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Conscience des déficits dans le cadre de la maladie d’Alzheimer : représentations et vécu des professionnels soignants
Published online by Cambridge University Press: 07 March 2024
Résumé
La qualité des soins apportés aux personnes vivant avec la maladie d’Alzheimer (MA) dépend en partie de la capacité des professionnels à déterminer le degré de conscience de la maladie chez les patients. La présente recherche s’est intéressée aux représentations des soignants concernant la conscience des troubles chez les résidents d’établissements de soins de longue durée présentant un diagnostic de MA. Le pouvoir prédicteur de l’anosognosie sur le fardeau soignant a également été examiné. L’anosognosie des troubles de la construction (r = 0,40, p = 0,0164) et de l’initiation (r = 0,32, p = 0,052) était corrélée au fardeau soignant. Les professionnels se représentaient les résidents comme ayant une conscience altérée de leurs capacités, même en l’absence d’anosognosie. Les scores réels d’anosognosie ne prédisaient pas les estimations soignantes, hormis le score global sous forme de tendance (χ2 = 3,38, p = 0,066). Les soignants surestimaient pourtant les performances cognitives des résidents, telles que mesurées au moyen du protocole Misawareness (prédictions aidants/performances réelles : DC = 12,32, p < 0,0001).
Abstract
The quality of care provided to people living with Alzheimer’s Disease (AD) depends, in part, on the ability of professionals to identify the extent of awareness in patients. The present research focused on professional caregivers’ representations concerning patients’ awareness of disorders in residents of long-term care institutions diagnosed with AD. The predictive power of anosognosia on healthcare professionals’ burden was also investigated. Anosognosia for construction and initiation impairments (r= 0.40, p = 0.0164; r = 0.32, p = 0.052) was correlated with caregivers’ burden. Professionals tended to form representations of patients as being unaware of their condition, including in the absence of anosognosia. Indeed, anosognosia scores did not predict professionals’ estimates, except for the overall anosognosia score (χ2 = 3.38, p = 0.066). However, caregivers overestimated patients’ cognitive performances, as measured via the Misawareness protocol (caregiver predictions/actual performances: DC = 12.32, p <0.0001).
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- © Canadian Association on Gerontology 2024
Footnotes
Remerciements
Nous tenons à remercier Mme Coraline Lethimonnier pour son aide durant l’analyse statistique.
References
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