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Psychosocial concerns reported by Syrian refugees living in Jordan: Systematic review of unpublished needs assessments

Published online by Cambridge University Press:  02 January 2018

Ruth Wells
Affiliation:
University of Sydney, Australia
Zachary Steel
Affiliation:
School of Psychiatry, University New South Wales, The Black Dog Institute, Hospital Road, Prince of Wales Hospital, New South Wales, Australia
Mohammad Abo-Hilal
Affiliation:
Syria Bright Future
Abdul Halim Hassan
Affiliation:
American Medical Center, Erbil, Iraq
Catalina Lawsin
Affiliation:
Department of Behavioral Sciences, RUSH Medical Center, Chicago, USA
Corresponding
Rights & Permissions[Opens in a new window]

Abstract

Background

Humanitarian organisations supporting Syrian refugees in Jordan have conducted needs assessments to direct resources appropriately.

Aims

To present a model of psychosocial concerns reported by Syrian refugees and a peer review of research practices.

Method

Academic and grey literature databases, the United Nations Syria Regional Response website, key humanitarian organisation websites and Google were searched for needs assessments with Syrian refugees in Jordan between February 2011 and June 2015. Information directly reporting the views of Syrian refugees regarding psychosocial needs was extracted and a qualitative synthesis was conducted.

Results

Respondents reported that psychological distress was exacerbated by both environmental (financial, housing, employment) and psychosocial outcomes (loss of role and social support, inactivity), which are themselves stressors. Need for improvement in research methodology, participatory engagement and ethical reporting was evident.

Conclusions

Participatory engagement strategies might help to address identified psychosocial outcomes. More rigorous qualitative methods are required to ensure accuracy of findings.

Type
Review articles
Copyright
Copyright © Royal College of Psychiatrists, 2016 

The United Nations (UN) has labelled the current Syrian conflict as the worst humanitarian crisis that has occurred within the first part of the 21st century. 1 It is estimated that there are in excess of 4 million displaced Syrian refugees in the Middle East and over 629 000 who have been displaced to Jordan, 2 the focus of this review. Although many displaced Syrians live in refugee camps, the largest being Za'atari camp which is home to over 120 000 people, the vast majority live in the host community. Reference Murshidi, Hijjawi, Jeriesat and Eltom3 In Jordan, people from Syria have limited access to work permits and are often required to work in the informal sector to secure livelihood. Those registered with the UN are eligible to access some cash assistance, food vouchers and education and health systems, 4 although the health system has struggled to keep up with demand. Reference Murshidi, Hijjawi, Jeriesat and Eltom3 Stressors inherent in forced displacement, Reference Wessells5 combined with exposure to potentially traumatic events (PTEs) during conflict, Reference Steel, Chey, Silove, Marnane, Bryant and van Ommeren6 are likely to contribute to the development of heightened mental health difficulties in such settings. Reference Miller and Rasmussen7,Reference Charlson, Steel, Degenhardt, Chey, Silove and Marnane8 Over recent years humanitarian organisations have increasingly undertaken psychosocial needs assessments to inform the development of aid programmes. These assessments are of critical importance in that they not only inform policy development but provide early snapshots of the problems experienced by populations subjected to forced displacement. This literature has largely remained unreported in peer-reviewed settings; however, it is important as first-line evidence of psychosocial needs in emerging crises, Reference Quosh, Eloul and Ajlani9,Reference Tol, Barbui, Galappatti, Silove, Betancourt and Souza10 as well as providing an opportunity for review of the methodological rigour of such assessments. Reference Ager, Burnham, Checchi, Gayer, Grais and Henkens11,Reference Tol, Patel, Tomlinson, Baingana, Galappatti and Silove12

International consensus has identified the most pressing psychosocial research questions within crisis settings as the identification of stressors faced by displaced persons, and how refugee populations perceive and describe their psychosocial concerns. 13Reference Tol, Patel, Tomlinson, Baingana, Galappatti and Panter-Brick16 A large number of needs assessments of mental health concerns among Syrian refugees in Jordan have now been undertaken in response to the refugee and humanitarian crisis in that country. A critical factor in reviewing such assessments is assessing the quality of the reports, in relation to both methodological rigour and consideration of ethical research principles. Reference Evans and Pearson17Reference Blaxter19 Adherence to qualitative research standards and ethical practice is necessary despite the practical challenges of achieving this in humanitarian aid situations, 20 with deviation from this likely to undermine the value of the research and potentially undermine relationships between researchers and participants.

