotion. The Aesthetics of Illness and Healing in the Nepal Himalayas, Philadelphia, PA: University of Pennsylvania Press
    Devisch, R. 1991. ‘Mediumistic divination among the Northern Yaka of Zaire’. In P. Peek (ed.) African Divination Systems. Bloomington, IN: Indiana University Press
    Dolgin, J. 2000. ‘Choice, tradition and the new genetics: the fragmentation of the ideology of the family’. Connecticut Law Review 32: 523–66
    Donchin, A. and Purdy, L. (eds.) 1999. Embodying Bioethics: Recent Feminist Advances. Oxford: Rowman & Littlefield
    Doyle, R. 1997. On Beyond Living: Rhetorical Transformations in the Life Sciences. Stanford University Press
    Draper, E. 1991. Risky Business: Genetic Testing and Exclusionary Practices in the Hazardous Workplace. Cambridge University Press
    Duster, T. 1990. Backdoor to Eugenics. New York: Routledge
    Edel, M. and Edel, A. 1968 [1959]. Anthropology and Ethics, IL: Charles C. Thomas. 2nd edition
    Edelstein, L. 1967. ‘Hippocratic prognosis’. In O. Temkin and C. L. Temkin (eds.) Ancient Medicine: Selected Papers by Ludwig Edelstein, pp. 65–110. Baltimore, MA: John Hopkins University Press
    Edwards, J. 2000. Born and Bred: Idioms of Kinship and New Reproductive Technologies in England. Oxford University Press
    Edwards, J., Franklin, S., Hirsch, E., Price, F., and Strathern, M. 1999. Technologies of Procreation: Kinship in the Age of Assisted Conception, 2nd edn., London: Routledge
    European Group on Ethics in Science and New Technologies to the European Commission 2003. Opinion on the Ethical Aspects of Genetic Testing in the Workplace. (Opinion no. 18) Luxembourg: Office for Official Publications of the European Communities
    European Society for Human Reproduction and Embryology 1999. ‘ESHRE Preimplantation Genetic Diagnosis (PGD) Consortium: Preliminary Assessment of Data (1/97–9/98), Human Reproduction 14(12): 3138–48
    Evans Pritchard, E. E. 1967 [1937]. Witchcraft, Oracles and Magic Among the Azande. Oxford: Clarendon Press
    Evens, T. M. S. 1982. ‘Two concepts of “society as a moral system”: Evans-Pritchard heterodoxy’, Man 17: 205–18
    Farmer, P. 1999. Infections and Inequalities, Berkeley, CA: University of California Press
    Farmer, P. 2003. Pathologies of Power: Health, Human Rights, and the New War on the Poor. Berkeley, CA: University of California Press
    Faubion, J. 2001. The Ethics of Kinship: Ethnographic Inquiries. Lanham, MD: Rowman & Littlefield Publishers
    Finkler, K. 2000. Experiencing the New Genetics: Family and Kinship on the Medical Frontier. Philadelphia, PA: University of Pennsylvania Press
    Finkler, K. 2003. ‘Illusions of controlling the future: risk and genetic inheritance’, Anthropology and Medicine 10(1): 59–70
    Firth, R. 1953. ‘The study of values by social anthropologist’, Man 231: 146–53
    Fluehr-Lobban, C. 2003. Ethics and the Profession of Anthropology: Dialogue for a New Era. Walnut Creek, CA: AltaMira Press, 2nd edn
    Foucault, M. 1966. ‘Introduction’ to G. Canguilhelm Le Normal et la pathologique. Paris: Presses Universitaires de France
    Foucault, M. 1970. The Order of Things. An Archaeology of the Human Sciences. London: Tavistock Publications
    Fox, R. 2000. ‘Hearing where we're coming from – ethically and professionally’. In A.-M. Cantwell, Friedlander, E. and Tramm, M. (eds.) Ethics and Anthropology. Facing Future Issues in Human Biology, Globalism, and Cultural Property, pp. 1–8. New York: New York Academy of Sciences
    Fox, R. C. 1990. ‘The evolution of American bioethics: a sociological perspective’. In G. Weisz (ed.) Social Science Perspectives on Medical Ethics, pp. 201–20. Dordrecht: Kluwer Academic Publishers
    Frank. G. 2000. Venus on Wheels. Two Decades of Dialogue on Disability, Biography, and Being Female in America, Berkeley, CA: University of California Press
    Frank, G., Blackhall, L. J., Michel, V., Murphy, S. T., Azen, S. P., and Park, K. 1998. ‘A discourse of relationships in bioethics: patient autonomy and end-of-life decision-making among elderly Korean Americans’, Medical Anthropology Quarterly 12(4): 403–23
    Frankenberg, R. 1980. ‘Medical anthropology and development: a theoretical perspective’, Social Science and Medicine 14B: 197–207
    Frankenberg, R. 1992. ‘“Your time or mine”: temporal contradictions of biomedical practice’. In R. Frankenberg (ed.) Time, Health and Medicine, pp. 1–30. London: Sage
    Frankenberg, R. and Leeson, J. 1976. ‘Disease, illness and sickness: social aspects of the choice of healer in a Lusaka suburb’. In J. B. Loudon (ed.) Social Anthropology and Medicine, pp. 223–58. London: Academic Press
    Franklin, S. 1997. Embodied Progress: A Cultural Account of Assisted Reproduction, London: Routledge
