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Series:   Elements in Bioethics and Neuroethics

Capacity, Informed Consent and Third-Party Decision-Making

Published online by Cambridge University Press:  03 June 2024

Jacob M. Appel
Jacob M. Appel
Affiliation:
Icahn School of Medicine at Mount Sinai

Summary

This Element examines three related topics in the field of bioethics that arise frequently both in clinical care and in medico-legal settings: capacity, informed consent, and third-party decision-making. All three of these subjects have been shaped significantly by the shift from the paternalistic models of care that dominated medicine in the United States, Canada, and Great Britain prior to the 1960s to the present models that privilege patient autonomy. Each section traces the history of one of these topics and then explores the major ethics issues that arise as these issues are addressed in contemporary clinical practice, paying particular attention to the role that structural factors such as bias and social capital play in their use. In addition, the volume also discusses recent innovations and proposals for reform that may shape these subjects in the future in response both to technological advances and changes in societal priorities.
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Keywords

bioethicscapacityinformed consentsurrogatescompetence

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Type
Element
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Series: Elements in Bioethics and Neuroethics
Online ISBN: 9781009570060
Publisher: Cambridge University Press
Print publication: 17 October 2024

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Bibliography

8 V.S.A. Ch. 231 § 9701(4)(A) (2011).Google Scholar
American Medical Association. Withholding Information from Patients. AMA Principles of Medical Ethics Opinion 8.122 (2016). https://code-medical-ethics.ama-assn.org/principles.Google Scholar
Angelucci, Patricia A. What Is Medical Futility? Nursing Critical Care 2 (2007): 20–21.CrossRefGoogle Scholar
Annas, George J. The Health Care Proxy and the Living Will. New England Journal of Medicine 325 (1991): 1210–13.Google Scholar
Appel, Jacob M. A Duty to Kill? A Duty to Die? Rethinking the Euthanasia Controversy of 1906. Bulletin of the History of Medicine 78 (2004): 610–34.Google Scholar
Appel, Jacob M. A Suicide Right for the Mentally Ill. The Hastings Center Report 37 (2007): 21–23.Google ScholarPubMed
Appel, Jacob M. Capital Punishment, Psychiatrists and the Potential Bottleneck of Competence. Journal of Law & Health 24 (2011): 45–78.Google Scholar
Appel, Jacob M. Reconsidering Capacity to Appoint a Healthcare Proxy. Cambridge Quarterly of Healthcare Ethics 32 (2022a): 1–7.Google ScholarPubMed
Appel, Jacob M. Substituted Judgment for the Never-Capacitated: Crossing Storar’s Bridge Too Far. Bioethics 36 (2022b): 225–31.Google ScholarPubMed
Appel, Jacob M. Trial by Triad: Substituted Judgment, Mental Illness and the Right to Die. Journal of Medical Ethics 48 (2022c): 358–61.CrossRefGoogle ScholarPubMed
Appel, Jacob M. A Values-Based Approach to Capacity Assessment. Journal of Legal Medicine 42 (2022d): 53–65.CrossRefGoogle ScholarPubMed
Appel, Jacob M. Locating and Identifying Third-Party Decision-Makers. Journal of the American Academy of Psychiatry & Law 50 (2022e): 84–96.Google ScholarPubMed
Appel, Jacob M. Anything You Do Not Say Can Be Used against You: Volitional Refusal to Engage in Decisional Capacity Assessment. Journal of Clinical Ethics 34 (2023a): 204–10.CrossRefGoogle Scholar
Appel, Jacob M. The Statutory Codification of Decisional Capacity Standards. Journal of the American Academy of Psychiatry & Law 51 (2023b): 230043–23.Google ScholarPubMed
Appel, Jacob M. Anything You Do Not Say Can Be Used against You: Volitional Refusal to Engage in Decisional Capacity Assessment. Journal of Clinical Ethics 34 (2023c): 204–10.Google Scholar
