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“The biggest problem we’ve ever had to face”: how families manage driving cessation with people with dementia

  • Jacki Liddle (a1), Amelia Tan (a2), Phyllis Liang (a2), Sally Bennett (a2), Shelley Allen (a2) (a3), David C. Lie (a4) and Nancy A. Pachana (a5)...
Abstract
ABSTRACTBackground:

It is recognized that people with dementia are likely to need to stop driving at some point following diagnosis. Driving cessation can lead to negative outcomes for people with dementia and their family caregivers (FC), who often experience family conflict and tension throughout the process. Family experiences surrounding driving cessation have begun to be explored but warrant further examination.

Methods:

Using a descriptive phenomenological approach, semi-structured interviews were undertaken with key stakeholders, including 5 retired drivers with dementia, 12 FC, and 15 health professionals (HP). Data were analyzed inductively to explore the needs and experiences of people with dementia and FC.

Results:

The data revealed a range of possible interactions between people with dementia and FC. These were organized into a continuum of family dynamics according to levels of collaboration and conflict: in it together, behind the scenes, active negotiations, and at odds. At the in it together end of the continuum, people with dementia and FC demonstrated collaborative approaches and minimal conflict in managing driving cessation. At the at odds end, they experienced open conflict and significant tension in their interactions. Contextual factors influencing family dynamics were identified, along with the need for individualized approaches to support.

Conclusions:

The continuum of family dynamics experienced during driving cessation may help clinicians better understand and respond to complex family needs. Interventions should be tailored to families’ distinctive needs with consideration of their unique contextual factors influencing dynamics, to provide sensitive and responsive support for families managing driving cessation.

Copyright
Corresponding author
Correspondence should be addressed to: Dr. Jacki Liddle, Postdoctoral Research Fellow, UQ Centre for Clinical Research, The University of Queensland, Herston 4029, Queensland, Australia. Phone: +61-7-3346-5583; Fax: +61-7-3346-5509. Email: j.liddle@uq.edu.au.
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G. Adler (2010). Driving decision-making in older adults with dementia. Dementia, 9, 4560. doi: 10.1177/1471301209350289.

A. M. Byszewski , F. J. Molnar and F. Aminzadeh (2010). The impact of disclosure of unfitness to drive in persons with newly diagnosed dementia: patient and caregiver perspectives. Clinical Gerontologist, 33, 152163. doi: 10.1080/07317110903552198.

A. M. Byszewski et al. (2003). A continuing medical education initiative for Canadian primary care physicians: the driving and dementia toolkit: a pre- and postevaluation of knowledge, confidence gained, and satisfaction. Journal of the American Geriatrics Society, 51, 14841489. doi: 10.1046/j.1532-5415.2003.51483.x.

J. Carmody , J. Potter , K. Lewis , S. Bhargava , V. Traynor and D. Iverson (2014). Development and pilot testing of a decision aid for drivers with dementia. BMC Med Inform Decis Mak, 14, 19.

J. Carmody , V. Traynor , D. Iverson and E. Marchetti (2013). Driving, dementia and Australian physicians: primum non nocere? Internal Medicine Journal, 43, 625630. doi: 10.1111/imj.12161.

J. Carmody , V. Traynor and E. Marchetti (2015). Barriers to qualitative dementia research: the elephant in the room. Qual Health Res, 25, 10131019.

K. Carter , S. Monaghan , J. O’Brien , A. Teodorczuk , U. Mosimann and J. P. Taylor (2015). Driving and dementia: a clinical decision pathway. Int J Geriatr Psychiatry, 30, 210216.

C. M. Connell , A. Harmon , M. R. Janevic and L. P. Kostyniuk (2013). Older adults’ driving reduction and cessation: perspectives of adult children. Journal of Applied Gerontology, 32, 975996. doi: 10.1177/0733464812448962.

J. Croston , T. M. Meuser , M. Berg-Weger , E. A. Grant and D. B. Carr (2009). Driving retirement in older adults with dementia. Topics in Geriatric Rehabilitation, 25, 154162.

A. L. Curl , J. D. Stowe , T. M. Cooney and C. M. Proulx (2014). Giving up the keys: how driving cessation affects engagement in later life. The Gerontologist, 54, 423433. doi: 10.1093/geront/gnt037.