This systematic review draws together existing reports of needs assessments undertaken between February 2011 and June 2015 in Jordan, a leading country of first asylum for people fleeing Syria. In reviewing these assessments we aim to create a model of psychosocial concerns identified by Syrian refugees and to subject the design of conducted needs assessments to independent review.

Method

We undertook a combined search of peer-reviewed academic abstracting databases (PsycINFO, Medline, Scopus, PILOTS, Science Direct and Proquest), grey literature databases (Grey Literature Report, Open Grey and National Repository of Grey Literature), Reference Myohanen, Taylor and Keith2123 humanitarian organisation websites and also internet searches using the Google search engine (see online Table DS1 for a list of search terms and databases). Searches were conducted in two waves (May 2014 and June 2015). The searches aimed to identify English-language needs assessments that included the terms Syria, refugee and needs assessment between February 2011 and June 2015. Search terms were broad and were varied according to database indexing system and information source. Where available, database subject indexing terms were used to identify relevant articles. Where subject heading results were limited, additional text keyword searches were conducted. Grey literature databases that index documents not published in peer-reviewed journals, such as technical or research reports, doctoral dissertations and conference papers, were also searched. The UN Syria Refugee Response interagency information-sharing portal also lists documents shared by UN partner organisations. 24 All documents from this list, limited to reports conducted in Jordan and written in English, were downloaded. Relevant humanitarian organisation websites were text searched with keywords detailed in online Table DS1, using the Google search engine to limit results to specific websites and portable document format (pdf) documents. For indexed databases, abstracts were downloaded. In all other cases the full text of identified reports was downloaded and individual references created for each document and imported into Endnote in order to remove duplicates. Searches were conducted by the first author (R.W.). This process identified 2256 articles published or released between February 2011 and June 2015, the period reviewed following the mass displacement of Syrian refugees.

Selection process

Titles and abstracts (if available) of articles were systematically searched for reports of assessments of need, using qualitative or mixed qualitative and quantitative methods, among Syrian people of any age, living in Jordan, displaced by the current crisis. Identified needs assessments were examined by two authors (R.W. and C.L.) to determine if they included psychosocial concerns as reported by the refugees themselves, and agreement reached. For the purpose of this review, psychosocial concerns included distress and symptoms of low mood or anxiety; reported issues resulting from known risk factors for mental health impairment, including gender-based violence, lack of social support, loss of role and conflict-related PTEs; and community desires to build capacity to address psychosocial displacement challenges. Reports based only on data from stakeholders or service providers were not included, unless the informants were explicitly stated to be Syrian refugees. For non-published reports, full reports were text searched for words containing psych, social, support, mental, MHP (abbreviation of MHPSS), or distress. The context of identified words was inspected and reports that directly discussed psychosocial needs identified by Syrian refugees were included. The full text was also visually scanned for sections referring to psychosocial outcomes.

Methodological quality

The Inter-Agency Standing Committee (IASC) Guidelines on Mental Health and Psychosocial Support in Emergency Settings establish best-practice models for responding to psychosocial needs in humanitarian crises. 25,26 These guidelines recommend that humanitarian service provision is based on ongoing assessment of the psychosocial concerns of the community, 27 and recognises that externally driven programmes will not be sustainable. Reference Wessells5 The guidelines highlight the need to ensure ethical practice, including informed consent and non-expectation of reward for research participation, and participatory engagement and capacity-building practices (hereafter referred to as participatory engagement), which include community stakeholders and training of local staff and volunteers, to facilitate community ownership of programmes, 25 and to help ensure interventions are ethical and culturally appropriate. Reference Wessells5,Reference Taleb, Bahelah, Fouad, Coutts, Wilcox and Maziak28