Appel Jacob, M. Decisional Capacity After Dark: Is Autonomy Delayed Truly Autonomy Denied?. Cambridge Quarterly of Healthcare Ethics 33 (2024): 260–66.Google Scholar
Appelbaum, Paul S. Competence to Be Executed: Another Conundrum for Mental Health Professionals. Psychiatric Services 37 (1986): 682–84.Google ScholarPubMed
Appelbaum, Paul S. Law & Psychiatry: Psychiatric Advance Directives and the Treatment of Committed Patients. Psychiatric Services 55 (2004): 751–52.Google ScholarPubMed
Appelbaum, Paul S. Informed Consent to Psychotherapy: Recent Developments. Psychiatric Services 48 (1997): 445–46.Google ScholarPubMed
Appelbaum, Paul S. Law & Psychiatry: Psychiatric Advance Directives and the Treatment of Committed Patients. Psychiatric Services 55 (2004): 751–52, 763.Google ScholarPubMed
Appelbaum, Paul S. & Roth, Loren H. Competency to Consent to Research: A Psychiatric Overview. Archives of General Psychiatry 39 (1982): 951–58.CrossRefGoogle ScholarPubMed
Appelbaum, Paul S. & Grisso, Thomas. Assessing Patients’ Capacities to Consent to Treatment. New England Journal of Medicine 319 (1988): 1635–38.CrossRefGoogle ScholarPubMed
Armontrout, James, Gitlin, David & Gutheil, Thomas. Do Consultation Psychiatrists, Forensic Psychiatrists, Psychiatry Trainees, and Health Care Lawyers Differ in Opinion on Gray Area Decision-Making Capacity Cases? A Vignette-Based Survey. Psychosomatics 57 (2016): 472–79.Google Scholar
Bazzano, Lydia A., Durant, Jaquail & Brantley, Paula Rhode. A Modern History of Informed Consent and the Role of Key Information. Ochsner Journal 21 (2021): 81–85.Google ScholarPubMed
Beauchamp, Tom L. Informed Consent: Its History, Meaning, and Present Challenges. Cambridge Quarterly of Healthcare Ethics 20 (2011): 515–23.Google ScholarPubMed
Bernat, James L. Medical Futility: Definition, Determination, and Disputes in Critical Care. Neurocritical Care 2 (2005): 198–205.Google ScholarPubMed
Bester, Johan, Cole, Christie M. & Kodish, Eric. The Limits of Informed Consent for an Overwhelmed Patient: Clinicians’ Role in Protecting Patients and Preventing Overwhelm. AMA Journal of Ethics 18 (2016): 869–886.Google ScholarPubMed
Bing v. Thunig, 2 N.Y.2d 656 (1957).Google Scholar
Bonomo, Jordan, Rinderknecht, Tanya N. & Beiser, Edward N. “It Ain’t Easy Being Green,” A Case-Based Analysis of Ethics and Medical Education on the Wards. Medicine $ Health, R. I. 86 (2003): 276–78.Google ScholarPubMed
Braun, Michelle, Gurrera, Ronald, Karel, Michele, Armesto, Jorge & Moye, Jennifer. Are Clinicians Ever Biased in Their Judgments of the Capacity of Older Adults to Make Medical Decisions. Generations 33 (2009): 78–91.Google ScholarPubMed
Brenna, Connor T. A., Chen, Stacy S, Cho, Matthew, Liam, G McCoym & Das, Sunit. Steering Clear of Akrasia: An Integrative Review of Self-Binding Ulysses Contracts in Clinical Practice. Bioethics 37 (2023): 690–714.CrossRefGoogle ScholarPubMed
Broström, Linus, Johansson, Mats & Nielsen, Morten K. “What the Patient Would Have Decided”: A Fundamental Problem with the Substituted Judgment Standard. Medicine, Health Care and Philosophy 10 (2007): 265–78.Google ScholarPubMed
Brown, Douglas R. Panacea or Pandora’s Box: The “Two Schools of Medical Thought” Doctrine after Jones v. Chidester, 610 A.2d 964 (Pa. 992). Washington University Journal of Urban and Contemporary Law 44 (1993): 223–34.Google Scholar
Brune v. Belinkoff, 235 N.E.2d 793 (Mass. 1968).Google Scholar
Buchanan, Allen. Medical Paternalism or Legal Imperialism: Not the Only Alternatives for Handling Saikewicz-Type Cases. American Journal of Law and Medicine 5 (1979): 97–117.Google ScholarPubMed
Buchanan, Allen & Brock, Dan W. Deciding for Others. Milbank Quarterly 64 (1986): 17–94.CrossRefGoogle ScholarPubMed
Buchanan, Allen & Brock, Dan W. Deciding for Others. Cambridge: Cambridge University Press, 1990.Google Scholar
Calabresi, Steven G. The Terri Schiavo Case: In Defense of the Special Law Enacted by Congress and President Bush. Northwestern University Law Review 100 (2006): 164–66.Google Scholar