    Franklin, S. and Lock. M. (eds.) 2003. Remaking Life and Death: Toward an Anthropology of the Biosciences. Sante Fe, NM: School of American Research Press
    Franklin, S. and Ragoné, H. (eds.) 1998. Reproducing Reproduction: Kinship, Power and Technological Innovation, Philadelphia, PA: University of Pennsylvania Press
    Fujimura, Joan H. 1996. Crafting Science. A Sociohistory of the Quest for the Genetics of Cancer. Cambridge, MA: Harvard University Press
    Galison, P. and D. J. Stump (eds.) 1996. The Disunity of Science: Boundaries, Contexts and Power. Stanford University Press
    Genetic Interest Group (1998). Confidentiality Guidelines, GIG: London
    GeneWatch UK 2002a. Human Health and Genetics. Parliamentary Briefing No.2 [April]
    GeneWatch UK 2002b. ‘“Genovations” genetic test kits’. Available at: http://www.genewatch.org/HumanGen/Tests/Tests_Intro.htm
    GeneWatch UK 2003. Genetic Testing in the Workplace. A Report for GeneWatch UK by Kristina Staley, Buxton, Derbyshire: GeneWatch UK
    Gilham, I. and Rowland, T. 2001. ‘Predictive medicine: potential benefits from the integration of diagnostics and pharmaceuticals’. International Journal of Medical Marketing 2: 18–22
    Gillespie, S. D. 2000. ‘Maya nested houses’. In R. A. Joyce and Gillespie S. D. (eds.) Beyond Kinship: Social and Material Reproduction in House Societies, pp. 135–60. University of Pennsylvania Press
    Gillon, R. (ed.) 1994. Principles of Health Care Ethics. New York: John Wiley & Sons
    Goffman, E. 1963. Stigma. New York: Simon and Schuster
    Good, Byron J. 1994. Medicine, Rationality and Experience: An Anthropological Perspective. Cambridge University Press
    Good, M.-J. Delvecchio, Brodwin, P. E., Good, B. J., and Kleinman A. (eds.) 1992. Pain as Human Experience: An Anthropological Perspective, Berkeley: University of California Press
    Goodman, A. H., Heath, D., and Lindee, S. M. (eds.) 2003. Genetic Nature/Culture: Anthropology and Science Beyond the Two-Culture Divide. Berkeley: University of California Press
    Gordon, D. 1990. ‘Embodying illness, embodying cancer’, Culture, Medicine and Psychiatry 14: 275–97
    Gordon, D. 1994. ‘The ethics of ambiguity and concealment around cancer: interpretation of a local Italian world’. In P. Benner (ed.) Interpretive Phenomenology: Embodiment, Caring and Ethics in Health and Illness, Thousand Oaks, CA: Sage
    Gould, S. J. 2001. Rocks of Ages. Science and Religion in the Fullness of Life, London: Jonathan Cape
    Gray, A. 1995. Genes and Generations: Living with Huntington's Disease. Wellington: Huntington's Disease Association
    Green, J. 1995. ‘Obstetricians’ views on prenatal diagnosis and termination of pregnancy: 1980 compared with 1993', British Journal of Obstetrics and Gynaecology 102: 228–32
    Green, J. M., Richards, M., Murton, F., Statham, H., and Hallowell, N. 1997. ‘Family communication and genetic counselling: the case of hereditary breast cancer and ovarian cancer’, Journal of Genetic Counselling 6(1): 45–60
    Hacking, I. 1990. The Taming of Chance. Cambridge University Press
    Hahn, Robert A. 1995. Sickness and Healing: An Anthropological Perspective, London: Yale University Press
    Hahn, Robert A. and Atwood G. (eds.) 1985. Physicians of Western Medicine. Anthropological Approaches to Theory and Practice. Holland: D. Reidel
    Hamilton, W. D. 1964. ‘The genetical evolution of social behaviour. I and II’, Journal of Theoretical Biology 7: 1–16; 17–32
    Hamilton, W. D. 1975. ‘Innate social aptitudes of man: an approach from evolutionary genetics’. In R. Fox (ed.) Biosocial Anthropology, pp. 133–57. New York: John Wiley Sons
    Haraway, D. 2000. How Like A Leaf. An Interview with Thyrza Nichols Goodeve. New York: Routledge
    Harper, P. S. 1996. Huntington's Disease. London: Saunders
    Harper, P. S. and Clarke, A. 1990. ‘Should we test children for ‘adult’ genetic diseases?’ The Lancet 335: 1205–6
    Harper, J. C. and Delhanty, J. D. A. 2000. ‘Pre-Implantation genetic diagnosis’, Current Opinion in Obstetrics and Gynecology 12: 67–72
    Harris, G. 1978. Casting Out Anger: Religion Among the Taita of Kenya. Cambridge University Press
    Hastrup, K. and Elsass, P. 1990. ‘Anthropological advocacy. A contradiction in terms?’, Current Anthropology 31(3): 301–11
    Hawkes, N. 2003. ‘DIY healthcare – Britain's new £55 million hobby’. The Times 29 October, p. 3
    Hayden, M. R. 1981. Huntington's Chorea. Berlin: Springer-Verlag
    Hepburn, L. 1998. ‘Genetic counselling: parental autonomy or acceptance of limits?’ In M. Junker-kenny and L. S. Cahill (eds.) The Ethics of Genetic Engineering. London: SCM Press and Maryknoll, NY: Orbis Books
    Heyd, D. 1994. Genethics. Moral Issues in the Creation of People, Berkeley: University of California Press
