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Democratic Mis-haps: The Problem of Democratization in a Time of Biopolitics

  • Jenny Reardon (a1)

Following the stringent critiques of organizers of the Human Genome Diversity Project for excluding people from the initiative’s early planning, subsequent administrators of high-profile efforts to study human genetic variation, such as the International HapMap Project, have made great efforts to stress the importance of including the people who are to be the objects of study in research design and regulation. Such efforts to ‘democratize’ genomics would appear to represent a positive development. However, in practice they have satisfied few as they fail to recognize the most basic lesson of the Human Genome Diversity Project debates: genomics raises questions not just about the inclusion of people, but about their very constitution. Positing concrete, stable subjects in society, current efforts to ‘democratize’ genomics fail to recognize that entangled in the fundamental questions about nature posed by this emergent form of technoscience are fundamental questions about the order and constitution of societies. The creation of sustainable and desirable forms of governance require us to come to terms with challenges posed to liberal democratic practices and values, such as inclusion, in an age defined partially by this mutual dis/ordering of nature and society.

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Arditti R., Brennan P., & Cavrak S. (1980). Science and liberation. Boston, MA: South End Press.
Cavalli-Sforza L.L., Wilson A.C., Cantor C.R., Cook-Deegan R.M., & King M.C. (1991). Call for a worldwide survey of human genetic diversity: A vanishing opportunity for the human genome project. Genomics, 11 (summer), 490491.
Clarke A., Fishman J., Fosket J., Mamo L., & Shim J. (2003). Biomedicalization: Technoscientific transformations of health, illness and U.S. biomedicine. American Sociological Review, 68 (April), 161194.
Coriell Institute for Medical Research (2004). Policy for responsible collection, storage, and research use of samples from identified populations for the NIGMS Human Genetic Cell Repository. URL (accessed March 2007):
Dewey J. (1927). The public and its problems. Chicago: The Swallow Press. (Original work published in 1927.)
Dewey J. (1960). The construction of the good. In M. Konvitz & G. Kennedy (Eds), The American pragmatists, 201–225. New York: Median Books.
Dobzhansky T. (1962). Comment. Current Anthropology, 3, 279.
Duster T. (1990). Backdoor to eugenics. New York: Routledge.
Eglash R., Croissant J., Chiro G., & Fouche R. (2004). Appropriating technology: Vernacular science and social power. Minneapolis: University of Minnesota Press.
Epstein S. (forthcoming). Inclusion: The politics of difference in medical research. Chicago: University of Chicago Press.
Foster M.W. (2006). Ethical issues in developing a haplotype map with socially defined populations. URL (accessed March 2007):
Foucault M. (1997a). Technologies of the self. In P. Rabinow (Ed.), Michel Foucault: Ethics, subjectivity and truth, 223–252. New York: The New Press.
Foucault M. (1997b). Polemics, politics and problematizations. In P. Rabinow (Ed.), Michel Foucault: Ethics, subjectivity and truth, 111–119. New York: The New Press.
Genes without Borders (2006). Genes without Borders? Towards Global Genomic Governance URL (accessed March 2007): http://
Greely H.T. (North American Regional Committee, Human Genome Diversity Project) (1997). Proposed model ethical protocol for collecting DNA samples. Houston Law Review, 33, 14311473.
Hacking I. (1999). The social construction of what? Cambridge, MA: Harvard University Press.
Haraway D. (1991). Simian, cyborgs, and women. New York: Routledge.
Herzig R. (2006). Review of Appropriating technology: Vernacular science and social power. Isis, 97, 181182.
Indigenous Peoples Council on Biocolonialism (n.d.) Indigenous peoples opposition to the HGDP. URL (consulted September 2006):
IHMC (International HapMap Consortium) (2003). The International HapMap Project. Nature, 426, 789795.
IHMC (International HapMap Consortium) (2004). Integrating ethics and science in the International HapMap Project. Nature Reviews Genetics, 5, 467475.
IHMC (International HapMap Consortium) (2005) A haplotype map of the human genome. Nature, 437, 12991320.
IHMC (International HapMap Project) (n.d. a) About the HapMap. URL (accessed April 2007):
IHMC (International HapMap Project) (n.d. b). Which populations are being sampled. URL (accessed September 2006):
IHMC (International HapMap Project) (n.d. c). Guidelines for referring to the HapMap populations in publications and presentations. URL (accessed September 2006):
IHMC (International HapMap Project) (n.d. d). Community advisory groups. URL (accessed March 2007):
Kitcher P. (2001). Science, truth and democracy. Oxford: Oxford University Press.
Landecker H.L. (1999). Between beneficence and chattel: The human biological in law and science. Science in Context, 12, 203225.
Latour B. (2005). Making things public: Atmospheres of democracy. Cambridge, MA: MIT Press.
Livingstone F. (1962). On the non-existence of human races. Current Anthropology, 3, 279.
Minow M. (1990). Making all the difference: Inclusion, exclusion, and American law. Ithaca, NY: Cornell University Press. (n.d.). The Genographic Project. URL (accessed March 2007): https://www3.
Reardon J. (2004). Decoding race and human difference in a genomic age. Differences: A journal of feminist cultural studies, 15, 3865.
Reardon J. (2005). Race to the finish: Identity and governance in an age of genomics. Princeton, NJ: Princeton University Press.
Rose N., & Novas C. (2005). Biological citizenship. In A. Ong & S. Collier (Eds), Global assemblages: Technologies, politics and ethics as anthropological problems, 439–463. Oxford: Blackwell.
Rosenberg N.A., Pritchard J.K., Weber J.L., Cann H.M., Kidd K.K., Zhivotovsky L.A. et al. (2002). Genetic structure of human populations. Science, 298, 2381.
Sclove R.E. (1995). Democracy and technology. New York: Guilford Press.
Treichler P.A. (1987). AIDS, homophobia and biomedical discourse: An epidemic of signification. Cultural Studies, 1, 263305.
Wynne B. (2006) Public engagement as a means of restoring public trust in science—Hitting the notes, but missing the music? Community Engagement, 9, 211220.
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