Skip to main content Accessibility help
×
×
Home

Participation of end users in the design of assistive technology for people with mild to severe cognitive problems; the European Rosetta project

  • F. J. M. Meiland (a1), B. J. J. Hattink (a2), T. Overmars-Marx (a3), M. E. de Boer (a4), A. Jedlitschka (a5), P. W. G. Ebben (a6), Ir. I. N. W. Stalpers-Croeze (a7), S. Flick (a8), J. van der Leeuw (a3), I. P. Karkowski (a9) and R. M. Dröes (a1)...

Abstract

Background:

In the European Rosetta project three separate, previously developed, ICT systems were improved and integrated to create one modular system that helps community-dwelling people with mild cognitive impairment and dementia in different stages of the disease. The system aims to support them in daily functioning, monitor (deviations from) patterns in daily behaviour and to automatically detect emergency situations. The study aimed to inventory the end users’ needs and wishes regarding the development and design of the new integrated Rosetta system, and to describe the to be developed Rosetta system.

Methods:

Qualitative user-participatory design with in total 50 persons: 14 people with dementia, 13 informal carers, 6 professional carers, 9 dementia experts, 7 care partners within the project, and 1 volunteer. In the Netherlands user focus group sessions were performed and in Germany individual interviews. Dementia experts were consulted by means of a questionnaire, an expert meeting session, and interviews.

Results:

Persons with dementia and informal carers appreciated the following functionalities most: help in cases of emergencies, navigation support and the calendar function. Dementia experts rated various behaviours relevant to monitor in order to detect timely changes in functioning, e.g. eating, drinking, going to the toilet, taking medicine adequately, performance of activities and sleep patterns. No ethical issues regarding the use of sensors and cameras were mentioned.

Conclusion:

The user participatory design resulted in valuable input from persons with dementia, informal carers and professional carers/dementia experts, based on which a first prototype Rosetta system was built.

Copyright

Corresponding author

Correspondence should be addressed to: Dr. F. J. M. Meiland, Department of General Practice and Elderly Care Medicine, VU University Medical Center, Van der Boechorststraat 7, 1081 BT Amsterdam, the Netherlands. Phone: +31-20-4449366; Fax: +31-20-4448234. Email: fj.meiland@vumc.nl.

