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Part I - Starting at the Beginning

Prenatal and Neonatal Issues

Published online by Cambridge University Press:  17 May 2025

Paul J. Ford
Affiliation:
The Cleveland Clinic Foundation, Cleveland
Denise M. Dudzinski
Affiliation:
University of Washington School of Medicine, Seattle
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Complex Ethics Consultations
Cases that Haunt Us
, pp. 15 - 46
Publisher: Cambridge University Press
Print publication year: 2025

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References

References

Orr, RD, Perkin, RM. Clinical ethics consultations with children. J Clin Ethics, 1994; 5(4): 323–8.CrossRefGoogle ScholarPubMed
Duff, RS, Campbell, AG. Moral and ethical dilemmas in the special care nursery. New Engl J Med, 1973; 289(17): 890–4.CrossRefGoogle ScholarPubMed
Nondiscrimination on the basis of handicap; procedures and guidelines relating to health care for handicapped infants – HHS. Final rules. Fed Regist, 1985; 50: 14879–92.Google Scholar
President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Deciding to Forgo Life-Sustaining Treatment. Washington, DC: US Government Printing Office, 1983.Google Scholar
Wing, KR. The law and the public’s health, 3rd ed. Ann Arbor, MI: Health Administration Press, 1990; 32. (As quoted in Diekema, DS. Parental refusals of medical treatment: the harm principle as threshold for state intervention. Theor Med, 2004; 25(4): 250–1.)Google Scholar
Fox, E, Stocking, C. Ethics consultants’ recommendations for life-prolonging treatment of patients in a persistent vegetative state. JAMA, 1993; 270(21): 2578–82.CrossRefGoogle Scholar
Fletcher, JC, Hoffman, DE. Ethics committees: time to experiment with standards. Ann Intern Med, 1994; 120(4): 335–8.CrossRefGoogle ScholarPubMed
Fox, E, Meyers, S, Pearlman, R. Ethics consultation in U.S. hospitals: a national survey. AJOB, 2007; 7(2): 1325.Google ScholarPubMed
Lumet, S. 12 Angry Men. United States: MGM Studios; 1957.Google Scholar

References

Taeusch, HW, Ballard, RA, eds. Avery’s Diseases of the Newborn, 8th ed. Philadelphia: Elsevier-Saunders, 2005; 1123–32.Google Scholar
President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Deciding to Forgo Life-Sustaining Treatment. Washington, DC: US Government Printing Office, 1983.Google Scholar
Diekema, DS. Parental refusal of medical treatment: The harm principle and threshold for state intervention. Theor Med, 2004; 25: 243–64.Google ScholarPubMed
Beauchamp, T, Childress, J. Principles of Biomedical Ethics, 5th ed. Oxford: Oxford University Press, 2001; 124.Google Scholar
Schroeter, K. Ethics in perioperative practice: Patient advocacy. AORN J, 2002; 75(5): 941–4, 949.Google ScholarPubMed
Lantos, J. When parents request seemingly futile treatment for their children. Mt Sinai J Med, 2006; 73(3): 587.Google ScholarPubMed
The Revised Code of Washington 7.70.065.Google Scholar
Groudine, SB. The child Jehovah’s Witness patient: A legal and ethical dilemma. Surgery, 1997; 121: 357–8.CrossRefGoogle Scholar
Capron, AM. At law: Baby Ryan and virtual futility. The Hastings Cent Rep, 1995; 25: 2.CrossRefGoogle Scholar
Annas, GJ. Asking the courts to set the standard of emergency care: The case of Baby K. New Engl J Med, 2006; 330: 1542–5.Google Scholar

References

The first published account of this story appeared in J Clin Ethics, Fall 2005; 218–22.Google Scholar
Schutz, A. Symbol, reality and society. In: Natanson, M, ed. Alfred Schutz: Collected Papers I. The Hague: Martinus Nijhoff, 1971; 287356.Google Scholar
Frank, A. Experiencing illness through storytelling. In: Toombs, SK, ed. Handbook of Phenomenology and Medicine. Dordrecht: Kluwer, 2001; 241.Google Scholar

