Dissemination bias can occur when qualitative research is published selectively, potentially reducing the confidence in qualitative evidence. This retrospective cohort study aims to quantify the extent of non-dissemination of qualitative health research by following 1,123 conference abstracts. The proportion of non-dissemination, the time to publication, as well as associations between author or study characteristics and full publication were examined. For 22.8% of these studies, no full publication could be identified within at least 6 and up to 8 years after their presentation. For those that were published, median time to publication was 11 months (95% CI 10 to 12). Studies from authors affiliated with institutions in Australia were more likely to be published than those from North America (OR 4.47; 95% CI 1.58 to 18.74). Oral presentations were more likely to be published than poster presentations (OR 3.40; 95% CI 1.57 to 8.20). Studies that used two qualitative data collection methods were more likely to be published than studies that used one qualitative method only (OR 1.53; 95% CI 1.01 to 2.38). Conference abstracts that reported no funding were less likely to be published than those which reported funding (OR 0.71; 95% CI 0.51 to 0.99). Publicly funded research was more likely to be published than privately funded research (OR 2.24; 95% CI 1.16 to 4.28). Given the considerable proportion of unpublished health-related qualitative studies, there is a reason to believe that dissemination bias may impact negatively on qualitative evidence synthesis. This can, in turn, impair decision-making that uses qualitative evidence.

Qualitative research addresses important healthcare questions, including patients’ experiences with interventions. Qualitative evidence syntheses combine findings from individual studies and are increasingly used to inform health guidelines. However, dissemination bias—selective non-dissemination of studies or findings—may distort the body of evidence. This study examined reasons for the non-dissemination of qualitative studies. We identified conference abstracts reporting qualitative, health-related studies. We invited authors to answer a survey containing quantitative and qualitative questions. We performed descriptive analyses on the quantitative data and inductive thematic analysis on the qualitative data. Most of the 142 respondents were female, established researchers. About a third reported that their study had not been published in full after their conference presentation. The main reasons were time constraints, career changes, and a lack of interest. Few indicated non-publication due to the nature of the study findings. Decisions not to publish were largely made by author teams. Half of the 72% who published their study reported that all findings were included in the publication. This study highlights researchers’ reasons for non-dissemination of qualitative research. One-third of studies presented as conference abstracts remained unpublished, but non-dissemination was rarely linked to the study findings. Further research is needed to understand the systematic non-dissemination of qualitative studies.