Canterbury v. Spence (464 F.2d. 772) (1972).Google Scholar
Caralis, Panagiota V., Davis, Bobbi, Wright, Karen & Marcial, Eileen. The Influence of Ethnicity and Race on Attitudes toward Advance Directives, Life-Prolonging Treatments, and Euthanasia. Journal of Clinical Ethics 4 (1993): 155–65.CrossRefGoogle ScholarPubMed
Chervenak, Judith, McCullough, Laurence B. & Chervenak, Frank A. Surgery without Consent or Miscommunication? A New Look at a Landmark Legal Case. America Journal of Obstetrics and Gynecology 212 (2015): 586–90.Google ScholarPubMed
Churchward, Adrian B. A Comparative Study of the Law Relating to the Physician’s Duty to Obtain the Patient’s “Informed Consent” to Medical Treatment in England and California. Connecticut Journal of International Law 5 (1990): 483–563.Google Scholar
Cobbs v. Grant, 8 Cal 3d 229 (1972).Google Scholar
Cocanour, Christine S. Informed Consent – It’s More than a Signature on a Piece of Paper. American Journal of Surgery 214 (2017): 993–97.Google ScholarPubMed
Combs, Michael P., Rasinski, Kenneth A., Yoon, John D. & Curlin, Farr A. Substituted Judgment in Principle and Practice: A National Physician Survey. Mayo Clinic Proceedings 88 (2013): 666–73.Google Scholar
Cooke, Brian K., Worsham, Elizabeth & Reisfield, Gary M. The Elusive Standard of Care. Journal of the American Academy of Psychiatry & Law 45 (2017): 358–64.Google ScholarPubMed
Courtwright, Andrew & Rubin, Emily. Who Should Decide for the Unrepresented? Bioethics 30 (2016): 173–80.Google ScholarPubMed
Cruzan v. Director, Missouri Department of Health, 497 U.S. 261 (1990).Google Scholar
Cruzan v. Harmon, 760 S.W. 2d 408, 416417 (1988).Google Scholar
Cuca, Roberto. Ulysses in Minnesota: First Steps toward a Self-Binding Psychiatric Advance Directive Statute. Cornell Law Review 78 (1992–1993): 1152–86.Google Scholar
Culver, Charles M. & Gert, Bernard. The Inadequacy of Incompetence. Milbank Quarterly 68 (1990): 619–43.CrossRefGoogle ScholarPubMed
Cutter, Laura. Reed, Walter, Yellow Fever, and Informed Consent. Military Medicine 181 (2016): 90–91.Google ScholarPubMed
Davidson, Henry A. Testimonial Capacity. Boston University Law Review 39 (1959): 172–80.Google Scholar
Does the Doctor Know Best? – A Professional Opinion. The Listener (London), December 18, 1975.Google Scholar
Drane, James F. The Many Faces of Competency. Hastings Center Report 15 (1985): 17–21.Google ScholarPubMed
Dresser, Rebecca S. & Robertson, John A. Quality of Life and Non-Treatment Decisions for Incompetent Patients: A Critique of the Orthodox Approach. Law Medicine & Health Care 17 (1989): 234–44.Google ScholarPubMed
Dworkin, Ronald. Life’s Dominion: An Argument about Abortion, Euthanasia, and Individual Freedom. New York: Vintage Books, 1994.Google Scholar
Dyke, Molly C. A Matter of Life and Death: Pregnancy Clauses in Living Will Statutes. Boston University Law Review 70 (1990): 867–87.Google ScholarPubMed
Edwin, A. K. Don’t Lie but Don’t Tell the Whole Truth: The Therapeutic Privilege – Is It Ever Justified? Ghana Medical Journal 42 (2008): 156–61.Google ScholarPubMed
Ex parte Whitbread in re Hinde, a Lunatic, 35 Eng. Rep. 878 (1816); Strunk v. Strunk, 445 S.W.2d 145 (Ky. Ct. App. 1969).Google Scholar
Family Health Care Decisions Act, Public Health Law Ch. 29-CC, (New York, 2010).Google Scholar
Farrell, Timothy W, Eric, Widera, Rosenberg, Lisa et al. Clinical Practice and Models of Care, and Public Policy Committees of the American Geriatrics Society. AGS Position Statement: Making Medical Treatment Decisions for Unbefriended Older Adults. Journal of the American Geriatric Society 65 (2017): 14–15.Google ScholarPubMed
Flynn, Eilionóir. The Rejection of Capacity Assessments in Favor of Respect for Will and Preferences: The Radical Promise of the UN Convention on the Rights of Persons with Disabilities. World Psychiatry 18 (2019): 50–51.Google ScholarPubMed
