Skip to main content
×
×
Home

Follow-up of tetralogy of Fallot patients: tertiary centre versus satellite clinic

  • Camille L. Hancock Friesen (a1) (a2) (a3), Mark Robertson (a1) (a3), David Liu (a1) (a3), Haley Burton (a2), Katherine Fleming (a1) (a3), Simon Jackson (a1) (a4) (a3) and Andrew E. Warren (a1) (a5) (a3)...
Abstract
Background

Canadian Cardiovascular Society consensus guidelines recommend that tetralogy of Fallot patients be seen by a congenital cardiologist every 2 years. In Atlantic Canada, tetralogy of Fallot patients are followed up at either tertiary or satellite clinics, which are held in the community and attended by paediatric cardiologists. The effectiveness of satellite clinics in congenital cardiac disease follow-up is unproven. Our objective was to compare patient-reported quality of life measures to determine whether these were impacted by the site of follow-up.

Methods

We included patients with tetralogy of Fallot undergoing surgical repair at the Izaak Walton Killam Health Centre from 1 November, 1972 to 31 May, 2002. Quality of life surveys, SF-10 or SF-36v2, were administered to consenting patients. We analysed the subjective health status by patient age and site of follow-up.

Results

Of the 184 eligible patients, 72 were lost to follow-up. Of the locatable patients, 61% completed the questionnaires. In all, 90% (101 out of 112) were followed up at recommended intervals. Of the 112 (68%) patients, 76 were followed up at a tertiary clinic. These patients were older, with a mean age of 18.4 years versus 14.7 years, and scored higher on the SF-36 physical component summary (52.6 versus 45.7, p = 0.02) compared with satellite clinic patients. The SF-36 mental component summary scores were similar for patients regardless of the site of follow-up. SF-10 physical and psychosocial scores were similar regardless of the site of follow-up.

Conclusion

Tetralogy of Fallot patients followed at either satellite or tertiary clinics have similar subjective health status.

Copyright
Corresponding author
Correspondence to: Dr C. L. Hancock Friesen, Department of Surgery, Head Pediatric Cardiac Surgery, Dalhousie University, 2269-1796 Summer Street, Halifax, NS, B3H 3A7 Canada. Tel: (902)473-7597; Fax: (902)473-4448; E-mail: camillehf@hotmail.com
References
Hide All
1.Coskun, S, Coskun, K, Popov, A, et al. . Reoperation of adults after correction of tetralogy of Fallot. ASAIO 2008; 54: 556557.
2.Oechslin, E, Harrison, D, Harris, L, et al. . Reoperation in adults with repair of tetralogy of fallot: indications and outcomes. J Thoracic Cardiovasc Surg 1999; 118: 245251.
3.Oechslin, E, Harrison, D, Connelly, M, Webb, G, Siu, S. Mode of death in adults with congenital heart disease. Am J Cardiol 2000; 86: 11111116.
4.Therrien, J, Gatzoulis, M, Graham, T, et al. . CCS Consensus Conference 2001 update: recommendations for the management of adults with congenital heart disease: Part II. Can J Cardiol 2001; 17: 10321050.
5.Summary of recommendations – care of the adult with congenital heart disease. J Am Coll Cardiol 2001; 37: 11671169.
6.Mott, A, Fraser, CJ, McKenzie, E, et al. . Perioperative care of the adult with congenital heart disease in a free-standing tertiary pediatric facility. Pediatr Cardiol 2002; 23: 624630.
7.Fleming, E, Carter, B, Gillibrand, W. The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature. J Clin Nurs 2002; 11: 560567.
8.Niwa, K, Perloff, J, Webb, G, et al. . Survey of specialized tertiary care facilities for adults with congenital heart disease. Int J Cardiol 2004; 96: 211216.
9.Toyoda, T, Tateno, S, Kawasoe, Y, et al. . Nationwide survey of care facilities for adults with congenital heart disease in Japan. Circulation 2009; 73: 11471150.
10.Moons, P, Miejboom, F, Baumgartner, H, Trindade, P, Huyghe, E, Kaemmerer, H. Structure and activities of adult congenital heart disease programmes in Europe. Eur Heart J 2010; 31: 13051310.
11.Moons, P, Hilderson, D, Van Deyk, K. Implementation of transition progrms can prevent another lost generation of patients with congenital heart disease. Eur J Cardiovasc Nurs 2008; 7: 259263.
12.Mackie, A, Ionescu-Ittu, R, Therrien, J, Pilote, L, Abrahamowicz, M, Marelli, A. Children and adults with congenital heart disease lost to follow-up: who and when? Circulation 2009; 120: 302309.
13.Yeung, E, Kay, J, Roosevelt, G, Brandon, M, Yetman, A. Lapse of care as a predictor for morbidity in adults with congenital heart disease. Int J Cardiol 2008; 125: 6265.
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

Cardiology in the Young
  • ISSN: 1047-9511
  • EISSN: 1467-1107
  • URL: /core/journals/cardiology-in-the-young
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Keywords