    Higgs, R. 1998. ‘Truth-telling’. In H. Kuhse and P. Singer (eds.) A Companion to Bioethics, pp. 432–40. Oxford: Blackwell
    Hodson, A. 1994. Essential Genetics. London: Bloomsbury
    Hoffmaster, B. 1990. ‘Morality and the social sciences’. In G. Weisz (ed.) Social Science Perspectives on Medical Ethics, pp. 241–60. Dordrecht: Kluwer Academic Publishers
    Holtzman, N. A. and Marteau, T. 2000. ‘Will genetics revolutionise medicine?’, New England Journal of Medicine 343(2): 141–4 [13 July]
    House of Commons Science and Technology Committee (1995). Human Genetics: The Science and its Consequences [Third Report]. London: HMSO
    House of Lords Select Committee on Science and Technology 2001. Human Genetic Databases: Challenges and Opportunities, 20 March, [4th Report]. London: HMSO
    Howell, S. 1997. ‘Introduction’. In S. Howell (ed.). The Ethnography of Moralities, pp. 1–22. London: Routledge
    Howell, S. (ed.). The Ethnography of Moralities, London: Routledge
    Human Fertilisation and Embryology Authority and Advisory Committee on Genetic Testing 1999. Consultation Document on Preimplantation Genetic Diagnosis, HFEA/ACGT: London
    Human Fertilisation and Embryology Authority 2003. Sex Selection: Options for Regulation. London: HFEA
    Human Genetics Commission 2000. Whose Hands on Your Genes? A Discussion Document on the Storage Protection and Use of Personal Genetic Information, London: HGC
    Human Genetics Commission 2001. Public Attitudes to Human Genetic Information. People's Panel Quantitative Study conducted for the Human Genetics Commission. London: HGC
    Human Genetics Commission 2002. Inside Information. Balancing Interests in the Use of Personal Genetic Data. London: Department of Health
    Human Genetics Commission 2003. Genes Direct. Ensuring the Effective Oversight of Genetic Tests Supplied Directly to the Public. London: Department of Health
    Humphrey, C. 1997. ‘Exemplars and rules: aspects of the discourse of moralities in Mongolia’. In S. Howell (ed.) The Ethnography of Moralities, pp. 25–47. London: Routledge
    Huntington's Disease Collaborative Research Group 1993. ‘A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington's disease chromosome’. Cell 72: 971–83
    International Human Genome Mapping Consortium 2001. ‘A physical map of the human genome’, Nature 409: 934–41, (spec. issue on the human genome)
    Jacobson-Widding, A. 1997. ‘“I lied, I farted, I stole… .”: dignity and morality in African discoures on personhood’. In S. Howell (ed.) The Ethnography of Moralities, pp. 48–73. London: Routledge
    Jackson, J. E. 2000. Camp Pain: Talking with Chronic Pain Patients, Philadelphia: University of Pennsylvania Press
    Jackson, J. 2001. Truth, Trust and Medicine, London: Routledge
    Jackson, M. 1982. Allegories of the Wilderness: Ethics and Ambiguity in Kuranko Narratives, Bloomington: Indiana University Press
    Jakobsen, M. D. 1999. Shamanism: Traditional and Contemporary Approaches to the Masters of Spirits and Healing. Oxford: Berghahn
    James, W. 1988. The Listening Ebony: Moral Knowledge, Religion, and Power Among the Uduk of Sudan. Oxford University Press and Clarendon Press
    James, W. 2000. ‘Placing the unborn: on the social recognition of new life’, Anthropology and Medicine 7(2): 169–89
    Jonsen, A. 1991. ‘American moralism and the origins of bioethics in the United States’, Journal of Medicine and Philosophy 16: 113–30
    Jules-Rosette, B. 1978. ‘The veil of objectivity: prophecy, divination and social inquiry’, American Anthropologist 80(3): 549–70
    Kay, L. E. 1993. The Molecular Vision of Life: Caltech, the Rockefeller Foundation and the Rise of New Biology. Oxford University Press
    Kay, L. E. 1999. ‘In the beginning was the word?’. In M. Biagioli (ed.) The Science Studies Reader, pp. 224–33. London: Routledge
    Kay, L. E. 2000. Who Wrote the Book of Life? A History of the Genetic Code. Stanford University Press
    Keller, E. Fox. 1983. A Feeling for the Organism: The Life and Work of Barbara McClintock, New York: W. H. Freeman
    Keller, E. Fox. 1992. Secrets of Life, Secrets of Death: Essays on Language, Gender and Science. New York: Routledge
    Keller, E. Fox. 1995. Refiguring Life: Metaphors of Twentieth Century Biology. New York: Columbia University Press
    Kerr, A. 2003. ‘Governing genetics: reifying choice and progress’. New Genetics and Society 22(2): 111–26
    Kerr, A. and Shakespeare, T. 2002. Genetic Politics: From Eugenics to Genome. Cheltenham: New Clarion Press
    Kessler, S. (ed.) 1979. Genetic Counselling: Psychological Dimensions. New York: Academic Press
    Kitcher, P. 1985. Vaulting Ambition: Sociobiology and the Quest for Human Nature, Cambridge, MA: MIT Press
    Kitcher, P. 1996. The Lives to Come: The Genetic Revolution and Human Possibilities. Harmondsworth: Penguin