Gaillard, Anne-Sophie, Braun, Esther, Vollmann, Jochen, Gather, Jakov & Matthé, Scholten. The Content of Psychiatric Advance Directives: A Systematic Review. Psychiatric Services 74 (2023): 44–55.Google ScholarPubMed
Garrett, W. S., Verma, A., Thomas, D., Appel, J. M., Mirza, O. Racial Disparities in Psychiatric Decisional Capacity Consultations. Psychiatric Services 74(2023):10–16.Google ScholarPubMed
Glaser, Barney & Strauss, Anselm. Awareness of Dying. London: Weindenfeld and Nicolson, 1965.Google Scholar
Green, Milton D. Judicial Tests of Mental Incompetency. Missouri Law Review 6 (1941): 141–65.Google Scholar
Gutheil, Thomas G. & Appelbaum, Paul S. Substituted Judgment: Best Interests in Disguise. Hastings Center Report 13 (1983): 8–11.Google ScholarPubMed
Hacking, Ian. Between Michel Foucault and Erving Goffman: Between Discourse in the Abstract and Face-To-Face Interaction. Economy and Society 33 (2004): 277–302.Google Scholar
Hall, Ryan C.W., Richard, C.W. Hall, Myers, W. C. & Chapman, M. J. Testamentary Capacity: History, Physicians’ Role, Requirements, and Why Wills Are Challenged. Clinical Geriatrics 17 (2009): 18–24.Google Scholar
Health Care Consent Act, S.O. 1996, c. 2, Sched. A (1996).Google Scholar
Helling v. Carey, 83 Wn.2d 514, 519 P.2d 981 (1974).Google Scholar
Hermann, Helena, Manuel, Trachsel & Biller-Andorno, . Nikola: Physicians’ Personal Values in Determining Medical Decision-Making Capacity: A Survey Study. Journal of Medical Ethics 41 (2015): 739–44.Google Scholar
Herreros, Benjamín, Real de Asua, Diego & Palacios, Gregorio. Are We Still Our Patients’ Keepers?: James Drane’s Contribution to Clinical Ethics in the Current Context. Journal of Healthcare Quality Research 33 (2017): 54–59.Google ScholarPubMed
Hess, John H., Pearsall, Henry B., Slichter, Donald & Thomas, Herbert E. Criminal Law: Insane Persons: Competency to Stand Trial. Michigan Law Review 59 (1961): 1078–1100.CrossRefGoogle Scholar
Hinkle, Bruce J. Informed Consent and the Family Physician. Journal of Family Practice 12 (1981): 109–15.Google ScholarPubMed
Horan, Dennis J. & Halligan, Patrick. Informed Consent. Linacre Quarterly 49 (1982): 358–69.Google ScholarPubMed
Howe, Edmund G. New Approaches with Surrogate Decision Makers. Journal of Clinical Ethics 25 (2014): 261–72.Google ScholarPubMed
Howley, Elaine K. From the “Big C” to “Cancer”: Cultural Taboos Surrounding the Disease Have Lessened, but Continued Research and Education Are Still Needed. US News & World Reports, March 21, 2018.Google Scholar
Hunt v. Bradshaw, 88 S.E.2d 762 (1955).Google Scholar
Hurst, Samia A. When Patients Refuse Assessment of Decision-Making Capacity: How Should Clinicians Respond? Archives of Internal Medicine 164 (2004): 1757–60.CrossRefGoogle ScholarPubMed
Idaho Code 39–4302 (1977).Google Scholar
In Re Quinlan, 70 N.J. 10 (1976).Google Scholar
Johnston, Carolyn & Liddle, Jane. The Mental Capacity Act 2005: A New Framework for Healthcare Decision Making. Journal of Medical Ethics 33 (2007): 94–97.CrossRefGoogle ScholarPubMed
Jones, v. Star Credit Corp. 59 Misc. 2d 189 (1969).Google Scholar
Jonsen, Albert R. Dying Right in California–The Natural Death Act. Clinical Toxicology 13 (1978): 513–22.CrossRefGoogle ScholarPubMed
Kapley, David, Appel, Jacob M., Resnick, P. J. Mental Health Innovation vs. Psychiatric Malpractice: Creating Space for “Reasonable Innovation.” Faulkner Law Review 5 (2013).Google Scholar
Keating, Gregory C. The Theory of Enterprise Liability and Common Law Strict Liability. Vanderbilt Law Review 54 (2001): 131–64.Google Scholar
Kitamura, Toshinori. Assessment of Psychiatric Patients’ Competency to Give Informed Consent: Legal Safeguard of Civil Right to Autonomous Decision-Making. Psychiatry and Clinical Neurosciences 54 (2000): 515–22.Google ScholarPubMed
Klerman, Gerald L. The Psychiatric Patient’s Right to Effective Treatment: Implications of Osheroff V. Chestnut Lodge. American Journal of Psychiatry 147 (1990): 409–18.Google ScholarPubMed
