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Part II - The Most Vulnerable of Us

Pediatrics

Published online by Cambridge University Press:  17 May 2025

Paul J. Ford
Affiliation:
The Cleveland Clinic Foundation, Cleveland
Denise M. Dudzinski
Affiliation:
University of Washington School of Medicine, Seattle
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Complex Ethics Consultations
Cases that Haunt Us
, pp. 47 - 78
Publisher: Cambridge University Press
Print publication year: 2025

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References

References

Charon, R. Narrative Medicine: Honoring the Stories of Illness. New York: Oxford University Press, 2006.CrossRefGoogle Scholar
Diekema, DS. Parental refusals of medical treatment: The harm principle as threshold for state intervention. Theor Med Bioeth, 2004; 25(4): 243–64.CrossRefGoogle ScholarPubMed

References

Sainsbury, RM. Paradoxes, 2nd ed. Cambridge: Cambridge University Press, 1995, or Rescher, N. Paradoxes: Their Roots, Range, and Resolution. Peru, IL: Open Court Press, 2001.CrossRefGoogle Scholar
Spike, JP. Assessment of decision making capacity. Reichel’s Care of the Elderly, 6th ed. Philadelphia: Lippincott Williams and Wilkins, 2007; chapter 49.Google Scholar

References

Stork, LC, Matloub, Y, Broxson, E, et al. Oral 6-mercaptopurine versus oral 6-thioguanine and veno-occlusive disease in children with standard-risk acute lymphoblastic leukemia: Report of the Children’s Oncology Group CCG-1952 clinical trial. Blood, 2010 Apr 8; 115(14): 2740–8.CrossRefGoogle ScholarPubMed
Katz, ER, Jay, SM. Psychological aspects of cancer in children, adolescents, and their families. Clin Psychol Rev, 1984; 4: 525.CrossRefGoogle Scholar
Child Protective Services Law, 23 Pa. C.S.A. § 6301, et. seq., 2001.Google Scholar
Brody, B. Life and Death Decision Making. New York: Oxford University Press, 1988; 221–30.Google Scholar
Dubler, NN, Liebman, CB. Bioethics Mediation: A Guide to Shaping Shared Solutions. New York: United Hospital Fund, 2004.Google Scholar
Griffith, DB. The best interest standard: A comparison of the state parens patriae authority and judicial oversight in best interest determinations for children and incompetent patients. Issues Law Med, 1991; 7: 283, 300.Google Scholar
Prince v Massachusetts, 321 U.S. 158, 170 (1944), 170.Google Scholar
Evans, J. Are children competent to make decisions about their own deaths? Behav Sci Law, 1995; 13: 2741.CrossRefGoogle ScholarPubMed

References

Munson, R. Intervention and Reflection: Basic Issues in Medical Ethics, 5th ed. Belmont, CA: Wadsworth, 1996; 114–15.Google Scholar
McAliley, LG, Daily, BG. Baby Grace. Hastings Cent Rep, 2002; 32(1): 1215.CrossRefGoogle ScholarPubMed
Buchanan, A, Brock, D. Deciding for Others: The Ethics of Surrogate Decision Making. New York: Oxford University Press, 1984.Google Scholar
Ross, LF. Children, Families, and Health Care Decision Making. New York: Oxford University Press, 1998.CrossRefGoogle Scholar
Miller, R. Children, Ethics, & Modern Medicine. Bloomington, IL: Indiana University Press, 2003.CrossRefGoogle Scholar
Hester, DM. Community as Healing: Pragmatist Ethics in Medical Encounters. Lanham, MD: Rowman & Littlefield, 2001.CrossRefGoogle Scholar
Dewey, J. How We Think. Boston: Heath & Co., 1910.CrossRefGoogle Scholar
Dewey, J. Logic: The Theory of Inquiry. New York: Henry Holt & Co., 1938.Google Scholar
LaPuma, J, Schiedermayer, DL. The clinical ethicist at the bedside. Theor Med, 1991; 12(2): 141–9.Google Scholar
Fletcher, J. Ethics committees and due process. Law Med Health Care, 1992; 20(4): 291–3.CrossRefGoogle ScholarPubMed

References

Zaal-Schuller, IH, Willems, DL, Ewals, FVPM, et al. How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities. Res Dev Disabil, 2016; 59: 283–93. https://doi.org/10.1016/j.ridd.2016.09.012CrossRefGoogle ScholarPubMed
Patel, S, Pelletier-Bui, A, Smith, S, et al. Curricula for empathy and compassion training in medical education: A systematic review. PLoS One, 2019; 14(8): e0221412. https://doi.org/10.1371/journal.pone.0221412CrossRefGoogle ScholarPubMed
Merriam-Webster. Malpractice. Available at www.merriam-webster.com/dictionary/malpractice.Google Scholar
Hays, DG, Prosek, EA, McLeod, AL. A mixed methodological analysis of the role of culture in the clinical decision-making process. J Couns Dev, 2010; 88: 114–21. https://doi.org/10.1002/j.1556-6678.2010.tb00158.xCrossRefGoogle Scholar

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