We drew on the Cochrane guidelines for inclusion of qualitative research in systematic reviews with assessment quality in four domains: credibility, transferability, dependability and confirmability. Reference Hannes, Noyes, Booth and Hannes29 Credibility refers to methods such as member checking (review of emergent themes by research participants or relevant community members), peer debriefing and independent rating, which help ensure that results reflect the views of the participants. Credibility may be enhanced by partnership and engagement. Transferability refers to whether findings can be applied or generalised to other contexts, which is enabled by provision of detailed information about participants and their context. Dependability can be promoted through peer review, debriefing, connection to existing literature, the use of accepted analysis methods and triangulation of data sources. Confirmability may be enhanced by reflexivity regarding the researcher's role, bias, school of thought and impact on the participants and outcomes.

In order to evaluate the methodology of the psychosocial needs assessments we applied existing rating scales, Reference Evans and Pearson17,Reference Popay, Rogers and Williams30 including items from criteria outlined by Blaxter and Popay et al, Reference Blaxter19,Reference Popay, Rogers and Williams30 with the addition of an item relating to ethical procedures. Reports were scored as low, medium or high (0, 1 and 2 respectively) on each checklist item. Online Table DS2 outlines the checklist items and the criteria used to score reports at each level. For each methodological domain an average quality score out of 2 was calculated from all scores on items within that domain, and graded as ‘does not satisfy minimum criteria’ (<1), ‘satisfies minimum criteria’ (⩾1) or ‘high-quality adherence’ (>1.5). Report quality indicators for each domain and total score were compared between the two searches using independent means t-tests. Significance level was set at P<0.05.

Qualitative data synthesis

In developing a synthesis of needs across assessments, we employed thematic analysis for integrating perceived needs of refugees. Reference Braun and Clarke18 Reports were coded into key themes, which were cross-coded and iteratively revised to identify core themes (online Table DS3). To ensure that findings reflected relevant community attitudes, emerging themes were presented to two Syrian psychiatrists currently treating Syrian refugees in Jordan (A.H.H. and M.A.H.) and were revised accordingly. For themes emerging in at least six articles, the percentage of assessments reporting each theme is given in parenthesis in the section below. As the majority of reports employed open questioning and often did not provide copies of the questions asked of respondents, it was not possible to list the prevalence of those reporting an issue as a percentage of reports that examined that issue. In line with recommendations for psychosocial interventions in post-conflict and mass trauma settings, Reference Silove31,Reference Hobfoll, Watson, Bell, Bryant, Brymer and Friedman32 we distinguished between environmental stressors – objective factors that affect access to basic necessities, Reference Ryan, Dooley and Benson33 such as housing, food, safety, security and rights – and psychosocial impacts, subjectively mediated impacts of environmental stressors, which may themselves become stressors and lead to cycles of resource loss. Reference Hobfoll34

Results

Searches identified 2256 articles. Following removal of 1989 duplicates and exclusions by title, 267 articles were retrieved with 29 meeting inclusion criteria (Fig. 1). The reports are listed in online supplement DS2, and online Table DS4 provides demographic information and report characteristics. Results were reported for a total sample of 15 720 refugees in 13 regions of Jordan, including those in refugee camps or host communities, between May 2012 and June 2015. Respondents ranged in age from below 6 years to 85 years and originated from six regions in Syria, most predominantly Deraa, Homs and Damascus. Online Fig. DS1 shows the locations of studies, with most being concentrated in the north of Jordan, and the sample size for each study at each location. The scope of reports varied, with some focusing on specific issues and others only assessing psychosocial issues as part of a larger logistic and operations review. Population-wide psychosocial needs were the primary focus of 17% of the reports. The remainder of reports that also included a needs assessments were intended to determine current general needs (31%), general needs (e.g. housing, food), educational needs (14%), health needs (10%) or the psychosocial needs of specific subgroups such as women or young people (28%), in order to guide immediate aid implementation across a range of domains. Online Table DS4 lists the assessment type of each report.

Fig. 1 Flow chart of article selection process. See online Table DS1 for database details.

