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PUBLIC AND PATIENT INVOLVEMENT IN HEALTH TECHNOLOGY ASSESSMENT: A FRAMEWORK FOR ACTION

  • Julia Abelson (a1), Frank Wagner (a2), Deirdre DeJean (a3), Sarah Boesveld (a3), Franςois-Pierre Gauvin (a4), Sally Bean (a5), Renata Axler (a6), Stephen Petersen (a7), Shamara Baidoobonso (a8), Gaylene Pron (a7), Mita Giacomini (a3) and John Lavis (a3)...
Abstract

Objective: As health technology assessment (HTA) organizations in Canada and around the world seek to involve the public and patients in their activities, frameworks to guide decisions about whom to involve, through which mechanisms, and at what stages of the HTA process have been lacking. The aim of this study was to describe the development and outputs of a comprehensive framework for involving the public and patients in a government agency's HTA process.

Methods: The framework was informed by a synthesis of international practice and published literature, a dialogue with local, national and international stakeholders, and the deliberations of a government agency's public engagement subcommittee in Ontario, Canada.

Results: The practice and literature synthesis failed to identify a single, optimal approach to involving the public and patients in HTA. Choice of methods should be considered in the context of each HTA stage, goals for incorporating societal and/or patient perspectives into the process, and relevant societal and/or patient values at stake. The resulting framework is structured around four actionable elements: (i) guiding principles and goals for public and patient involvement (PPI) in HTA, (ii) the establishment of a common language to support PPI efforts, (iii) a flexible array of PPI approaches, and (iv) on-going evaluation of PPI to inform adjustments over time.

Conclusions: A public and patient involvement framework has been developed for implementation in a government agency’s HTA process. Core elements of this framework may apply to other organizations responsible for HTA and health system quality improvement.

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This list contains references from the content that can be linked to their source. For a full set of references and notes please see the PDF or HTML where available.

1. D. Hailey Consumer involvement in health technology assessment. Edmonton, Canada: Alberta Heritage Foundation for Medical Research; 2005.

3. J Abelson , M Giacomini , P Lehoux , FP Gauvin . Bringing ‘the public’ into health technology assessment and coverage policy decisions: From principles to practice. Health Policy. 2007;82:3750.

6. D Menon , T Stafinski . Role of patient and public participation in health technology assessment and coverage decisions. Expert Rev Pharmacoecon Outcomes Res. 2011;11:7589.

7. JA Whitty . An international survey of the public engagement practices of health technology assessment organizations. Value Health. 2013;16:155163.

13. Y Bombard , J Abelson , D Simeonov , FP Gauvin . Eliciting ethical and social values in health technology assessment: A participatory approach. Soc Sci Med. 2011;73:135144.

14. J Abelson , Y Bombard , FP Gauvin , D Simeonov , S Boesveld . Assessing the impacts of citizen deliberations on the health technology process. Int J Technol Assess Health Care. 2013;29:282289.

25. J Abelson , J Eyles . Public participation and citizen governance in the Canadian health system. In: PG Forest , T McIntosh , G Marchildon , eds. Changing health care in Canada: The Romanow Papers, Volume 2. Toronto, Canada: University of Toronto Press; 2004.

28. A Coulter , J Ellins . Effectiveness of strategies for informing, educating, and involving patients. BMJ. 2007;335:2427.

48. S Oliver , DG Armes , G Gyte . Public involvement in setting a national research agenda: A mixed methods evaluation. Patient. 2009;2:179190.

50. D Chambers , PM Wilson , CA Thompson , et al. Maximizing the impact of systematic reviews in health care decision making: A systematic scoping review of knowledge-translation resources. Milbank Q. 2011;89:131156.

55. G Rowe , LJ Frewer . A typology of public engagement mechanisms. Sci Technol Human Values. 2005;30:251290.

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International Journal of Technology Assessment in Health Care
  • ISSN: 0266-4623
  • EISSN: 1471-6348
  • URL: /core/journals/international-journal-of-technology-assessment-in-health-care
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