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Chapter 26 - Future of Neurorespiratory Medicine

Published online by Cambridge University Press:  26 May 2025

Martin Groß
Affiliation:
MEDIAN Clinic Bad Tennstedt
Eelco F. M. Wijdicks
Affiliation:
Mayo Clinic
Maxwell S. Damian
Affiliation:
Basildon University Hospitals
Oliver Summ
Affiliation:
Evangelisches Krankenhaus Oldenburg
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Summary

The future challenges for neurorespiratory medicine are significant with respect to the consequences of medical progress, demographic changes and epidemiological forecasts. The treatment of a variety of neurological diseases like genetic disease, inflammatory diseases and stroke improves steadily, and life supporting technologies and care structures are undergoing an evolution, too. To agree on a subset of principles of care, to define professions and qualifications needed to care for patients with respiratory impairment due to neurological disease and to strive for further medical and technological progress are key necessities. These are discussed in this chapter, and a number of suggestions for further research are advanced.

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Publisher: Cambridge University Press
Print publication year: 2025

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References

Groß, M. Ein Kompass für die Zukunft der Versorgung chronisch kritisch kranker Menschen. 2022. Accessed February 28, 2024. www.waertvollt-liewen.lu/wp-content/uploads/2022/12/WL_Newsletter4_2022_D.pdf.Google Scholar
Coulter, A, Oldham, J. Person-centred care: what is it and how do we get there? Future Hosp J. 2016;3(2):114–16. doi: 10.7861/futurehosp.3-2-114.CrossRefGoogle Scholar
Balint, E. The possibilities of patient-centered medicine. J R Coll Gen Pract. 1969 May;17(82):269–76.Google ScholarPubMed
Fix, GM, VanDeusen, LC, Bolton, RE, et al. Patient-centred care is a way of doing things: how healthcare employees conceptualize patient-centred care. Health Expect. 2018;21(1):300–7. doi: 10.1111/hex.12615.CrossRefGoogle ScholarPubMed
Spataro, R, Volanti, P, Lo Coco, D, La Bella, V. Marital status is a prognostic factor in amyotrophic lateral sclerosis. Acta Neurol Scand. 2017;136(6):624–30. doi: 10.1111/ane.12771.CrossRefGoogle ScholarPubMed
Körner, M, Bengel, J. Teamwork and team success in multi- and interdisciplinary teams in medical rehabilitation. Rehabilitation (Stuttg). 2004;43(6):348–57. doi: 10.1055/s-2004-828533.CrossRefGoogle ScholarPubMed
Reif, LK, van Olmen, J, McNairy, ML, et al. Models of lifelong care for children and adolescents with chronic conditions in low-income and middle-income countries: a scoping review. BMJ Glob Health. 2022;7(7): e007863. doi: 10.1136/bmjgh-2021-007863.CrossRefGoogle ScholarPubMed
Hornemann, D, Marquardt, C, Sugg, J, et al. The respiratory therapist in neurology an evolving specialization in Germany. Fortschr Neurol Psychiatr. 2022;91(1–2):4551. doi: 10.1055/a-1877-4832.Google ScholarPubMed
Tibballs, J, Henning, R, Robertson, CF, et al. A home respiratory support programme for children by parents and layperson carers. J Paediatr Child Health. 2010;46(1–2):5762.CrossRefGoogle ScholarPubMed
Panyarath, P, Adam, V, Kimoff, RJ, Kaminska, M. Alveolar ventilation-targeted versus spontaneous/timed mode for home noninvasive ventilation in amyotrophic lateral sclerosis. Respir Care. 2022;67(9):1109–20. doi: 10.4187/respcare.09580.CrossRefGoogle ScholarPubMed
Sancho, J, Servera, E, Morelot-Panzini, C, et al. Non-invasive ventilation effectiveness and the effect of ventilatory mode on survival in ALS patients. Amyotroph Lateral Scler Frontotemporal Degener. 2014;15(1–2):5561. doi: 10.3109/21678421.2013.855790.CrossRefGoogle ScholarPubMed
Hincapié, MA, Gallego, JC, Gempeler, A, et al. Implementation and usefulness of telemedicine during the COVID-19 pandemic: a scoping review. J Prim Care Community Health. 2020;11:2150132720980612. doi: 10.1177/2150132720980612.CrossRefGoogle ScholarPubMed
Dale, CM, Ambreen, M, Kang, S, et al. Acceptability of the long-term in-home ventilator engagement virtual intervention for home mechanical ventilation patients during the COVID-19 pandemic: a qualitative evaluation. Digit Health. 2024 Jan 27;10:2055207624122417. doi: 10.1177/20552076241228417.Google ScholarPubMed
Ackrivo, J, Elman, L, Hansen-Flaschen, J. Telemonitoring for home-assisted ventilation: a narrative review. Ann Am Thorac Soc. 2021;18(11):1761–72. doi: 10.1513/AnnalsATS.202101-033CME.CrossRefGoogle ScholarPubMed
Onofri, A, Pavone, M, De Santis, S, et al. Telemedicine in children with medical complexity on home ventilation during the COVID-19 pandemic. Pediatr Pulmonol. 2021;56(6):1395–400. doi: 10.1002/ppul.25289.CrossRefGoogle ScholarPubMed
Cantarini, KV, Sanches, RP, Donini, VV, et al. Telemonitoring in home mechanical ventilation. J Bras Pneumol. 2022;48(6): e20220142. doi: 10.36416/1806-3756/e20220142.CrossRefGoogle ScholarPubMed
Edgerton, D. The Shock of the Old: Technology and Global History since 1900. Profile Books; 2007.Google Scholar
Robba, C, Poole, D, McNett, M, et al. Mechanical ventilation in patients with acute brain injury: recommendations of the European Society of Intensive Care Medicine consensus. Intensive Care Med. 2020;46(12):2397–410. doi: 10.1007/s00134-020-06283-0.CrossRefGoogle ScholarPubMed
van Doorn, PA, Van den Bergh, PYK, Hadden, RDM, et al. European Academy of Neurology/Peripheral Nerve Society guideline on diagnosis and treatment of Guillain–Barré syndrome. Eur J Neurol. 2023;30(12):3646–74. doi: 10.1111/ene.16073.CrossRefGoogle ScholarPubMed
Mendell, JR, Al-Zaidy, SA, Lehman, KJ, et al. Five-year extension results of the phase 1 START trial of onasemnogene abeparvovec in spinal muscular atrophy. JAMA Neurol. 2021;78(7):834–41. doi: 10.1001/jamaneurol.2021.1272.CrossRefGoogle ScholarPubMed
Wilbur, J, Rockafellow, J, Shian, B. Post-ICU care in the outpatient setting. Am Fam Physician. 2021 May 15;103(10):590–6.Google ScholarPubMed
Summ, O, Hassanpour, N, Mathys, C, Groß, M. Disordered breathing in severe cerebral illness: towards a conceptual framework. Respir Physiol Neurobiol. 2022; 300:103869. doi: 10.1016/j.resp.2022.103869.CrossRefGoogle ScholarPubMed

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