Kreitler, Shulamith. Denial in Cancer Patients. Cancer Investigation 17 (1999): 514–34.CrossRefGoogle ScholarPubMed
Kurtz, Sheldon F. The Law of Informed Consent: From “Doctor Is Right” to “Patient Has Rights. Syracuse Law Review 50 (2000): 1243–60.Google ScholarPubMed
Kutner, Luis. Due Process of Euthanasia: The Living Will, a Proposal. Indiana Law Journal 44 (1969): 539–54.Google Scholar
Kutner, Luis. Euthanasia: Due Process for Death with Dignity; The Living Will. Indiana Law Journal 54 (1979): 201–28.Google ScholarPubMed
Lando, Henrik. When Is the Preponderance of the Evidence Standard Optimal? The Geneva Papers on Risk and Insurance 27 (2002): 602–608.Google Scholar
Lee, Daniel E. The Saikewicz Decision and Patient Autonomy. Linacre Quarterly 47 (1980): 64–69.Google ScholarPubMed
Lee, K. Jane, Havens, Peter L., Sato, Thomas T., Hoffman, George M. & Leuthner, Steven R. Assent for Treatment: Clinician Knowledge, Attitudes, and Practice. Pediatrics 118 (2006): 723–30.Google ScholarPubMed
Lemmens, Christophe. End of Life Decisions and Pregnant Women: Do Pregnant Women Have the Right to Refuse Life Preserving Medical Treatment? A Comparative Study. European Journal of Health Law 17 (2010): 485–505.CrossRefGoogle ScholarPubMed
Lewin, Tamar. Nancy Cruzan Dies, Outlived by a Debate over the Right to Die. The New York Times. December 27, 1990.Google Scholar
Lewis, Michelle H., Gohagan, John K. & Merenstein, Daniel J. The Locality Rule and the Physician’s Dilemma: Local Medical Practices vs. the National Standard of Care. JAMA. June 20, 2007; 297(23): 2633–37.CrossRefGoogle ScholarPubMed
Leykin, Yan, Roberts, Carolyn Sewell & Derubei, Robert J. Decision-Making and Depressive Symptomatology. Cognitive Therapy and Research 35 (2011): 333–41.Google ScholarPubMed
Lombardo, Paul A. Phantom Tumors and Hysterical Women: Revising Our View of the Schloendorff Case. Journal of Law, Medicine & Ethics 33 (2005): 791–801.Google ScholarPubMed
Lyden, Martin. Capacity Issues Related to the Health Care Proxy. Mental Retardation 44 (2006): 272–82.Google Scholar
Lyons, Siobhan. Do We Want to Be Free? Philosophy Now 8 (2020): 22–24.Google Scholar
Mangold, William J. Jr. Informed Consent and Its Implications in Family Practice. Journal of Family Practice 2 (1975): 103–105.Google ScholarPubMed
Marson, Daniel C., McInturff, Bronwyn, Hawkins, Lauren, Bartolucci, Alfred & Harrell, Lindy E. Consistency of Physician Judgments of Capacity to Consent in Mild Alzheimer’s Disease. Journal of the American Geriatrics Society 45 (1997): 453–57.Google ScholarPubMed
Mathew, Sharon, Gershengorn, Hayley B. & Hua, May. Terminology for Surrogate Decision Making Varies Widely by State. Journal of Palliative Medicine 21 (2018): 1060–61.Google ScholarPubMed
Matter of Storar, 52 N.Y.2d 363 (1981).Google Scholar
Mccurdy, William Edward. Insanity as a Ground for Annulment or Divorce in English and American Law. American Journal of Psychiatry 100 (1943): 185–201.Google Scholar
Meadow, Robin. Clear and Convincing Evidence: How Much Is Enough? California Insurance Litigator (1999): 116–21.Google Scholar
Meisel, Alan, Roth, Loren H. & Lidz, Charles W. Toward a Model of the Legal Doctrine of Informed Consent. American Journal of Psychiatry 134 (1977): 285–89.Google Scholar
Menon, Sumytra, Entwistle, Vikki A., Campbell, Alastair V. & van Delden, , Johannes, J. M. How Should the “Privilege” in Therapeutic Privilege Be Conceived When Considering the Decision-Making Process for Patients with Borderline Capacity? Journal of Medical Ethics 47 (2021): 47–50.CrossRefGoogle Scholar
Miller, Blanca. Nurses in the Know: The History and Future of Advance Directives. OJIN: The Online Journal of Issues in Nursing 22 (2017).CrossRefGoogle Scholar
Mirza, Omar F. & Appel, Jacob M. Capacity Reconceptualized: From Assessment Tool to Clinical Intervention. Cambridge Quarterly of Healthcare Ethics 24 (2023): 1–5.Google Scholar
Mitchell v. Robinson 334 S.W.2d 11 (1960).Google Scholar
