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Caregivers’ differing needs across key experiences of the advanced cancer disease trajectory

  • Lori L. DuBenske (a1), Kuang-Yi Wen (a1), David H. Gustafson (a1), Charles A. Guarnaccia (a2), James F. Cleary (a3), Susan K. Dinauer (a1) and Fiona M. Mctavish (a1)...
Abstract
Objectives:

Familial caregivers are providing increasing amounts of care to advanced cancer patients. Increased understanding of caregivers’ needs is vital in providing necessary support to lessen caregiver burden and morbidity. Current literature has identified caregiver and patient needs at broad stages of the cancer trajectory; however, such broad stages may be too general to inform a practice of targeting specific interventions when they have the greatest utility. This study examines a variety of particular needs across a number of more discrete illness-related transition experiences specifically in the advanced cancer disease trajectory.

Methods:

One hundred fifty-nine female informal caregivers of people with advanced cancer completed a needs assessment survey.

Results:

Analyses of these cross-sectional retrospective-report data reveal that cancer caregiver needs vary across specific key experiences occurring within the broader stages of illness identified by current literature. Furthermore, caregivers have unique needs during bereavement.

Significance of results:

Although the sample characteristics are demographically limited, this study provides preliminary evidence that the broad stages are not specific enough increments for effectively examining caregiver needs and supports the need for more precise distribution of cancer-related information at more discrete times in the illness course.

Copyright
COPYRIGHT: © Cambridge University Press 2008
Corresponding author
Address correspondence and reprint requests to: Lori DuBenske, 1513 University Avenue, ME 4105, Madison, WI 53706. E-mail: lori.dubenske@chess.wisc.edu
References
Hide All
Arno, P.S., Levine, C., & Memmott, M.M. (1999). The economic value of informal caregiving. Health Affairs, 18, 182–188.
Barg, F., Pasacreta, J., Nuamah, I., et al. (1998). A description of a psychoeducational intervention for family caregivers of cancer patients. Journal of Child and Family Nursing, 4, 394–413.
Bass, D.M. & Bowman, K. (1990). The transition from caregiving to bereavement: The relationship of care-related strain and adjustment to death. The Gerontologist, 30, 35–42.
Bernard, L.L. & Guarnaccia, C.A. (2003). Two models of caregiver strain and bereavement adjustment: A comparison of husband and daughter caregivers of breast cancer hospice patients. The Gerontologist, 43, 808–816.
Bernard, L. L. (2004). Needs of familial caregivers of cancer patients across the advanced cancer disease trajectory. Dissertation. Denton, TX: University of North Texas.
Blanchard, C., Albrecht, T. & Ruckdeschel, J. (1997). The crisis of cancer: Psychological impact on family caregivers. Oncology, 11, 189–194.
Bollen, K.A. (1989). Structural Equations with Latent Variables. New York: Wiley.
Gustafson, D.H., Arora, N.K., Nelson, E.C., et al. (2001). Increasing understanding of patient needs during and after hospitalization. Journal of Qualitative Improvement, 27, 81–92.
Haley, W. (2003). Family caregivers of elderly patients with cancer: Understanding and minimizing the burden of care. Journal of Supportive Oncology, suppl. 2, 25–29.
Hardwick, C. & Lawson, N. (1995). The information and learning needs of the caregiving family of the adult cancer patient. European Journal of Cancer Care, 4, 118–121.
Harrison, D., Galloway, S., Graydon, J., et al. (1999). Information needs and preference for information of women with breast cancer over a course of radiation therapy. Patient Education and Counseling, 38, 217–225.
Hileman, J.W. & Lackey, N.R. (1990). Self-identified needs of patients with cancer at home and their home caregivers: A descriptive study. Oncology Nursing Forum, 17, 907–913.
Hileman, J.W., Lackey, N.R., & Hassein, R.S. (1992). Identifying the needs of home caregivers of patients with cancer. Oncology Nursing Forum, 19, 771–777.
Holland, J. (1989). Clinical course of cancer. In Handbook of Psycho-Oncology: Psychological Care of the Patient with Cancer, Holland, J.C. & Rowland, J.H. (eds.), pp. 75–100. New York: Oxford University Press.
Houts, P., Nezu, A., Nezum, C., et al. (1996). The prepared family caregiver: A problem-solving approach to family caregiver education. Patient Education and Counseling, 27, 63–73.
Longman, A.J., Atwood, J.R., Blank-Sherman, J., et al. (1992). Care needs of home-based cancer patients and their caregivers: Quantitative findings. Cancer Nursing, 15, 182–190.
Mills, M. & Davidson, R. (2002). Cancer patients’ sources of information: Use and quality issues. Psychooncology, 11, 371–378.
Silveira, J.M. & Winstead-Fry, P. (1997). The needs of patients with cancer and their caregivers in rural areas. Oncology Nursing Forum, 24, 71–74.
Speice, J., Harkness, J., Laneri, H., Frankel, R., Roter, D., Kornblith, A.B., et al. (2000). Involving family members in cancer care: Focus group considerations of patients and oncological providers. Psychooncology, 9, 101–112.
Steele, R. G., & Fitch, M. I. (1996). Needs of family caregivers of patients receiving home hospice care for cancer. Oncology Nursing Forum, 23, 823–828.
Stetz, K.M. & Hanson, W.K. (1992). Alterations in perceptions of caregiving demands in advanced cancer during and after the experience. Hospice Journal, 8, 21–34.
Thielemann, P. (2000). Educational needs of home caregivers of terminally ill patients: Literature review. American Journal of Hospice and Palliative Care, 17, 253–257.
Wiles, J. (2003). Daily geographies of caregivers: Mobility, routine, scale. Social Science and Medicine, 57, 1307–1325.
Wingate, A.L. & Lackey, N.R. (1989). A description of the needs of noninstitutionalized cancer patients and their primary caregivers. Cancer Nursing, 12, 216–225.
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Palliative & Supportive Care
  • ISSN: 1478-9515
  • EISSN: 1478-9523
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