Synthesis of psychosocial needs

Environmental stressors

Insecure housing and lack of income to pay rent was rated as a concern in all reports that assessed this issue (18 reports; 62%); see online Table DS3 for quotes and exemplars of each theme with individual report numbers listed). Rent costs were reported to be excessive and increasing, 35 with some households selling food rations to pay rent. 35Reference Serrato39 Refugees reported living in overcrowded conditions in 9 reports (31%); for example, up to 18 people in a single home were cited. 40 Refugees linked cramped living conditions to their psychological health, 41 and to family conflict. 42 They reported work exploitation (13 reports; 45%), including child labour leading to missing school, Reference Serrato39,40,4345 and employment restrictions leading to work in the informal sector, Reference Serrato39,43,45 where they were subjected to long hours, 46Reference Doedens, Giga, Krause, Onyango, Sami and Stone48 low pay, and abuse and harassment. 43,45 Difficulties associated with complicated registration processes were reported to limit access to healthcare, 49 education, 50 and services. Reference Serrato39,51 Women reported sexual harassment (17 reports; 59%), including pressure to accept unwanted marriage proposals, 43,45 or being asked for sexual favours in exchange for financial aid, 44,45 with fear of the host community, 35,Reference Serrato39,45,49,52 and movement restrictions (6 reports, 21%), being reported by women as a result. Eight reports (28%) noted that discrimination limited access to healthcare, Reference Serrato39,49 and to housing; 44,52 13 (45%) reported verbal abuse and insults in public, and 9 (31%) reported physical abuse in the street, as well as at school for children, resulting in many children leaving education. Reference Serrato39,42,43,50,53 Approximately half of Syrian children were identified as not attending school. 40,43,53 In counterbalance, two reports noted positive interactions with the host community. 49,52

Psychosocial impacts

Syrian refugees reported that environmental stressors led to psychosocial impacts which themselves created an additional level of stress in 23 reports (79%). This included loss of social and occupational role (11 reports; 38%) and having nothing to do (7 reports; 24%), which was identified as contributing to increases in domestic conflict (6 reports; 21%). Respondents reported social isolation due to loss of contact with social support structures and fear of abuse outside the home in 15 reports (52%). Isolation was reported to be worse in the host community, 40,42 with limited spaces for social engagement. 41,51,54 Many could not afford hospitality and feared being a burden on others if they visited them. 46,47

Symptoms of distress

Being worried or distressed by practical circumstances and uncertainty was commonly reported (24 reports; 83%). In 15 reports (52%), Syrian refugees identified that PTEs (e.g. war and displacement related) had led to symptoms of distress, 43,45,49,52 including anger, 43,52,55 and increased general fear. 42,53 They reported being frightened by reminders of PTEs, including the sounds of aircraft, guns or firecrackers (7 reports; 39%) and avoiding them. 55 Parents and children reported distress and fear about family separation (7 reports; 24%). Children reported fears of burning, being arrested, being shot or kidnapped. 41 Symptoms of depression and low mood were also commonly reported (20 reports; 69%), including symptoms of sadness, Reference Serrato39,40,45,50,52,55 hopelessness, 43,47,52,53,55 lethargy, 54 loss of interest, 44,55,56 insomnia, 36,37,46,47,52 impaired concentration, 47,5255 suicidal ideation, 37,47,57,58 and self-harm. 42 One report noted deterioration in psychological symptoms in surveys that spanned multiple time assessments. 35

Interactions with stressors

Refugees reported that psychological symptoms interacted with the other displacement stressors and often led to anger (10 reports; 34%), further exacerbating familial distress. 36 Inactivity, loss of role and psychological symptoms were perceived to be leading to aggressive behaviour among young men in the camp setting (8 reports; 27%). Adults linked children's aggressive behaviour to psychological problems. 42,52,59 Violence within the refugee community was another reason for children not attending school. 35,59,60 The stresses of life in displacement, especially inactivity, 35,56 were seen as leading to family conflict and domestic violence in 14 reports (48%), which was reported to be common, 40,42,50,55 and increasing. 45,47,Reference Doedens, Giga, Krause, Onyango, Sami and Stone48,52,61 In one report 38% of Syrians reported child abuse in the family. 58