    Klein, J. 1982. Woody Guthrie: A Life. New York: Ballantine Books
    Kleinman, A. 1978. ‘Concepts and a model for the comparison of medical systems as cultural systems’, Social Science and Medicine B 12: 85–93
    Kleinman, A. 1988. The Illness Narratives: Suffering, Healing and the Human Condition, New York: Basic Books
    Kleinman, A. 1995. Writing at the Margin: Discourse Between Anthropology and Medicine, Berkeley: University of California Press
    Kluckhohn, F. and Strodtbeck, F. 1961. Variations in Value Orientations. Evanston, IL: Row, Peterson
    Knorr-Cetina, K. 1999. Epistemic Cultures: How the Sciences Make Knowledge. Cambridge, MA: Harvard University Press
    Konrad, M. 2002. ‘Pre-symptomatic networks: tracking experts across medical science and the new genetics’. In C. Shore and S. Nugent (eds.) Elite Cultures: Anthropological Perspectives, pp. 227–48. London: Routledge
    Konrad, M. 2003a. ‘From secrets of life to the life of secrets: tracing genetic knowledge as genealogical ethics’. Journal of the Royal Anthropological Institute 9(2): 339–58
    Konrad, M. 2003b. ‘Gifts of life in absentia: regenerative fertility and the puzzle of the “missing genetrix”’. In J. Haynes and J. Miller (eds.) Inconceivable Conceptions: Psychotherapy, Fertility and the New Reproductive Technologies, pp. 120–42. London: Routledge
    Konrad, M. 2003c. ‘Predictive genetic testing and the making of the pre-symptomatic person: prognostic moralities amongst Huntington's affected families’. Anthropology and Medicine 10(1): 23–49
    Konrad, M. 2004. ‘Offspring, being and wellbeing: parental decision making’. Paper presented to the Seminar on ‘Human Reproduction. Selecting for Life: Scientific Basis and Policy Implications’, Cambridge University Government Policy Programme, convened by Sir Gabriel Horn 23 April
    Konrad, M. (2005). Nameless Relations: Anonymity, Melanesia and Reproductive Gift Exchange between British Ova Donors and Recipients. Oxford: Berghahn
    Kuczewski, M. and Polansky, R. (eds.) 2000. Bioethics. Ancient Themes in Contemporary Issues. Cambridge, MA. MIT Press
    Kyle, D. 1985. The Dancing Men. Glasgow: Fontana Collins
    Laidlaw, J. 2002. ‘For an anthropology of ethics and freedom’. Journal of the Royal Anthropological Institute 8(2): 311–32
    Lane, P. A. 1994. ‘Targeted vs. universal screening’. In K. Seastone Stern and J. G. Davis (eds.) Newborn Screening for Sickle Cell Disease: Issues and Implications, pp. 157–60. New York: Council of Regional Networks for Genetic Services, Cornell University Medical College
    Last, M. 1981. ‘The importance of knowing about non-knowing’, Social Science and Medicine 15B: 387–92
    Latour, B. 1993. We Have Never Been Modern. Translated by C. Porter, Harvester: Wheatsheaf
    Leach, E. 1978. ‘The proper study of mankind’, New Society, 12 October, pp. 91–3
    Leach, E. 1981. ‘Biology and social science: wedding or rape?’, Nature 291: 267–68 (Review of C. L. Lumsden and E. O. Wilson 1981 Genes, Mind and Culture: The Coevolutionary Process.)
    Leal-Pock, C. 1998. Faces of Huntington's. Ontario: Essence Publishing
    Lévi-Strauss, C. 1963. ‘The effectiveness of symbols’. In Structural Anthropology, pp. 186–205. Harmondsworth, Middlesex: Penguin Books
    Lévi-Strauss, C. 1987. Anthropology and Myth: Lectures 1951–1982. Translated by R. Willis, Oxford: Blackwell
    Levitt, M. 1999. ‘The ethics and impact on behaviour of knowledge about one's genome’. British Medical Journal 319: 1283
    Lewis, G. 1995. ‘Revealed by illness: Aspects of the Gnau people's world and their perception of it’. In D. de Coppet and A. Iteanu (eds.) Cosmos and Society in Oceania, pp. 165–88. Oxford: Berghahn
    Lewis, G. 2000. The Failure of Treatment. Oxford University Press
    Lewontin, R. C., Rose, S., and Kamin, L. 1984. Not in Our Genes, New York: Pantheon Books
    Lewontin, R. C. 2000. It Ain't Necessarily So: The Dream of the Human Genome and Other Illusions. London: Granta Books
    Lieban, R. W. 1990. ‘Medical anthropology and the comparative study of medical ethics’. In G. Weisz (ed.) Social Science Perspectives on Medical Ethics, pp. 221–40. Dordrecht: Kluwer Academic Publishers
    Lienhardt, G. 1969. Divinity and Experience: The Religion of the Dinka. Oxford: Clarendon Press
    Lippman, A. 1992. ‘Led (astray) by genetic maps: the cartography of the human genome and health care’. Social Science and Medicine 35: 1469–76
    Lippman, A. 1993. ‘Prenatal genetic testing and geneticization: Mother matters for all’, Fetal Diagnosis and Therapy 8 (supp. 1): 175–88
    Lloyd, G. E. R. (ed.) 1978. ‘Prognosis’. In Hippocratic Writings, trans. J. Chadwick and W. N. Mann, pp. 170–85. New York: Penguin
