Skip to main content
    • Aa
    • Aa
  • Get access
    Check if you have access via personal or institutional login
  • Cited by 7
  • Cited by
    This article has been cited by the following publications. This list is generated based on data provided by CrossRef.

    Parkinson, M. Carr, S.M. Rushmer, R. and Abley, C. 2016. Investigating what works to support family carers of people with dementia: a rapid realist review. Journal of Public Health,

    Gross, Nancy Nicolas, Melissa Neigher, Susan McPartland, Shannon Heyes, Melvyn Wrigley, Sandra and Kurlan, Roger 2014. Planning a Patient-Centered Parkinson’s Disease Support Program: Insights from Narrative Medicine. Advances in Parkinson's Disease, Vol. 03, Issue. 04, p. 35.

    Samsi, Kritika Abley, Clare Campbell, Sarah Keady, John Manthorpe, Jill Robinson, Louise Watts, Sue and Bond, John 2014. Negotiating a Labyrinth: experiences of assessment and diagnostic journey in cognitive impairment and dementia. International Journal of Geriatric Psychiatry, Vol. 29, Issue. 1, p. 58.

    Benbow, Susan Mary 2012. Patient and carer participation in old age psychiatry in England. Part II: models of participation. International Psychogeriatrics, Vol. 24, Issue. 02, p. 185.

    Robinson, Louise Gemski, Alan Abley, Clare Bond, John Keady, John Campbell, Sarah Samsi, Kritika and Manthorpe, Jill 2011. The transition to dementia – individual and family experiences of receiving a diagnosis: a review. International Psychogeriatrics, Vol. 23, Issue. 07, p. 1026.

    Wallang, P. 2010. Wittgenstein's legacy and narrative networks: incorporating a meaning-centred approach to patient consultation. The Psychiatrist, Vol. 34, Issue. 4, p. 157.

    2009. Current awareness in geriatric psychiatry. International Journal of Geriatric Psychiatry, Vol. 24, Issue. 8, p. i.


Narratives in a users' and carers' group: meanings and impact

  • Susan M. Benbow (a1), Yong Lock Ong (a2), Sarah Black (a3) and Jane Garner (a4)
  • DOI:
  • Published online: 01 February 2009

Background: Carers who wished to share their experiences with a national working group (the Consumer Group) prepared narratives as a way of identifying areas for discussion.

Methods: The narratives were submitted to one author and subjected to thematic qualitative analysis. The themes were fed back to the Group for discussion.

Results: Five main themes were identified: difficulties in obtaining a diagnosis; acting as an advocate; stresses of caring; practical problems with social care; and emotions experienced by carers.

Conclusions: The narratives provided a means of sharing carers' experiences and creating initiatives for further action by the Group. They have an impact on the people who hear or read them but may also be therapeutic for those who produce them. Narratives can also be a powerful tool in teaching and training, and in identifying areas for service and professional improvement.

Corresponding author
Correspondence should be addressed to: Professor Susan M Benbow, Centre for Ageing & Mental Health, Faculty of Health & Sciences, Staffordshire University, Blackheath Lane, Stafford ST18 0AD, U.K. Phone: +44 (0)1902 575151; Fax: +44 (0)1902 444127. Email:
Linked references
Hide All

This list contains references from the content that can be linked to their source. For a full set of references and notes please see the PDF or HTML where available.

C. R. Anthony-Bergstone , S. H. and Zarit M. Gatz (1988). Symptoms of psychological distress among caregivers of dementing patients. Psychology and Ageing, 3, 245248.

S. M. Benbow , L. and Taylor K. Morgan (2008). Multiple perspectives: involving users and carers in educating health and social care professionals. Quality in Ageing, 9 (2), 1217.

C. H. Espinel (1996). De Kooning's late colours and forms: dementia, creativity and the healing power of art. Lancet, 347, 10961098.

A. W. Frank (1998). Just listening: narratives and deep illness. Families, Systems and Health, 16, 197212.

K. Galvin , L. and Todres M. Richardson (2005). The intimate mediator : a carer's experience of Alzheimer's. Scandinavian Journal of Caring Sciences, 19, 211.

J. Garner (1997). Dementia: an intimate death. British Journal of Medical Psychology, 70, 177184.

T. and Greenhalgh B. Hurwitz (1999). Why study narrative? BMJ, 318, 4851.

O. Haeney , R. Moholkar , N. and Taylor T. Harrison (2007). Service user involvement in psychiatric training: a practical perspective. Psychiatric Bulletin, 31, 312314. DOI: 10.1192/pb.bp.106.013714.

D. K. Mumby (ed.) (1993). Narrative and Social Control: Critical Perspectives. Newbury Park, CA: Sage.

P. Wallang (2006). The use of literary analysis in advanced communication. Psychiatric Bulletin, 30, 432434.

Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

International Psychogeriatrics
  • ISSN: 1041-6102
  • EISSN: 1741-203X
  • URL: /core/journals/international-psychogeriatrics
Please enter your name
Please enter a valid email address
Who would you like to send this to? *