Contents

pp v-v

Notes on contributors

pp vi-x

Introduction

pp 1-16

Part One - Participation and inclusion

pp 17-18

one - Ethical considerations in service-user-led research: Strategies for Living Project

pp 19-34

two - Making the decision about enrolment in a randomised controlled trial

pp 35-54

three - Ethical protection in research: including children in the debate

pp 55-72

four - ‘An equal relationship’?: people with learning difficulties getting involved in research

pp 73-88

Part Two - The review and governance process

pp 89-90

five - Research with psychiatric patients: knowing their own minds?

pp 91-104

six - Researching end of life in old age: ethical challenges

pp 105-118

Part Three - Researchers’ relationships with participants

pp 119-120

seven - Interviewing: the unspoken compact

pp 121-136

eight - Using participative action research with war-affected populations: lessons from research in Northern Ireland and South Africa

pp 137-156

nine - Conducting longitudinal epidemiological research in children

pp 157-174

ten - Speaking truth to power: experiencing critical research

pp 175-194

eleven - Domestic violence and research ethics

pp 195-210

Conclusion

pp 211-216

Index

pp 217-227

Also available from The Policy Press

pp 228-230