Schneider J, Hallam A, Murray J, Foley B, Atkin L, Banerjee S, et al. Formal and informal care for people with dementia: factors associated with service receipt. Aging Ment Health
2002; 6: 255–65.
Ryu SH, Katona C, Rive B, Livingston G. Persistence of and changes in neuropsychiatric symptoms in Alzheimer's disease over 6 months – the LASER-AD Study. Am J Geriatric Psychiatry
2005; 13: 976–83.
Piccininni M, Di Carlo A, Baldereschi M, Zaccara G, Inzitari D. Behavioral and psychological symptoms in Alzheimer's disease: frequency and relationship with 171 duration and severity of the disease. Dement Geriatr Cogn Disord
2005; 19: 276–81.
Mega MS, Cummings JL, Fiorello T, Gornbein J. The spectrum of behavioral changes in Alzheimer's disease. Neurology
1996; 46: 130–5.
Small GW, Rabins PV, Barry PP, Buckholtz NS, DeKosky ST, Ferris SH, et al. Diagnosis and treatment of Alzheimer disease and related disorder: consensus statement of the American Association for Geriatric Psychiatry, the Alzheimer's Association, and the American Geriatrics Society. J American Med Assoc
1997; 278: 1363–71.
Yaffe K, Fox P, Newcomer R, Sands L, Lindquist K, Dane K, et al. Patient and caregiver characteristics and nursing home placement in patients with dementia. J Am Med Assoc
2002; 287: 2090–7.
Brodaty H, Draper B, Saab D, Low LF, Richards V, Paton H, et al. Psychosis, depression and behavioural disturbances in Sydney nursing home residents: prevalence and predictors. Int J Geriatric Psychiatr
2001; 16: 504–12.
Kaufer DI, Cummings JL, Ketchel P, Smith V, MacMillan A, Shelley T, et al. Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. J Neuropsychiatry Clin Neurosci
2000; 12: 233–9.
Okura T, Plassman BL, Steffens DC, Llewellyn DJ, Potter GG, Langa KM. Neuropsychiatric symptoms and the risk of institutionalization and death: the aging, demographics, and memory study. J Am Geriatr Soc
2011; 59: 473–81.
Lyketsos CG, Lopez O, Jones B, Fitzpatrick AL, Breitner J, DeKosky S. Prevalence of neuropsychiatric symptoms in dementia and mild cognitive impairment: results from the cardiovascular health study. J Am Med Assoc
2002; 288: 1475–83.
Ballard CG, Margallo-Lana M, Fossey J, Reichelt K, Myint P, Potkins D, et al. A 1-year follow-up study of behavioural and psychological symptoms in dementia among people in care environments. J Clin Psychiatr
2001; 62: 631–6.
Rabins PV, Kasper JD, Kleinman L, Black B, Patrick DL. Concepts and methods in the development of the ADRQL: An instrument for assessing health related quality of life in persons with Alzheimer's disease. J Ment Health Aging
1999; 5: 33–48.
Coen RF, Swanwick G, O'Boyle CA, Coakley D. Behaviour disturbance and other predictors of carer burden in Alzheimer's disease. Int J Geriatric Psychiatr
1997; 12: 331–6.
Morris S, Patel N, Baio G, Kelly L, Lewis-Holmes E, Omar RZ, et al. Monetary costs of agitation in older adults with Alzheimer's disease in the UK: prospective cohort study. BMJ Open
2015; 5: e007382.
Livingston G, Kelly L, Lewis-Holmes E, Baio G, Morris S, Patel N, et al. A systematic review of the clinical effectiveness and cost-effectiveness of sensory, psychological and behavioural interventions for managing agitation in older adults with dementia. Health Technol Assess
2014; 18: 1–226.
Bryman A. Social Research Methods.
Oxford University Press, 2012.
QSR International Private Limited. NVivo Qualitative Data Analysis Software (Version 9).
QSR International, 2010.
Braun V, Clarke V. Using thematic analysis in Psychology. Qual Res Psychol
2006; 3: 77–101.
Smith JA. Beyond the divide between cognition and discourse: using interpretative phenomenological analysis in health psychology. Psychol Health
1996; 11: 261–71.
Li R, Cooper C, Bradley J, Shulman A, Livingston G. Coping strategies and psychological morbidity in family carers of people with dementia: a systematic review and meta-analysis. J Affect Disord
2012; 139: 1–11.
Li R, Cooper C, Austin A, Livingston G. Do changes in coping style explain the effectiveness of interventions for psychological morbidity in family carers of people with dementia? A systematic review and meta-analysis. Int Psychogeriatr
2013; 25: 204–14.
Feast A, Orrell M, Charlesworth G, Melunsky N, Poland F, Moniz-Cook E. Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. Br J Psychiatry
2016; 208: 429–34.
Ryden MB. Aggressive behavior in persons with dementia who live in the community. Alzheimer Dis Assoc Disord
1988; 2: 342–55.