Mohr v. Williams, 104 N.W. 12 (Minn. 1905).Google Scholar
Montgomery v Lanarkshire Health Board, UKSC 11 (2015).Google Scholar
Morgan, Derek & Veitch, Kenneth. Being Ms B: B, Autonomy and the Nature of Legal Regulation. Sydney Law Review 26 (2004): 107–30.Google Scholar
Morrison, R. Sean, Zayas, Luis H., Mulvihill, Michael, Baskin, Shari A. & Meier, Diane E. Barriers to Completion of Health Care Proxies: An Examination of Ethnic Differences. Archives of Internal Medicine 158 (1998): 2493–97.Google ScholarPubMed
Moye, Jennifer, Sabatino, Charles P. & Brendel, Weintraub, Rebecca, . Evaluation of the Capacity to Appoint a Healthcare Proxy. American Journal of Geriatric Psychiatry 21 (2013): 326–36.Google ScholarPubMed
Murphy, Walter J. Canterbury v. Spence–the Case and a Few Comments. Forum. 1976 Spring; 11(3): 716–26.Google Scholar
Murray, Heather & Wortzel, Hal. Psychiatric Advance Directives: Origins, Benefits, Challenges, and Future Directions. Journal of Psychiatric Practice, 2019; 25 (4): 303–307.Google ScholarPubMed
Natanson v. Klein 187 Kan. 186 (Kan. 1960).Google Scholar
Nelson, Leonard J. Helling, V. Carey Revisited: Physician Liability in the Age of Managed Care (March 23, 2010). Seattle University Law Review 25 (2002): 775–819.Google Scholar
New South Wales Health. Consent to Medical and Healthcare Treatment Manual. (2020). www.health.nsw.gov.au/policies/manuals/Documents/consent-section-4.pdf.Google Scholar
Novack, Dennis H., Plumer, Robin, Smith, Raymond L. et al. Changes in Physicians’ Attitudes toward Telling the Cancer Patient. JAMA 241 (1979): 897–900.Google ScholarPubMed
O’Brien, Meghan & Fiester, Autumn. Who’s at the Table? Moral Obligations to Equal-Priority Surrogates in Clinical Ethics Consultations. Journal of Clinical Ethics 25 (2014): 273–80.Google ScholarPubMed
O’Connor v. Donaldson, 422 U.S. 563 (1975).Google Scholar
O’Neill, O. Some Limits of Informed Consent. Journal of Medical Ethics 29 (2003): 4–7.Google ScholarPubMed
Oken, Donald. What to Tell Cancer Patients: A Study of Medical Attitudes. JAMA 175 (1961): 1120–28.Google ScholarPubMed
Olin, Grace B. & Olin, Harry S. Informed Consent in Voluntary Mental Hospital Admissions. American Journal of Psychiatry 132 (1975): 938–41.Google ScholarPubMed
Osheroff v. Chestnut Lodge, Inc., 490 A. 2d 720 (1985).Google Scholar
Owen, Adrian M. The Search for Consciousness. Neuron 102 (2019): 526–28.Google ScholarPubMed
Owens, Howard. When Is a Voluntary Commitment Really Voluntary? American Journal of Orthopsychiatry 47 (1977): 104–10.Google ScholarPubMed
Paris, John J., Ahluwalia, Jag, Cummingsm, Brian, Moreland, Michael P., Wilkinson, Dominic. The Charlie Gard Case: British and American Approaches to Court Resolution of Disputes over Medical Decisions. Journal of Perinatology 37 (2017): 1268–71.Google ScholarPubMed
Plaut, Eric A. The Ethics of Informed Consent: An Overview. Psychiatric Journal of the University of Ottawa 14 (1989): 435–38.Google ScholarPubMed
Pope, Thaddeus. Unbefriended and Unrepresented: Better Medical Decision Making for Incapacitated Patients without Healthcare Surrogates. Georgia State University Law Review 33 (2017): 923–1020.Google Scholar
Potiki, Johnnie, Tawaroa, Daniel, Casey, Heather et al. Cultural Influences on the Creation and Use of Psychiatric Advance Directives. Psychiatric Services 74 (2023): 1299–302.CrossRefGoogle ScholarPubMed
Powderly, Kahtleen E. Patient Consent and Negotiation in the Brooklyn Gynecological Practice of Alexander J.C. Skene: 1863–1900. Journal of Medicine and Philosophy. February 2000; 25(1): 12–27.Google Scholar
Pratt v. Davis, 224 Ill. 300, 79 N.E. 562 (1906).Google Scholar
President’s Commission for the Study of Ethical Problems in Medicine Biomedical Behavioral Research. Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. President’s Commission for the Study of (1982).Google Scholar
Ray, Isaac. Testamentary Capacity. The Sanitarian 5 (1877): 433–46.Google Scholar
