Skip to main content

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
Cancel
×
×
Home
  • Home
Article
  • Cited by 25
  • Cited by
    Crossref Citations
    Crossref logo
    This article has been cited by the following publications. This list is generated based on data provided by CrossRef.
    McKay, James R. Gustafson, David H. Ivey, Megan McTavish, Fiona Pe-Romashko, Klaren Curtis, Brenda Oslin, David A. Polsky, Daniel Quanbeck, Andrew and Lynch, Kevin G. 2018. Effects of automated smartphone mobile recovery support and telephone continuing care in the treatment of alcohol use disorder: study protocol for a randomized controlled trial. Trials, Vol. 19, Issue. 1,
    Mayer, Deborah K. Landucci, Gina Awoyinka, Lola Atwood, Amy K. Carmack, Cindy L. Demark-Wahnefried, Wendy McTavish, Fiona and Gustafson, David H. 2018. SurvivorCHESS to increase physical activity in colon cancer survivors: can we get them moving?. Journal of Cancer Survivorship, Vol. 12, Issue. 1, p. 82.
    Wang, Tao Molassiotis, Alex Chung, Betty Pui Man and Tan, Jing-Yu 2018. Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review. BMC Palliative Care, Vol. 17, Issue. 1,
    Ware, Orrin D. and Cagle, John G. 2018. Informal Caregiving Networks for Hospice Patients With Cancer and Their Impact on Outcomes: A Brief Report. American Journal of Hospice and Palliative Medicine®, p. 104990911879201.
    Namkoong, Kang Shah, Dhavan V. McLaughlin, Bryan Chih, Ming-Yuan Moon, Tae Joon Hull, Shawnika and Gustafson, David H. 2017. Expression and Reception: An Analytic Method for Assessing Message Production and Consumption in CMC. Communication Methods and Measures, Vol. 11, Issue. 3, p. 153.
    Hart, Joanna L. Pflug, Emily Madden, Vanessa and Halpern, Scott D. 2016. Thinking Forward: Future-oriented Thinking among Patients with Tobacco-associated Thoracic Diseases and Their Surrogates. American Journal of Respiratory and Critical Care Medicine, Vol. 193, Issue. 3, p. 321.
    Gregório, Hugo Santos, Patricia Pires, Isabel Prada, Justina and Queiroga, Felisbina Luísa 2016. Comparison of veterinary health services expectations and perceptions between oncologic pet owners, non-oncologic pet owners and veterinary staff using the SERVQUAL methodology. Veterinary World, Vol. 9, Issue. 11, p. 1275.
    Choi, Youn Seon Hwang, Sun Wook Hwang, In Cheol Lee, Yong Ju Kim, Young Sung Kim, Hyo Min Youn, Chang Ho Ahn, Hong Yup and Koh, Su-Jin 2016. Factors associated with quality of life among family caregivers of terminally ill cancer patients. Psycho-Oncology, Vol. 25, Issue. 2, p. 217.
    DuBenske, Lori L. Mayer, Deborah K. and Gustafson, David H. 2016. Oncology Informatics. p. 181.
    Longacre, Margaret L. Galloway, Thomas J. Parvanta, Claudia F. and Fang, Carolyn Y. 2015. Medical Communication-related Informational Need and Resource Preferences Among Family Caregivers for Head and Neck Cancer Patients. Journal of Cancer Education, Vol. 30, Issue. 4, p. 786.
    Schook, Romane Milia Linssen, Cilia Schramel, Franz MNH Festen, Jan Lammers, Ernst Smit, Egbert F Postmus, Pieter E and Westerman, Marjan J 2014. Why Do Patients and Caregivers Seek Answers From the Internet and Online Lung Specialists? A Qualitative Study. Journal of Medical Internet Research, Vol. 16, Issue. 2, p. e37.
    Sherman, Deborah W. McGuire, Deborah B. Free, David and Cheon, Joo Young 2014. A Pilot Study of the Experience of Family Caregivers of Patients With Advanced Pancreatic Cancer Using a Mixed Methods Approach. Journal of Pain and Symptom Management, Vol. 48, Issue. 3, p. 385.
    Niu, Z. -M. Wang, Y. -S. Li, Y. Peng, X. -Y. Cui, X. -Y. Wu, Y. -K. and Liang, C. -S. 2013. More negative emotion and symptom burden for female cancer patients. Psycho-Oncologie, Vol. 7, Issue. 3, p. 175.
    Williams, Anna-leila Tisch, Alison J. Holmes Dixon, Jane and McCorkle, Ruth 2013. Factors associated with depressive symptoms in cancer family caregivers of patients receiving chemotherapy. Supportive Care in Cancer, Vol. 21, Issue. 9, p. 2387.
    Ferrell, Betty Hanson, Jo and Grant, Marcia 2013. An overview and evaluation of the oncology family caregiver project: improving quality of life and quality of care for oncology family caregivers. Psycho-Oncology, Vol. 22, Issue. 7, p. 1645.
    Chih, Ming-Yuan DuBenske, Lori L Hawkins, Robert P Brown, Roger L Dinauer, Susan K Cleary, James F and Gustafson, David H 2013. Communicating advanced cancer patients’ symptoms via the Internet: A pooled analysis of two randomized trials examining caregiver preparedness, physical burden, and negative mood. Palliative Medicine, Vol. 27, Issue. 6, p. 533.
    Carey, Mariko L. Clinton-McHarg, Tara Sanson-Fisher, Robert William and Shakeshaft, Anthony 2012. Development of cancer needs questionnaire for parents and carers of adolescents and young adults with cancer. Supportive Care in Cancer, Vol. 20, Issue. 5, p. 991.
    Wittenberg-Lyles, Elaine Demiris, George Parker Oliver, Debra Washington, Karla Burt, Stephanie and Shaunfield, Sara 2012. Stress Variances Among Informal Hospice Caregivers. Qualitative Health Research, Vol. 22, Issue. 8, p. 1114.
    Namkoong, Kang DuBenske, Lori L. Shaw, Bret R. Gustafson, David H. Hawkins, Robert P. Shah, Dhavan V. McTavish, Fiona M. and Cleary, James F. 2012. Creating a Bond Between Caregivers Online: Effect on Caregivers’ Coping Strategies. Journal of Health Communication, Vol. 17, Issue. 2, p. 125.
    Friðriksdóttir, Nanna Sævarsdóttir, Þórunn Halfdánardóttir, Svandís Íris Jónsdóttir, Arndís Magnúsdóttir, Hrefna Ólafsdóttir, Kristín Lára Guðmundsdóttir, Guðbjörg and Gunnarsdóttir, Sigríður 2011. Family members of cancer patients: Needs, quality of life and symptoms of anxiety and depression. Acta Oncologica, Vol. 50, Issue. 2, p. 252.
    Download full list
    ×
  • Get access
    Add to cart USD35.00
    Check if you have access via personal or institutional login
    Log in Register Recommend to librarian