    Loch, L. 1999. ‘Predictive genetic medicine – a new concept of disease’. In E. Hildt and S. Graumann (eds.) Genetics in Human Reproduction, pp. 185–96. Aldershot: Ashgate Publishing Ltd
    Lock, M. 1995. ‘Contesting the natural in Japan: moral dilemmas and technologies of dying’, Culture, Medicine and Psychiatry 19: 1–38
    Lock, M. 1998. ‘Breast cancer. Reading the omens’, Anthropology Today 14(4): 7–16
    Lock, M. and Gordon, D. (eds.) 1988. Biomedicine Examined. Dordrecht: Kluwer Academic Publishers
    Lock, M. and Kaufert, P. A. (eds.) 1998. Pragmatic Women and Body Politics. Cambridge University Press
    Macintyre, B. 2003. ‘Labour's hypocritical oath: patient, heal thyself’, The Times. 4 June 2003, p. 2
    Malinowksi, B. 1978 [1935]. Coral Gardens and Their Magic, (volume II), New York: Dover Publications
    Mange, E. J. and Mange, A. P. 1999. Basic Human Genetics, MA: Sinauer Associates
    Marshall, P. and Koenig, B. 1996. ‘Bioethics in anthropology: perspectives on culture, medicine and morality’. In C. Sargent and T. M. Johnson (eds.) Medical Anthropology. Contemporary Theory and Method, pp. 349–73. New York: Greenwood Press
    Marshall, P., Thomasma, D., and O'Keefe, P. 1991. ‘Disclosing HIV status: ethical issues explored’, Journal of the American Dental Association 122: 11–15
    Marteau, T. and Richards, M. (eds.) 1996. The Troubled Helix. Social and Psychological Implications of the New Human Genetics. Cambridge University Press
    Mathew, C. 2001. ‘Postgenomic technologies: hunting the genes for common disorders’. BMJ 322: 1031–34 [28 April]
    Mattingly, C. 1998. Healing Dramas and Clinical Plots: The Narrative Structure of Experience. Cambridge University Press
    Mauss, M. 1990 [1925]. The Gift. The Form and Reason for Exchange in Archaic Societies, trans. W. D. Halls, London: Routledge
    McCallum, C. 1996. ‘The body that knows: from Cashinahua epistemology to a medical anthropology of lowland South America’, Medical Anthropology Quarterly 10(3): 347–72
    McCallum, C. 2001. Gender and Sociality in Amazonia: How Real People Are Made. Oxford: Berghahn
    Medick, H. and Sabean, D. (eds.) 1984. Interest and Emotion: Essays on the Study of Family and Kinship. Cambridge University Press
    Meissen, G. J. and Berchek, R. L. 1987. Intended use of predictive testing by those at risk of HD, American Journal of Medical Genetics 26: 283–93
    Melzer, D. and Zimmern, R. 2002. ‘Genetics and medicalisation’. British Medical Journal 324: 863–4
    Michie, S. and Marteau, T. 1996. ‘Genetic counselling: some issues of theory and practice’. In T. Marteau and M. Richards (eds.) The Troubled Helix: Social and Psychological Implications of the New Human Genetics, pp. 104–22. Cambridge University Press
    Middleton, J. 1971. ‘Oracles and divination among the Lugbara’. In M. Douglas and P. Kaberry (eds.) Man in Africa, pp. 161–78. New York: Doubleday Anchor
    Mol, A. M. and Berg, M. 1998. ‘Differences in medicine: an introduction’. In M. Berg and A. Mol (eds.) Differences in Medicine. Unravelling Practices, Techniques, and Bodies, Durham and London: Duke University Press
    Monks, J. 2000. ‘Talk as social suffering: narratives of talk in medical settings’, Anthropology & Medicine 7(1): 15–38
    Morgan, W. 1931. ‘Navaho treatment of sickness: diagnosticians’, American Anthropologist (33): 390–402
    Moynihan, R., Heath, I., and Henry, D. 2002. ‘Selling sickness: the pharmaceutical industry and disease mongering’. British Medical Journal 324: 886–91
    Muller, J. 1994. ‘Anthropology, bioethics, and medicine: a provocative trilogy’, Medical Anthropology Quarterly 8(4): 448–67
    Murray, T. H. 1997. ‘Genetic exceptionalism and “future diaries”: is genetic information different from other medical information?’. In M. A. Rothstein (ed.) Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era, pp. 60–73. New Haven and London: Yale University Press
    Nader, L. (ed.) 1996. Naked Science: Anthropological Inquiry into Boundaries, Power and Knowledge. London: Routledge
    Nelkin, D. 1996. ‘The science wars: responses to a marriage failed’, Social Text 46/47, 14 (1–2): 93–100
    Nelkin, D. and Tancredi, L. 1989. Dangerous Diagnostics: The Social Power of Biological Information. New York: Basic Books
    Nelson, H. Lindemann. 1997. Stories and Their Limits: Narrative Approaches to Bioethics. New York: Routledge
    Nietzsche, F. 1873. ‘On truth and lying in an extra-moral sense’. In S. L. Gilman, C. Blair, and D. J. Parent (eds.) 1989. Friedrich Nietzsche on Rhetoric and Language, pp. 246–57. Oxford University Press
    Noddings, N. 1984. Caring: A Feminine Approach to Ethics and Moral Education, Berkeley: University of California Press
    Novas, C. and Rose, N. 2000. ‘Genetic risk and the birth of the somatic individual’. Economy and Society 29(4): 485–513
