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Development and validation of a new standardized measure for assessing experiences of discrimination within mental health services. A participatory research project

Published online by Cambridge University Press:  08 September 2023

Antonio Lasalvia*
Affiliation:
Section of Psychiatry, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy UOC Psichiatria, Azienda Ospedaliera Universitaria Integrata (AOUI) di Verona, Verona, Italy
Stefano Pillan
Affiliation:
Section of Psychiatry, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy
Giulia Marzocco
Affiliation:
Section of Psychiatry, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy
Anna Ambrosini
Affiliation:
Section of Psychiatry, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy
Franco Veltro
Affiliation:
Mental Health Department of Campobasso, Campobasso, Italy Associazione Italiana Diffusione Interventi Psicoeducativi in Salute Mentale (AIDIPSaM – APS), Italy
Tecla Pozzan
Affiliation:
UOC Psichiatria, Azienda Ospedaliera Universitaria Integrata (AOUI) di Verona, Verona, Italy
Camilla D’Astore
Affiliation:
UOC Psichiatria, Azienda Ospedaliera Universitaria Integrata (AOUI) di Verona, Verona, Italy
Doriana Cristofalo
Affiliation:
Section of Psychiatry, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy
Mirella Ruggeri
Affiliation:
Section of Psychiatry, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy UOC Psichiatria, Azienda Ospedaliera Universitaria Integrata (AOUI) di Verona, Verona, Italy
Chiara Bonetto
Affiliation:
Section of Psychiatry, Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona, Verona, Italy
*
Corresponding author: Antonio Lasalvia; Email: antonio.lasalvia@univr.it
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Abstract

Aims

People with mental disorders frequently report experiences of discrimination within mental health services, which can have significant detrimental effects on individuals’ well-being and recovery. This study aimed to develop and validate a new standardized measure aiming to assess experiences of stigmatization among people with mental disorders within mental health services.

Methods

The scale was developed in Italian and tested for ease of use, comprehension, acceptability, relevance of items and response options within focus group session. A cross-sectional validation survey was conducted among mental health service users in Italy. Exploratory factor analysis with Promax oblique rotation, the KaiserMeyerOlkin (KMO) measure of sampling adequacy and the Bartlett’s test of sphericity were used to assess the suitability of the sample for factor analysis. Reliability was assessed as internal consistency using Cronbach’s alpha and as test–retest reliability using weighted kappa and intraclass correlation coefficient (ICC). Precision was examined by Kendall’s tau-b coefficient.

Results

Overall, 240 people with mental disorders participated in the study; 56 also completed the retest evaluation after 2 weeks. The 18 items of the scale converged over a two-factor solution (‘Dignity violation and personhood devaluation’ and ‘Perceived life restrictions and social exclusion’), accounting for 56.4% of the variance (KMO 0.903; Bartlett’s test p < 0.001). Cronbach’s alpha for the total score was 0.934. The scale showed one item with kappa above 0.81, four items between 0.61 and 0.80, ten items between 0.41 and 0.60, two items between 0.21 and 0.40 and only one item below 0.20. ICC was 0.928 (95% CI 0.877–0.958). Kendall’s tau-b ranged from 0.450 to 0.617 (p < 0.001).

Conclusions

The newly developed scale represents a valid and reliable measure for assessing experiences of stigma among patients receiving care within mental health services. The scale has provided initial evidence of being specifically tailored for individuals with psychotic and bipolar disorders. However, the factorial structure of the scale should be replicated through a confirmatory factor analysis on a larger sample of individuals with these conditions.

Information

Type
Original Article
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
Copyright
© The Author(s), 2023. Published by Cambridge University Press.
Figure 0

Table 1. Socio-demographics and clinical characteristics of the study sample (n = 240)

Figure 1

Table 2. Response frequencies and percentages for the individual items of the questionnaire (n = 240)

Figure 2

Table 3. Factor loadings from the exploratory factor analysis (principal component extraction; Promax rotations; factor loadings >0.4 were retained) for the questionnaire (n = 240)

Figure 3

Table 4. Internal consistency for the total score and the factors (Cronbach’s alpha) for the questionnaire (n = 240)

Figure 4

Table 5. Test–retest reliability for the items (weighted Cohen’s kappa) for the questionnaire (n = 56)

Figure 5

Table 6. Differences in total score for socio-demographics and clinical characteristics (n = 240)

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