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Service user involvement in cancer professionals’ education: perspectives of service users

Published online by Cambridge University Press:  25 February 2014

Gayle I. G. Keenan*
Affiliation:
Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield, UK
Denyse A. Hodgson
Affiliation:
Faculty of Health and Wellbeing, Sheffield Hallam University, Sheffield, UK
*
Correspondence to: Gayle I. G. Keenan, Faculty of Health and Wellbeing, Robert Winston Building, 11-15 Broomhall Road, Collegiate Crescent Campus, Sheffield Hallam University, Sheffield, S10 2BP, UK. Tel: +44 (0)7977291799. E-mail: gayle_anker@hotmail.com

Abstracts

Background

Service user involvement has been demonstrated as an important aspect of cancer professionals’ education. There is some understanding of service users’ incentive to be involved, but little insight into what motivates them. This study explores this concept more fully.

Purpose

To explore the motivations and experience of service users’ involvement in radiotherapy and oncology education.

Materials and methods

One-to-one interviews were conducted with service users who have been involved in education at the university. Thematic analysis was conducted. Five participants were asked about their motivations and experience of taking part in a variety of educational activities.

Results

The experience of being involved gave the participants a sense of wellbeing and purpose. Three sub-themes were identified that related to service users’ motivation for being involved in educational activities with undergraduate students. These were to promote awareness by sharing their experiences of cancer; improve patient care through learning from negative experience; and personal reward skills for survivorship.

Conclusions

This study has highlighted the importance of hearing the voice of the service users; a two-way engagement for which there are benefits for both the students and service users. The involvement of service users in education becomes part of their personal journey.

Type
Original Articles
Copyright
Copyright © Cambridge University Press 2014 

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References

1.Crawford, M, Rutter, D, Manley, Cet al. Systematic review of involving patients in the planning and development of health care. Br Med 2002; 325: 15.CrossRefGoogle ScholarPubMed
2.Minogue, V, Boness, J, Brown, A, Girdlestone, J. The impact of service user involvement in research. Int J Health Care Qual Assur 2005; 18: 103112.Google Scholar
3.Felton, A, Stickley, T. Pedagogy, power and service user involvement. J Psychiatr Ment Health Nurs 2004; 11: 8998.Google Scholar
4.Cotterell, P, Harlow, G, Morris, Cet al. Service user involvement in cancer care: the impact on service users. Health Expect 2010; 14: 159169.Google Scholar
5.Department of Health, Macmillan Cancer Support and NHS Improvement. National Cancer Survivorship Initiative. Vision: Crown, 2010.Google Scholar
6.Aziz, N M, Rowland, J H. Trends and advances in cancer survivorship research: challenge and opportunity. Semin Radiat Oncol 2003; 13: 248266.Google Scholar
7.Rowland, J H, Belize, K M. Cancer survivors and survivorship research: a reflection on today's successes and tomorrow's challenges. Hematol Oncol Clin North Am 2008; 22: 181200.Google Scholar
8.Department of Health. Cancer Reform Strategy. London: DoH, 2007.Google Scholar
9.Tritter, J Q, McCallum, A. The snakes and ladders of user involvement: moving beyond Arnstein. Health Policy 2006; 76: 156168.Google Scholar
10.Payne, S. Are we using the users? Int J Palliat Nurs 2002; 8: 212.CrossRefGoogle ScholarPubMed
11.Forrest, S, Risk, I, Brown, N. Mental health service user involvement in nurse education. J Psychiatr Ment Health Nurs 2000; 7: 5157.Google Scholar
12.Ball, B, England, A. Service user participation in medical imaging & radiotherapy programmes. The Higher Education Academy. http://www.heacademy.ac.uk/resources/detail/subjects/health/Service-User-Participation. Accessed on February 2013.Google Scholar
13.Attree, P, Morris, S, Clifton, M, Hinder, S, Vaughan, S. Exploring the Impact of User Involvement on Health and Social Care Services for Cancer in the UK. London: Macmillan Cancer Support, 2008.Google Scholar
14.Tritter, J Q, Calnan, M. Cancer as a chronic illness? Reconsidering categorisation and exploring experience. Eur J Cancer Care (Engl) 2002; 11: 161165.Google Scholar
15.Levin, E. Involving Service Users and Carers in Social Work Education. London: Social Care Institute for Excellence, 2004.Google Scholar
16.MHHE. Workshop report: paying more than lip service. User involvement in learning and teaching about mental health in higher education. MHHE, 2003.Google Scholar
17.McAndrew, S, Samociuk, G. Reflecting together: developing a new strategy for continuous user involvement in mental nurse education. J Psychiatr Ment Health Nurs 2003; 10: 616621.Google Scholar
18.Department of Health. Patient and Public Involvement. London: DoH, 1999.Google Scholar
19.Department of Health. Strengthening Accountability: Involving Patients and the Public. London: DoH, 2003.Google Scholar
20.Department of Health. The Cancer Plan. London: DoH, 2000.Google Scholar
21.Darzi, L. High Quality Care for All: NHS Next Stage Review Final Report. London: DoH, 2008.Google Scholar
22.The Quality Assurance Agency for Higher Education. Benchmark Statement: Healthcare Programmes, The Quality Assurance Agency for Higher Education, London, 2001.Google Scholar
23.Beresford, P, Branfield, F, Taylor, Jet al. Working together for better social work education. Soc Work Educ 2006; 25: 326331.CrossRefGoogle Scholar
24.Simons, L, Tee, S, Coldham, T. Developing values-based education through service user participation. J Mental Health Train Educ Pract 2010; 5: 2027.Google Scholar
25.Simons, L, Tee, S, Lathlean, Jet al. A socially inclusive approach to user participation in higher education. J Adv Nurs 2006; 3: 246259.Google Scholar
26.Farrell, C, Towle, A, Godolphin, W. Where's the Patient's Voice in Health Professional Education. British Columbia: Division of Health Care Communication, 2005.Google Scholar
27.Rehorick, D A, Bentz, V M. Transformative Phenomenology: Changing Ourselves, Lifeworlds and Professional Practice. Lanham, Maryland: Lexington Books, 2008.Google Scholar
28.Silverman, D. Doing Qualitative Research: A Practical Handbook. London: Sage, 2009.Google Scholar
29.Nicholas, W. Your Research Project. London: Sage, 2009.Google Scholar
30.Strauss, A, Corbin, J. Basics of Qualitative Theory: Grounded Theory Procedures and Techniques. London: Sage, 1990.Google Scholar
31.Charmaz, K. Grounded theory: objectivist and constructivist methods. In: Denzin N K, Lincoln Y S (eds). Handbook of Qualitative Research. USA: Sage, 2000: 2: 249291.Google Scholar
32.Harding, S. Science and Social Inequality: Feminist and Postcolonial Issues. Chicago: University of Illinois Press, 2006.Google Scholar
33. Expert Patients Programme. Community Interest Company. www.expertpatients.co.uk. Accessed on February 2013.Google Scholar
34. Health Talk Online. www.healthtalkonline.org. Accessed on February 2013.Google Scholar
35. Patient Voices. www.patientvoices.org.uk. Accessed on February 2013.Google Scholar
36. The NHS Constitution. The NHS belongs to us all. http://www.nhs.uk/choiceintheNHS/Rightsandpledges/NHSConstitution/Pages/Overview.aspx. Accessed on February 2013.Google Scholar