    Nowotny, H., Scott, P., and Gibbons, M. 2002. Re-thinking Science: Knowledge and the Public in an Age of Uncertainty. Cambridge: Polity Press
    Nuffield Council on Bioethics 1998. Mental Disorders and Genetics: The Ethical Context. London: NCB
    Nuffield Council on Bioethics 1993. Genetic Screening: Ethical Issues. London: NCB
    Nuffield Council on Bioethics 2002. Genetics and Human Behaviour: The Ethical Context. London: NCB
    Nukaga, Y. 2002. ‘Between tradition and innovation in new genetics: the continuity of medical pedigrees and the development of combination work in the case of Huntington's disease’. New Genetics and Society 21(1): 39–64
    Nyberg, D. 1993. The Varnished Truth: Truth Telling and Deceiving in Ordinary Life. University of Chicago Press
    Okely, J. and H. Callaway (eds.) 1992. Anthropology and Autobiography, London: Routledge
    Olby, R. 1974. The Path to the Double Helix. London: Macmillan
    Overing, J. and Passes, A. (eds.) 2000. The Anthropology of Love and Anger: The Aesthetics of Conviviality in Native Amazonia. London: Routledge
    Park, G. K. 1963. ‘Divination and its social contexts’, Journal Royal Anthropological Institute 93: 195–209
    Parkin, D. 1985. ‘Introduction’. In D. Parkin (ed.) The Anthropology of Evil, Oxford: Basil Blackwell
    Parsons, E. P. and Atkinson, P. A. 1992. ‘Lay constructions of genetic risk’. Sociology of Health and Illness 14: 437–55
    Pauling, L. 1968. ‘Reflections on the new biology’, UCLA Law Review (15): 267–72
    Peek, P. (ed.) 1991. African Divination Systems. Bloomington, IL: Indiana University Press
    Pellegrino, E. 1992. ‘Intersections of western biomedical ethics and world culture’. In E. Pellegrino, P. Mazzarella, and P. Corsi (eds.) Transcultural Dimensions in Medical Ethics, Frederick, MD: University Publishing Group
    Pelias, M. 1991. ‘Duty to disclose in medical genetics: a legal perspective’, American Journal of Human Genetics 39: 347–54
    Petersen, A. and Bunton, R. 2002. The New Genetics and the Public's Health. London: Routledge
    Pocock, D. 1986. ‘The ethnography of morals’, International Journal of Moral and Social Studies 1(1): 3–20
    Popper, K. 1959. The Logic of Scientific Discovery, New York: Basic Books
    Press, N. A. and Browner, C. H. 1994. ‘Collective silences, collective fictions: how prenatal diagnostic testing became part of routine prenatal care’. In K. H. Rothenberg and E. J. Thomson (eds.) Women and Prenatal Testing: Facing the Challenges of Genetic Technology, Columbus, OH: Ohio State University Press
    Proctor, R. 1992. ‘Genomics and eugenics: how fair is the comparison?’ In G. J. Annas and S. Elias (eds.) Gene Mapping: Using Law and Ethics as Guides, pp. 57–93. New York: Oxford University Press
    Quarell, O. W., Tyler, A., Upadhyaya, M., Meredith, A. L., Youngman, S., and Harper, P. S. 1987. ‘Exclusion testing for Huntington's Disease in pregnancy with a closely linked DNA marker’, The Lancet, (), 1281–3
    Rabinow, P. 1992. ‘Artificiality and enlightenment: from sociobiology to biosociality’. In J. Crary and S. Kwinter (eds.) Incorporations, pp. 234–52. New York: Zone
    Rabinow, P. 1996. Making PCR: A Story of Biotechnology. University of Chicago Press
    Rabinow, P. 1999. French DNA. Trouble in Purgatory. University of Chicago Press
    Rapp, R. 1989. ‘Chromosomes and communication: the discourse of genetic counselling’. In L. M. Whiteford and M. L. Poland (eds.) New Approaches to Human Reproduction, pp. 25–41, Boulder, CO: Westview Press
    Rapp, R. 1991. ‘Moral pioneers: women, men and fetuses on the frontier of reproductive technology’. In M. di Leonardo (ed.) Gender at the Crossroads of Knowledge: Feminist Anthropology in the Postmodern Era, pp. 383–95. Berkeley: University of California Press
    Rapp, R. 1995. ‘Heredity, or: revising the facts of life’. In C. Delaney and S. Yanagisako (eds.) Naturalising Power, pp. 69–86. London: Routledge
    Rapp, R. 1997. ‘Real-time fetus’. In G. Lee Downey and J. Dumit (eds.) Cyborgs and Citadels: Anthropological Interventions in Emerging Sciences and Technologies, pp. 31–48. Santa Fe, NM: School of American Research Press
    Rapp, R. 1999. Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America. New York: Routledge
    Read, K. 1955. ‘Morality and the concept of the person among the Gahuku-Gama’, Oceania, ⅹⅹⅴ (4): 233–82
    Reed-Danahay, D. E. (ed.) 1997. Auto/Ethnography: Rewriting the Self and the Social, Oxford: Berghahn
    Richards, M. 1997. ‘It runs in the family: lay knowledge about inheritance’. In A. Clarke and E. Parsons (eds.) Culture, Kinship and Genes, pp. 175–94. London: Macmillan Press
    Rifkin, J. 1998. The Biotech Century: How Genetic Commerce Will Change the World. London: Phoenix