Reamy, Allison M., Kim, Kyungmin, Zarit, Steven H. & Whitlatch, Carol J. Understanding Discrepancy in Perceptions of Values: Individuals with Mild to Moderate Dementia and Their Family Caregivers. The Gerontologist 51 (2011): 473–83.Google ScholarPubMed
Rennie v. Klein, 462 F. Supp. 1131 (D.N.J. 1978).Google Scholar
Renton, A. Wood. Insanity in Its Relation to Contract. Cape Law Journal 5 (1888): 117–20.Google Scholar
Renton, A. Wood. The Legal Test of Lunacy. Medico-Legal Journal 8 (1890): 317–19.Google Scholar
Robinson v LeCorps, 83 SW3d 718 (Tenn. 2002).Google Scholar
Rogers v. Commissioner of Mental Health, 390 Mass.489, 458 N.E.2d 308. (1983).Google Scholar
Rolater v. Strain, 39 Okla. 572, 137 P. 86 (1913).Google Scholar
Roth, William F. The Role of the Psychiatrist under the M’Naghten Rule. University of Kansas City Law Review 28 (1959): 133–38.Google Scholar
Roth, Loren H., Meisel, Alan & Lidz, Charles W. Tests of Competency to Consent to Treatment. American Journal of Psychiatry 134 (1977): 279–84.Google ScholarPubMed
Salgo v. Leland Stanford Jr. University Board of Trustees, 154 Cal.App.2d 560, 317 P.2d 170 (1957).Google Scholar
Schloendorff v. Society of New York Hospital, 105 N.E. 92 (N.Y. 1914).Google Scholar
Schonfield, Toby L. Ethics by Committee: A Textbook on Consultation, Organization, and Education for Hospital Ethics Committees (ed. Hester, Micah D.) Lanham, MD: Rowman & Littlefield, 2008.Google Scholar
Schwartz, Robert C. & Blankenship, David M. Racial Disparities in Psychotic Disorder Diagnosis: A Review of Empirical Literature. World Journal of Psychiatry 22 (2014): 133–40.Google Scholar
Seckler, Allison B., Meier, Diane E., Mulvihill, Michael & Barbara E. Cammer, Paris. Substituted Judgment: How Accurate Are Proxy Predictions? Annals of Internal Medicine 115 (1991): 92–98.Google ScholarPubMed
Seltzer, Richard, Hansberry, Heidi L., Canan, Russell F., Cannon, Molly & Seltzer, Richard. Legal Standards by the Numbers: Quantifying Burdens of Proof or a Search for Fool’s Gold. Judicature 100 (2016): 56.Google Scholar
Shalak, Manar, Shariff, Masood A., Doddapaneni, Varun & Suleman, Natasha. The Truth, the Whole Truth, and Nothing but the Truth: Therapeutic Privilege. Journal Postgraduate Medicine 68 (2022): 152–55.CrossRefGoogle ScholarPubMed
Shapiro, Barbara J. Beyond Reasonable Doubt: The Evolution of a Concept: Fictions of Knowledge: Fact, Evidence, Doubt. London: Palgrave Macmillan, 2012.Google Scholar
Shea, Matthew. The Ethics of Choosing a Surrogate Decision Maker When Equal-Priority Surrogates Disagree. Narrative Inquiry in Bioethics 11 (2021): 121–31.Google ScholarPubMed
Shim, Ruth S. Dismantling Structural Racism in Psychiatry: A Path to Mental Health Equity. American Journal of Psychiatry 178 (2021): 592–98.Google ScholarPubMed
Sidaway v Bethlem Hospital AC 871 (1985).Google Scholar
Slack, Warner V. The Patient’s Right to Decide. Lancet 2 (1977): 240.Google ScholarPubMed
Small v Howard, 128 Mass 131 (1880).Google Scholar
Somerville, Margaret A. Therapeutic Privilege: Variation on the Theme of Informed Consent. Law Medicine & Health Care 12 (1984): 4–12.CrossRefGoogle ScholarPubMed
Sperling, Daniel. Brain Dead Receive Life Support, Despite Objection from Her Appointed. AMA Journal of Ethics 22 (2020): E1004–E1009.Google ScholarPubMed
Stern, Kristina. Living Wills in English Law. Palliative Medicine 7 (1993): 283–88.CrossRefGoogle ScholarPubMed
Strunk v. Strunk, 445 S.W.2d 145 (Ky. Ct. App. 1969).Google Scholar
Sulmasy, Daniel P., Haller, Karen & Terry, Peter B. Talk, More, Less Paper: Predicting the Accuracy of Substituted Judgments. American Journal of Medicine 96 (1994): 432–38.CrossRefGoogle ScholarPubMed
Superintendent of Belchertown State School v. Saikewicz 373 Mass. 728 (1977).Google Scholar
Szasz, Thomas S. & Hollender, Marc H. A Contribution to the Philosophy of Medicine: The Basic Models of the Doctor-Patient Relationship. AMA Archives of Internal Medicine 97 (1956): 585–92.Google Scholar