References

Hide All
Beauchamp, N., Irvine, A. B., Seeley, J. and Johnson, B. (2005). Worksite-based Internet multimedia program for family caregivers of persons with dementia. The Gerontologist, 45, 793801.
Bharucha, A. J. et al. (2009) Intelligent assistive technology applications to dementia care: current capabilities, limitations and future challenges. American Journal of Geriatric Psychiatry, 17, 88104.
Blackburn, P. (1988). Freedom to wander. Nursing Times, 84, 5455.
Engström, M., Ljunggren, B., Lindqvist, R. and Carlsson, M. (2005). Staff perceptions of job satisfaction and life situation before and 6 and 12 months after increased information technology support in dementia care. Journal of Telemedicine and Telecare, 11, 304309.
Gilliard, J. and Hagen, I. (2004) Enabling technologies for people with dementia. Cross-national analysis report. (pp.1–69). D4.4.1. QLK-CT-2000-00653.
Health Council of the Netherlands (2002). Dementie [Dementia]. The Hague: Health Council of the Netherlands.
Ikarashi, A., Magara, K., Nonaka, S. and Ohno, H. (2002). The searching system for wandering demented aged person using GPS. Transactions of the Institute of Electrical Engineers of Japan, Part D 122-D, 6, 609–16.
Jans, A., Overmars-Marx, T., Van Hoof, J. and Kort, H. S. M. (2009) Evaluatieonderzoek van het UAS-project van Zorgpalet Baarn-Soest, Zorg aan huis [Evaluation study of UAS project Zorgpalet Baarn-Soest, Care at home]. Utrecht: Vilans.
Jones, K. (2004). Enabling Technologies for People with Dementia. Report of the Assessment Study in England (Rep. No. D.4.1.1).
Lauriks, S. et al. (2007). Review of ICT-based services for identified unmet needs in people with dementia. Ageing Research Reviews, 6, 223246.
Lewis, M. L., Hobday, J. V. and Hepburn, K. W. (2010). Internet-based program for dementia caregivers. American Journal of Alzheimer's Disease and Other Dementias, 25, 674679.
LoPresti, E. F., Mihailidis, A. and Kirsch, N. (2004). Assistive technology for cognitive rehabilitation: state of the art. Neuropsychological Rehabilitation, 14, 539.
Meiland, F. J. M. et al. (2010). User-participatory development of assistive technology for people with dementia – from needs to functional requirements. First results of the COGKNOW project. Non-Pharmacological Therapies in Dementia, 1, 7191.
Meiland, F. J. M. et al. (2012). Functional requirements for assistive technologies for people with cognitive impairments. In: Wichert, R., Van Laerhoven, K. and Gelissen, J. (eds.), Constructing Ambient Intelligence: AmI 2011 Workshops CCIS vol 277 (pp.146151). Heidelberg: Springer Verlag.
O'Keeffe, J., Maier, J. and Freiman, M. P. (2010), Assistive Technology for People with Dementia and Their Caregivers at Home: What Might Help. Final Report, RTI International, North Carolina, USA.
Orpwood, R., Bjørneby, S., Hagen, I., Mäki, O., Faulkner, R. and Topo, P. (2004). User involvement in dementia product development. Dementia, the International Journal of Social Research and Practice, 3, 263279.
Prince, M. and Jackson, J. (2009). Alzheimer's Disease International World Alzheimer Report 2009. Downloaded at http://www.alz.co.uk/research/files/WorldAlzheimerReport.pdf
Reisberg, B., Ferris, S. H., de Leon, M. J. and Crook, T. (1982). The Global Deterioration Scale for assessment of primary degenerative dementia. American Journal of Psychiatry, 139, 11361139.
Reynolds, T. et al. (2000). Camberwell Assessment of Need for the Elderly (CANE). Development, validity and reliability. British Journal of Psychiatry, 176, 444452.
Sixsmith, A. J., Gibson, G., Orpwood, R. D. and Torrington, J. M. (2007). Developing a technology ‘wish-list’ to enhance the quality of life of people with dementia. Gerontechnology, 6, 219.
Smith, T. L. and Toseland, R. W. (2006). The effectiveness of a telephone support program for caregivers of frail older adults. The Gerontologist, 46, 620629.
Span, M., Hettinga, M., Vernooij-Dassen, M., Eefsting, J. and Smits, C. (2013). Involving people with dementia in the development of supportive IT applications: a systematic review. Aging Research Reviews, 12, 535551.
Storf, H. et al (2009). An event-driven approach to activity recognition. In Tscheligi, M. et al. (eds.), Ambient Assisted Living (pp. 123132). AmI 2009, LNCS 5859. Berlin, Heidelberg: Springer-Verlag.
Topo, P. (2009). Technology studies to meet the needs of people with dementia and their caregivers: a literature review. Journal of applied Gerontology, 28, 537.
Van der Roest, H. G. et al. (2009). What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services. International Psychogeriatrics, 21, 949965.
Van Hoof, J., Kort, H. S. M., Van Waarde, H. and Blom, M. M. (2010). Environmental Interventions and the design of homes for older adults with dementia: an overview. American Journal of Alzheimers Disease and Other Dementias, 25, 202.
Van Mierlo, L. D., Meiland, F. J. M. and Dröes, R. M. (2012). Dementelcoach: effect of telephone coaching on carers of community dwelling people with dementia. International Psychogeriatrics, 24, 212222.
Wancata, J., Musalek, M., Alexandrowicz, R. and Krautgartner, M. (2003). Number of dementia sufferers in Europe between the years 2000 and 2050. European Psychiatry, 18, 306313.
Wherton, J. P. and Monk, A. F. (2008). Technological opportunities for supporting people with dementia who are living at home. International Journal of Human-Computer studies, 66, 8, 571–86.
Wilkinson, H. (2002). Including people with dementia in research: methods and motivations. In Wilkinson, H. (ed.), The Perspectives of People With Dementia, Research Methods and Motivation (pp. 924). London: Jessica Kingsley.
Recommend this journal

Email your librarian or administrator to recommend adding this journal to your organisation's collection.

International Psychogeriatrics
  • ISSN: 1041-6102
  • EISSN: 1741-203X
  • URL: /core/journals/international-psychogeriatrics
Please enter your name
Please enter a valid email address
Who would you like to send this to? *
×

Keywords

Metrics

Altmetric attention score

Full text views

Total number of HTML views: 0
Total number of PDF views: 0 *
Loading metrics...

Abstract views

Total abstract views: 0 *
Loading metrics...

* Views captured on Cambridge Core between <date>. This data will be updated every 24 hours.

Usage data cannot currently be displayed