Psychosocial support services

Groups in 11 reports (38%) asked for increases in psychosocial support services and community activities to relieve stress. Many highlighted satisfaction with the range of activities available at informal education centres, preferring them to schools, 50,53 whereas others commented that there were many activities for girls but not for boys. 37,56 Victims of conflict-related and familial gender-based violence were reported to be prevented from seeking physical or psychological care owing to stigma and safety fears, 37Reference Serrato39,Reference Doedens, Giga, Krause, Onyango, Sami and Stone48 or lack of information. 44 There was recognition of the problem of gender-based violence across reports, 37Reference Serrato39,44,45,Reference Doedens, Giga, Krause, Onyango, Sami and Stone48,59 with young men requesting awareness sessions to reduce domestic violence. 56 Young women also requested awareness sessions regarding early marriage, 38 and there was social action by groups of women participating in public performances exploring this issue. 60 The refugees displayed a desire to be involved in the process of community support or activities that could mobilise social resources (11 reports; 38%) and requested skills development (6 reports; 21%), including psychosocial care skills and legal procedures. Reference Serrato39,50 Many highlighted the benefits of informal community supports, 44 and self-directed participatory engagement in community life, 45,53 including kin caring for children separated from their parents, 40 and children requesting the chance to help others. 62 Refugees also reported that their offers to volunteer or provide feedback were ignored by humanitarian organisations. Reference Serrato39,41,Reference Doedens, Giga, Krause, Onyango, Sami and Stone48 Syrian volunteer teachers expressed frustration at not being permitted a greater role in the education of children in Za'atari camp, 59 even though children said they preferred Syrian teachers. 53

Evaluation of report quality

Table 1 outlines the findings of the methodology review for the 29 psychosocial assessments. For each of the five domains a quality score out of 2 was derived. This represents an average across all 29 reports for each of the domains. A score for a domain of less than 1.0 indicates the reports did not satisfy minimum criteria for that domain; a score of 1.0–1.5 means minimum criteria were met (medium quality) and a score above 1.5 indicates that the majority of reports met the majority of criteria for that domain (high quality). For each quality checklist item the percentage of reports employing a minimum level of rigour were defined as those that met either medium- or high-quality concordance ratings across each of the checklist items. The table also presents the percentage of reports meeting the highest quality ranking for each item. A copy of the individual scores for each needs assessment is available from the authors. Dependability scores (see definition above) on average satisfied minimum criteria (average 1.1 across reports and criteria). Most reports (90%) reviewed relevant literature (59% high quality) with 93% of reports also using some form of triangulation of multiple data sources (62% high); 72% of reports used trained staff or provided training to staff (24% high) and 72% described data collection and analysis procedures (45% high). However, only 41% described the qualitative data analysis techniques applied (31% high) and only 45% used supervision or debriefing procedures (24% high). On average, transferability scores satisfied minimum criteria (average score across reports and criteria 1.4). Most (90%) placed the findings reported in the relevant context (55% high); 90% of reports provided adequate description of research setting (55% high); 76% gave clear accounts of sampling (55% high) and 66% used purposive sampling to target specific groups (55% high).

Table 1 Methodological quality ratings across reports

Mean score (0–2) Reports
achieving score, %
Criteria ⩾ 1.0 ⩾ 1.5
Dependability 1.1 34 24
    Review of literature 1.5 31 59
    Clear accounts of data collection
    and analysis
1.2 28 45
    Training provided or trained staff 1.0 48 24
    Supervision or peer debriefing 0.7 21 24
    Qualitative analysis procedures 0.7 10 31
    Triangulation 1.6 31 62
Transferability 1.4 34 45
    Clear accounts of sampling 1.3 21 55
    Purposive sampling 1.2 10 55
    Adequate description 1.5 28 62
    Data is contextualised 1.4 34 55
Confirmability 1.0 31 24
    Adapt design to context 1.1 24 41
    Discussion of tools 1.2 34 41
    Reflexivity or bias 0.8 21 28
Credibility 0.8 28 14
    Member checking 0.4 10 17
    Privileges knowledge
    of respondents
1.4 28 59
    Participatory 0.6 10 24
Ethics 1.0 0 0
    Ethics statement 1.0 7 45