Szasz, Thomas S., Knoff, William F. & Hollender, Marc. The Doctor-Patient Relationship and Its Historical Context. American Journal of Psychiatry 115 (1958): 522–28.Google ScholarPubMed
Hooper, T. J., 60 F.2d 737 (2d Cir. 1932).Google Scholar
Taylor, Katherine. The Pregnancy Exclusions: Respect for Women Requires Repeal. American Journal of Bioethics 14 (2014): 50–52.Google ScholarPubMed
Teoli, Dac & Ghassemzadeh, Sassan. Patient Self-Determination Act in StatPearls. Treasure Island, FL: StatPearls, 2023.Google Scholar
Thomas, Jennifer. Common Law Marriage. Journal of the American Academy of Matrimonial Law 22 (2009): 151–67.Google Scholar
Torke, Alexia M., Alexander, G. Caleb & Lantos, John. Substituted Judgment: The Limitations of Autonomy in Surrogate Decision Making. Journal of General Internal Medicine 23 (2008): 1514–17.CrossRefGoogle ScholarPubMed
Udelsman, Brooks V., Govea, Nicolas, Cooper, Zara et al. Concordance in Advance Care Preferences among High-Risk Surgical Patients and Surrogate Health Care Decision Makers in the Perioperative Setting. Surgery 167 (2020): 396–403.Google ScholarPubMed
Uniform Health-Care Decisions Act National Conference of Commissioners on Uniform State Laws. Issues in Law & Medicine 22 (2016): 83–97.Google Scholar
Union Pacific Railway Company v. Botsford, 141 U.S. 250 (1891).Google Scholar
United States of America v. Brandt, Karl, et al. (1947).Google Scholar
Van Veen, Sisco, Widdershoven, Guy, Beekman, Aartjan & Natalie, Evans. Physician Assisted Death for Psychiatric Suffering: Experiences in the Netherlands. Frontiers in Psychiatry 13 (2022): 895387.CrossRefGoogle ScholarPubMed
Waltz, Jon R. The Rise and Gradual Fall of the Locality Rule in Medical Malpractice Litigation. DePaul Law Review 18 (1969): 408–20.Google Scholar
Washington, Harriet A. Medical Apartheid. New York: Random House, 2019.Google Scholar
Wasserman, Jason Adam, Navin, Mark Christopher & Vercler, Chrisian J. Pediatric Assent and Treating Children over Objection. Pediatrics 144 (2019): 7–9.Google ScholarPubMed
Wendler, David S. & Phillips, John. Clarifying Substituted Judgment: The Endorsed Life Approach. Journal of Medical Ethics 41 (2015): 723–30.Google Scholar
Wicclair, Marc R. Patient Decision-Making Capacity and Risk. Bioethics 5 (1991): 91–104.Google ScholarPubMed
Wilcox, Arthur W. Insanity and Marriage. Westminster Review 158 (1902): 199–209.Google Scholar
Wilkinson, James. Does Doctor Know Best? The Listener (London), June 21, 1984.Google Scholar
Williams, Glanville L. The Sanctity of Life and the Criminal Law. New York: Alfred A. Knopf, 1957.Google Scholar
Willoughby, Christopher. Running Away from Drapetomania: Samuel A. Cartwright, Medicine, and Race in the Antebellum South. Journal of Southern History 84 (2018): 579–614.CrossRefGoogle Scholar
Wolf, Susan M. Nancy Beth Cruzan: In No Voice at All. Hastings Center Report 21 (1990): 38–41.Google Scholar
Wolinsky, Fredric D., Ayres, Lioness, Jones, Michael P. et al. A Pilot Study among Older Adults of the Concordance between Their Self-Reports to a Health Survey and Spousal Proxy Reports on Their Behalf. BMC Health Services Research 16 (2016): 485.CrossRefGoogle ScholarPubMed
Zuger, Abigail. Legalities of Surrogate Medical Decision Making Vary by State. NEJM Journal Watch. General Medicine (2017).Google Scholar

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Capacity, Informed Consent and Third-Party Decision-Making
  • Jacob M. Appel, Icahn School of Medicine at Mount Sinai
  • Online ISBN: 9781009570060
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Capacity, Informed Consent and Third-Party Decision-Making
  • Jacob M. Appel, Icahn School of Medicine at Mount Sinai
  • Online ISBN: 9781009570060
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Capacity, Informed Consent and Third-Party Decision-Making
  • Jacob M. Appel, Icahn School of Medicine at Mount Sinai
  • Online ISBN: 9781009570060
Available formats
×