2001: Research by children. International Journal of Social Research Methodology
Barber, R., Beresford, P., Boote, J., Cooper, C. and Faulkner, A.
2011: Evaluating the impact of public involvement on research: a prospective case study. International Journal of Consumer Studies
Boote, J., Baird, W. and Sutton, A.
2011: Public involvement in the design and conduct of clinical trials: a review. The International Journal of Interdisciplinary Social Sciences
Boote, J., Wong, R. and Booth, A.
2015a: “Talking the talk or walking the walk?” A bibliometric review of the literature on public involvement in health research published between 1995 and 2009. Health Expectations
Boote, J., Jones, Z., McKevitt, C., Wallace-Watson, C. and Rogers, H.
2015b: Public involvement in, and engagement with, studies adopted onto the NIHR Stroke Research Network: questionnaire survey. International Journal of Stroke
Boote, J., Twiddy, M., Baird, W., Birks, Y., Clarke, C. and Beever, D.
2013: Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS). Health Expectations. Early View (online version). doi:10.1111/hex.12130.
Brett, J., Staniszewska, S., Mockford, C., Seers, K., Herron-Marx, S. and Bayliss, H.
2010: The PIRICOM study: a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. London: UK Clinical Research Collaboration Retrieved 20 April 2015 from http://www.ukcrc.org/wp-content/uploads/2014/03/Piricom+Review+Final+2010.pdf.
Clavering, E.K. and McLaughlin, J.
2010: Children’s participation in health research: from objects to agents?
Child Care Health and Development
Consumers in NHS Research. 2000: Involving consumers in randomised controlled trials. Report of a seminar organised by Consumers in NHS Research and the Medical Research Council Clinical Trials Unit.
Couzos, S., Lea, T., Murray, R. and Culbong, M.
2005: ‘We are not just participants--we are in charge’: the NACCHO ear trial and the process for Aboriginal community-controlled health research. Ethnicity and Health
Department of Health.
2005: Research governance framework for health and social care, second edition. London: Department of Health.
Edwards, V., Wyatt, K., Logan, S. and Britten, N.
2011: Consulting parents about the design of a randomized controlled trial of osteopathy for children with cerebral palsy. Health Expectations
14 (4), 429–438.
Fleming, J. and Hudson, N.
2009: Young people and research: participation in practice. In Wood, J. and Hine, J., editors Work with young people: theory and policy for practice. London: Sage, 114–126.
Gorin, S., Hooper, C., Dyson, C. and Cabral, C.
2008: Ethical challenges in conducting research with hard to reach families. Child Abuse Review
Hanley, B., Truesdale, A., King, A., Elbourne, D. and Chalmers, I.
2001: Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey. British Medical Journal
Hanley, B., Bradburn, J., Barnes, M., Gorin, S., Evans, C., Goodare, H., Kelson, M., Kent, A., Oliver, S., Thomas, S. and Wallcraft, J.
2003. Involving the public in NHS, public health and social care research: briefing notes for researchers, second edition. Eastleigh: INVOLVE.
1992: Children's participation from Tokenism to Citizenship. Florence: Innocenti Research Centre.
Horspool, M., Julious, S.A., Boote, J., Bradburn, M.J., Cooper, C.L., Davis, S., Elphick, H., Norman, P., Smithson, W.H. and van Staa, T.
2013: Preventing and lessening exacerbations of asthma in school-age children associated with a new term (PLEASANT): study protocol for a cluster randomised control trial. Trials
Julious, S.A., Jiwa, M. and Osman, L.
2007: Hospital asthma admissions in school age asthmatics associated with the return back to school. Public Health
Julious, S.A., Campbell, M.J., Bianchi, S.M. and Murray-Thomas, T.
2011: Seasonality of medical contacts in school-aged children with asthma: association with school holidays. Public Health
2005: Children as active researchers: A new research paradigm for the 21st century? ESRC, UK. Retrieved 28 August 2015 from http://oro.open.ac.uk/7539/1/.
2009: Children and young people’s participation. In H. Montogomery and M. Kellett, editors Children and young people’s worlds. Bristol: Policy Press, 43–60.
2004: A guide to actively involving young people in research: for researchers, research commissioners, and managers. Eastleigh: INVOLVE.
Koniotou, M., Evans, B., Chatters, R., Fothergill, R., Garnsworthy, C., Gaze, S., Halter, M., Mason, S., Peconi, M., Porter, A., Siriwardena, A., Toghill, A. and Snooks, H.
2015: Involving older people in a multi-centre randomised trial of a complex intervention in pre-hospital emergency care: implementation of a collaborative model. Trials
Littlewood, C., Ashton, J., Scott, E., Mawson, S., May, S. and Walters, S.
2013: Developing the SELF study: focus group with patients and the public. International Journal of Therapy and Rehabilitation
2012: Who benefits? A critical reflection of children and young people’s participation in sensitive research. International Journal of Social Research Methodology
2005: Conducting social research with young people: ethical considerations. In T. Skinner, M. Hester and E. Malos, editors Researching women and violence: creating evidence for change. Devon: Willan Publishing, 87–104.
2005: Young service users as co-researchers: Methodological problems and possibilities. Qualitative Social Work
2006: Involving young service users as co-researchers: possibilities, benefits and costs. British Journal of Social Work
2007: Ethical issues in the involvement of young service users in research. Ethics and Social Welfare
Morrow, V. and Richards, M.
1996: The ethics of social research with children: an overview. Children and Society
Oliver, K., Rees, R., Brady, L.-M., Kavanagh, J., Oliver, S. and Thomas, J.
2015: Broadening public participation in systematic reviews: a case example involving young people in two configurative reviews. Research Synthesis Methods
Partridge, N. and Scadding, J.
2004: The James Lind Alliance: patients and clinicians should jointly identify their priorities for clinical trials. The Lancet
Patient Protection and Affordable Care Act.
2010: Public Law, 111–148.
Shippee, N., Garces, J.P.D., Prutsky, G.L., Lopez, G.J., Wang, Z., Elraiyah, T.A., Nabhan, M., Brito, J.P., Boehmer, K., Hasan, R., Firwana., B., Erwin, P.J., Montori, V.M. and Murad, M.H.
2013: Patient and service user engagement in research: a systematic review and synthesized framework. Health Expectations
Staniszewska, S., Herron-Marx, S. and Mockford, C.
2008: Measuring the impact of patient and public involvement: the need for an evidence base. International Journal for Quality in Health Care
Thomas, N. and O’Kane, C.
1998: The ethics of participatory research with children. Children and Society
2010: Questioning research with children: discrepancy between theory and practice?
Children & Society
Vale, C., Thompson, L., Murphy, C., Forcat, S. and Hanley, B.
2012: Involvement of consumers in studies run by the Medical Research Council Clinical Trials Unit: results of a survey. Trials
Williams, T., van Staa, T., Puri, S. and Eaton, S.
2012: Recent advances in utility and use of the General Practice Research Database as an example of a UK primary care data resource. Therapeutic Advances in Drug Safety