Confirmability scores on average also satisfied minimum criteria (average 1). Half (48%) of reports included researcher reflexivity (28% high); three-quarters (76%) discussed the impact of tools employed (41% high) and two-thirds (66%) reported adapting research tools to the local context (41% high). On average, credibility, partnership and engagement scores across the reports did not meet minimum criteria (average 0.8). Although 86% of reports privileged the knowledge of refugees over other sources within qualitative analysis (59% high), only a third of needs assessments (34%) used some form of participatory engagement to ensure the inclusion of refugees within research design and implementation (24% high) and only 28% of reports used member checking procedures to confirm findings (17% high). In terms of ethical practices, on average reports did not meet minimum criteria (average 0.9); 52% of reports described ethical procedures (44% high). There was considerable improvement from the first systematic search (2014) to the second (2015), with significant differences between the two searches in dependability (t(27) = 2.2, P = 0.04), confirmability (t(27) = 2.2, P = 0.04) and total quality score (t(27) = 2.4, P = 0.03).

Discussion

Across the surveys reviewed, Syrian refugees living in Jordan reported distress as a direct result of both PTEs and stressors inherent in the displacement setting. These factors interact to exacerbate distress. Despite the stigma associated with mental healthcare-seeking documented among Syrian populations, Reference Quosh, Eloul and Ajlani9,Reference Maziak, Asfar, Mzayek, Fouad and Kilzieh63 substantial numbers of displaced Syrian people in Jordan identified the impact of stressors on mental health difficulties within the community across the majority of the needs assessments undertaken, and a proportion requested access to psychosocial support. It is unclear if this represents a cultural shift in attitudes to mental healthcare or has spontaneously arisen from the experiences of the refugees, especially considering that only 17% of the needs assessment reports were explicitly focused on assessing psychosocial needs.

Figure 2 depicts a model derived from the current findings. Consistent with Miller & Rasmussen, Reference Miller and Rasmussen7 this model describes how PTEs during conflict and/or displacement exert a direct effect on psychological symptoms, whereas displacement stressors mediate the effect of PTEs on psychological symptoms. In addition, as demonstrated in other post-conflict settings, Reference Brooks, Silove, Steel, Steel and Rees64 the importance of anger responses arising from PTEs and socioeconomic stressors is also highlighted. Previous research has demonstrated that exposure to PTEs has a direct effect on anxiety and mood symptoms. Reference Steel, Chey, Silove, Marnane, Bryant and van Ommeren6 The interaction of environmental stressors and psychosocial outcomes worsens psychological symptoms and daily functioning, Reference Miller and Rasmussen7,Reference Quosh, Eloul and Ajlani9 making it harder to work. Reference Al-Hamzawi, Rosellini, Lindberg, Petukhova, Kessler and Bruffaerts65 Environmental stressors, such as lack of employment rights, Reference Quosh66 affect mental health outcomes, Reference Silove, Steel, Susljik, Frommer, Loneragan and Chey67 and produce psychosocial outcomes that themselves become stressors, such as social isolation. Reference Hobfoll34 Loss of social support increases feelings of loneliness, worsening symptoms of depression, Reference Cummings, Sull, Davis and Worley68 further isolating those most in need of help. Finally, reactions to PTEs and displacement stressors lead to increased anger and aggression. Reference Quosh, Eloul and Ajlani9,Reference Brooks, Silove, Steel, Steel and Rees64 The interaction of PTEs, environmental stressors and psychosocial outcomes creates continuous feedback, reinforcing mental health impairment in the absence of protective factors. In line with best practice models for psychosocial interventions in humanitarian aid settings, 25,Reference Silove31,Reference Hobfoll, Watson, Bell, Bryant, Brymer and Friedman32 interventions that might alleviate this burden and the stage at which they might have the most effect are also depicted in the model. The importance of basic needs provision is evident in that such essential services directly alleviate environmental stressors. Specialist and non-focused mental health services may ameliorate psychological symptoms, but these effects are unlikely to be fully effective or to meet the broader needs of the refugees in the absence of psychosocial (or social) Reference Van Ommeren, Saxena and Saraceno69 programmes to target psychosocial stressors or limited resources to reduce environmental stressors. 25,Reference Bou Khalil70 The two types of psychosocial interventions requested by refugees – community group programmes and participatory engagement in the relief effort – are well suited to addressing identified psychosocial impacts, Reference Hobfoll, Watson, Bell, Bryant, Brymer and Friedman32 can be made available to large numbers of people and can promote sustainability. Reference Silove31,Reference Quosh66,Reference Van Ommeren, Saxena and Saraceno69