References

Bliton, MJ. Ethics: “Life before birth” and moral complexity in maternal–fetal surgery for spina bifida. Clin Perinatol, 2003; 30: 449–64.CrossRefGoogle Scholar
Chervenak, FA, McCullough, LB. A comprehensive framework for fetal research and its application to fetal surgery for spina bifida. Am J Obstet Gynecol, 2002; 187(1): 1014.CrossRefGoogle ScholarPubMed
Lyerly, AD, Mahowald, MB. Maternal–fetal surgery for treatment of myelomeningocele. Clin Perinatol, 2003; 30: 155–65.CrossRefGoogle ScholarPubMed
Bruner, JP, Tulipan, N. Intrauterine repair of spina bifida. Clin Obstet Gynecol, 2005; 48(4): 942–55.CrossRefGoogle ScholarPubMed
Management of Myelomeningocele Study (MOMS): A Randomized Trial of Prenatal Versus Postnatal Repair of Myelomeningocele. Rockville, MD: National Institute of Child Health and Human Development, Fetal Surgery Units Group, 2003.Google Scholar
Bliton, MJ, Zaner, RM. Over the cutting edge: How ethics consultation illuminates the moral complexity of open-uterine fetal repair of spina bifida and patients’ decision making. J Clin Ethics, 2001; 12(4): 346–60.CrossRefGoogle ScholarPubMed
Churchill, LR, Bliton, M, eds. Parental voices in maternal–fetal surgery. Clin Obstet Gynecol, 2005; 48(3): 509607.CrossRefGoogle Scholar
Doherty, D, Shurtleff, DB. Pediatric perspective on prenatal counseling for myelomeningocele. Birth Defects Res A Clin Mol Teratol, 2006; 76: 645–53.CrossRefGoogle ScholarPubMed
Nietzsche, F. Philosophy in the Tragic Age of the Greeks. Translated by Cowan, M.. Washington, DC: Regnery Publishing, 1962 (reprinted 1996); 48.Google Scholar
Zaner, RM. The Context of Self: A Phenomenological Inquiry Using Medicine as a Clue. Athens, OH: Ohio University Press, 1981; 52–5.Google Scholar
Natanson, M. The Erotic Bird: Phenomenology in Literature. Princeton, NJ: Princeton University Press, 1998; 54, 133.CrossRefGoogle Scholar
Bliton, MJ, Finder, SG. Traversing boundaries: Clinical ethics and moral experience in the withdrawal of life supports. Theor Med Bioeth, 2002; 23(3): 233–58.CrossRefGoogle ScholarPubMed
Harris, LH. Rethinking maternal–fetal conflict: Gender and equality in perinatal ethics. Obstet Gynecol, 2000; 96(5): 786–91.Google ScholarPubMed

References

Ford, PJ, Dudzinski, DM. Live and learn: Courage, honest and vulnerability. In: Ford, PJ, Dudzinski, DM, eds. Complex Ethics Consultations: Cases that Haunt Us. Cambridge: Cambridge University Press, 2008; 112.CrossRefGoogle Scholar
Weise, KL, Okun, AL, Carter, BS, et al. Guidance on forgoing life-sustaining medical treatment. Pediatrics, 2017; 140(3): e20171905. https://doi.org/10.1542/peds.2017-1905CrossRefGoogle ScholarPubMed
Wocial, LD. Life support decisions involving imperiled infants. J Perinat Neonatal Nurs, 2000; 14(2): 7386.CrossRefGoogle ScholarPubMed
Reingold, RB, Gostin, LO, Goodwin, MB. Legal risks and ethical dilemmas for clinicians in the aftermath of Dobbs. JAMA, 2022; 328(17): 1695–6. https://doi.org/10.1001/jama.2022.18453CrossRefGoogle ScholarPubMed
Bosslet, GT, Pope, TM, Rubenfeld, GD, et al. An official ATS/AACN/ACCP/ESICM/SCCM policy statement: Responding to requests for potentially inappropriate treatments in intensive care units. Am J Respir Crit Care Med, 2015; 191(11): 1318–30.CrossRefGoogle ScholarPubMed
Fox, E, Danis, M, Tarzian, AJ, Duke, CC. Ethics consultation in US hospitals: A national follow-up study. Am J Bioeth, 2022; 22(4): 518. https://doi.org/10.1080/15265161.2021.1893547CrossRefGoogle ScholarPubMed
Murthy, VH. Confronting health worker burnout and well-being. N Engl J Med, 2022 Aug 18; 387(7): 577–9. https://doi.org/10.1056/NEJMp2207252CrossRefGoogle ScholarPubMed

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