    Rivers, W. H. R. [1910] 1968. ‘The genealogical method of anthropological inquiry’. In Kinship and Social Organisation, L.S.E. Monographs in Social Anthropology, 34: 97–109. London: The Athlone Press
    Rivers, W. H. R. [1914] 1968. ‘Classificatory terminology and cross-cousin marriage’. In Kinship and Social Organisation, L. S. E. Monographs in Social Anthropology, 34: 39–54. London: The Athlone Press
    Rosaldo, M. Z. 1980. Knowledge and Passion: Ilongot Conceptions of Self and Social Life, New York: Cambridge University Press
    Rose, H. and Rose, S. (eds.) 2000. Alas, Poor Darwin: Arguments Against Evolutionary Psychology. New York: Harmony Books
    Rose, N. 1990. Governing the Soul. The Shaping of the Private Self. London: Routledge
    Rose, N. 1999. Powers of Freedom: Reframing Political Thought. Cambridge University Press
    Rose, S. 1997. Lifelines: Biology, Freedom, Determinism. Harmondsworth: Penguin Books
    Rothman, B. K. 1986. The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood. New York: Viking Press
    Rothman, B. K. 1998. Genetic Maps and Human Imaginations: The Limits of Science in Understanding Who We Are. New York: Norton
    Rothman, D. 1991. Strangers at the Bedside: a History of How Law and Bioethics Transformed Medical Decision-Making, New York: Basic Books
    Rothstein, M. (ed.) Genetic Secrets. Protecting Privacy and Confidentiality in the Genetic Era. New Haven: Yale University Press
    Rubalcaba, J. 1996. Saint Vitus Dance. New York: Clarion Books
    Sawyer, R. 1998. Frameshift. New York: Tor Books
    Scheper-Hughes, N. 1995. ‘The primacy of the ethical’, Current Anthropology 36(3): 409–20
    Schulman, J., Black, S., Handyside, A. H., and Nance, W. 1996. ‘Preimplantation genetic testing for Huntington's disease and certain other dominantly inherited disorders’, Clinical Genetics 49: 57–8
    Segerstråle, Ullica. 2001. Defenders of the Truth. The Sociobiology Debate. Oxford University Press
    Sermon, K., Goossens, V., Seneca, S., Lissens, W., Vos, A., Vandervorst, M., Steirteghern, A., and Liebaers, I. 1998. ‘Preimplantation diagnosis for Huntington's Disease: clinical application and analysis of the HD expansion in affected embryos’, Prenatal Diagnosis (18): 1427–36
    Shakespeare, T. 1999. ‘Losing the plot: medical and activist discourses of the contemporary genetics of disability’. In P. Conrad and J. Gabe (eds.) Sociological Perspectives on the New Genetics, pp. 171–90. Oxford: Blackwell
    Shakespeare, T. 1998. ‘Choices and rights: eugenics, genetics and disability equality’. Disability and Society 13(5): 665–81
    Shaw, R. 1991. ‘Splitting truths from darkness: espistemological aspects of Temne divination’ In P. Peek (ed.) African Divination Systems. Bloomington, IN: Indiana University Press
    Shore, B. 1990. ‘Human ambivalence and the structuring of human values’, Ethos 18(12): 165–79
    Singer, M. 1992. ‘The application of theory in medical anthropology: an introduction’, Medical Anthropology 14: 1–8
    Silvers, A. 1999. ‘On not iterating women's disability: a crossover perspective on genetic dilemmas’. In A. Donchin and L. M. Purdy (eds.) Embodying Bioethics: Recent Feminist Advances, pp. 177–202. Lanham, MD: Rowman & Littlefield Publishers
    Sinsheimer, R. 1976. The Book of Life. Reading, MA: Addison-Wesley
    Skultans, V. (ed.) 2000. ‘Narrative illness and the body’, Anthropology and Medicine, 7(1) [special issue]
    Slomka, J. 1992. ‘The negotiation of death: clinical decision-making at the end of life’, Social Science and Medicine 35(3): 251–9
    Strathern, M. 1968. ‘Popokl: the question of morality’, Mankind 6(11): 553–62
    Strathern, M. 1991. Partial Connections. Lanham, MD: Rowman and Littlefield Publishers
    Strathern, M. 1992a. Reproducing the Future: Essays on Anthropology, Kinship and the New Reproductive Technologies. Manchester University Press
    Strathern, M. 1992b. After Nature. Cambridge University Press
    Strathern, M. 1995. ‘Nostalgia and the new genetics’. In D. Battaglia (ed.) Rhetorics of Self-Making, pp. 97–120. Berkeley, CA: University of California Press
    Strathern, M. (ed.) 2000. Audit Cultures: Anthropological Studies in Accountability, Ethics and the Academy. London: Routledge
    Sudbery, P. 1998. Human Molecular Genetics, Harlow: Longman
    Suter, S. M. 1993. ‘Whose genes are these anyway? Familial conflicts over access to genetic information’, Michigan Law Review: 1854–908
    Suzuki, D. and Knudtson, P. 1990. Genethics: The Clash Between The New Genetics And Human Values, Cambridge, MA: Harvard University Press
    Taussig, M. 1987. Shamanism, Colonialism and the Wild Man. University of Chicago Press
    Taussig, M. 1980. ‘Reification and the consciousness of the patient’, Social Science and Medicine B:14: 3–13