Caregivers’ differing needs across key experiences of the advanced cancer disease trajectory

  • Lori L. DuBenske (a1), Kuang-Yi Wen (a1), David H. Gustafson (a1), Charles A. Guarnaccia (a2), James F. Cleary (a3), Susan K. Dinauer (a1) and Fiona M. Mctavish (a1)...
Abstract
Objectives:

Familial caregivers are providing increasing amounts of care to advanced cancer patients. Increased understanding of caregivers’ needs is vital in providing necessary support to lessen caregiver burden and morbidity. Current literature has identified caregiver and patient needs at broad stages of the cancer trajectory; however, such broad stages may be too general to inform a practice of targeting specific interventions when they have the greatest utility. This study examines a variety of particular needs across a number of more discrete illness-related transition experiences specifically in the advanced cancer disease trajectory.

Methods:

One hundred fifty-nine female informal caregivers of people with advanced cancer completed a needs assessment survey.

Results:

Analyses of these cross-sectional retrospective-report data reveal that cancer caregiver needs vary across specific key experiences occurring within the broader stages of illness identified by current literature. Furthermore, caregivers have unique needs during bereavement.

Significance of results:

Although the sample characteristics are demographically limited, this study provides preliminary evidence that the broad stages are not specific enough increments for effectively examining caregiver needs and supports the need for more precise distribution of cancer-related information at more discrete times in the illness course.

