Skip to main content
×
Home
    • Aa
    • Aa

“All my saints are within me”: Expressions of end-of-life spirituality

  • Marjorie C. Dobratz (a1)
Abstract
AbstractObjective:

With spirituality being one of the most important components of end-of-life (EOL) care, this study explored the oral responses of 44 dying persons who expressed spirituality.

Method:

Four identified spiritual themes: religious systems of beliefs and values, life meaning, purpose and connections with others, nonreligious systems of beliefs and values, and metaphysical or transcendental phenomena served as a framework for a content analysis of 91 spiritual references.

Results:

From the content analysis, eight interrelated and separate themes emerged. Although the highest number of responses centered on religious beliefs and values, nonreligious beliefs and values that included reason, dignity, mental discipline, and communion were expressed. The themes of life meaning, purpose, and connections with others also surfaced as important aspects of EOL spirituality.

Significance of results:

The findings support the need for hospice/palliative care professionals to approach spirituality from other than a Judeo-Christian viewpoint, help dying persons create meaning and purpose within the context of their lives, and assist them in their desire for connectedness to faith communities and other significant individuals in their lives.

Copyright
Corresponding author
Address correspondence and reprint requests to: Marjorie C. Dobratz, University of Washington Tacoma - Nursing Program, 1900 Commerce St. Campus Box 358421, Tacoma, WA 98402. E-mail: mdobratz@u.washington.edu
Linked references
Hide All

This list contains references from the content that can be linked to their source. For a full set of references and notes please see the PDF or HTML where available.

S.R. Alcorn , M.J. Balboni , H.G. Prigerson , (2010). “If God wanted me yesterday, I wouldn't be here today”: Religious and spiritual themes in patients' experiences of advanced cancer. Journal of Palliative Medicine, 13, 581588.

T.A. Balboni , L.C. Vanderwerker , S.D. Block , (2007). Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. Journal of Clinical Oncology, 25, 555560.

K.A. Bryson (2004). Spirituality, meaning, and transcendence. Palliative and Supportive Care, 2, 321328.

J.T. Chibnall , S.D. Videen , P.N. Duckro , (2002). Psychosocial correlates of death distress in patients with life-threatening medical conditions. Palliative Medicine, 16, 331338.

L Chiu ., J.D. Emblen , L. Van Hofwegen , (2004). An integrative review of the concept of spirituality in the health sciences. Western Journal of Nursing Research, 26, 405428.

H.M. Chochinov , T. Hack , S. McClement , (2002). Dignity in the terminally ill: A developing empirical model. Social Science & Medicine, 54, 433443.

M.O. Delgado–Guay , D. Hui , H.A. Parsons , (2011). Spirituality, religiosity, and spiritual pain in advanced cancer patients. Journal of Pain and Symptom Management, 41, 986994.

M.C Dobratz . (1990). The life closure scale: A measure of psychological adaptation in death and dying. The Hospice Journal, 6, 115.

M.C. Dobratz (2004). The life closure scale: Additional psychometric testing of a tool to measure psychological adaptation in death and dying. Research in Nursing & Health, 27, 5262.

E. Grant , S.A. Murray , M. Kendall , (2004). Spiritual issues and needs: Perspectives from patients with advanced cancer and nonmalignant disease. A qualitative study. Palliative and Supportive Care, 2, 371378.

B.A. Hall (1998). Patterns of spirituality in persons with advanced HIV disease. Research in Nursing & Health, 21, 143153.

D.M. Hampton , D.E. Hollis , D.A. Lloyd , (2007). Spiritual needs of persons with advanced cancer. American Journal of Hospice and Palliative Medicine, 24, 4248.

I. Kudel , S. Cotton , M. Szaflarski , (2011). Spirituality and religiosity in patients with HIV: A test and expansion of a model. Annals of Behavioral Medicine, 41, 92103.

K.K. Laubmeier , S.G. Zakowski & J.P. Bair (2004). The role of spirituality in the psychological adjustment to cancer: A test of the transactional model of stress and coping. International Journal of Behavioral Medicine, 11, 4855.

C.S. McClain , B Rosenfeld . & W Breitbart . (2003). Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. Lancet, 361, 16031607.

C. McClain–Jacobson , B. Rosenfeld , A. Kosinski , (2004). Belief in an afterlife, spiritual well-being and end-of-life despair in patients with advanced cancer. General Hospital Psychiatry, 26, 484486.

M.G. Meraviglia (1999). Critical analysis of spirituality and its empirical indicators. Journal of Holistic Nursing, 17, 1833.

H Murata . (2003). Spiritual pain and its care in patients with terminal cancer: Construction of a conceptual framework by philosophical approach. Palliative and Supportive Care, 1, 1521.

C.M. Puchalski , S.D. Kilpatrick , M.E. McCullough , (2003). A systematic review of spiritual and religious variables in Palliative Medicine, American Journal of Hospice and Palliative Care, Hospice Journal, Journal of Palliative Care, and Journal of Pain and Symptom Management. Palliative and Supportive Care, 1, 713.

P.G. Reed (1991). Self-transcendence and mental health in oldest-old adults. Nursing Research, 40, 511.

M Sandelowski . (2011). When a cigar is not just a cigar: Alternative takes on data and data analysis. Research in Nursing & Health, 34, 342352.

L. Selman , R. Harding , M. Gysels , (2011). The measurement of spirituality in palliative care and the content of tools validated cross-culturally: A systematic review. Journal of Pain and Symptom Management, 41, 728753.

L. Sessanna , D. Finnell & M.A. Jezewski (2007). Spirituality in nursing and health-related literature. Journal of Holistic Nursing, 25 (4), 252262.

S. Sinclair , J. Pereira & S. Raffin (2006). A thematic review of the spirituality literature within palliative care. Journal of Palliative Medicine, 9, 464479.

R. Tanyi (2002). Towards clarification of the meaning of spirituality. Journal of Advanced Nursing, 39, 500509.

N. Tarakeshwar , L.C. Vanderwerker , E. Paulk , (2006). Religious coping is associated with quality of life of patients with advanced cancer. Journal of Palliative Medicine, 9, 646657.

J. Thomas & A. Retsas (1999). Transacting self-preservation: A grounded theory of the spiritual dimensions of people with terminal cancer. International Journal of Nursing Studies, 36, 191201.

M. Vachon , L. Fillion & M. Achille (2009). A conceptual analysis of spirituality at the end of life. Journal of Palliative Medicine, 12, 5359.

A-L. Williams (2006). Perspectives on spirituality at the end of life: A meta-summary. Palliative and Supportive Care, 4, 407417.

Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

Palliative & Supportive Care
  • ISSN: 1478-9515
  • EISSN: 1478-9523
  • URL: /core/journals/palliative-and-supportive-care
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Keywords:

Metrics

Altmetric attention score

Full text views

Total number of HTML views: 11
Total number of PDF views: 31 *
Loading metrics...

Abstract views

Total abstract views: 236 *
Loading metrics...

* Views captured on Cambridge Core between September 2016 - 24th June 2017. This data will be updated every 24 hours.