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Choosing Deafness with Preimplantation Genetic Diagnosis: An Ethical Way to Carry on a Cultural Bloodline?

  • SILVIA CAMPORESI
Extract

These words were written by ethicist Jonathan Glover in his paper “Future People, Disability and Screening” in 1992. Whereas screening and choosing for a disability remained a theoretical possibility 16 years ago, it has now become reality. In 2006, Susannah Baruch and colleagues at John Hopkins University published a survey of 190 American preimplantation genetic diagnosis (PGD) clinics, and found that 3% reported having the intentional use of PGD “to select an embryo for the presence of a disability.” Even before, in 2002, a controversy was generated by the case of Candace A. McCullough and Sharon M. Duchesneau, a lesbian and deaf couple from Maryland who set out to have a deaf child (then, Gauvin) by intentionally soliciting a deaf sperm donor.

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15. See note 11, Oliver 2006:22.

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21. See note 12, Harris 2006:89–90.

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31. See note 18, Sanghavi 2006.

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33. See note 32, Cole 2004:172.

34. See note 32, Cole 2004:175.

35. See note 23, Buchanan et al. 2006:250–7.

36. Mameli M. Reproductive cloning, genetic engineering and the autonomy of the child: The moral agent and the open future. Journal of Medical Ethics 2007;33(2):87–93.

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Cambridge Quarterly of Healthcare Ethics
  • ISSN: 0963-1801
  • EISSN: 1469-2147
  • URL: /core/journals/cambridge-quarterly-of-healthcare-ethics
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