Copyright
COPYRIGHT: © Cambridge University Press 2008
Corresponding author
Address correspondence and reprint requests to: Lori DuBenske, 1513 University Avenue, ME 4105, Madison, WI 53706. E-mail: lori.dubenske@chess.wisc.edu
References
Hide All
Arno, P.S., Levine, C., & Memmott, M.M. (1999). The economic value of informal caregiving. Health Affairs, 18, 182–188.
Barg, F., Pasacreta, J., Nuamah, I., et al. (1998). A description of a psychoeducational intervention for family caregivers of cancer patients. Journal of Child and Family Nursing, 4, 394–413.
Bass, D.M. & Bowman, K. (1990). The transition from caregiving to bereavement: The relationship of care-related strain and adjustment to death. The Gerontologist, 30, 35–42.
Bernard, L.L. & Guarnaccia, C.A. (2003). Two models of caregiver strain and bereavement adjustment: A comparison of husband and daughter caregivers of breast cancer hospice patients. The Gerontologist, 43, 808–816.
Bernard, L. L. (2004). Needs of familial caregivers of cancer patients across the advanced cancer disease trajectory. Dissertation. Denton, TX: University of North Texas.
Blanchard, C., Albrecht, T. & Ruckdeschel, J. (1997). The crisis of cancer: Psychological impact on family caregivers. Oncology, 11, 189–194.
Bollen, K.A. (1989). Structural Equations with Latent Variables. New York: Wiley.
Gustafson, D.H., Arora, N.K., Nelson, E.C., et al. (2001). Increasing understanding of patient needs during and after hospitalization. Journal of Qualitative Improvement, 27, 81–92.
Haley, W. (2003). Family caregivers of elderly patients with cancer: Understanding and minimizing the burden of care. Journal of Supportive Oncology, suppl. 2, 25–29.
Hardwick, C. & Lawson, N. (1995). The information and learning needs of the caregiving family of the adult cancer patient. European Journal of Cancer Care, 4, 118–121.
Harrison, D., Galloway, S., Graydon, J., et al. (1999). Information needs and preference for information of women with breast cancer over a course of radiation therapy. Patient Education and Counseling, 38, 217–225.
Hileman, J.W. & Lackey, N.R. (1990). Self-identified needs of patients with cancer at home and their home caregivers: A descriptive study. Oncology Nursing Forum, 17, 907–913.
Hileman, J.W., Lackey, N.R., & Hassein, R.S. (1992). Identifying the needs of home caregivers of patients with cancer. Oncology Nursing Forum, 19, 771–777.
Holland, J. (1989). Clinical course of cancer. In Handbook of Psycho-Oncology: Psychological Care of the Patient with Cancer, Holland, J.C. & Rowland, J.H. (eds.), pp. 75–100. New York: Oxford University Press.
Houts, P., Nezu, A., Nezum, C., et al. (1996). The prepared family caregiver: A problem-solving approach to family caregiver education. Patient Education and Counseling, 27, 63–73.
Longman, A.J., Atwood, J.R., Blank-Sherman, J., et al. (1992). Care needs of home-based cancer patients and their caregivers: Quantitative findings. Cancer Nursing, 15, 182–190.
Mills, M. & Davidson, R. (2002). Cancer patients’ sources of information: Use and quality issues. Psychooncology, 11, 371–378.
Silveira, J.M. & Winstead-Fry, P. (1997). The needs of patients with cancer and their caregivers in rural areas. Oncology Nursing Forum, 24, 71–74.
Speice, J., Harkness, J., Laneri, H., Frankel, R., Roter, D., Kornblith, A.B., et al. (2000). Involving family members in cancer care: Focus group considerations of patients and oncological providers. Psychooncology, 9, 101–112.
Steele, R. G., & Fitch, M. I. (1996). Needs of family caregivers of patients receiving home hospice care for cancer. Oncology Nursing Forum, 23, 823–828.
Stetz, K.M. & Hanson, W.K. (1992). Alterations in perceptions of caregiving demands in advanced cancer during and after the experience. Hospice Journal, 8, 21–34.
Thielemann, P. (2000). Educational needs of home caregivers of terminally ill patients: Literature review. American Journal of Hospice and Palliative Care, 17, 253–257.
Wiles, J. (2003). Daily geographies of caregivers: Mobility, routine, scale. Social Science and Medicine, 57, 1307–1325.
Wingate, A.L. & Lackey, N.R. (1989). A description of the needs of noninstitutionalized cancer patients and their primary caregivers. Cancer Nursing, 12, 216–225.
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

Palliative & Supportive Care
  • ISSN: 1478-9515
  • EISSN: 1478-9523
  • URL: /core/journals/palliative-and-supportive-care
Please enter your name
Please enter a valid email address
Who would you like to send this to? *

CAPTCHA *

Skip to the audio challenge
×

Keywords

Metrics

Full text views

Total number of HTML views: 3
Total number of PDF views: 52 *
Loading metrics...

Abstract views

Total abstract views: 285 *
Loading metrics...

* Views captured on Cambridge Core between September 2016 - 22nd August 2018. This data will be updated every 24 hours.

Cancel
Confirm
×