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Patient and public involvement: in theory and in practice

  • A Robinson (a1)



You've probably heard of patient and public involvement by now. You may even have ‘involved’ people in your research. But why involve patients, carers and members of the public at all? Is it just another hoop to jump through when preparing a research funding application for submission, or could it actually add something to your research? Could involving patients and members of the public even help you to design and deliver better research, with outcomes focused directly on the needs of your patient group?


This article aims to answer some of these questions. It considers the theory underpinning patient and public involvement. This is followed by practical suggestions and advice to help you develop (or further develop if you already involve people!) patient and public involvement within your own research. There is also a case study to illustrate some of the main points, and extracts written by members of Research Design Service North East Consumer Panels.


Corresponding author

Address for correspondence: Mr A Robinson, North of England Commissioning Support, Teesdale House, Westpoint Road, Thornaby, Stockton-on-Tees TS17 6BL, UK E-mail:


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1About Involve. In: [14 March 2014]
2Public involvement in research. In: [14 March 2014]
3Patient and public awareness. In: [14 March 2014]
4What is public involvement in research? In: [14 March 2014]
5Research project database. In: [14 March 2014]
6Involve. Briefing Notes for Researchers: Involving the Public in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2012
7Involve. Diversity and Inclusion: What's it About and Why is it Important for Public Involvement in Research? Eastleigh: Involve, 2012
8Pathways through participation. Briefing paper number 3 - Who participates? The actors of participation. In: [14 March 2014]
9Putting it into practice database. In: [14 March 2014]
10Burgess-Watson, DL, Lewis, S, Buckley, J. John's cheese sandwich: taking on PPI, with relish. Involve Newsletter 2011;(Autumn):910
11Staley, K. Exploring Impact: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2009
13Brett, J, Staniszewska, S, Mockford, C, Seers, K, Herron-Marx, S, Bayliss, H. The PRICOM Study: A Systematic Review of the Conceptualisation, Measurement, Impact and Outcomes of Patient and Public Involvement in Health and Social Care Research. London: UK Clinical Research Collaboration, 2010
14Mockford, C, Staniszewska, S, Griffiths, F, Herron-Marx, S. The impact of patient and public involvement on UK NHS health care: a systematic review. Int J Qual Health Care 2012;24:2838
15Staniszewska, S, Brett, J, Mockford, C, Barber, R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. Int J Technol Assess Health Care 2011;27:391–9
16Public Involvement Impact Assessment Framework (Piiaf). In: [14 March 2014]
17Ennis, L, Wykes, T. Impact of patient involvement in mental health research: longitudinal study. Brit J Psychiatry 2013;203:381–6
18Evidence library. In: [14 March 2014]
19Patient and public involvement in research and research ethics committee review. In: [14 March 2014]
20Involve. Payment for Involvement: A Guide for Making Payments to Members of the Public Actively Involved in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2010
21Involvement Cost Calculator. In: [14 March 2014]
22Developing training and support. In: [14 March 2014]
23Research Design Service. In: [14 March 2014]
24NIHR Clinical Research Network structure. In: [14 March 2014]
25New Academic Health Science Networks Announced. In: [14 March 2014]
26Welcome to INVOLVE… In: [14 March 2014]


Patient and public involvement: in theory and in practice

  • A Robinson (a1)


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