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The ‘patient journey’ of adults with sudden-onset acquired hearing impairment: a pilot study

Published online by Cambridge University Press:  03 January 2012

V K C Manchaiah  and
D Stephens
V K C Manchaiah*
Affiliation:
Centre for Long Term and Chronic Conditions, College of Human and Health Sciences, Swansea University, Swansea, United Kingdom Linnaeus Centre HEAD, The Swedish Institute for Disability Research, Department of Behavioral Science and Learning, Linköping University, Linköping, Sweden
D Stephens
Affiliation:
Department of Psychological Medicine and Neurology, School of Medicine, Cardiff University, Cardiff, United Kingdom
*
Address for correspondence: Dr V K C Manchaiah, Long Term and Chronic Conditions Centre, College of Human and Health Sciences, Swansea University, Room 167, Glyndwr Building, Swansea SA2 8PP, Wales, UK Fax: +44 (0)1792 295487 E-mail: V.K.C.Manchaiah@swansea.ac.uk
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Abstract

Objective:

A previous study examined the ‘patient journey’ of adults with gradual-onset acquired hearing impairment. This study examined the same for adults with sudden-onset acquired hearing impairment, and assessed differences.

Study design:

Data were collected from 16 audiologists, using the Ida Institute template, and from four adults with sudden-onset acquired hearing impairment, through semi-structured interviews. Data were analysed using thematic analysis and presented using a process mapping model.

Results:

A patient journey template for sudden-onset acquired hearing impairment was developed based on the professionals' and patients' perspectives. The main difference between these two groups' perspectives was seen in the self-evaluation phase: some stages within this phase were recognised by the patients but not by the professionals. The main difference between the current and the previous study was the absence of a pre-awareness phase in the journey described by patients with sudden-onset acquired hearing impairment, compared with that described by patients with gradual-onset acquired hearing impairment.

Conclusion:

Patient journey templates could be useful counselling tools for ear and hearing healthcare specialists. However, such templates should be used only as a baseline; it is important to take a detailed case history to understand each patient's unique experience, including the psychosocial impact of hearing impairment.

Keywords

Hearing ImpairmentNatural HistoryPrognosisRehabilitationPatient journeySudden-onset hearing impairment

Information

Type
Main Articles
Information
The Journal of Laryngology & Otology , Volume 126 , Issue 5 , May 2012 , pp. 475 - 481
Copyright
Copyright © JLO (1984) Limited 2012

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References

1Manchaiah, VKC, Stephens, D, Meredith, R. The patient journey of adults with hearing impairment: the patients' view. Clin Otolaryngol 2011;36:227–34CrossRefGoogle Scholar
2Manchaiah, VKC, Stephens, D. The patient journey: living with acquired hearing impairment. J Acad Rehabil Audiol in pressGoogle Scholar
3Byl, FM. Sudden hearing loss: eight years' experience and suggested prognostic table. Laryngoscope 1984;94:647–61CrossRefGoogle ScholarPubMed
4Mentel, R, Kaftan, H, Wegner, U, Reimann, A, Gurtler, L. Are enterovirus infections a co-factor in sudden hearing loss? J Med Virol 2004;72:625–9CrossRefGoogle ScholarPubMed
5Gross, M, Wolf, DG, Elidan, J, Eliashar, R. Enterovirus, cytomegalovirus and Epstein-Barr virus infection screening in idiopathic sudden sensorineural hearing loss. Audiol Neurotol 2007;12:179–82CrossRefGoogle ScholarPubMed
6Nosrati-Zarenoe, R, Arlinger, S, Hultcrantz, E. Idiopathic sudden sensorineural hearing loss: results drawn from the Swedish national database. Acta Otolaryngol 2007;127:1168–75CrossRefGoogle ScholarPubMed
7Chau, JK, Lin, JRJ, Atashband, S, Irvine, RA, Westerberg, BD. Systematic review of the evidence for the etiology of adult sudden sensorineural hearing loss. Laryngoscope 2010;120:1011–21CrossRefGoogle ScholarPubMed
8Mattox, DE, Simmons, FB. Natural history of sudden sensorineural hearing loss. Ann Otol Rhinol Laryngol 1977;86:463–80CrossRefGoogle ScholarPubMed
9Heiden, C, Porzsolt, F, Biesinger, E, Hoing, R. Spontaneous remission of sudden deafness [in German]. HNO 2000;48:621–3CrossRefGoogle ScholarPubMed
10Carlsson, P-I, Hall, M, Lind, K-J, Danermark, B. Quality of life, psychosocial consequences, and audiological rehabilitation after sudden sensorineural hearing loss. Int J Audiol 2011;50:139–44CrossRefGoogle ScholarPubMed
11Chiossoine-Kerdel, JA, Baguley, DM, Stoddart, RL, Moffat, DA. An investigation of the audiologic handicap associated with unilateral sudden sensorineural hearing loss. Am J Otol 2000;21:645–51Google ScholarPubMed
12Mösges, R, Köberlein, J, Erdtracht, B, Klingel, R. RHEO-ISHL Study Group. Quality of life in patients with idiopathic sudden hearing loss: comparison of different therapies using the medical outcome short form (36) health survey questionnaire. Otol Neurotol 2008;29:769–75CrossRefGoogle Scholar
13Marshall, MN. Sampling for qualitative research. Fam Practice 1996;13:522–5CrossRefGoogle ScholarPubMed
14Braun, V, Clarke, V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77–101CrossRefGoogle Scholar
15Damelio, R. The Basics of Process Mapping. Portland, Oregon: Productivity Press, 1996Google Scholar
16Hunt, LM, Arar, NH. An analytical framework for contrasting patient and provider views of the process of chronic disease management. Med Anthropol Q 2000;15:347–67CrossRefGoogle Scholar