Fig. 2 Model of psychosocial concerns raised by Syrian refugees. IASC, Inter-Agency Standing Committee; PTE, potentially traumatic event.

Silove argues that challenges to identity and role as well as bonds and networks in displacement, including discrimination and social isolation, contribute to poor mental health outcomes, and links this with family difficulties. Reference Silove31 He calls for programmes that promote access to education, employment and community participation. An increased role for refugees in the administration of social and community programmes (i.e. participatory engagement) could promote social networks, sustainability and community ownership of projects, Reference Wessells5,Reference Quosh66 while enabling activity, forging new social roles, skills sharing and acquisition. Reference Taleb, Bahelah, Fouad, Coutts, Wilcox and Maziak28 Increased refugee involvement in the design and implementation of psychosocial programmes might address many of the key psychosocial outcomes identified in our review, Reference Hobfoll, Watson, Bell, Bryant, Brymer and Friedman32 and was noted as a key strength of the psychosocial needs assessments that used participatory engagement with refugee communities. It appears that humanitarian organisations can improve participatory engagement by involving local stakeholders as organisers and as research or programme partners. Reference Ager, Burnham, Checchi, Gayer, Grais and Henkens11 Attention to the manner in which services are provided, through consultation and active engagement, can help address these needs while maintaining a focus on basic services and security. 25 Considering the potential for participatory engagement to help overcome the effects of structural power inequalities on human dignity and agency, and the fact that it is being requested, an increase in these strategies is strongly advised. Reference Quosh66 Limited employment rights for Syrians in Jordan make it difficult for humanitarian organisations to formally involve grassroots Syrian organisations in project planning, yet there is growing evidence that refugees in urban settings can make positive contributions to local economies while supporting their own livelihoods. Reference Jacobsen71 International humanitarian organisations may be in a position to promote this.

In contrast, the implementation of needs assessments reviewed here demonstrated a general lack of engagement with participatory research methods. The absence of strategies to include refugees as key members of research teams limits opportunities for these people to contribute to the knowledge that will influence what happens to them. There were some notable exceptions to this: for example, a World Vision report was written entirely by Syrian refugee children. 62 Integration of participatory models might also assist with addressing key methodological weaknesses of the needs assessments reviewed here by building member checking procedures into the research process.

Report quality

As noted in other contexts, Reference Quosh, Eloul and Ajlani9 the use of methods to improve the validity of psychosocial needs assessments was mixed, with adherence to some methodological standards such as the inclusion of literature reviews, privileging of refugee respondents and triangulation of qualitative data, but generally poor adherence to the many other quality indicators. The danger of such deviation from quality standards is that reports may not provide the accurate information needed for effective programme planning and resource allocation. Reference Blaxter19 For example, many reports used the word ‘trauma’ to refer to PTEs; it was not clear whether this term accurately reflected the views expressed by respondents or the orienting framework adopted by the humanitarian organisations. Greater reflexivity would have helped to clarify this issue. Credibility or refugee engagement scores did not meet minimum criteria, in particular because member checking and participatory techniques were rarely employed, as noted above. Greater inclusion of first-person exemplars would aid understanding of refugee perspectives and contexts. Transferability scores satisfied minimum criteria, indicating that most assessment teams considered the impact of sampling and the need to provide relevant contextual information. Convenience sampling may have biased results towards care-seeking refugees. In addition, many reports focused on the needs of specific vulnerable groups (e.g. women), resulting in limited information on the views of other groups (e.g. men), preventing a holistic or systemic approach to social problems such as gender-based violence. Reference Wessells5

