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Patient and public involvement: in theory and in practice

  • A Robinson (a1)

Abstract

Background:

You've probably heard of patient and public involvement by now. You may even have ‘involved’ people in your research. But why involve patients, carers and members of the public at all? Is it just another hoop to jump through when preparing a research funding application for submission, or could it actually add something to your research? Could involving patients and members of the public even help you to design and deliver better research, with outcomes focused directly on the needs of your patient group?

Objective:

This article aims to answer some of these questions. It considers the theory underpinning patient and public involvement. This is followed by practical suggestions and advice to help you develop (or further develop if you already involve people!) patient and public involvement within your own research. There is also a case study to illustrate some of the main points, and extracts written by members of Research Design Service North East Consumer Panels.

Copyright

Corresponding author

Address for correspondence: Mr A Robinson, North of England Commissioning Support, Teesdale House, Westpoint Road, Thornaby, Stockton-on-Tees TS17 6BL, UK E-mail: andrew.robinson15@nhs.net

References

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3Patient and public awareness. In: http://www.nihr.ac.uk/awareness/Pages/default.aspx [14 March 2014]
4What is public involvement in research? In: http://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/ [14 March 2014]
5Research project database. In: http://www.invo.org.uk/resource-centre/research-project-database/ [14 March 2014]
6Involve. Briefing Notes for Researchers: Involving the Public in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2012
7Involve. Diversity and Inclusion: What's it About and Why is it Important for Public Involvement in Research? Eastleigh: Involve, 2012
8Pathways through participation. Briefing paper number 3 - Who participates? The actors of participation. In: http://pathwaysthroughparticipation.org.uk/wp-content/uploads/2009/09/Briefing-paper-3-Who-participates1.pdf [14 March 2014]
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11Staley, K. Exploring Impact: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: Involve, 2009
13Brett, J, Staniszewska, S, Mockford, C, Seers, K, Herron-Marx, S, Bayliss, H. The PRICOM Study: A Systematic Review of the Conceptualisation, Measurement, Impact and Outcomes of Patient and Public Involvement in Health and Social Care Research. London: UK Clinical Research Collaboration, 2010
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15Staniszewska, S, Brett, J, Mockford, C, Barber, R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. Int J Technol Assess Health Care 2011;27:391–9
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Keywords

Patient and public involvement: in theory and in practice

  • A Robinson (a1)

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