    Tibbens, A., Niermeijer, M. F., and Roos, R. A. C., 1992. ‘Understanding the low uptake of presymptomatic DNA testing for Huntington's disease’, The Lancet 340: 1416
    Tokar, B. (ed.) 2001. Redesigning Life? The Worldwide Challenge to Genetic Engineering, London: Zed Books
    Tolmie, J. L., Davidson, H. R., May, H. M., McIntosh, K., Paterson, J. S., and Smith, B. 1995. ‘The prenatal exclusion test for Huntington's Disease: experience in the west of Scotland, 1986–1993’, Journal of Medical Genetics 32: 97–101
    Tong, R. 1997. Feminist Approaches to Bioethics. Theoretical Reflections and Practical Applications. Boulder, CO: Westview Press
    Traweek, S. 1992. ‘Border crossings: narratives strategies in science studies and among physicists in Tsukuba science city, Japan’. In A. Pickering (ed.) Science as Practice and Culture. University of Chicago, 429–66
    Tröhler, U. and Reiter-Theil, S. (eds.) 1998. Ethics Codes in Medicine: Foundations and Achievements of Codification since 1947. Aldershot: Ashgate Publishing Ltd
    Turner, V. 1975. Revelation and Divination in Ndembu Ritual. Ithaca, NY: Cornell University Press
    Tyler, A., Quarrell, O., Lazarou, L., Meredith, A., and Harper, P. 1990. ‘Exclusion testing in pregnancy for Huntington's Disease’, Journal of Medical Genetics (27): 488–95
    UNESCO 1997a. Universal Declaration on the Human Genome and Human Rights, Paris: UNESCO
    UNESCO 1997b. Final Report of the Committee of Governmental Experts for the Finalisation of a Declaration on the Human Genome, 22–25 July, Paris
    Utley, A. 2003. ‘Spot the university candidate – aged 3’. The Times Higher Education Supplement. September 19, pp. 1–2
    Venter, C., Adams, D., Myerss, W., Li, W., Mural, J., and Sutton, G. 2001. ‘The sequence of the human genome’, Science 291: 1304–51
    Venter, C.et al. 2001. Science, 291: 1304–51, (spec. issue on the human genome)
    Vine, B. 1989. The House of Stairs. New York: Harmony Books
    Visweswaran, K. 1994. Fictions of Feminist Ethnography, Minneapolis, MN: University of Minnesota Press
    Vitebsky, P. 1995. The Shaman. London: Little, Brown
    Watson, J. 1980. The Double Helix. New York: W. W. Norton
    Werbner, R. P. 1989. ‘Tswapong wisdom divination: making the hidden seen’. In Ritual Passage, Sacred Journey: The Process and Organisation of Religious Movement. Washington, DC: Smithsonian Institution Press
    Wexler, A. 1996. Mapping Fate: A Memoir of Family, Risk, and Genetic Research. Berkeley, CA: University of California Press
    Wexler, N. Sabin 1979. ‘Genetic Russian roulette: the experience of being at risk for Huntington's disease’. In S. Kessler (ed.) Genetic Counselling: Psychological Dimensions. New York: Academic Press
    Wexler, N. Sabin 1989. ‘The oracle of DNA’. In L. P. Rowland (ed.) Molecular Genetics of Neuromuscular Disease. Oxford University Press
    Wexler, N. Sabin 1992. ‘Clairvoyance and caution: repercussions from the Human Genome Project’. In D. J. Kevles and L. Hood (eds.) The Code of Codes, pp. 211–43. Cambridge, MA.: Harvard University Press
    Whyte, S. Reynolds 1991. ‘Power and knowledge in Nyole divination’. In P. Peek (ed.) African Divination Systems. Bloomington, IN: Indiana University Press
    Whyte, S. Reynolds 1997. Questioning Misfortune. The Pragmatics of Uncertainty in Eastern Uganda. Cambridge University Press
    Wiggins, S., Whyte, P.et al. 1992. ‘The psychological consequences of predictive testing for Huntington's Disease’, New England Journal of Medicine 327/20: 1401–5
    Wilson, E. 1975. Sociobiology: The New Synthesis. Cambridge, MA: Belknap Press of Harvard University Press
    Wilson, E. 1978. On Human Nature. Cambridge, MA: Harvard University Press
    Wilson, E. O. 1998. Consilience: The Unity of Knowledge. London: Little, Brown
    Wolf, S. (ed.) 1996. Feminism and Bioethics: Beyond Reproduction. Oxford University Press
    World Health Organisation 2002. Genomics and World Health. Report of the Advisory Committee on Health Research. Geneva: WHO
    Yoder, P. S. 1997. ‘Negotiating relevance: belief, knowledge, and practice in international health projects’, Medical Anthropology Quarterly 11(2): 131–46
    Young, K. 1997. Presence in the Flesh: The Body in Medicine, Cambridge, MA: Harvard University Press
    Young, A. 1982. ‘The Anthropologies of Illness and Sickness’, Annual Review of Anthropology 11: 257–85
    Zimmerli, W. C. 1990. ‘Who has the right to know the genetic constitution of a particular person?’. In R. Chadwick and G. Bock (eds.) Human Genetic Information: Science, Law and Ethics, pp. 93–102. Chichester: John Wiley & Sons
    Zola, I. K. 1972. ‘Medicine as an institution of social control’, Sociological Review, 20(4)[n.s.]: 487–509

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