J. Dewing (2007). Participatory research: a method for process consent with persons who have dementia. Dementia, 6, 1125.

B. M. Dobbs , L. A. Harper and A. Wood (2009). Transitioning from driving to driving cessation: the role of specialized driving cessation support groups for individuals with dementia. Topics in Geriatric Rehabilitation, 25, 73. doi: 10.1097/01.TGR.0000346058.32801.95.

E. E. Freeman , S. J. Gange , B. Munoz and S. K. West (2006). Driving status and risk of entry into long-term care in older adults. American Journal of Public Health, 96, 12541259.

F. Gardezi et al. (2006). Qualitative research on older drivers. Clinical Gerontologist, 30, 522. doi: 10.1300/J018v30n01_02.

J. Liddle , S. Bennett , S. Allen , D. C. Lie , B. Standen and N. A. Pachana (2013). The stages of driving cessation for people with dementia: needs and challenges. International Psychogeriatrics, 25, 20332046. doi: 10.1017/S1041610213001464.

J. Liddle , M. Turpin , G. Carlson and K. McKenna (2008). The needs and experiences related to driving cessation for older people. The British Journal of Occupational Therapy, 71, 379388.

T. M. Meuser , D. B. Carr , M. Berg-Weger , P. Niewoehner and J. C. Morris (2006). Driving and dementia in older adults: implementation and evaluation of a continuing education project. The Gerontologist, 46, 680687. doi: 10.1093/geront/46.5.680.

B. Mezuk and G. W. Rebok (2008). Social integration and social support among older adults following driving cessation. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 63, S298S303. doi: 10.1093/geronb/63.5.S298.

M. A. Perkinson et al. (2005). Driving and dementia of the Alzheimer type: beliefs and cessation strategies among stakeholders. The Gerontologist, 45, 676685.

C. H. Snyder (2005). Dementia and driving: autonomy versus safety. Journal of the American Academy of Nurse Practitioners, 17, 393402. doi: 10.1111/j.1745–7599.2005.00070.x.

M. Sutter , P. B. Perrin , Y.-P. Chang , G. R. Hoyos , J. A. Buraye and J. C. Arango-Lasprilla (2014). Linking family dynamics and the mental health of Colombian dementia caregivers. American Journal of Alzheimer's Disease and Other Dementias, 29, 6775. doi: 10.1177/1533317513505128.

B. D. Taylor and S. Tripodes (2001). The effects of driving cessation on the elderly with dementia and their caregivers. Accident Analysis & Prevention, 33, 519528. doi: http://dx.doi.org/10.1016/S0001-4575(00)00065-8.

C. A. Thompson , K. Spilsbury , J. Hall , Y. Birks , C. Barnes and J. Adamson (2007). Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics, 7, 1818. doi: 10.1186/1471-2318-7-18.

A. Truzzi , L. Valente , I. Ulstein , E. Engelhardt , J. Laks and K. Engedal (2012). Burnout in familial caregivers of patients with dementia. Revista Brasileira de Psiquiatria, 34, 405412. doi: 10.1016/j.rbp.2012.02.006.

M. Vernooij-Dassen , K. Joling , H. van Hout and M. S. Mittelman (2010). The process of family-centered counseling for caregivers of persons with dementia: barriers, facilitators and benefits. International Psychogeriatrics, 22, 769777. doi: doi:10.1017/S1041610210000050.

C. J. Whitlatch , K. Judge , S. H. Zarit and E. Femia (2006). Dyadic intervention for family caregivers and care receivers in early-stage dementia. The Gerontologist, 46, 688694. doi: 10.1093/geront/46.5.688.

B. H. Vrkljan and J. M. Polgar (2007). Driving, navigation, and vehicular technology: experiences of older drivers and their co-pilots. Traffic Injury Prevention, 8, 403410. doi: 10.1080/15389580701576423.

T. D. Windsor , K. J. Anstey , P. Butterworth , M. A. Luszcz and G. R. Andrews (2007). The role of perceived control in explaining depressive symptoms associated with driving cessation in a longitudinal study. The Gerontologist, 47, 215223.

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International Psychogeriatrics
  • ISSN: 1041-6102
  • EISSN: 1741-203X
  • URL: /core/journals/international-psychogeriatrics
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