Confirmability scores only marginally satisfied minimum criteria; although many humanitarian organisations adapted and discussed research tools, there is room for improvement in the areas of researcher reflexivity and engagement with methods to address potential sources of bias. The perspectives of research organisations must be taken into account when interpreting qualitative results. Reference Wessells5 For example, many international humanitarian organisations adopt an official stance of neutrality which may influence the reporting of and questioning about sensitive political issues, despite their likely relevance to psychosocial stress. Considering that most of the participants were recipients of aid from the organisations conducting the research, the way that researcher–participant power dynamics influenced the responses, and how this issue might be mitigated, should be important topics for consideration. The impact of questions asked should also be reviewed. For example, terms such as ‘psychosocial’ may not translate well into Arabic, so direct questions relating to these concerns may result in less reporting than free-listing. 41,51 Dependability scores satisfied minimum criteria. Although many assessment teams used triangulation of multiple data sources, qualitative analysis techniques were generally not described. These are all basic qualitative methods that should be reported and included as standard procedure to enhance rigour. Reference Blaxter19,Reference Hannes, Noyes, Booth and Hannes29,Reference Popay, Rogers and Williams30,72,Reference Bearman and Dawson73 The low engagement with ethical reporting issues in assessments indicates that there is limited expectation in the field for organisations to be transparent and accountable regarding the potential for ethical and rights violations during research practice, despite clear recommendations laid out in the IASC guidelines. Considering the lack of legal protection and information provision available to refugees in humanitarian aid contexts, it is important that these guidelines are adhered to in the absence of peer review and human research ethics approval processes. Consistent with IASC guidelines, 25 agencies should report on procedures for informed consent, ensuring participants understand confidentiality, do not expect rewards for participation and are aware of the voluntary nature of participation in research as a minimum requirement. Reference Wessells5,Reference Mackenzie, McDowell and Pittaway74 There are ample open source tools and guidelines available to organisations to aid with appropriate ethical adherence and reporting. 25,27 The expectation of clear ethical procedures should help to ensure their use in the field.

Study limitations

The search terms used to identify reports were intentionally broad. However, since most unpublished literature sources were not indexed, requiring basic text searches, and unpublished reports did not have abstracts describing relevant inclusion or exclusion criteria, some potentially relevant assessments may have been excluded or not identified. As only English-language reports were included, some reports in other languages such as Arabic may have been excluded. However, only two non-English language reports were excluded during the search. Percentages listed should not be taken to indicate the prevalence of opinions or themes in the community, as the refugees were not systematically asked questions relating to themes across studies. As reports were not peer-reviewed and were intended for immediate programme implementation, authors might not have deemed it necessary to include details of methods used within reports. Last, the perspective of the first author should be acknowledged: R.W. has run both research and psychosocial group programmes with Syrian refugees in Jordan, both of which involved large participatory elements. During these programmes the capacity and desire of community members to direct programme implementation was evident. This may have resulted in bias when interpreting the reports.

Study implications

We have identified an urgent need for humanitarian organisations undertaking needs assessments with refugees to improve their use of rigorous qualitative research and ethical best practice guidelines in order to ensure that the perspectives of potential aid recipients are more clearly represented. Despite this limitation, the collective findings of the 29 reports reviewed indicate that many displaced Syrians living in Jordan identify the interacting impact of displacement stressors and mental health impairment and indicate a willingness to participate in programmes aimed at addressing such mental health issues. Psychosocial impacts, such as loss of role and social support, are key areas for which humanitarian organisations can employ participatory engagement strategies to improve relevance and sustainability. 25

Footnotes

Declaration of interest

None.

References

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Figure 0

Fig. 1 Flow chart of article selection process. See online Table DS1 for database details.

Figure 1

Table 1 Methodological quality ratings across reports

Figure 2

Fig. 2 Model of psychosocial concerns raised by Syrian refugees. IASC, Inter-Agency Standing Committee; PTE, potentially traumatic event.

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